Here are a few ideas from one of my other groups-





Check out the following links:

1.       <http://www.familycaregiving101.org/> family caregiving 101
<http://www.familycaregiving101.org/> http://www.familycaregiving101.org/

2.       <http://www.nfcacares.org/> national family caregivers Association
<http://www.nfcacares.org/> http://www.nfcacares.org/


3.       <http://www.fscip.org/> Foundation for Spinal Cord Injury
Prevention, Care & Cure  The Foundation for Spinal Cord Injury Prevention,
Care & Cure (FSCIPCC) is a free ...please send an email message to
info@... or call 1-800-342-0330. ...
www.fscip.org/








-----------------------------------------------------------





"When I have symptoms that cannot be explained, I would begin looking at

the prescriptions and dosage. A pharmacist will be far more

knowledgeable as to side effects or negative interactions with other

prescriptions or herbal supplements. If that doesn't give any insight,

then I think a visit to her cardiologist would be worthy of an

ultrasound followed by a CT scan of the heart. I hope this helps.



Jim"







-----------------------------------------------------------

From: kurt christensen <kurtc415@...>
Date: Fri, Feb 13, 2009 at 5:21 PM
Subject: Mother C3/4 with low blood sugar
To: womenwithsci@yahoogroups.com



Is she pre diabetic?  Does she get enuf complex carbs and protein divided in
the day?  what time does the low b.s.happen?  that could be a clue.  Is she
anemic?  Low hemoglobin which carries oxygen could play a role.  My husband
gets vey sleepy and low heart rate and blood Pressure when his potassium is
low due to diuritics leaching out potasium from his body. Perhaps some blood
tests to check these.

hope these ideas lead you to an answer.





Susan C

--
Kurt Christensen
1391 Fritz Rd.
Verona, WI 53593
cell phone number 608-852-6853
home phone number 608-845-8525



________________________________



From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com]

On Behalf Of shirley_vaughan

Sent: Thursday, February 12, 2009 11:19 PM

To: womenwithsci@yahoogroups.com

Subject: [Women with SCI] Help! Can't find out why mother has

dangerously low blood pressure







Hi, I'm taking care of my my mother C3/C4 complete and she keeps

running into problems with her blood pressure tanking. I've had to take

her to the hospital two times and she would have died if I hadn't, it

was 48/34 when she went unconcious. Also, low oxygen level and high

fever. Anyone on this site taking care of a loved one run into this

problem, if so, what caused it? Any info would be appreciated.





[Non-text portions of this message have been removed]

Hi, I'm taking care of my my mother C3/C4 complete and she keeps
running into problems with her blood pressure tanking. I've had to take
her to the hospital two times and she would have died if I hadn't, it
was 48/34 when she went unconcious. Also, low oxygen level and high
fever. Anyone on this site taking care of a loved one run into this
problem, if so, what caused it? Any info would be appreciated.

O my goodness moving is not fun! When we moved here we were only able to find a
1 br SMALL apt. soo we took it, (oh yeah did i mention we were renting from one
of my co-workers?) well, she and her dad (still lives at home) decided that they
wanted to turn our apt into a office for her, soooooooooo we had to be out by
Jan 3.....well that didn't happen so they gave me 30 days. Luckily I found
something, because our other option would have been moving back to Carlsbad,
living with my grandpa which would have ment loosing our jobs. Anyhow I guess
there is just no pleaseing the world huh? (not always anyhow) well the move was
def. for the better bcos the other apt didn't have no heater or ac (we had
electric heaters 2), and it was just a 1br. we had just moved from a 3br to a 1
br so the majority of our things were/are still n storage. My daughter had a
outdoors playhouse we had stacked our dining room table on top of it....yeah it
colapsed the roof!!! :(
  This has been a major adjustment to the 3 of us, and I think for the first time
i am completely Happy! I mean life COULD be worse, but it's not..... :) I love
this group....feels like i have connections with all of you! :) I am in the
midst of a cold or sinus infection, I don't know the difference between the 2. I
do know that Nyquil does not make me sleep which is why i am up at 5am!! lol
hope all is going good for everybody looking forward to hearing back :)
Rebeccca

 




[Non-text portions of this message have been removed]

Hey Congrats on school. 
Good luck in Algebra.
Did you get all unpacked? or are you
cruising around and thru the boxes?
mary




________________________________
From: Rebecca Sanchez <mrsldyinwheels@...>
To: womenwithsci@yahoogroups.com
Sent: Thursday, February 5, 2009 1:19:39 PM
Subject: Re: [Women with SCI] moving and finals... Good luck!


Hell All!!!
  Got a C on my final!!! YEAAAAAAAAA :) (trust me good for a basic math class!)
Now I gotta take Algebra YIKES! wish me luck! :) i don't start the class til
Feb. 16th. Moving went good also... :) will write soon! sorry so short!
 
Rebecca n New Mexico

 

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Hell All!!!
  Got a C on my final!!! YEAAAAAAAAA :) (trust me good for a basic math class!)
Now I gotta take Algebra YIKES! wish me luck! :) i don't start the class til
Feb. 16th. Moving went good also... :) will write soon! sorry so short!
 
Rebecca n New Mexico

 




[Non-text portions of this message have been removed]

Hi Theresa,

Great advice.  Now tell me when you were the mother of the bride/groom how did
that go.  I listen to music from the 70,80 and 90.  Since I am a former ballroom
dancer still like to build choreography's is my mind.

Liza




________________________________
From: theresa hebert <Rodalways70512@...>
To: womenwithsci@yahoogroups.com
Sent: Tuesday, February 3, 2009 6:40:40 PM
Subject: Re: [Women with SCI] HI


Hi All,
 It sure is not the easiest thing to have a child and deal with all you have to
deal with just being in a chair. I think having my children taught me alot about
myself, never did I think I could deal with a baby and be in a chair. But it
really came natural, of course I had a 3 year old at the time of my accident, so
in a way bringing another child into our life was just a blessing. Of course
sure some thought I was completely nuts, haaaaaaaaaaa. Anyway my oldest was 9 at
the time I had my second, and not like she really helped, but just was easier
her being older. When my son was born 4 years later, I said okay that's enough
kids, cause actually I didn't even think of getting pregnant, don't ask why it
never cross my mind , cause I was having regular periods. Here's a good one for
ya'll , when my son was 4 months old he weighed 22 lbs, can you imagine picking
him up, haaaaa. Wouldn't have traded him for the world. I miss my babies being
babies, but I
do have 4 grankids who are my reason to go on. Bryce ,12, Grant ,7, Hannah, 10,
and Alexis 6. I don't think it ever crossed the minds of the kids that went to
school with my children as to why their mom was in a wheelchair cause most of
the kids knew me. We live in a very small town and most people know each other
or their family. Just like at my grandkids school, they go to the same school my
kids went to and not once has a child asked why was I in a chair. Some stare,
but I think my granddaughters have told some, oh, she was in a wreck and broke
her neck and when you do that you can't walk anymore. Kids will be kids and say
whatever comes to mind, so just like life whatever comes up, deal with it or
not. I choose to live my life day by day and have no regrets about anything, oh
one, am getting older, but actually would never want to be in the dating world
nowadays.
 I'm not sure how to start this, so just will ask, What if any type of music
does everyone listen to?? Have to tell ya'll ,I am a die hard ROD STEWART fan
and go to as many of his concerts as I can. Hubby says he wish he would retire,
but told him, but then what would I do. If anyone has seen him in concert sure
they would agree with me that he puts on one great show. And of course he kicks
soccer balls out to the crowd, ( more on that later), and I am lucky enough to
have come home with 2 signed soccer balls by him. My grandkids always ask to
play with them, but no way will that happen. Hubby and son-in-law said when I
die they are going to sell them, I told them I wanted to be buried with them,
but they said I'll never know. Told them I will come back and haunt them if they
don't bury them with me. Ok girls, my back is killing me and almost time for
american idol, I don't usually watch all the way through, but like the early
shows to see who gets cut.
This has been great that this site finally has some action, keep it going girls,
looking forward to next letter. Take care and stay warm if it is cold where you
are.
Later, Theresa in Louisiana
REASON TO BELIEVE

--- On Tue, 2/3/09, Liza Perez <lmp9107@yahoo. com> wrote:
From: Liza Perez <lmp9107@yahoo. com>
Subject: Re: [Women with SCI] HI
To: womenwithsci@ yahoogroups. com
Date: Tuesday, February 3, 2009, 10:27 AM

Hi Rebecca,

OK,how did you handle your girl  and the grocery cart all by yourself?  My girls
friends often have questions regarding how I  do  things and they encourage them
to ask me.  They are very proud of all the things I can do and I also tell them
that this is an opportunity to teach other people.  I am not planning to have
more kids but will like to be an active grandma so thanks for the tips and
please keep them coming.  Because your girl is young this is a good time to
network with other parents, it becomes a little more difficult in middle school.
Be very proactive and volunteer as much as possible is her school.  They are
always is need of helpers.  I learn this from one of my male mentors,  "never
hesitate to ask for help". 

Like someone once said "To accomplish great things, we must not only act but
also dream, not only plan but also believe"

 Liza

____________ _________ _________ __

From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>

To: womenwithsci@ yahoogroups. com

Sent: Monday, February 2, 2009 10:40:14 PM

Subject: [Women with SCI] HI

Hi Lisa!

   My daughter is only 5yrs so hope that i can help you even just a little
bit..... :) OKay i admit having a baby and being n a w/c was not the easist
thing n the world! Until my daughter reached the stage where she could sit up on
her own, it was very difficult but i managed... :) when she reached the stage
where she could sit up on her own, i used one of those things that you use to
carry ur baby in u drap and fasten it on, then put the baby in it, it made it
easy and it was safe for both of us......I think toddlers know that you are in a
w/c i didn't really have a problem with her, of course there were the times that
she would run away from me n walmart, but i just had to be patient and teach her
that i could not run after her, and i had her hold on to the arm of my w/c which
she still does to this day.... I think the scareist thought for me (and maybe
cos we didn't have her in daycare much) was when i sent her off to school (head
start) wow that

was an emotional time! It was hard on me becuase the kids would ask her 'what
happend to your mommy", and i'd go home and cry...i contemplated the thought of
telling the kids myself but on thier terms that they can understand. however,
somebody once told me to leave her be and when shes ready she'll tell them, it's
her life and not to make my life into hers by forcing her to tell. i dont know
if anyone has ever heard of him but there is a song called "Walking on my
Wheels" by Dan Crow, it's for childern, its cute and says it in thier
terms...but again, i gotta let her do it herself. Of course when i went grocery
shopping w/my tot in tow, i'd get the mean glances but so what! i have EVERY
RIGHT to be at the store just the same as an 'abled bodied' person..... it would
be nice to hear from others on this:) sorry if i wasn't informative as i should
be..... i'll think back and see if i can pull some other tips from my mem. LOL
however through it all,

remember you can hug them, kiss them, and love them and you don't need legs for
that!!! :)

 

Rebecca :)

 

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Hi All,
 It sure is not the easiest thing to have a child and deal with all you have to
deal with just being in a chair. I think having my children taught me alot about
myself, never did I think I could deal with a baby and be in a chair. But it
really came natural, of course I had a 3 year old at the time of my accident, so
in a way bringing another child into our life was just a blessing. Of course
sure some thought I was completely nuts, haaaaaaaaaaa. Anyway my oldest was 9 at
the time I had my second, and not like she really helped, but just was easier
her being older. When my son was born 4 years later, I said okay that's enough
kids, cause actually I didn't even think of getting pregnant, don't ask why it
never cross my mind , cause I was having regular periods. Here's a good one for
ya'll , when my son was 4 months old he weighed 22 lbs, can you imagine picking
him up, haaaaa. Wouldn't have traded him for the world. I miss my babies being
babies, but I
  do have 4 grankids who are my reason to go on. Bryce ,12, Grant ,7, Hannah, 10,
and Alexis 6. I don't think it ever crossed the minds of the kids that went to
school with my children as to why their mom was in a wheelchair cause most of
the kids knew me. We live in a very small town and most people know each other
or their family. Just like at my grandkids school, they go to the same school my
kids went to and not once has a child asked why was I in a chair. Some stare,
but I think my granddaughters have told some, oh, she was in a wreck and broke
her neck and when you do that you can't walk anymore. Kids will be kids and say
whatever comes to mind, so just like life whatever comes up, deal with it or
not. I choose to live my life day by day and have no regrets about anything, oh
one, am getting older, but actually would never want to be in the dating world
nowadays.
 I'm not sure how to start this, so just will ask, What if any type of music
does everyone listen to?? Have to tell ya'll ,I am a die hard ROD STEWART fan
and go to as many of his concerts as I can. Hubby says he wish he would retire,
but told him, but then what would I do. If anyone has seen him in concert sure
they would agree with me that he puts on one great show. And of course he kicks
soccer balls out to the crowd, ( more on that later), and I am lucky enough to
have come home with 2 signed soccer balls by him. My grandkids always ask to
play with them, but no way will that happen. Hubby and son-in-law said when I
die they are going to sell them, I told them I wanted to be buried with them,
but they said I'll never know. Told them I will come back and haunt them if they
don't bury them with me. Ok girls, my back is killing me and almost time for
american idol, I don't usually watch all the way through, but like the early
shows to see who gets cut.
  This has been great that this site finally has some action, keep it going
girls, looking forward to next letter. Take care and stay warm if it is cold
where you are.
Later, Theresa in Louisiana
REASON TO BELIEVE

--- On Tue, 2/3/09, Liza Perez <lmp9107@...> wrote:
From: Liza Perez <lmp9107@...>
Subject: Re: [Women with SCI] HI
To: womenwithsci@yahoogroups.com
Date: Tuesday, February 3, 2009, 10:27 AM











             Hi Rebecca,



OK,how did you handle your girl  and the grocery cart all by yourself?  My girls
friends often have questions regarding how I  do  things and they encourage them
to ask me.  They are very proud of all the things I can do and I also tell them
that this is an opportunity to teach other people.  I am not planning to have
more kids but will like to be an active grandma so thanks for the tips and
please keep them coming.  Because your girl is young this is a good time to
network with other parents, it becomes a little more difficult in middle school.
Be very proactive and volunteer as much as possible is her school.  They are
always is need of helpers.  I learn this from one of my male mentors,  "never
hesitate to ask for help". 



Like someone once said "To accomplish great things, we must not only act but
also dream, not only plan but also believe"



 Liza



____________ _________ _________ __

From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>

To: womenwithsci@ yahoogroups. com

Sent: Monday, February 2, 2009 10:40:14 PM

Subject: [Women with SCI] HI



Hi Lisa!

   My daughter is only 5yrs so hope that i can help you even just a little
bit..... :) OKay i admit having a baby and being n a w/c was not the easist
thing n the world! Until my daughter reached the stage where she could sit up on
her own, it was very difficult but i managed... :) when she reached the stage
where she could sit up on her own, i used one of those things that you use to
carry ur baby in u drap and fasten it on, then put the baby in it, it made it
easy and it was safe for both of us......I think toddlers know that you are in a
w/c i didn't really have a problem with her, of course there were the times that
she would run away from me n walmart, but i just had to be patient and teach her
that i could not run after her, and i had her hold on to the arm of my w/c which
she still does to this day.... I think the scareist thought for me (and maybe
cos we didn't have her in daycare much) was when i sent her off to school (head
start) wow that

was an emotional time! It was hard on me becuase the kids would ask her 'what
happend to your mommy", and i'd go home and cry...i contemplated the thought of
telling the kids myself but on thier terms that they can understand. however,
somebody once told me to leave her be and when shes ready she'll tell them, it's
her life and not to make my life into hers by forcing her to tell. i dont know
if anyone has ever heard of him but there is a song called "Walking on my
Wheels" by Dan Crow, it's for childern, its cute and says it in thier
terms...but again, i gotta let her do it herself. Of course when i went grocery
shopping w/my tot in tow, i'd get the mean glances but so what! i have EVERY
RIGHT to be at the store just the same as an 'abled bodied' person..... it would
be nice to hear from others on this:) sorry if i wasn't informative as i should
be..... i'll think back and see if i can pull some other tips from my mem. LOL
however through it all,

remember you can hug them, kiss them, and love them and you don't need legs for
that!!! :)

 

Rebecca :)



 



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

Hi Rebecca,
I have been lucky that I have not had to move since my injury. I bought my first
home 13 months before my accident.  I have done so many renovations and have
made the house very accessible.  I have been in the cellar once but having
someone carry me down the STEEP, RICKETY stairs was too stressful.  Can get
everywhere else in the house.  Whether I chose to is another story. I figure
that when I do finally move I will sell the house with everything in it.  I can
not imagine packing up everything.
Like you my family does not live close by. They don't even live in the state. I 
have made great friends who are really helpful when I need their help.    I do
miss my family and talk to my parents everyday.
Good luck unpacking.
mary 




________________________________
From: Rebecca Sanchez <mrsldyinwheels@...>
To: womenwithsci@yahoogroups.com
Sent: Monday, February 2, 2009 11:23:11 PM
Subject: [Women with SCI] thx!


Thanks! Completed my final, he hasn't graded it yet!! so fustrating! lol
butttttttttt i did go to our new apt. today it looks okay, i guess i'm just
nervous about moving AGAIN... i feel horrible cos the last house we lived in we
lived there since my daughter was 5mo's old, we moved to a new city which is
only a hour away from my hometown, but we have no family here just eachother...
me, husband, and daughter...maybe thats a good thing idk.... :) i'm hoping that
by nxt year we'll have saved enuff money to buy a house that would be sooo
AWESOME! :)
how's things over on ur side of the world?
Rebecca

--- On Mon, 2/2/09, Monica KamalRossa <xena-rolls@charter. net> wrote:

From: Monica KamalRossa <xena-rolls@charter. net>
Subject: [Women with SCI] moving and finals... Good luck!
To: womenwithsci@ yahoogroups. com
Date: Monday, February 2, 2009, 1:27 PM

Hi Rebecca,

Good luck with moving. I enjoyed the story with you and your grandmother. I
laughed so hard.

May your mood be bright and your mind very sharp for finals. Knock 'em dead!

Have a great day!

Monica KamalRossa
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsc i@ yahoogroups. com] On
Behalf Of Rebecca Sanchez
Sent: Sunday, February 01, 2009 7:26 PM
To: womenwithsci@ yahoogroups. com
Subject: RE: [Women with SCI] Hi!!!

Hey Monica!!!!
How are you? Thanks for the information! I am currently working for a
independent living center and we are trying to get ideas to start up
activities for those with SCI, and thier families! Also i think it'd be
awesome to join!!! :) I just finished my final for school so I'll join
tomarrow after work.... :) Only 1 more class left whoo hoo!!! Oh and If you
all don't hear from me in a couple of days, we are in the middle of moving!
YUCK!!!! wish me luck on moving and my final! :) Talk to you all soon!

Rebecca

--- On Sun, 2/1/09, Monica KamalRossa <xena-rolls@ charter.
<mailto:xena- rolls%40charter. net> net> wrote:

From: Monica KamalRossa <xena-rolls@ charter.
<mailto:xena- rolls%40charter. net> net>
Subject: RE: [Women with SCI] Hi!!!
To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups. com
Date: Sunday, February 1, 2009, 4:31 PM

Hi Rebecca,

It is free to be an online member. No you don't have to live in Madison. If
you are ever in the neighborhood, you can join us for events or meetings!
:-)

Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
<http://www.SCI- Madison.org> www.SCI-Madison. org
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsc i@ yahoogroups. com]
On
Behalf Of Rebecca Sanchez
Sent: Saturday, January 31, 2009 7:17 PM
To: womenwithsci@ yahoogroups. com
Subject: RE: [Women with SCI] Hi!!!

WOW!
the group is amazing!!! Do you have to live there to become a member? is
there a charge? Is it hard to start up?

Rebecca
---

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

If you can not get a regular appointment the go to the emergency room.  They can
not turn anyone back.  I will probably look into someone with special interest
is dystonia.  I have a friend that smokes occasionally and he swears by it, so
it that helps go for it.

PS please don't get burn or arrested!!!




________________________________
From: cnichie <cnichie@...>
To: womenwithsci@yahoogroups.com
Sent: Monday, February 2, 2009 8:17:50 PM
Subject: [Women with SCI] Is there any such thing as a nuero specialist that
answers questions online?


I am really unable to go to a doctor right now but I just have a couple
of questions about my injury / condition that I would like to ask an
expert?
c4-7 replacement (10-19-06),post traumatic injury, with continued
parastesis(? ) (numbness) on right side from nipple down I am "turned
on" electrically 24/7 like when your butt goes to sleep and you try to
stand up on it. The worst part though is the dystonia, (uncontrollable
spasmodic episodes).

For the record, I have stopped taking all the meds except for an
occaisional valium after a nasty episode. But I do smoke a little
wacky-tobbacky, it helps turn down the electricity a little!






[Non-text portions of this message have been removed]

Hi Rebecca,

OK,how did you handle your girl  and the grocery cart all by yourself?  My girls
friends often have questions regarding how I  do  things and they encourage them
to ask me.  They are very proud of all the things I can do and I also tell them
that this is an opportunity to teach other people.  I am not planning to have
more kids but will like to be an active grandma so thanks for the tips and
please keep them coming.  Because your girl is young this is a good time to
network with other parents, it becomes a little more difficult in middle school.
Be very proactive and volunteer as much as possible is her school.  They are
always is need of helpers.  I learn this from one of my male mentors,  "never
hesitate to ask for help". 

Like someone once said "To accomplish great things, we must not only act but
also dream, not only plan but also believe"

 Liza


________________________________
From: Rebecca Sanchez <mrsldyinwheels@...>
To: womenwithsci@yahoogroups.com
Sent: Monday, February 2, 2009 10:40:14 PM
Subject: [Women with SCI] HI


Hi Lisa!
   My daughter is only 5yrs so hope that i can help you even just a little
bit..... :) OKay i admit having a baby and being n a w/c was not the easist
thing n the world! Until my daughter reached the stage where she could sit up on
her own, it was very difficult but i managed... :) when she reached the stage
where she could sit up on her own, i used one of those things that you use to
carry ur baby in u drap and fasten it on, then put the baby in it, it made it
easy and it was safe for both of us......I think toddlers know that you are in a
w/c i didn't really have a problem with her, of course there were the times that
she would run away from me n walmart, but i just had to be patient and teach her
that i could not run after her, and i had her hold on to the arm of my w/c which
she still does to this day.... I think the scareist thought for me (and maybe
cos we didn't have her in daycare much) was when i sent her off to school (head
start) wow that
was an emotional time! It was hard on me becuase the kids would ask her 'what
happend to your mommy", and i'd go home and cry...i contemplated the thought of
telling the kids myself but on thier terms that they can understand. however,
somebody once told me to leave her be and when shes ready she'll tell them, it's
her life and not to make my life into hers by forcing her to tell. i dont know
if anyone has ever heard of him but there is a song called "Walking on my
Wheels" by Dan Crow, it's for childern, its cute and says it in thier
terms...but again, i gotta let her do it herself. Of course when i went grocery
shopping w/my tot in tow, i'd get the mean glances but so what! i have EVERY
RIGHT to be at the store just the same as an 'abled bodied' person..... it would
be nice to hear from others on this:) sorry if i wasn't informative as i should
be..... i'll think back and see if i can pull some other tips from my mem. LOL
however through it all,
remember you can hug them, kiss them, and love them and you don't need legs for
that!!! :)
 
Rebecca :)

 

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Hi Lisa!
   My daughter is only 5yrs so hope that i can help you even just a little
bit..... :) OKay i admit having a baby and being n a w/c was not the easist
thing n the world! Until my daughter reached the stage where she could sit up on
her own, it was very difficult but i managed... :) when she reached the stage
where she could sit up on her own, i used one of those things that you use to
carry ur baby in u drap and fasten it on, then put the baby in it, it made it
easy and it was safe for both of us......I think toddlers know that you are in a
w/c i didn't really have a problem with her, of course there were the times that
she would run away from me n walmart, but i just had to be patient and teach her
that i could not run after her, and i had her hold on to the arm of my w/c which
she still does to this day.... I think the scareist thought for me (and maybe
cos we didn't have her in daycare much) was when i sent her off to school (head
start) wow that
  was an emotional time! It was hard on me becuase the kids would ask her 'what
happend to your mommy", and i'd go home and cry...i contemplated the thought of
telling the kids myself but on thier terms that they can understand. however,
somebody once told me to leave her be and when shes ready she'll tell them, it's
her life and not to make my life into hers by forcing her to tell. i dont know
if anyone has ever heard of him but there is a song called "Walking on my
Wheels" by Dan Crow, it's for childern, its cute and says it in thier
terms...but again, i gotta let her do it herself. Of course when i went grocery
shopping w/my tot in tow, i'd get the mean glances but so what! i have EVERY
RIGHT to be at the store just the same as an 'abled bodied' person..... it would
be nice to hear from others on this:) sorry if i wasn't informative as i should
be..... i'll think back and see if i can pull some other tips from my mem. LOL
however through it all,
  remember you can hug them, kiss them, and love them and you don't need legs for
that!!! :)
 
Rebecca :)

 




[Non-text portions of this message have been removed]

Thanks! Completed my final, he hasn't graded it yet!! so fustrating! lol
butttttttttt i did go to our new apt. today it looks okay, i guess i'm just
nervous about moving AGAIN... i feel horrible cos the last house we lived in we
lived there since my daughter was 5mo's old, we moved to a new city which is
only a hour away from my hometown, but we have no family here just
eachother...me, husband, and daughter...maybe thats a good thing idk.... :) i'm
hoping that by nxt year we'll have saved enuff money to buy a house that would
be sooo AWESOME! :)
how's things over on ur side of the world?
Rebecca


--- On Mon, 2/2/09, Monica KamalRossa <xena-rolls@...> wrote:

From: Monica KamalRossa <xena-rolls@...>
Subject: [Women with SCI] moving and finals... Good luck!
To: womenwithsci@yahoogroups.com
Date: Monday, February 2, 2009, 1:27 PM






Hi Rebecca,

Good luck with moving. I enjoyed the story with you and your grandmother. I
laughed so hard.

May your mood be bright and your mind very sharp for finals. Knock 'em dead!

Have a great day!

Monica KamalRossa
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsci@ yahoogroups. com] On
Behalf Of Rebecca Sanchez
Sent: Sunday, February 01, 2009 7:26 PM
To: womenwithsci@ yahoogroups. com
Subject: RE: [Women with SCI] Hi!!!

Hey Monica!!!!
How are you? Thanks for the information! I am currently working for a
independent living center and we are trying to get ideas to start up
activities for those with SCI, and thier families! Also i think it'd be
awesome to join!!! :) I just finished my final for school so I'll join
tomarrow after work.... :) Only 1 more class left whoo hoo!!! Oh and If you
all don't hear from me in a couple of days, we are in the middle of moving!
YUCK!!!! wish me luck on moving and my final! :) Talk to you all soon!

Rebecca

--- On Sun, 2/1/09, Monica KamalRossa <xena-rolls@ charter.
<mailto:xena- rolls%40charter. net> net> wrote:

From: Monica KamalRossa <xena-rolls@ charter.
<mailto:xena- rolls%40charter. net> net>
Subject: RE: [Women with SCI] Hi!!!
To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups. com
Date: Sunday, February 1, 2009, 4:31 PM

Hi Rebecca,

It is free to be an online member. No you don't have to live in Madison. If
you are ever in the neighborhood, you can join us for events or meetings!
:-)

Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
<http://www.SCI- Madison.org> www.SCI-Madison. org
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsc i@ yahoogroups. com]
On
Behalf Of Rebecca Sanchez
Sent: Saturday, January 31, 2009 7:17 PM
To: womenwithsci@ yahoogroups. com
Subject: RE: [Women with SCI] Hi!!!

WOW!
the group is amazing!!! Do you have to live there to become a member? is
there a charge? Is it hard to start up?

Rebecca
---

[Non-text portions of this message have been removed]

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Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

I am really unable to go to a doctor right now but I just have a couple
of questions about my injury / condition that I would like to ask an
expert?
c4-7 replacement (10-19-06),post traumatic injury, with continued
parastesis(?) (numbness) on right side from nipple down   I am "turned
on" electrically 24/7 like when your butt goes to sleep and you try to
stand up on it. The worst part though is the dystonia, (uncontrollable
spasmodic episodes).

For the record, I have stopped taking all the meds except for an
occaisional valium after a nasty episode.  But I do smoke a little
wacky-tobbacky, it helps turn down the electricity a little!

Hi.

I am also the mother of daughters age 11 and a son 21.  Have being  in a wc for
three years and still learning.
Reading your stories have fill my day with enthusiasm I have so many questions. 
How to take care of a toddler? How to handle the protocol of a weeding?  Did you
wait at the altar? ect.  It never stop to amaze me the determination that each
of us have and after all happiness is a choice that we make.  During this
journey I have met some very strong and tenacious people.  My friend Monica
reassure me that I could take care of my family and go in field trips and
continue to volunteer as I did prior to SCI.  My friend Jeff taught me that I
could be a coach. 

Parenting is not only about what we can do physically but about how we can guide
this children.  For that ,what we need is a good head on our shoulders, patience
and lots of love.  None of those come from legs.  I am also getting to that
point were I am not the most beautiful and perfect person for my girls.  That
tell me that they are developing normally.  It is great to have company in the
fitting room and they are always willing to go shopping (especially it is for
them)

Since I went to collage single and healthy and became paralyze at 40 kudos to
all of you that have done so well and have had the courage  and guts to take on
life with such determination.

You are amazing!!!

Please tell me how to be a grandma in wheels and how to take care of babies. 

Choose to have a great day!


Liza



________________________________
From: Monica KamalRossa <xena-rolls@...>
To: womenwithsci@yahoogroups.com
Sent: Sunday, February 1, 2009 10:33:52 AM
Subject: RE: [Women with SCI] Hi!!!


Hi Mary,

What a coincidence! I had my eight year anniversary on Jan 22 of this year.
My sons were in 3rd and 6th grade at the time. My youngest doesn't remember
me walking either.

I was extremely involved with my sons' schools and activities. Now on son is
a Soph. in college and the other is in high school so they don't want me
meddling in their stuff any more.

In fact I went to the same movie theater that my son went to when he was
going with his friends. He was upset because he thought I was "chaperoning"
him. I said I was not even going to the same movie. I think he was
chaperoning us. :-)

Have a great day!

Monica

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsci@ yahoogroups. com] On
Behalf Of mary cooper
Sent: Saturday, January 31, 2009 7:29 PM
To: womenwithsci@ yahoogroups. com
Subject: Re: [Women with SCI] Hi!!!

Hi,
I am a 44 year old women wha has had a sci for 8 years. i also have a
daughter. she was 3 when I became paralized. things changed drastically.
she does not remember me walking. I am also a single mom with no help form
her dad. I do have great friends who have made sure that she experiences
everything.
She is noiw 11. I tend to be involved in so much of her life. I volunteer
at her school. I was in graduate school but don't like the programs close to
home. have not decided what to do next.
it was great hearing about you.
mary

____________ _________ _________ __
From: Rebecca Sanchez <mrsldyinwheels@ <mailto:mrsldyinwhe els%40yahoo. com>
yahoo.com>
To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups. com
Sent: Thursday, January 29, 2009 8:53:19 PM
Subject: [Women with SCI] Hi!!!

Hello!
How are you all doing? Good here!!! I guess I'll start off by introducing
myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's
old after a car accident claimed the life of my mother and step father. I am
a proud mom to my beautiful 5yr old daughter, have a great job and wonderful
husband!! and i'm also one class away from a associates degree in Criminal
Justice! I am very excited about meeting other women here!!! When I had my
daughter i had so many questions about how to raise her while haveing a SCI
so far it's worked out GREAT! She's an awesome kid!!! :) Anyhow again I'm
excited and can't wait to meet you all!! :)

Rebecca - from New Mexico

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Hi Rebecca,

Good luck with moving. I enjoyed the story with you and your grandmother. I
laughed so hard.

May your mood be bright and your mind very sharp for finals. Knock 'em dead!



Have a great day!

Monica KamalRossa
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi

   _____

From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
Behalf Of Rebecca Sanchez
Sent: Sunday, February 01, 2009 7:26 PM
To: womenwithsci@yahoogroups.com
Subject: RE: [Women with SCI] Hi!!!



Hey Monica!!!!
   How are you? Thanks for the information! I am currently working for a
independent living center and we are trying to get ideas to start up
activities for those with SCI, and thier families! Also i think it'd be
awesome to join!!! :) I just finished my final for school so I'll join
tomarrow after work.... :) Only 1 more class left whoo hoo!!! Oh and If you
all don't hear from me in a couple of days, we are in the middle of moving!
YUCK!!!! wish me luck on moving and my final! :) Talk to you all soon!

Rebecca

--- On Sun, 2/1/09, Monica KamalRossa <xena-rolls@charter.
<mailto:xena-rolls%40charter.net> net> wrote:

From: Monica KamalRossa <xena-rolls@charter.
<mailto:xena-rolls%40charter.net> net>
Subject: RE: [Women with SCI] Hi!!!
To: womenwithsci@ <mailto:womenwithsci%40yahoogroups.com> yahoogroups.com
Date: Sunday, February 1, 2009, 4:31 PM

Hi Rebecca,

It is free to be an online member. No you don't have to live in Madison. If
you are ever in the neighborhood, you can join us for events or meetings!
:-)

Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
<http://www.SCI- Madison.org> www.SCI-Madison. org
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsci@ yahoogroups. com]
On
Behalf Of Rebecca Sanchez
Sent: Saturday, January 31, 2009 7:17 PM
To: womenwithsci@ yahoogroups. com
Subject: RE: [Women with SCI] Hi!!!

WOW!
the group is amazing!!! Do you have to live there to become a member? is
there a charge? Is it hard to start up?

Rebecca
---

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00




[Non-text portions of this message have been removed]

Hey Monica!!!!
  How are you? Thanks for the information! I am currently working for a
independent living center and we are trying to get ideas to start up activities
for those with SCI, and thier families! Also i think it'd be awesome to join!!!
:) I just finished my final for school so I'll join tomarrow after work.... :)
Only 1 more class left whoo hoo!!! Oh and If you all don't hear from me in a
couple of days, we are in the middle of moving! YUCK!!!! wish me luck on moving
and my final! :) Talk to you all soon!
 
Rebecca

--- On Sun, 2/1/09, Monica KamalRossa <xena-rolls@...> wrote:

From: Monica KamalRossa <xena-rolls@...>
Subject: RE: [Women with SCI] Hi!!!
To: womenwithsci@yahoogroups.com
Date: Sunday, February 1, 2009, 4:31 PM






Hi Rebecca,

It is free to be an online member. No you don't have to live in Madison. If
you are ever in the neighborhood, you can join us for events or meetings!
:-)

Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
<http://www.SCI- Madison.org> www.SCI-Madison. org
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsci@ yahoogroups. com] On
Behalf Of Rebecca Sanchez
Sent: Saturday, January 31, 2009 7:17 PM
To: womenwithsci@ yahoogroups. com
Subject: RE: [Women with SCI] Hi!!!

WOW!
the group is amazing!!! Do you have to live there to become a member? is
there a charge? Is it hard to start up?

Rebecca
---

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

Hey Theresa! :)
   wow what an incredible person you and your famly are!! It amazing the
questions that I (i'm sure 'we') are asked.... the funniest one i've heard of is
when my husband and i first got together, his co-workers would ask him "can she
have sex' lol When we go to a restaruant the waiters usually ask him what I
want, and he looks at them and says i dont know ask her! lol People can be
ignorant to the obvious to put it bluntly! Of course there were those who
thought i couldn't raise my daughter bcos of the w/c, It amazes them more when i
grocery shopping, clean the house, and all the other things that 'able bodied'
people do lol it baffles them! I have learned to laugh of course i'm not rude
and do it in front of thier faces .... lol
Anyhow, I am orgionally from Carlsbad, NM if you have heard of the Carlsbad
caverns, you know where it is... :) In july 08 we moved to Roswell, NM (where
the aliens are!! lol) I love it here, although it'd be nice to live in a place
like you do where you don't have to worry about locking the doors, but I guess
it could be worse! Albuquerque is worse...... :)
 
Oh and Mary..... :) I think I can wait for my daughter to be that age! Yeah I
remember doing the same to my grandma when i'd go to the movies wirth
friends.....of course once she let me go by myself (she drove) i didn't know she
had stayed in the car instead of go home, so my friends and i had the bright
idea to sneak out of the theater to meet boys in the back.....yeah you can
imagine how humiliating it was when my grandma pulled up to the back of the
theater demanding to know what we were doing, who the boys were, where they came
from..... lol even more humiliating when she not only told me to get into the
van but my friends to cos she was 'responsible' LOL NOW i can understand why she
did it, but at the time forget it i thought my life had ended!!! LOL
 
Rebecca

--- On Mon, 2/2/09, theresa hebert <Rodalways70512@...> wrote:

From: theresa hebert <Rodalways70512@...>
Subject: Re: [Women with SCI] Hi!!!
To: womenwithsci@yahoogroups.com
Date: Monday, February 2, 2009, 1:01 AM






Hi to all,
 Well guess I am a oldie here cause i have been a para since 1974, I was just
21, at that time I was married with a 3 year old daughter. To make it short he
couldn't handle the fact that I supposely wouldn't have anymore kids, but I
think it was due to me not walking and what comes along with dealing with all
that. But hey life went on, he did try to take my daughter from me cause he
didn't see how I could raise her, HAAAAAAAAAAAAAAAAAA . Two years after my
accident I met my now hubby who never once looked at my chair as a problem and
always treated my daughter great which was a plus for me. Well in 1980 we had a
daughter , 4 years later we had a son. My kids are all grown now and have all
grown up to be wonderful adults, my oldest is an LPN , my middle daughter is an
dental assistant, my son hangs steel. I also was always involved with my kids
while in school, I now have 4 wonderful grandkids who keep me going, 12, 10, 7,
and 6. I sometimes think my ex
did me a favor , cause if he hadn't left me I don't think I'd have the wonderful
life I do now. Just wanted to put my 2 cents in and hope we can get some people
talking on this group, would be great to share life stories and what each of us
has to deal with everyday. And where is everyone from??? I am from Louisiana,
deep south, rural small country town, we don't even lock our doors. Course just
hubby and I at home, HAAAA. Everyone have a nice night and lets chat.
Later, Theresa

--- On Sun, 2/1/09, mary cooper <mmchmc1@yahoo. com> wrote:
From: mary cooper <mmchmc1@yahoo. com>
Subject: Re: [Women with SCI] Hi!!!
To: womenwithsci@ yahoogroups. com
Date: Sunday, February 1, 2009, 6:24 PM

Hi Monica,

It will be 9 years on november 20th. 

Hannah is in the 5th grade and when we go to the movies she sits with her
friends in the front or back and only needs me if she wants pop corn or candy. 
besides that i am chopped liver.  that is ok.  i think i did the same to my mom.

mary

____________ _________ _________ __

From: Monica KamalRossa <xena-rolls@ charter. net>

To: womenwithsci@ yahoogroups. com

Sent: Sunday, February 1, 2009 11:33:52 AM

Subject: RE: [Women with SCI] Hi!!!

Hi Mary,

What a coincidence! I had my eight year anniversary on Jan 22 of this year.

My sons were in 3rd and 6th grade at the time. My youngest doesn't remember

me walking either.

I was extremely involved with my sons' schools and activities. Now on son is

a Soph. in college and the other is in high school so they don't want me

meddling in their stuff any more.

In fact I went to the same movie theater that my son went to when he was

going with his friends. He was upset because he thought I was "chaperoning"

him. I said I was not even going to the same movie. I think he was

chaperoning us. :-)

Have a great day!

Monica

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsc i@ yahoogroups. com] On

Behalf Of mary cooper

Sent: Saturday, January 31, 2009 7:29 PM

To: womenwithsci@ yahoogroups. com

Subject: Re: [Women with SCI] Hi!!!

Hi,

I am a 44 year old women wha has had a sci for 8 years. i also have a

daughter. she was 3 when I became paralized. things changed drastically.

she does not remember me walking. I am also a single mom with no help form

her dad. I do have great friends who have made sure that she experiences

everything.

She is noiw 11. I tend to be involved in so much of her life. I volunteer

at her school. I was in graduate school but don't like the programs close to

home. have not decided what to do next.

it was great hearing about you.

mary

____________ _________ _________ __

From: Rebecca Sanchez <mrsldyinwheels@ <mailto:mrsldyinwhe els%40yahoo. com>

yahoo.com>

To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups. com

Sent: Thursday, January 29, 2009 8:53:19 PM

Subject: [Women with SCI] Hi!!!

Hello!

How are you all doing? Good here!!! I guess I'll start off by introducing

myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's

old after a car accident claimed the life of my mother and step father. I am

a proud mom to my beautiful 5yr old daughter, have a great job and wonderful

husband!! and i'm also one class away from a associates degree in Criminal

Justice! I am very excited about meeting other women here!!! When I had my

daughter i had so many questions about how to raise her while haveing a SCI

so far it's worked out GREAT! She's an awesome kid!!! :) Anyhow again I'm

excited and can't wait to meet you all!! :)

Rebecca - from New Mexico

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09

17:31:00

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

Hi to all,
 Well guess I am a oldie here cause i have been a para since 1974, I was just
21, at that time I was married with a 3 year old daughter. To make it short he
couldn't handle the fact that I supposely wouldn't have anymore kids, but I
think it was due to me not walking and what comes along with dealing with all
that. But hey life went on, he did try to take my daughter from me cause he
didn't see how I could raise her, HAAAAAAAAAAAAAAAAAA. Two years after my
accident I met my now hubby who never once looked at my chair as a problem and
always treated my daughter great which was a plus for me. Well in 1980 we had a
daughter , 4 years later we had a son. My kids are all grown now and have all
grown up to be wonderful adults, my oldest is an LPN , my middle daughter is an
dental assistant, my son hangs steel. I also was always involved with my kids
while in school, I now have 4 wonderful grandkids who keep me going, 12, 10, 7,
and 6. I sometimes think my ex
  did me a favor , cause if he hadn't left me I don't think I'd have the
wonderful life I do now. Just wanted to put my 2 cents in and hope we can get
some people talking on this group, would be great to share life stories and what
each of us has to deal with everyday. And where is everyone from??? I am from
Louisiana, deep south, rural small country town, we don't even lock our doors.
Course just hubby and I at home, HAAAA. Everyone have a nice night and lets
chat.
Later, Theresa

--- On Sun, 2/1/09, mary cooper <mmchmc1@...> wrote:
From: mary cooper <mmchmc1@...>
Subject: Re: [Women with SCI] Hi!!!
To: womenwithsci@yahoogroups.com
Date: Sunday, February 1, 2009, 6:24 PM











             Hi Monica,

It will be 9 years on november 20th. 

Hannah is in the 5th grade and when we go to the movies she sits with her
friends in the front or back and only needs me if she wants pop corn or candy. 
besides that i am chopped liver.  that is ok.  i think i did the same to my mom.

mary



____________ _________ _________ __

From: Monica KamalRossa <xena-rolls@charter. net>

To: womenwithsci@ yahoogroups. com

Sent: Sunday, February 1, 2009 11:33:52 AM

Subject: RE: [Women with SCI] Hi!!!



Hi Mary,



What a coincidence! I had my eight year anniversary on Jan 22 of this year.

My sons were in 3rd and 6th grade at the time. My youngest doesn't remember

me walking either.



I was extremely involved with my sons' schools and activities. Now on son is

a Soph. in college and the other is in high school so they don't want me

meddling in their stuff any more.



In fact I went to the same movie theater that my son went to when he was

going with his friends. He was upset because he thought I was "chaperoning"

him. I said I was not even going to the same movie. I think he was

chaperoning us. :-)



Have a great day!



Monica



_____



From: womenwithsci@ yahoogroups. com [mailto:womenwithsc i@ yahoogroups. com] On

Behalf Of mary cooper

Sent: Saturday, January 31, 2009 7:29 PM

To: womenwithsci@ yahoogroups. com

Subject: Re: [Women with SCI] Hi!!!



Hi,

I am a 44 year old women wha has had a sci for 8 years. i also have a

daughter. she was 3 when I became paralized. things changed drastically.

she does not remember me walking. I am also a single mom with no help form

her dad. I do have great friends who have made sure that she experiences

everything.

She is noiw 11. I tend to be involved in so much of her life. I volunteer

at her school. I was in graduate school but don't like the programs close to

home. have not decided what to do next.

it was great hearing about you.

mary



____________ _________ _________ __

From: Rebecca Sanchez <mrsldyinwheels@ <mailto:mrsldyinwhe els%40yahoo. com>

yahoo.com>

To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups. com

Sent: Thursday, January 29, 2009 8:53:19 PM

Subject: [Women with SCI] Hi!!!



Hello!

How are you all doing? Good here!!! I guess I'll start off by introducing

myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's

old after a car accident claimed the life of my mother and step father. I am

a proud mom to my beautiful 5yr old daughter, have a great job and wonderful

husband!! and i'm also one class away from a associates degree in Criminal

Justice! I am very excited about meeting other women here!!! When I had my

daughter i had so many questions about how to raise her while haveing a SCI

so far it's worked out GREAT! She's an awesome kid!!! :) Anyhow again I'm

excited and can't wait to meet you all!! :)



Rebecca - from New Mexico



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]



No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09

17:31:00



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

Hi Monica,
It will be 9 years on november 20th. 
Hannah is in the 5th grade and when we go to the movies she sits with her
friends in the front or back and only needs me if she wants pop corn or candy. 
besides that i am chopped liver.  that is ok.  i think i did the same to my mom.
mary




________________________________
From: Monica KamalRossa <xena-rolls@...>
To: womenwithsci@yahoogroups.com
Sent: Sunday, February 1, 2009 11:33:52 AM
Subject: RE: [Women with SCI] Hi!!!


Hi Mary,

What a coincidence! I had my eight year anniversary on Jan 22 of this year.
My sons were in 3rd and 6th grade at the time. My youngest doesn't remember
me walking either.

I was extremely involved with my sons' schools and activities. Now on son is
a Soph. in college and the other is in high school so they don't want me
meddling in their stuff any more.

In fact I went to the same movie theater that my son went to when he was
going with his friends. He was upset because he thought I was "chaperoning"
him. I said I was not even going to the same movie. I think he was
chaperoning us. :-)

Have a great day!

Monica

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsci@ yahoogroups. com] On
Behalf Of mary cooper
Sent: Saturday, January 31, 2009 7:29 PM
To: womenwithsci@ yahoogroups. com
Subject: Re: [Women with SCI] Hi!!!

Hi,
I am a 44 year old women wha has had a sci for 8 years. i also have a
daughter. she was 3 when I became paralized. things changed drastically.
she does not remember me walking. I am also a single mom with no help form
her dad. I do have great friends who have made sure that she experiences
everything.
She is noiw 11. I tend to be involved in so much of her life. I volunteer
at her school. I was in graduate school but don't like the programs close to
home. have not decided what to do next.
it was great hearing about you.
mary

____________ _________ _________ __
From: Rebecca Sanchez <mrsldyinwheels@ <mailto:mrsldyinwhe els%40yahoo. com>
yahoo.com>
To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups. com
Sent: Thursday, January 29, 2009 8:53:19 PM
Subject: [Women with SCI] Hi!!!

Hello!
How are you all doing? Good here!!! I guess I'll start off by introducing
myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's
old after a car accident claimed the life of my mother and step father. I am
a proud mom to my beautiful 5yr old daughter, have a great job and wonderful
husband!! and i'm also one class away from a associates degree in Criminal
Justice! I am very excited about meeting other women here!!! When I had my
daughter i had so many questions about how to raise her while haveing a SCI
so far it's worked out GREAT! She's an awesome kid!!! :) Anyhow again I'm
excited and can't wait to meet you all!! :)

Rebecca - from New Mexico

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Hi Mary,

What a coincidence! I had my eight year anniversary on Jan 22 of this year.
My sons were in 3rd and 6th grade at the time. My youngest doesn't remember
me walking either.

I was extremely involved with my sons' schools and activities. Now on son is
a Soph. in college and the other is in high school so they don't want me
meddling in their stuff any more.

In fact I went to the same movie theater that my son went to when he was
going with his friends. He was upset because he thought I was "chaperoning"
him. I said I was not even going to the same movie. I think he was
chaperoning us. :-)



Have a great day!

Monica

   _____

From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
Behalf Of mary cooper
Sent: Saturday, January 31, 2009 7:29 PM
To: womenwithsci@yahoogroups.com
Subject: Re: [Women with SCI] Hi!!!



Hi,
I am a 44 year old women wha has had a sci for 8 years.  i also have a
daughter.  she was 3 when I became paralized.  things changed drastically.
she does not remember me walking.  I am also a single mom with no help form
her dad.  I do have great friends who have made sure that she experiences
everything.
She is noiw 11.  I tend to be involved in so much of her life.  I volunteer
at her school. I was in graduate school but don't like the programs close to
home.  have not decided what to do next.
it was great hearing about you.
mary



________________________________
From: Rebecca Sanchez <mrsldyinwheels@ <mailto:mrsldyinwheels%40yahoo.com>
yahoo.com>
To: womenwithsci@ <mailto:womenwithsci%40yahoogroups.com> yahoogroups.com
Sent: Thursday, January 29, 2009 8:53:19 PM
Subject: [Women with SCI] Hi!!!

Hello!
    How are you all doing? Good here!!! I guess I'll start off by introducing
myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's
old after a car accident claimed the life of my mother and step father. I am
a proud mom to my beautiful 5yr old daughter, have a great job and wonderful
husband!! and i'm also one class away from a associates degree in Criminal
Justice! I am very excited about meeting other women here!!! When I had my
daughter i had so many questions about how to raise her while haveing a SCI
so far it's worked out GREAT! She's an awesome kid!!! :) Anyhow again I'm
excited and can't wait to meet you all!! :)

Rebecca - from New Mexico

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00




[Non-text portions of this message have been removed]

Hi Rebecca,


It is free to be an online member. No you don't have to live in Madison. If
you are ever in the neighborhood, you can join us for events or meetings!
:-)



Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
  <http://www.SCI-Madison.org> www.SCI-Madison.org
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi

   _____

From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
Behalf Of Rebecca Sanchez
Sent: Saturday, January 31, 2009 7:17 PM
To: womenwithsci@yahoogroups.com
Subject: RE: [Women with SCI] Hi!!!



WOW!
the group is amazing!!! Do you have to live there to become a member? is
there a charge? Is it hard to start up?

Rebecca
---

[Non-text portions of this message have been removed]



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.16/1928 - Release Date: 01/30/09
17:31:00




[Non-text portions of this message have been removed]

 Hello!
   How are you doing? Hope all is well! :) I ca'n definetly relate to you! :)
After being told my entire life that if I ever get pregnant, it would 'kill me'
by millions of dr's, I gave up hope. The year of 2003 was horrible for me, my
boyfriend at the time had been arrested, my cousin who was also my best friend
was found murdered and my grandma (who raised me after the accident) had been
diagnosed with Cancer. Therefore, i thought that i was missing my monthly
because of stress...Shortly after my boyfriend was released, my grandma told me
to go get tested, i laughed it off at first....but I did listen, and guess what
I was pregnant!!! I was so excited! I had my daughter in September and I
remember calling my grandma crying saying "she can move her legs" she said of
course did you think we lied to you?! (about the accident) I said no....it was a
shocker I don't know why. Then I thought well how am i going to teach her to
crawl? walk? and list went on
  from there....my grandma set me down one day and told me that babies learn how
to walk and crawl on thier own, i was a little skeptical. In Nov. my grandma
passed away from cancer. Sure enough though, my daughter learned how to crawl
and walk on her own....now 5yr's later, she's walking, talking,
jumping...basiclly a 'normal' (and i dont like the word normal) 5yr old! There
are still times that I cry because there are things that I want to do with her
but can't. Such as Trick-or-treating or riding rides with her at Disneyland, but
then I realize that I'm LUCKY! Lucky to have her, lucky to be able to kiss,
hug,hold her, etc....be a mother to her...I have to focus on the things i can do
with her! :) It is nice to have family/friends/husband be able to do the things
that i can't do with her... :) I have told my daughter about the accident and
why i'm in a w/c, but she's only 5 so she don't fully understand....when we are
out and about in town though, she
  does ask me about others that are in w/c's...:) It is nice to know that there
is other mothers out there whom are in w/c's, I have met a father who is in a
w/c, his wife and him are really good family friends....but it's different when
your a mother.... :) anyhow it was great hearing from you and i am looking
forward to hearing from you again! :)
Rebecca




[Non-text portions of this message have been removed]

Hi,
I am a 44 year old women wha has had a sci for 8 years.  i also have a
daughter.  she was 3 when I became paralized.  things changed drastically.  she
does not remember me walking.  I am also a single mom with no help form her
dad.  I do have great friends who have made sure that she experiences
everything.
She is noiw 11.  I tend to be involved in so much of her life.  I volunteer at
her school. I was in graduate school but don't like the programs close to home. 
have not decided what to do next.
it was great hearing about you. 
mary

 



________________________________
From: Rebecca Sanchez <mrsldyinwheels@...>
To: womenwithsci@yahoogroups.com
Sent: Thursday, January 29, 2009 8:53:19 PM
Subject: [Women with SCI] Hi!!!


Hello!
   How are you all doing? Good here!!! I guess I'll start off by introducing
myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's old
after a car accident claimed the life of my mother and step father. I am a proud
mom to my beautiful 5yr old daughter, have a great job and wonderful husband!!
and i'm also one class away from a associates degree in Criminal Justice! I am
very excited about meeting other women here!!! When I had my daughter i had so
many questions about how to raise her while haveing a SCI so far it's worked out
GREAT! She's an awesome kid!!! :) Anyhow again I'm excited and can't wait to
meet you all!! :)
 
Rebecca - from New Mexico

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

WOW!
the group is amazing!!! Do you have to live there to become a member? is there a
charge? Is it hard to start up?
 
Rebecca
---




[Non-text portions of this message have been removed]

:) i'll have to agree with ya there! It seems like yesterday i was holding
her.....now she's running around the house like a chicken w/thier head cut
off... lol okay maybe not that bad...it is very interesting! lol

--- On Fri, 1/30/09, Monica KamalRossa <xena-rolls@...> wrote:

From: Monica KamalRossa <xena-rolls@...>
Subject: RE: [Women with SCI] Hi!!!
To: womenwithsci@yahoogroups.com
Date: Friday, January 30, 2009, 9:46 PM






Welcome, Rebecca-

I am from Madison, WI. We have a great group in Madison. I have 2 young
adult male children. I say that because your daughter is at such a good age..
Enjoy it! It does go fast.

Good luck with your degree.

Our SCI website is www.sci-madison. org <http://www.sci- madison.org/> Check
us out.

Have a great day!

Monica

------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsci@ yahoogroups. com] On
Behalf Of Rebecca Sanchez
Sent: Thursday, January 29, 2009 7:53 PM
To: womenwithsci@ yahoogroups. com
Subject: [Women with SCI] Hi!!!

Hello!
How are you all doing? Good here!!! I guess I'll start off by introducing
myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's
old after a car accident claimed the life of my mother and step father. I am
a proud mom to my beautiful 5yr old daughter, have a great job and wonderful
husband!! and i'm also one class away from a associates degree in Criminal
Justice! I am very excited about meeting other women here!!! When I had my
daughter i had so many questions about how to raise her while haveing a SCI
so far it's worked out GREAT! She's an awesome kid!!! :) Anyhow again I'm
excited and can't wait to meet you all!! :)

Rebecca - from New Mexico

[Non-text portions of this message have been removed]

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.15/1921 - Release Date: 01/28/09
06:37:00

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

Welcome, Rebecca-



I am from Madison, WI. We have a great group in Madison. I have 2 young
adult male children. I say that because your daughter is at such a good age.
Enjoy it! It does go fast.

Good luck with your degree.



Our SCI website is www.sci-madison.org <http://www.sci-madison.org/>  Check
us out.



Have a great day!

Monica

  ----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi

   _____

From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
Behalf Of Rebecca Sanchez
Sent: Thursday, January 29, 2009 7:53 PM
To: womenwithsci@yahoogroups.com
Subject: [Women with SCI] Hi!!!



Hello!
    How are you all doing? Good here!!! I guess I'll start off by introducing
myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's
old after a car accident claimed the life of my mother and step father. I am
a proud mom to my beautiful 5yr old daughter, have a great job and wonderful
husband!! and i'm also one class away from a associates degree in Criminal
Justice! I am very excited about meeting other women here!!! When I had my
daughter i had so many questions about how to raise her while haveing a SCI
so far it's worked out GREAT! She's an awesome kid!!! :) Anyhow again I'm
excited and can't wait to meet you all!! :)

Rebecca - from New Mexico

[Non-text portions of this message have been removed]



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.15/1921 - Release Date: 01/28/09
06:37:00




[Non-text portions of this message have been removed]

Hello!
   How are you all doing? Good here!!! I guess I'll start off by introducing
myself.... :) I am 28yr's old and have lived with SCI since the age of 9mo's old
after a car accident claimed the life of my mother and step father. I am a proud
mom to my beautiful 5yr old daughter, have a great job and wonderful husband!!
and i'm also one class away from a associates degree in Criminal Justice! I am
very excited about meeting other women here!!! When I had my daughter i had so
many questions about how to raise her while haveing a SCI so far it's worked out
GREAT! She's an awesome kid!!! :) Anyhow again I'm excited and can't wait to
meet you all!! :)
 
Rebecca - from New Mexico




[Non-text portions of this message have been removed]

Hello,

My name is Julia Sterman. I am a graduate student in Occupational
Therapy at Ithaca College in Ithaca, NY. I am currently working on my
thesis project, which will investigate traumatic injury and its
impact on meaningful activities. After reading this letter you will
be given the opportunity to complete an online survey regarding your
participation in meaningful activities following your injury. This
survey should take approximately 10 minutes to complete.

I am looking for individuals who are over the age of 18 and have had
a traumatic physical injury between one (1) and five (5) years ago.
Due to the support groups contacted, most participants will have
amputations, burns, or spinal cord injuries, but you can still
participate if you have other types of traumatic injury. You do not
need to have received occupational therapy to participate. Those who
have been diagnosed with a traumatic brain injury or severe
intellectual disability are not included in this survey.

The results of this project will be written and presented in a
professional format. I hope to share my results through publication
in a professional journal or presentation at an occupational therapy
conference so that more people may become aware of this issue. The
results may also be useful to guide how occupational therapists work
with individuals who have had similar injuries.

There is little risk to completing the survey; however, if thinking
about your responses causes you to feel distress please contact a
source of support. If at any time a question causes you discomfort
you may choose to skip that question. You can stop completing the
survey at any time you choose. All of your answers will remain
anonymous and confidential. If you continue to feel distress I would
encourage you to seek assistance through local counseling or
psychological services.

If you have any questions about the survey or being a participant,
please contact me at jsterma1@.... or contact Dr. Judy Gonyea,
my thesis adviser, at (607) 274-1737 or jgonyea@.... The survey
tool is encrypted and secure so all information can only be accessed
by the researchers. The Institutional Review Board (IRB) at Ithaca
College has approved this study.

Thank you for taking the time to complete my survey.

Sincerely,

Julia Sterman

By following the link below you confirm that you agree to participate
in this study, although you may discontinue participation at any
time.
You also acknowledge that 18 years or older.

https://www.surveymonkey.com/s.aspx?sm=qv_2bl3EDxw_2fawV6ZcWnW
52A_3d_3d

Please come if you can and please share!!!!



Come and celebrate the

Madison Spinal Cord Injury (SCI) Group's
2nd Anniversary!



Monday, November 10th, 6:45 p.m.

We will be celebrating at
**Cancun Mexican Restaurant
704 S Whitney Way, Madison, WI 53711 (608) 277-0992

You and your family can order your dinner from the menu
and  separate checks are available.

Come for cake*, socialization & fun!
Bring friends and family!

*Cake is provided by the Madison SCI Group.
Dinner is not included.





Our meetings are the 2nd Monday of the month except April 2009.
It is Thursday, April 16, 2009.

* 2008 meetings are from 5-6:30 p.m.  at Good Shepherd Lutheran Church
at 5701 Raymond Rd., Madison, WI 53711.
* 2009 meetings are from 5:30-7 p.m. at Fitchburg Community Center,
Stoner Prairie Dining Room, 5510 Lacy Rd, Fitchburg WI  53711 (Get
<http://maps.yahoo.com/dd?ed=lH8dluV.wild1X2aXKJzNzLT2iH9hV89zBIZVhspGQ-->
Directions)
* Meeting topics are confirmed one month prior. (See attached file for
more information.)



Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
  <http://www.SCI-Madison.org> www.SCI-Madison.org
Ph: 608.288.0340
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi







[Non-text portions of this message have been removed]

Hi,

Thank you for your honest answer.

 
 Liza

----- Original Message ----
From: nellie sauers <danelle2003sauers33@...>
To: womenwithsci@yahoogroups.com
Sent: Tuesday, September 23, 2008 5:22:40 PM
Subject: RE: [Women with SCI] Re: woman issues


I was married. I got mine after I left my husband. I have since been with
someone (whom I haven't seen in over 15 years) and he was very comfortable. He
asked a lot of questions and I was very open. There are privacy bags so there is
very little emabarassment. I have let others approach me on my injuries and
health issues. My ex husband would have been fine as well. If someone knows you
he or she will be fine with whatever you decide to do. I admit it was difficult
when my friend and I saw each other, but he made me comfortable and I never gave
it a second thought. Do what feels right and everything will fall into place.
Take care,
Danelle

Monica KamalRossa <xena-rolls@charter. net> wrote:
I think it is a great question. What do you think Danelle or anybody else?

Have a great day!

Monica KamalRossa
<http://www.rossadig italdesign. com/> www.RossaDigitalDes ign.com
Madison's Spinal Cord Injury Group Coordinator
<http://www.SCI- Madison.org> www.SCI-Madison. org
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsci@ yahoogroups. com] On
Behalf Of Liza Perez
Sent: Tuesday, September 16, 2008 6:56 PM
To: womenwithsci@ yahoogroups. com
Subject: Re: [Women with SCI] Re: woman issues

Danelle,

Are you in a relationship and if you are how do the other person feel about
it? Sorry for being so bold but I always like to consider everything.

----- Original Message ----
From: nellie sauers <danelle2003sauers3 3
<mailto:danelle2003 sauers33% 40yahoo.com> @yahoo.com>
To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups. com
Sent: Tuesday, September 16, 2008 12:22:55 PM
Subject: RE: [Women with SCI] Re: woman issues

I love it now! It was hard in the beginning, but it is worth it and I
wouldn't want to do anything else. I had to have it due to all the accidents
and the crohns.I would encourage getting one, especially if you don't lke
the bathroom transfer. Good luck with your decision. Talk to your doctors
and get educated. I didn't get a chance to do that. I had to have emergency
surgery and they put it in.It is a good thing.
Take Care,
Danelle

Monica KamalRossa <xena-rolls@ charter. net> wrote:
How do you do with your colostomy?

I am pressured to get one but I refuse. Thanks for sharing.

Have a great day!

Monica KamalRossa
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi

_____

From: womenwithsci@ yahoogroups. com [mailto:womenwithsc i@ yahoogroups. com]
On
Behalf Of danelle2003sauers33
Sent: Friday, September 05, 2008 10:34 AM
To: womenwithsci@ yahoogroups. com
Subject: [Women with SCI] Re: woman issues

I am a 38 yr. woman and had to have a full hysterectomy. I too had
trouble with my bladder and bowel. I wear an intermintant cathater
and had to have a clostomy bag. My bladder spasms are bad and my
hysterectomy has not helped. My surgery was due to severe infection
and crohns. I have UTI's all the time.If I were you I would go to a
gyn cancer specialist to get checked out. All 5 of my doctors
disagreed with with my treatment. I was finally referred to the
cancer specialist (I donot have cancer). He reccommended the surgery
and my doctors finally agreed.
Danelle

--- In womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com>
yahoogroups. com, "Monica KamalRossa" <xena-
rolls@...> wrote:
>
> Hi Mary,
>
>
>
> I had been having horrible bleeding. I was wearing thick pads for
months
> and bleeding through. It was embarrassing. I was seeing different
docs to
> determine what to do. Hysterectomy or there were 2 other
procedures? I
> finally had the uterine oblation procedure. This has decreased my
bleeding
> significantly as they did not want to do a hysterectomy for a
variety of
> reasons:
>
> 1. they thought it was too risky as I have had the mitrofanoff
(ability to
> cath via my belly button)
>
> 2. they thought I was premenapausal due to my age and didn't want
me on
> hormones.
>
>
>
> Additionally, your bladder spasms could possibly be helped with
botox. I had
> a botox treatment on my uterine wall and it decreased by spasms
> significantly.
>
> Recently there was an article in the following online web site:
> www.peopleonwheels. com <http://www.peopleon
<http://www.peopleon wheels.com/> wheels.com/>
>
> This is part of the article-
>
> Urologists inject Botox in the bladder, relaxing the bladder muscle
which
> relieves leakage and back up of urine into the kidneys and can
replace the
> need for oral medications that lead to dry mouth and other
reactions. Many
> who have used it say the results are unbelievable.
> Allergan, the developer of Botox, is now setting up study sites to
prove to
> the insurance companies how well it works.
> According to Steve Winter, an activist attorney who fought and won
the
> 'single use catheter' fight with Medicare, any spinal cord injured
patient
> or MS patient who uses a catheter and passes a screening test can
get the
> Botox FREE along with all the tests paid for as well and money for
their
> time. Call this toll free number( 1-888- 617-8839) and check out
this site:
> www.dignitytoos
> <http://rs6.net/ <http://rs6.net/ tn.jsp?e= 001hJjGfxS_ ->
tn.jsp?e=001hJjGfxS _-
YTyi2tWkZaJdU1cqVSt jnjbir_3LGbOMmqB IdQa
> QKg2fdj-
RtuqxFB1nbiwit1M9Dl raF9foLDsKO7NDvJ 3xSIif5ol0FlbVWf jYJNLImbWAQ= =>
> tudy.com to see if you can take part in the study.
> This use of Botox is called a "chemical sphincterotomy" . It
essentially
> relaxes the urinary sphincter for six to nine months, allowing men
to switch
> from intermittent cathing to an external catheter that empties into
a
> legbag.
> This might be preferred because it would 1) reduce UTIs and the
long-term
> damage they cause, 2) address chronic leaking between intermittent
cathing,
> 3) protect your kidneys by reducing reflux and 4) allow you to
ditch your
> anti-cholinergic meds and the nasty side effects (including dry
mouth,
> blurred vision, constipation, thermoregulation problems, and
confusion) that
> go with them.
> For others, it may be more about time management or addressing
hygiene
> issues in difficult environments.
> For quads, it's an alternative that may make more sense than having
a
> caregiver perform intermittent catheterization or than living with
an
> indwelling catheter, whether it's urethral or suprapubic.
> Check out the Bladder Matters conversation with Bob Vogel at the New
> Mobility Web site for more!
>
>
> <http://rs6.net/
<http://rs6.net/ tn.jsp?e= 001hJjGfxS_ -YS89G1IZq59jbVo jgVrvaxGvMwn- >
tn.jsp?e=001hJjGfxS _-YS89G1IZq59jbV ojgVrvaxGvMwn-
XyYhZlvgpj1
>
NwCskpYpumLLQOGaYt5 kmXPaYrpba47AZmG K0iWRYwRWXU6HWp3 M2m3XX6AXdlH_ z8gHMp
NGyizQ
> 9TU2NK5FI6X_ XnilO40MllFIQAcS W9aeGv18> Read More!
>
>
>
>
>
> You may want to do both.
>
>
>
> Have a great day!
>
> Monica
> <http://www.rossadig <http://www.rossadig italdesign. com/>
italdesign.com/ >
www.RossaDigitalDes ign.com
> Madison's Spinal Cord Injury Group Coordinator
> <http://www.SCI- <http://www.SCI- Madison.org> Madison.org>
www.SCI-Madison. org
> ------------ --------- --------- --------- -
> Be the change you want to see in the world. -- Mahatma Gandhi
>
> _____
>
> From: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com>
yahoogroups. com
[mailto:womenwithsc i@ <mailto:womenwithsc i%40yahoogroups. com>
yahoogroups. com] On
> Behalf Of mmchmc1
> Sent: Wednesday, September 03, 2008 11:57 AM
> To: womenwithsci@ <mailto:womenwithsc i%40yahoogroups. com> yahoogroups.
com
> Subject: [Women with SCI] woman issues
>
>
>
> Hi,
> I'm a T-10 complete. I am almost 8 years post injury. I am looking
> for women who are having GYN problems. Being complete, I can not
tell
> when my period (the curse) is coming. I am not regular. However my
> bladdre spasms and I become incontinent. My urologist recommends a
> hysterectomy. My GYN does not. Really tired of having a period and
> would not mind not having one. They say that I am several years
away
> from menopause. Psychologically I can not deal with the
incontinence.
> Any one else with this problem, suggestions or anything?
> mary
>
>
>
>
>
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>

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