<http://spinalcordwi.ning.com/> Spinal Cord Injury, Disease, and Paralysis-
Wisconsin

We plan, We go, We conquer!

Our forum. Please join us and share your thoughts!



http://spinalcordwi.ning.com/forum



These are our topics:

In a further attempt to coordinate the communication tools and information
for the Spinal Cord Injury, Disease, and Paralysis Group of the Wisconsin, I
am posting links to our site, blog, and forum:
- The site: www.SCI-Madison.org | We plan, We go, We conquer!
- The blog: SCI -Madison.blogspot.com <http://SCI-Madison.blogspot.com>
- The forum: http://spinalcordwi.ning.com/forum

We have the folllowing topics:
- Health - Pain issues and pain management, Nutrition and Diet, Mental
Health, Spirituality
- Relationships - Relationships and Intimacy, Please keep this "street
clean"!, Questions and tips on how to raise children being a parent with a
disability, how to be a sibling or child and still be independent
- Accessible Sports & Recreation -going concerts, musicals, wheelchair
sports, camping, hunting, fishing, adaptive sportsmen, etc.
- Visit Joe's Bar & Grill- Off topic or miscellaneous discussions
- Hot Topics - Book Club & Recommended Readings - reading list and comments
- Spinal Cord Research
- Remodeling and Building - around accessibility not just ADA View
Discussions
- Managing Caregivers and Housekeeping
- Employment - issues including how to work and keep your benefits.
- Education - including grant and scholarship opportunities - Where can I
buy? Where can I find? List questions on what you are looking for and
someone will answer hopefully provide an answer of where they have bought
the item. This not not a for sale category!
- FOR SALE or Wanted - Yes, list your personal items that you would like to
sell. Our own private Craig's list... well SCI list...


We would love you to share your information with us!



Have a great day!

Monica KamalRossa
  <http://www.rossadigitaldesign.com/> www.RossaDigitalDesign.com
Madison's Spinal Cord Injury Group Coordinator
  <http://www.SCI-Madison.org> www.SCI-Madison.org
Ph: 608.288.0340
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi





[Non-text portions of this message have been removed]

Liza...thanks for responding to my post.  To answer your question…healthcare in
Japan is about equivalent to ours relative to technology.  I did like their
bedside manner as the medical professional took their time to explain everything
even if this meant taking an hour or more out of their schedule to do this.  The
only issue, and one that the USA should consider doing as well, is any
non-resident seeking medical services has to pay cash up front or no service. 
You then have to submit a billing claim to your health insurance for
reimbursement. I believe that most insurance company's have a provision written
in their policy about overseas traveling and healthcare.  Make sure you check
yours out before embarking on your trip.  If you are thinking about living
overseas then I would consider getting an international insurance carrier like
Cigna International.  I did not have any problems with them reimbursing me for
both services and medications.

The Japanese language is very difficult to learn.  My hat is off to your son!

I want to return back overseas and am not sure if either the doctor is going to
co-sign this or the military folks will approve my return with the disability I
have.  Everything is up in the air for now but I have been submitting resumes
anyway hoping I can get picked up again.

Monica…thanks for your response as well.  I will check out the Ed Schultz's
website.  I listened to him every night while living in Japan and liked him very
much.


--- In womenwithsci@yahoogroups.com, "Monica KamalRossa" <xena-rolls@...> wrote:
>
> I agree with Liza. Thanks for sharing and you should share you story with
> the news and bloggers. It is an example of some of the issues we have had to
> deal with. Perhaps you could email Ed Schultz at The
> <http://www.google.com/url?sa=t&source=web&ct=res&cd=1&url=http%3A%2F%2Fwww.
> bigeddieradio.com%2F&ei=Re8hSrHGMqX0Mu3bkb0J&usg=AFQjCNEyBzIAy5JX8jHUDeZCQTh
> vpiGNDA>  Ed Schultz Show  <mailto:ed@...>
> ed@...
>
> Although you have more than your fair share of financial issues, many of us
> are dealing with issues like this. I don't think enough people really
> understand how some can be in such dire straights, and they did nothing
> wrong.  Things just happen.
>
>
>
> My son is taking Japanese at his high school. How is health care in Japan?
> Are you remaining in the states?
>
>
>
> Have a great day!
>
> Monica KamalRossa
>  <http://www.rossadigitaldesign.com/> www.RossaDigitalDesign.com
> Madison's Spinal Cord Injury Group Coordinator
>  <http://www.SCI-Madison.org> www.SCI-Madison.org
> ----------------------------------------
> Be the change you want to see in the world.   --   Mahatma Gandhi
>
>   _____
>
> From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
> Behalf Of Liza Perez
> Sent: Saturday, May 30, 2009 7:37 PM
> To: womenwithsci@yahoogroups.com
> Subject: Re: [Women with SCI] Re: New Member
>
>
>
>
>
>
>
>
> Wow!!!
>
> I am glad that you are able to walk again.  Thank you for sharing your
> hardship with us, financial issues are always prevalent when dealing with
> disability and I truly believe that knowledge is power.  Please keep in
> touch and I truly hope that things get better soon.
>
> Liza
>
> ________________________________
> From: anokij <anokij@yahoo. <mailto:anokij%40yahoo.com> com>
> To: womenwithsci@ <mailto:womenwithsci%40yahoogroups.com> yahoogroups.com
> Sent: Friday, May 29, 2009 11:04:33 PM
> Subject: [Women with SCI] Re: New Member
>
> Hello to all you ladies,
>
> Let me introduce myself. I was involved in a near fatal bicycling accident
> on March 22, 2008 in which I sustained an incomplete C4 SCI and was
> paralyzed from the neck down. I was living and working overseas and had to
> be medivaced back to the states. My nickname in the hospital was the "Quad
> from Japan". The prognosis was not good but 16 months later and a lot of
> blood, sweat and tears I am now walking, functioning and living
> independently again. I do have residual damage that I will live with until
> research catches up, bu all in all grateful for the progress I have made and
> now my nickname with all the medical staff is the "miracle quad from Japan".
>
>
> Now I am going vent...please be patient with me. I really don't know what
> has been more painful...the physical rehab or the bs I have been having to
> go through lately with finances. I went through all of my savings and state
> disability insurance and was now forced to request hardship money out of my
> 401k. This is a nightmare! I had to actually be involved in an eviction
> process with my landlord to claim hardship, per the IRS regulations. The
> eviction went through within 48 hours after it was initiated and a judgement
> was made against me. The sheriff were scheduled to come out and lock me out
> of my apartment next Tuesday. I finally got the hardship approved and the
> monies FEDX'ed to me, with nly a few days to spare. Though the eviction has
> been terminated the eviction judgement stands on my credit report. So now
> not only am I fighting to regain my physical life back...I now have to fight
> to clean up my credit. For anyone out there thinking about accessing
> your 401k on a hardship.... DON'T DO IT!!!!!!!!
>
> Oh! by the way... anyone thinking about taking out long-term disability
> insurance... make sure you research the company and understand all the ins
> and outs about their polices. My company sold me on taking out extra
> insurance coverage with Cigna and they have not followed through with good
> faith practice...meaning I haven't recieved the monies I paid to receive if
> ever disabled.
>
> Thanks for being here.
> anokij
>
> --- In womenwithsci@ yahoogroups. com, laura.beaudin@ ... wrote:
> >
> > Hi all,
> >
> > I guess I should post an introduction. I'm Laura and I live in Edmonton,
> Alberta. I just turned 31 and have been stuck in the hospital and away from
> my two young daughters since March 15.
> >
> > I guess I should say that I do not have an SCI. I have multiple sclerosis
> and either my condition has evolved into the secondary-progressi ve form, or
> I have TM. I went to the Emergency in March for pain-control for back spasms
> and steroids and couldn't walk sincre I got there. I'm now waiting for a
> neuro-rehab bed at the hospital next door.
> >
> > I hope you guys don't mind me on the list...being essentially paralysed,
> I'm hoping that this would be a good place to swap info...even from the
> rehab. Point of view, it seems like I've already been lumped in there with
> the SCI crowd.
> >
> > Laura
> > Sent on the TELUS Mobility network with BlackBerry
> >
> > -----Original Message-----
> > From: "ladybug_nicole2006 " <ladybug_nicole2006 @...>
> >
> > Date: Wed, 27 May 2009 01:07:54
> > To: <womenwithsci@ yahoogroups. com>
> > Subject: [Women with SCI] Pregancy
> >
> >
> > Well im 6 week pregnant and im L2 incomplete and i can walk some with
> braces and a walker...But im a little worried. One of my concerns is being
> weighed every visit not being able to stand by myself. Well if anyone can
> give me some advice that would be great!
> > ~Nicole~
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
> [Non-text portions of this message have been removed]
>
>
>
> No virus found in this incoming message.
> Checked by AVG - www.avg.com
> Version: 8.5.339 / Virus Database: 270.12.46/2143 - Release Date: 05/30/09
> 05:53:00
>
>
>
>
> [Non-text portions of this message have been removed]
>

I agree with Liza. Thanks for sharing and you should share you story with
the news and bloggers. It is an example of some of the issues we have had to
deal with. Perhaps you could email Ed Schultz at The
<http://www.google.com/url?sa=t&source=web&ct=res&cd=1&url=http%3A%2F%2Fwww.
bigeddieradio.com%2F&ei=Re8hSrHGMqX0Mu3bkb0J&usg=AFQjCNEyBzIAy5JX8jHUDeZCQTh
vpiGNDA>  Ed Schultz Show  <mailto:ed@...>
ed@...

Although you have more than your fair share of financial issues, many of us
are dealing with issues like this. I don't think enough people really
understand how some can be in such dire straights, and they did nothing
wrong.  Things just happen.



My son is taking Japanese at his high school. How is health care in Japan?
Are you remaining in the states?



Have a great day!

Monica KamalRossa
  <http://www.rossadigitaldesign.com/> www.RossaDigitalDesign.com
Madison's Spinal Cord Injury Group Coordinator
  <http://www.SCI-Madison.org> www.SCI-Madison.org
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi

   _____

From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
Behalf Of Liza Perez
Sent: Saturday, May 30, 2009 7:37 PM
To: womenwithsci@yahoogroups.com
Subject: Re: [Women with SCI] Re: New Member








Wow!!!

I am glad that you are able to walk again.  Thank you for sharing your
hardship with us, financial issues are always prevalent when dealing with
disability and I truly believe that knowledge is power.  Please keep in
touch and I truly hope that things get better soon.

Liza

________________________________
From: anokij <anokij@yahoo. <mailto:anokij%40yahoo.com> com>
To: womenwithsci@ <mailto:womenwithsci%40yahoogroups.com> yahoogroups.com
Sent: Friday, May 29, 2009 11:04:33 PM
Subject: [Women with SCI] Re: New Member

Hello to all you ladies,

Let me introduce myself. I was involved in a near fatal bicycling accident
on March 22, 2008 in which I sustained an incomplete C4 SCI and was
paralyzed from the neck down. I was living and working overseas and had to
be medivaced back to the states. My nickname in the hospital was the "Quad
from Japan". The prognosis was not good but 16 months later and a lot of
blood, sweat and tears I am now walking, functioning and living
independently again. I do have residual damage that I will live with until
research catches up, bu all in all grateful for the progress I have made and
now my nickname with all the medical staff is the "miracle quad from Japan".


Now I am going vent...please be patient with me. I really don't know what
has been more painful...the physical rehab or the bs I have been having to
go through lately with finances. I went through all of my savings and state
disability insurance and was now forced to request hardship money out of my
401k. This is a nightmare! I had to actually be involved in an eviction
process with my landlord to claim hardship, per the IRS regulations. The
eviction went through within 48 hours after it was initiated and a judgement
was made against me. The sheriff were scheduled to come out and lock me out
of my apartment next Tuesday. I finally got the hardship approved and the
monies FEDX'ed to me, with nly a few days to spare. Though the eviction has
been terminated the eviction judgement stands on my credit report. So now
not only am I fighting to regain my physical life back...I now have to fight
to clean up my credit. For anyone out there thinking about accessing
your 401k on a hardship.... DON'T DO IT!!!!!!!!

Oh! by the way... anyone thinking about taking out long-term disability
insurance... make sure you research the company and understand all the ins
and outs about their polices. My company sold me on taking out extra
insurance coverage with Cigna and they have not followed through with good
faith practice...meaning I haven't recieved the monies I paid to receive if
ever disabled.

Thanks for being here.
anokij

--- In womenwithsci@ yahoogroups. com, laura.beaudin@ ... wrote:
>
> Hi all,
>
> I guess I should post an introduction. I'm Laura and I live in Edmonton,
Alberta. I just turned 31 and have been stuck in the hospital and away from
my two young daughters since March 15.
>
> I guess I should say that I do not have an SCI. I have multiple sclerosis
and either my condition has evolved into the secondary-progressi ve form, or
I have TM. I went to the Emergency in March for pain-control for back spasms
and steroids and couldn't walk sincre I got there. I'm now waiting for a
neuro-rehab bed at the hospital next door.
>
> I hope you guys don't mind me on the list...being essentially paralysed,
I'm hoping that this would be a good place to swap info...even from the
rehab. Point of view, it seems like I've already been lumped in there with
the SCI crowd.
>
> Laura
> Sent on the TELUS Mobility network with BlackBerry
>
> -----Original Message-----
> From: "ladybug_nicole2006 " <ladybug_nicole2006 @...>
>
> Date: Wed, 27 May 2009 01:07:54
> To: <womenwithsci@ yahoogroups. com>
> Subject: [Women with SCI] Pregancy
>
>
> Well im 6 week pregnant and im L2 incomplete and i can walk some with
braces and a walker...But im a little worried. One of my concerns is being
weighed every visit not being able to stand by myself. Well if anyone can
give me some advice that would be great!
> ~Nicole~
>
>
>
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.5.339 / Virus Database: 270.12.46/2143 - Release Date: 05/30/09
05:53:00




[Non-text portions of this message have been removed]

Wow!!!

I am glad that you are able to walk again.  Thank you for sharing your hardship
with us, financial issues are always prevalent when dealing with disability and
I truly believe that knowledge is power.  Please keep in touch and I truly hope
that things get better soon.

Liza




________________________________
From: anokij <anokij@...>
To: womenwithsci@yahoogroups.com
Sent: Friday, May 29, 2009 11:04:33 PM
Subject: [Women with SCI] Re: New Member





Hello to all you ladies,

Let me introduce myself. I was involved in a near fatal bicycling accident on
March 22, 2008 in which I sustained an incomplete C4 SCI and was paralyzed from
the neck down. I was living and working overseas and had to be medivaced back to
the states. My nickname in the hospital was the "Quad from Japan". The prognosis
was not good but 16 months later and a lot of blood, sweat and tears I am now
walking, functioning and living independently again. I do have residual damage
that I will live with until research catches up, bu all in all grateful for the
progress I have made and now my nickname with all the medical staff is the
"miracle quad from Japan".

Now I am going vent...please be patient with me. I really don't know what has
been more painful...the physical rehab or the bs I have been having to go
through lately with finances. I went through all of my savings and state
disability insurance and was now forced to request hardship money out of my
401k. This is a nightmare! I had to actually be involved in an eviction process
with my landlord to claim hardship, per the IRS regulations. The eviction went
through within 48 hours after it was initiated and a judgement was made against
me. The sheriff were scheduled to come out and lock me out of my apartment next
Tuesday. I finally got the hardship approved and the monies FEDX'ed to me, with
nly a few days to spare. Though the eviction has been terminated the eviction
judgement stands on my credit report. So now not only am I fighting to regain my
physical life back...I now have to fight to clean up my credit. For anyone out
there thinking about accessing
  your 401k on a hardship.... DON'T DO IT!!!!!!!!

Oh! by the way... anyone thinking about taking out long-term disability
insurance... make sure you research the company and understand all the ins and
outs about their polices. My company sold me on taking out extra insurance
coverage with Cigna and they have not followed through with good faith
practice...meaning I haven't recieved the monies I paid to receive if ever
disabled.

Thanks for being here.
anokij

--- In womenwithsci@ yahoogroups. com, laura.beaudin@ ... wrote:
>
> Hi all,
>
> I guess I should post an introduction. I'm Laura and I live in Edmonton,
Alberta. I just turned 31 and have been stuck in the hospital and away from my
two young daughters since March 15.
>
> I guess I should say that I do not have an SCI. I have multiple sclerosis and
either my condition has evolved into the secondary-progressi ve form, or I have
TM. I went to the Emergency in March for pain-control for back spasms and
steroids and couldn't walk sincre I got there. I'm now waiting for a neuro-rehab
bed at the hospital next door.
>
> I hope you guys don't mind me on the list...being essentially paralysed, I'm
hoping that this would be a good place to swap info...even from the rehab. Point
of view, it seems like I've already been lumped in there with the SCI crowd.
>
> Laura
> Sent on the TELUS Mobility network with BlackBerry
>
> -----Original Message-----
> From: "ladybug_nicole2006 " <ladybug_nicole2006 @...>
>
> Date: Wed, 27 May 2009 01:07:54
> To: <womenwithsci@ yahoogroups. com>
> Subject: [Women with SCI] Pregancy
>
>
> Well im 6 week pregnant and im L2 incomplete and i can walk some with braces
and a walker...But im a little worried. One of my concerns is being weighed
every visit not being able to stand by myself. Well if anyone can give me some
advice that would be great!
> ~Nicole~
>
>
>
>
> [Non-text portions of this message have been removed]
>







[Non-text portions of this message have been removed]

Hello to all you ladies,

Let me introduce myself. I was involved in a near fatal bicycling accident on
March 22, 2008 in which I sustained an incomplete C4 SCI and was paralyzed from
the neck down.  I was living and working overseas and had to be medivaced back
to the states.  My nickname in the hospital was the "Quad from Japan".  The
prognosis was not good but 16 months later and a lot of blood, sweat and tears I
am now walking, functioning and living independently again.  I do have residual
damage that I will live with until research catches up, bu all in all grateful
for the progress I have made and now my nickname with all the medical staff is
the "miracle quad from Japan".

Now I am going vent...please be patient with me.  I really don't know what has
been more painful...the physical rehab or the bs I have been having to go
through lately with finances. I went through all of my savings and state
disability insurance and was now forced to request hardship money out of my
401k. This is a nightmare!  I had to actually be involved in an eviction process
with my landlord to claim hardship, per the IRS regulations.  The eviction went
through within 48 hours after it was initiated and a judgement was made against
me.  The sheriff were scheduled to come out and lock me out of my apartment next
Tuesday. I finally got the hardship approved and the monies FEDX'ed to me, with
nly a few days to spare. Though the eviction has been terminated the eviction
judgement stands on my credit report. So now not only am I fighting to regain my
physical life back...I now have to fight to clean up my credit. For anyone out
there thinking about accessing your 401k on a hardship....DON'T DO IT!!!!!!!!

Oh! by the way... anyone thinking about taking out long-term disability
insurance...make sure you research the company and understand all the ins and
outs about their polices.  My company sold me on taking out extra insurance
coverage with Cigna and they have not followed through with good faith
practice...meaning I haven't recieved the monies I paid to receive if ever
disabled.

Thanks for being here.
anokij



--- In womenwithsci@yahoogroups.com, laura.beaudin@... wrote:
>
> Hi all,
>
> I guess I should post an introduction. I'm Laura and I live in Edmonton,
Alberta. I just turned 31 and have been stuck in the hospital and away from my
two young daughters since March 15.
>
> I guess I should say that I do not have an SCI. I have multiple sclerosis and
either my condition has evolved into the secondary-progressive form, or I have
TM. I went to the Emergency in March for pain-control for back spasms and
steroids and couldn't walk sincre I got there. I'm now waiting for a neuro-rehab
bed at the hospital next door.
>
> I hope you guys don't mind me on the list...being essentially paralysed, I'm
hoping that this would be a good place to swap info...even from the rehab. Point
of view, it seems like I've already been lumped in there with the SCI crowd.
>
> Laura
> Sent on the TELUS Mobility network with BlackBerry
>
> -----Original Message-----
> From: "ladybug_nicole2006" <ladybug_nicole2006@...>
>
> Date: Wed, 27 May 2009 01:07:54
> To: <womenwithsci@yahoogroups.com>
> Subject: [Women with SCI] Pregancy
>
>
> Well im 6 week pregnant and im L2 incomplete and i can walk some with braces
and a walker...But im a little worried. One of my concerns is being weighed
every visit not being able to stand by myself. Well if anyone can give me some
advice that would be great!
> ~Nicole~
>
>
>
>
> [Non-text portions of this message have been removed]
>

Welcome  to the group Laura.  Like Monica said we share a lot of the same
issues.  I am also the mother of 2 daughters and boy.  The girls were only seven
when I had my accident.  We have develop together in this process and the same
will happen to you. 

Keep us inform of your progress and good luck in rehab

Liza




________________________________
From: "laura.beaudin@..." <laura.beaudin@...>
To: womenwithsci@yahoogroups.com
Sent: Tuesday, May 26, 2009 10:09:06 PM
Subject: [Women with SCI] Newbie





Hi all,

I guess I should post an introduction. I'm Laura and I live in Edmonton,
Alberta. I just turned 31 and have been stuck in the hospital and away from my
two young daughters since March 15.

I guess I should say that I do not have an SCI. I have multiple sclerosis and
either my condition has evolved into the secondary-progressi ve form, or I have
TM. I went to the Emergency in March for pain-control for back spasms and
steroids and couldn't walk sincre I got there. I'm now waiting for a neuro-rehab
bed at the hospital next door.

I hope you guys don't mind me on the list...being essentially paralysed, I'm
hoping that this would be a good place to swap info...even from the rehab. Point
of view, it seems like I've already been lumped in there with the SCI crowd.

Laura
Sent on the TELUS Mobility network with BlackBerry

-----Original Message-----
From: "ladybug_nicole2006 " <ladybug_nicole2006@ yahoo.com>

Date: Wed, 27 May 2009 01:07:54
To: <womenwithsci@ yahoogroups. com>
Subject: [Women with SCI] Pregancy


Well im 6 week pregnant and im L2 incomplete and i can walk some with braces and
a walker...But im a little worried. One of my concerns is being weighed every
visit not being able to stand by myself. Well if anyone can give me some advice
that would be great!
~Nicole~



[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Congratulations Nicole,

Usually the put me on a special scale chair and all and when I transfer to the
examining table the weigh the chair.
After a quick subtraction of both numbers I get the dreadful total.

Keep in touch,

Liza




________________________________
From: ladybug_nicole2006 <ladybug_nicole2006@...>
To: womenwithsci@yahoogroups.com
Sent: Tuesday, May 26, 2009 8:07:54 PM
Subject: [Women with SCI] Pregancy





Well im 6 week pregnant and im L2 incomplete and i can walk some with braces and
a walker...But im a little worried. One of my concerns is being weighed every
visit not being able to stand by myself. Well if anyone can give me some advice
that would be great!
~Nicole~







[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

Welcome, Laura, we are happy to have you. I have many friends with MS and
many issues are similar with SCI and MS. I know we are happy to share
information.



Have a great day!

Monica KamalRossa
  <http://www.rossadigitaldesign.com/> www.RossaDigitalDesign.com
Madison's Spinal Cord Injury Group Coordinator
  <http://www.SCI-Madison.org> www.SCI-Madison.org
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi

   _____

From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
Behalf Of laura.beaudin@...
Sent: Tuesday, May 26, 2009 10:09 PM
To: womenwithsci@yahoogroups.com
Subject: [Women with SCI] Newbie








Hi all,

I guess I should post an introduction. I'm Laura and I live in Edmonton,
Alberta. I just turned 31 and have been stuck in the hospital and away from
my two young daughters since March 15.

I guess I should say that I do not have an SCI. I have multiple sclerosis
and either my condition has evolved into the secondary-progressive form, or
I have TM. I went to the Emergency in March for pain-control for back spasms
and steroids and couldn't walk sincre I got there. I'm now waiting for a
neuro-rehab bed at the hospital next door.

I hope you guys don't mind me on the list...being essentially paralysed, I'm
hoping that this would be a good place to swap info...even from the rehab.
Point of view, it seems like I've already been lumped in there with the SCI
crowd.

Laura
Sent on the TELUS Mobility network with BlackBerry

-----Original Message-----
From: "ladybug_nicole2006" <ladybug_nicole2006@
<mailto:ladybug_nicole2006%40yahoo.com> yahoo.com>

Date: Wed, 27 May 2009 01:07:54
To: <womenwithsci@ <mailto:womenwithsci%40yahoogroups.com> yahoogroups.com>
Subject: [Women with SCI] Pregancy


Well im 6 week pregnant and im L2 incomplete and i can walk some with braces
and a walker...But im a little worried. One of my concerns is being weighed
every visit not being able to stand by myself. Well if anyone can give me
some advice that would be great!
~Nicole~



[Non-text portions of this message have been removed]



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.5.339 / Virus Database: 270.12.39/2133 - Release Date: 05/26/09
08:53:00




[Non-text portions of this message have been removed]

Greetings!

I have attached a few pictures from the marathon - where Monica is rollin'
and from Bobfest in Spring Green - where Bob was rockin' out.



It was a brutal and hard course. I had two vehicles and many pedestrians and
bikers on the course that were in the way and wouldn't move. Many turns were
unclear. I went the wrong direction once and my team mate missed a turn on a
loop.



However, all in all, it was a great ride!



See you at the races.

Monica

Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
  <http://www.SCI-Madison.org> www.SCI-Madison.org
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi







Subject: Congratulation Marathon athletes



I want to congratulate ALL of our Achilles Marathon athletes in a super,
just super great job yesterday!!! Each of them set new PR (Personal Records)
on the beautiful day over a much hillier course. I'm proud of you all 26.2
miles is a very long way and a long day!!!



Athlete                                  Madison Time
NY Marathon Time



Brad Dakan                             2hr 35 min
3:27:30

Monica KamalRossa                2 hr 48 min
3:07:56



Kathy Ducat                            5 hr 47 min
6:01:11

Jim Cunningham                      5 hr 02 min
5:04:58





Also a VERY BIG thank you to Kathy's Guide Molly Johannessen for running and
guiding Kathy in her training runs and during her long marathon race day.
Thank you so much Molly!!!



And thanks to all that came out to cheer for them and those that worked the
Brat Fest - you all rock!!!





See you soon - Thursday, Sincerely Captain Kimmer

No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.5.339 / Virus Database: 270.12.39/2133 - Release Date: 05/25/09
08:16:00




[Non-text portions of this message have been removed]

HEY,
Not sure how much help I can be, but at the age of  21  became a para, had a 3
year old at time and a hubby that decided he couldn't handle that life. Anyway
to make a long st
ory short 2 years later I met my now hubby and we went on to have 2 more kids.
Now that was 30 years ago, and now we have 4 beautiful grandkids. Any questions
I can help you with feel free to write me. ANYTIME!!!!! Hope to hear back.
Later, Theresa in Louisiana
--- On Tue, 5/26/09, ladybug_nicole2006 <ladybug_nicole2006@...> wrote:

From: ladybug_nicole2006 <ladybug_nicole2006@...>
Subject: [Women with SCI] Pregancy
To: womenwithsci@yahoogroups.com
Date: Tuesday, May 26, 2009, 8:07 PM

















       Well im 6 week pregnant and im L2 incomplete and i can walk some with
braces and a walker...But im a little worried. One of my concerns is being
weighed every visit not being able to stand by myself. Well if anyone can give
me some advice that would be great!

~Nicole~































[Non-text portions of this message have been removed]

Hi Nicole.
That's great you are pregnant.  I have one girl and she is wonderful and a
handful at the same time.  I would never give up motherhood.
Two places I have found that I can be weighed are Weight Watchers (you can call
and ask if they have a wheelchair scale)and a local rehab.  Both of these places
you are weighed in a chair.  Just have to know the weight of the chair.  I would
just go in and tell them my situation and see if they could weigh you for free. 
I beleive that it does not hurt to ask.
I hope that this helps.  Let us know how your pregnancy goes and what you have.
mary

Hi all,

I guess I should post an introduction. I'm Laura and I live in Edmonton,
Alberta. I just turned 31 and have been stuck in the hospital and away from my
two young daughters since March 15.

I guess I should say that I do not have an SCI. I have multiple sclerosis and
either my condition has evolved into the secondary-progressive form, or I have
TM. I went to the Emergency in March for pain-control for back spasms and
steroids and couldn't walk sincre I got there. I'm now waiting for a neuro-rehab
bed at the hospital next door.

I hope you guys don't mind me on the list...being essentially paralysed, I'm
hoping that this would be a good place to swap info...even from the rehab. Point
of view, it seems like I've already been lumped in there with the SCI crowd.

Laura
Sent on the TELUS Mobility network with BlackBerry

-----Original Message-----
From: "ladybug_nicole2006" <ladybug_nicole2006@...>

Date: Wed, 27 May 2009 01:07:54
To: <womenwithsci@yahoogroups.com>
Subject: [Women with SCI] Pregancy


Well im 6 week pregnant and im L2 incomplete and i can walk some with braces and
a walker...But im a little worried. One of my concerns is being weighed every
visit not being able to stand by myself. Well if anyone can give me some advice
that would be great!
~Nicole~




[Non-text portions of this message have been removed]

Hi,

I'm Laura and I'm new to the list. I'll sent an intro in a moment.

I'm still in the hospital and the inpatient beds are all equiped with
scales...would it not be possible to access one to get weighed? Alternatively,
what do people with other mobility problems do in this case?

Laura
Sent on the TELUS Mobility network with BlackBerry

-----Original Message-----
From: "ladybug_nicole2006" <ladybug_nicole2006@...>

Date: Wed, 27 May 2009 01:07:54
To: <womenwithsci@yahoogroups.com>
Subject: [Women with SCI] Pregancy


Well im 6 week pregnant and im L2 incomplete and i can walk some with braces and
a walker...But im a little worried. One of my concerns is being weighed every
visit not being able to stand by myself. Well if anyone can give me some advice
that would be great!
~Nicole~




[Non-text portions of this message have been removed]

Well im 6 week pregnant and im L2 incomplete and i can walk some with braces and
a walker...But im a little worried. One of my concerns is being weighed every
visit not being able to stand by myself. Well if anyone can give me some advice
that would be great!
~Nicole~

thanks will check it out.
mary




________________________________
From: Monica KamalRossa <xena-rolls@...>
To: Monica K <xenarolls@...>
Cc: womenwithsci@yahoogroups.com; SCI-Madison@yahoogroups.com
Sent: Wednesday, March 25, 2009 8:31:08 PM
Subject: [Women with SCI] FW: Special Living Magazine


FYI...

Special Living is know online and free. It is a quarterly publication and I
always enjoy reading it.

www.specialiving. com
Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
www.SCI-Madison. org
------------ --------- --------- --------- -
Be the change you want to see in the world. -- Mahatma Gandhi







[Non-text portions of this message have been removed]

FYI...

Special Living is know online and free.  It is a quarterly publication and I
always enjoy reading it.

www.specialiving.com
Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
www.SCI-Madison.org
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi

Hello..... :)
 
     Was wondering if anybody has Yahoo Messenger? If so, please feel free to
add me! It'd be nice talk.... :)  my sn is mrsldyinwheels@... I am usually
on when I get off work (which my schedule changed today so i'll be working
wednesday 4hr's, thursday-friday all day love it cos now i can take my daughter
to school, come home and concentrate on my assignments....got a 94 so
far...8more weeks left) anyhow i digress..... feel free to add me :)
Rebecca

--- On Thu, 2/26/09, theresa hebert <Rodalways70512@...> wrote:

From: theresa hebert <Rodalways70512@...>
Subject: RE: [Women with SCI] HI
To: womenwithsci@yahoogroups.com
Date: Thursday, February 26, 2009, 12:50 AM






Hey,
 It's hard what to tell him and what not to tell him, we treated this girl like
a member of our family, 3 years worth of love meant nothing to this girl. She
ended up telling him that she was falling out of love with him, WOW I know that
just about killed him. To top things off she didn't want to work, but after she
left him and moved to her sisters she got a job and went on with her life like
he was never in it. She also left behind a dog , that was hers, I already have a
inside dog and have just lost a 14 year , so no way do I want another one.
Anyway, he has alot to deal with and she just moved on, but I promised myself I
would stay out of it, but boy is it hard.. My middle daughter got on myspace and
let his ex have it , cause she kept posting, finally single, so glad to be
single, on my own, well my daughter said enough was enough and told her what she
had been wanting to. I would love to do the same , but don't want to give her
the satisfaction of
knowing it bugs me that she hurt my son the way she did. Anyway, I think he will
be ok, he has gone out a couple of times, Mardi Gras just finished down here so
he went here and there. One problem he has is their friends seem to think they
need to tell him everything she is doing. Told him, that's because she probably
told them to, who knows. All I know is sure am glad am not in dating world
nowadays, LOL. I met my husband in 1976, 2 years after my accident, he never
looked at me as the girl that couldn't do this or that, so it was great. Now I
was married with a 3 year old at time of my accident and he just dropped me at
my moms when I came home on a weekend pass. What a jerk, he said he couldn't
live with me cause I could never have kids again, boy could I give up some dirt
on him, but will another time. But they say God doesn't punish with a stick, and
believe me it's true. Well dog crying to go out and need to fix son's lunch for
tomorrow, will be
back tomorrow, have a nice night.
Later, T

--- On Wed, 2/25/09, Rebecca Sanchez <mrsldyinwheels@ yahoo.com> wrote:
From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>
Subject: RE: [Women with SCI] HI
To: womenwithsci@ yahoogroups. com
Date: Wednesday, February 25, 2009, 5:49 PM

Hey T!!! :)

   How are you!? Loving the weather here!!! gosh a broken heart huh? really
tough! :( I have 10more years (hopefully) before my daughter will have a
bf......PRAYING it'll be longer than age 15yrs.....I remember my first broken
heart....was w/the guy for 3yrs!!! Very tough! I feel for him, I don't think
there is a way to really tell somebody that a person isn't right for them, just
a part of life....gotta be reminded that when one door closes another one opens,
and it is much easier to say that than to see it!

How did you all meet your spouses??? What was your first broken heart like??? In
2001, I moved to Las Cruces and started dating this guy Lee, the relationship
moved quickly and before we knew it we were engaged....lost my virginity to him,
and soon afterwards he said he wasn't 'ready' to be married he just wanted to
date, so i gave him his ring back....tried to make it work with just dating, but
I was also going to school (NMSU) plus it was my first time ever being away from
'home'.....it didn't work out.....With a mixture of these feelings, I caught the
next bus back to Carlsbad (home) and stayed home for about 2-3 weeks before
returning, of course it hurt me when it came to school...... One night my
friends had all gone out and I had chose to stay in and mope...I ended up
spending the evening in a Yahoo chat room (back then they were not as bad as
they are now with all the bots), there was a sn that was similar to my x-Lee, so
I decided that i would

'mess' with him.....to make a long story short, it turned out to be my now
husband and his name is also Lee! LOL we've been together 7yr's and just got
married July 11, 2008......got married July 11, his birthday is July 12, and
mine is July 13th!!! Hey may as well get them all over with in a couple of days
instaed of spreading them out over a year huh? HaHa!!!

Yes Hotels are definetly a challenge when it comes to bathrooms... .In Oct. 2008
we went to Albuquerque for a conference for work, to which we stayed at this
5-star hotel (courtesy of work) they put ALL the people in w/c's on the upper
floors!!! the blind, people they put in the lower floors! lol it was funny
afterwards.. ..people don't THINK before they do!

Anyhow phone just rang, then its time to make dinner and get ready to do this
all over tomarrow:)

Rebecca

--- On Wed, 2/25/09, theresa hebert <Rodalways70512@ yahoo.com> wrote:

From: theresa hebert <Rodalways70512@ yahoo.com>

Subject: RE: [Women with SCI] HI

To: womenwithsci@ yahoogroups. com

Date: Wednesday, February 25, 2009, 6:13 PM

Don't know why , but pics didn't show on my email, can you send them to me?? The
bathroom thing can really be a problem, so far every place I have lived I have
been able to get in and out of bathroom, maybe because older homes, who knows. I
do know when we use to go on vacation, the bathroom always seem to be a problem.
Well would write more , but trying to clean out sons old room, he's moving home
after being gone for 3 years. he and gf broke up and think he just needs time to
heal and where is a better place then at home with mom helping him, by the way
he is 24 , but still my baby. anybody got any tips on how he can get over a girl
that was really not good for him to start out with. Have a good day till later,
by the way our weather down here is 69  right now, suppose to hit high 70's, can
hardly wait for warm weather, by back has been killing me. Talk soon, later, T

--- On Tue, 2/24/09, Rebecca Sanchez <mrsldyinwheels@ yahoo.com> wrote:

From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>

Subject: RE: [Women with SCI] HI

To: womenwithsci@ yahoogroups. com

Date: Tuesday, February 24, 2009, 11:58 PM

Hello!!!

    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet. ....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha

   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)

 

How is everything on your side of the world???? Again my aplogies for the delay
in responding.. ...

Rebecca

p.s

my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)

and then just one of my daughter

 

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

Hey,
 It's hard what to tell him and what not to tell him, we treated this girl like
a member of our family, 3 years worth of love meant nothing to this girl. She
ended up telling him that she was falling out of love with him, WOW I know that
just about killed him. To top things off she didn't want to work, but after she
left him and moved to her sisters she got a job and went on with her life like
he was never in it. She also left behind a dog , that was hers, I already have a
inside dog and have just lost a 14 year , so no way do I want another one.
Anyway, he has alot to deal with and she just moved on, but I promised myself I
would stay out of it, but boy is it hard. My middle daughter got on myspace and
let his ex have it , cause she kept posting, finally single, so glad to be
single, on my own, well my daughter said enough was enough and told her what she
had been wanting to. I would love to do the same , but don't want to give her
the satisfaction of
  knowing it bugs me that she hurt my son the way she did. Anyway, I think he
will be ok, he has gone out a couple of times, Mardi Gras just finished down
here so he went here and there. One problem he has is their friends seem to
think they need to tell him everything she is doing. Told him, that's because
she probably told them to, who knows. All I know is sure am glad am not in
dating world nowadays, LOL. I met my husband in 1976, 2 years after my accident,
he never looked at me as the girl that couldn't do this or that, so it was
great. Now I was married with a 3 year old at time of my accident and he just
dropped me at my moms when I came home on a weekend pass. What a jerk, he said
he couldn't live with me cause I could never have kids again, boy could I give
up some dirt on him, but will another time. But they say God doesn't punish with
a stick, and believe me it's true. Well dog crying to go out and need to fix
son's lunch for tomorrow, will be
  back tomorrow, have a nice night.
Later, T

--- On Wed, 2/25/09, Rebecca Sanchez <mrsldyinwheels@...> wrote:
From: Rebecca Sanchez <mrsldyinwheels@...>
Subject: RE: [Women with SCI] HI
To: womenwithsci@yahoogroups.com
Date: Wednesday, February 25, 2009, 5:49 PM












             Hey T!!! :)

   How are you!? Loving the weather here!!! gosh a broken heart huh? really
tough! :( I have 10more years (hopefully) before my daughter will have a
bf......PRAYING it'll be longer than age 15yrs.....I remember my first broken
heart....was w/the guy for 3yrs!!! Very tough! I feel for him, I don't think
there is a way to really tell somebody that a person isn't right for them, just
a part of life....gotta be reminded that when one door closes another one opens,
and it is much easier to say that than to see it!

How did you all meet your spouses??? What was your first broken heart like??? In
2001, I moved to Las Cruces and started dating this guy Lee, the relationship
moved quickly and before we knew it we were engaged....lost my virginity to him,
and soon afterwards he said he wasn't 'ready' to be married he just wanted to
date, so i gave him his ring back....tried to make it work with just dating, but
I was also going to school (NMSU) plus it was my first time ever being away from
'home'.....it didn't work out.....With a mixture of these feelings, I caught the
next bus back to Carlsbad (home) and stayed home for about 2-3 weeks before
returning, of course it hurt me when it came to school...... One night my
friends had all gone out and I had chose to stay in and mope...I ended up
spending the evening in a Yahoo chat room (back then they were not as bad as
they are now with all the bots), there was a sn that was similar to my x-Lee, so
I decided that i would

  'mess' with him.....to make a long story short, it turned out to be my now
husband and his name is also Lee! LOL we've been together 7yr's and just got
married July 11, 2008......got married July 11, his birthday is July 12, and
mine is July 13th!!! Hey may as well get them all over with in a couple of days
instaed of spreading them out over a year huh? HaHa!!!

Yes Hotels are definetly a challenge when it comes to bathrooms... .In Oct. 2008
we went to Albuquerque for a conference for work, to which we stayed at this
5-star hotel (courtesy of work) they put ALL the people in w/c's on the upper
floors!!! the blind, people they put in the lower floors! lol it was funny
afterwards.. ..people don't THINK before they do!

Anyhow phone just rang, then its time to make dinner and get ready to do this
all over tomarrow:)

Rebecca



--- On Wed, 2/25/09, theresa hebert <Rodalways70512@ yahoo.com> wrote:



From: theresa hebert <Rodalways70512@ yahoo.com>

Subject: RE: [Women with SCI] HI

To: womenwithsci@ yahoogroups. com

Date: Wednesday, February 25, 2009, 6:13 PM



Don't know why , but pics didn't show on my email, can you send them to me?? The
bathroom thing can really be a problem, so far every place I have lived I have
been able to get in and out of bathroom, maybe because older homes, who knows. I
do know when we use to go on vacation, the bathroom always seem to be a problem.
Well would write more , but trying to clean out sons old room, he's moving home
after being gone for 3 years. he and gf broke up and think he just needs time to
heal and where is a better place then at home with mom helping him, by the way
he is 24 , but still my baby. anybody got any tips on how he can get over a girl
that was really not good for him to start out with. Have a good day till later,
by the way our weather down here is 69  right now, suppose to hit high 70's, can
hardly wait for warm weather, by back has been killing me. Talk soon, later, T



--- On Tue, 2/24/09, Rebecca Sanchez <mrsldyinwheels@ yahoo.com> wrote:

From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>

Subject: RE: [Women with SCI] HI

To: womenwithsci@ yahoogroups. com

Date: Tuesday, February 24, 2009, 11:58 PM



Hello!!!



    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet. ....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha



   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)



 



How is everything on your side of the world???? Again my aplogies for the delay
in responding.. ...



Rebecca



p.s



my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)



and then just one of my daughter



 



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]































[Non-text portions of this message have been removed]

Hey T!!! :)
   How are you!? Loving the weather here!!! gosh a broken heart huh? really
tough! :( I have 10more years (hopefully) before my daughter will have a
bf......PRAYING it'll be longer than age 15yrs.....I remember my first broken
heart....was w/the guy for 3yrs!!! Very tough! I feel for him, I don't think
there is a way to really tell somebody that a person isn't right for them, just
a part of life....gotta be reminded that when one door closes another one opens,
and it is much easier to say that than to see it!
How did you all meet your spouses??? What was your first broken heart like??? In
2001, I moved to Las Cruces and started dating this guy Lee, the relationship
moved quickly and before we knew it we were engaged....lost my virginity to him,
and soon afterwards he said he wasn't 'ready' to be married he just wanted to
date, so i gave him his ring back....tried to make it work with just dating, but
I was also going to school (NMSU) plus it was my first time ever being away from
'home'.....it didn't work out.....With a mixture of these feelings, I caught the
next bus back to Carlsbad (home) and stayed home for about 2-3 weeks before
returning, of course it hurt me when it came to school......One night my friends
had all gone out and I had chose to stay in and mope...I ended up spending the
evening in a Yahoo chat room (back then they were not as bad as they are now
with all the bots), there was a sn that was similar to my x-Lee, so I decided
that i would
  'mess' with him.....to make a long story short, it turned out to be my now
husband and his name is also Lee! LOL we've been together 7yr's and just got
married July 11, 2008......got married July 11, his birthday is July 12, and
mine is July 13th!!! Hey may as well get them all over with in a couple of days
instaed of spreading them out over a year huh? HaHa!!!
Yes Hotels are definetly a challenge when it comes to bathrooms....In Oct. 2008
we went to Albuquerque for a conference for work, to which we stayed at this
5-star hotel (courtesy of work) they put ALL the people in w/c's on the upper
floors!!! the blind, people they put in the lower floors! lol it was funny
afterwards....people don't THINK before they do!
Anyhow phone just rang, then its time to make dinner and get ready to do this
all over tomarrow:)
Rebecca

--- On Wed, 2/25/09, theresa hebert <Rodalways70512@...> wrote:

From: theresa hebert <Rodalways70512@...>
Subject: RE: [Women with SCI] HI
To: womenwithsci@yahoogroups.com
Date: Wednesday, February 25, 2009, 6:13 PM






Don't know why , but pics didn't show on my email, can you send them to me?? The
bathroom thing can really be a problem, so far every place I have lived I have
been able to get in and out of bathroom, maybe because older homes, who knows. I
do know when we use to go on vacation, the bathroom always seem to be a problem.
Well would write more , but trying to clean out sons old room, he's moving home
after being gone for 3 years. he and gf broke up and think he just needs time to
heal and where is a better place then at home with mom helping him, by the way
he is 24 , but still my baby. anybody got any tips on how he can get over a girl
that was really not good for him to start out with. Have a good day till later,
by the way our weather down here is 69  right now, suppose to hit high 70's, can
hardly wait for warm weather, by back has been killing me. Talk soon, later, T

--- On Tue, 2/24/09, Rebecca Sanchez <mrsldyinwheels@ yahoo.com> wrote:
From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>
Subject: RE: [Women with SCI] HI
To: womenwithsci@ yahoogroups. com
Date: Tuesday, February 24, 2009, 11:58 PM

Hello!!!

    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet. ....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha

   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)

 

How is everything on your side of the world???? Again my aplogies for the delay
in responding.. ...

Rebecca

p.s

my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)

and then just one of my daughter

 

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

--- In womenwithsci@yahoogroups.com, Rebecca Sanchez
<mrsldyinwheels@...> wrote:
>Hello, my name is Connie and I'm new to the list.  I'm T-12
complete, post almost 6 years.  Have you tried "crank hindges"
or "off set hindges"  This will give you about 2 extra inches in the
doorway.  They are not hard for your husband to install and do not
cost much.  We got them at a hardware store.  We had to look around
different hardware stores inorder to find them, but they are a
blessing.
Connie

> Hello!!!
>     Sorry it has been a while since I last wrote! These past couple
of weeks have been bitter-sweet.....We did finally move....the
apartment is great! Only thing bad is the bathroom door is not wide
enough for my w/c to go through so in order to take a shower or w/e,
i have to get on the floor and crawl in, then husband has to lift me
up......we have dealed with this though with other houses...... one
day when money falls outta the sky we'll be able to have a house
built! lol haha
>    I dont know if I told you all but i did pass my class with a
C!!! Yeayyyy I started my last class this past monday....only 8weeks
left..... :)
>  
> How is everything on your side of the world???? Again my aplogies
for the delay in responding.....
> Rebecca
> p.s
> my heres a pic of my daughter and me at the sidewalk of stars in
CA.... :)
> and then just one of my daughter
>  
>
>
>
>
> [Non-text portions of this message have been removed]
>

Hi Theresa,

I read some place that  to get over someone it helps to
focus on their bad qualities.

Good luck!

Liza




________________________________
From: theresa hebert <Rodalways70512@...>
To: womenwithsci@yahoogroups.com
Sent: Wednesday, February 25, 2009 12:13:32 PM
Subject: RE: [Women with SCI] HI


Don't know why , but pics didn't show on my email, can you send them to me?? The
bathroom thing can really be a problem, so far every place I have lived I have
been able to get in and out of bathroom, maybe because older homes, who knows. I
do know when we use to go on vacation, the bathroom always seem to be a problem.
Well would write more , but trying to clean out sons old room, he's moving home
after being gone for 3 years. he and gf broke up and think he just needs time to
heal and where is a better place then at home with mom helping him, by the way
he is 24 , but still my baby. anybody got any tips on how he can get over a girl
that was really not good for him to start out with. Have a good day till later,
by the way our weather down here is 69  right now, suppose to hit high 70's, can
hardly wait for warm weather, by back has been killing me. Talk soon, later, T

--- On Tue, 2/24/09, Rebecca Sanchez <mrsldyinwheels@ yahoo.com> wrote:
From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>
Subject: RE: [Women with SCI] HI
To: womenwithsci@ yahoogroups. com
Date: Tuesday, February 24, 2009, 11:58 PM

Hello!!!

    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet. ....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha

   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)

 

How is everything on your side of the world???? Again my aplogies for the delay
in responding.. ...

Rebecca

p.s

my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)

and then just one of my daughter

 

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Don't know why , but pics didn't show on my email, can you send them to me?? The
bathroom thing can really be a problem, so far every place I have lived I have
been able to get in and out of bathroom, maybe because older homes, who knows. I
do know when we use to go on vacation, the bathroom always seem to be a problem.
Well would write more , but trying to clean out sons old room, he's moving home
after being gone for 3 years. he and gf broke up and think he just needs time to
heal and where is a better place then at home with mom helping him, by the way
he is 24 , but still my baby. anybody got any tips on how he can get over a girl
that was really not good for him to start out with. Have a good day till later,
by the way our weather down here is 69  right now, suppose to hit high 70's, can
hardly wait for warm weather, by back has been killing me. Talk soon, later, T

--- On Tue, 2/24/09, Rebecca Sanchez <mrsldyinwheels@...> wrote:
From: Rebecca Sanchez <mrsldyinwheels@...>
Subject: RE: [Women with SCI] HI
To: womenwithsci@yahoogroups.com
Date: Tuesday, February 24, 2009, 11:58 PM












             Hello!!!

    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet. ....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha

   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)

 

How is everything on your side of the world???? Again my aplogies for the delay
in responding.. ...

Rebecca

p.s

my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)

and then just one of my daughter

 



[Non-text portions of this message have been removed]































[Non-text portions of this message have been removed]

Hello
   No I havn't tried the things for the doors.....the whole bathroom is small,
thinking if i could get a chair such as a office chair, then i could xfer to it,
use the bathroom sink, wall to move to the tub?.... what do u think? Oman sorry
about the weather there!!! :( Does not sound good.... it has been in the upper
80's here the last couple of days, it'll be dry and windy til about April-May
then we usually have one last freeze b4 summer weather hits.....can't wait!!!
soo tired of cold weather....but i guess i shouldn't complain cos we are not
covered w/snow, actually we havnt seen much snow this year....hmmm.... anyhow,
i'm off 2 work....nice to hear from you 2 :)
Rebecca

--- On Wed, 2/25/09, Liza Perez <lmp9107@...> wrote:

From: Liza Perez <lmp9107@...>
Subject: Re: [Women with SCI] HI
To: womenwithsci@yahoogroups.com
Date: Wednesday, February 25, 2009, 2:52 PM






Hi Rebecca,

Congrats on passing your class!!  You just gave me a good idea on how to deal
with the bathroom issue in houses with narrow doors. My parents house has that
same situation.  Have you try does thing you can put on the door hinges? I have
seen them in catalogs.  Here in WI is cold and grey so we are really looking
forward to spring.  Great pictures!!!  Keep in touch.

Liza

____________ _________ _________ __
From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>
To: womenwithsci@ yahoogroups. com
Sent: Tuesday, February 24, 2009 11:58:04 PM
Subject: RE: [Women with SCI] HI

Hello!!!
    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet. ....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha
   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)
 
How is everything on your side of the world???? Again my aplogies for the delay
in responding.. ...
Rebecca
p.s
my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)
and then just one of my daughter
 

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

Hi Rebecca,

Congrats on passing your class!!  You just gave me a good idea on how to deal
with the bathroom issue in houses with narrow doors. My parents house has that
same situation.  Have you try does thing you can put on the door hinges? I have
seen them in catalogs.  Here in WI is cold and grey so we are really looking
forward to spring.  Great pictures!!!  Keep in touch.

Liza




________________________________
From: Rebecca Sanchez <mrsldyinwheels@...>
To: womenwithsci@yahoogroups.com
Sent: Tuesday, February 24, 2009 11:58:04 PM
Subject: RE: [Women with SCI] HI


Hello!!!
    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet. ....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha
   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)
 
How is everything on your side of the world???? Again my aplogies for the delay
in responding.. ...
Rebecca
p.s
my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)
and then just one of my daughter
 

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Hello!!!
    Sorry it has been a while since I last wrote! These past couple of weeks
have been bitter-sweet.....We did finally move....the apartment is great! Only
thing bad is the bathroom door is not wide enough for my w/c to go through so in
order to take a shower or w/e, i have to get on the floor and crawl in, then
husband has to lift me up......we have dealed with this though with other
houses...... one day when money falls outta the sky we'll be able to have a
house built! lol haha
   I dont know if I told you all but i did pass my class with a C!!! Yeayyyy I
started my last class this past monday....only 8weeks left..... :)
 
How is everything on your side of the world???? Again my aplogies for the delay
in responding.....
Rebecca
p.s
my heres a pic of my daughter and me at the sidewalk of stars in CA.... :)
and then just one of my daughter
 




[Non-text portions of this message have been removed]

Here I am in the marathon:



I am on the bridge in NYC for the marathon-



Here are '07 pix of my sons and husband







Sunshine-Nader-Bob-Monica-DCP_1322.jpg
<http://www.rossadigitaldesign.com/2007card/images/sunshine-Nader-Bob-Monica
-DCP_1322.jpg>



Share some of your pictures. I can't wait to see them.



Have a great day!

Monica





[Non-text portions of this message have been removed]

Hi Theresa,

Wow, I love your sense of humor.



I just had my 8 year anniversary. I am a t5 SCI compete. I am looking
forward to grandkids at the correct time. I have a 16 year old son and a
soon to be 20 year old son.



Life is crazy. It is great to have this group. Thanks for sharing. Here is a
link to my marathon experience.
http://www.mswheelchairwi.org/NYCMarathon.html  It was my first marathon.



Have a great day!

Monica KamalRossa
Madison's Spinal Cord Injury Group Coordinator
  <http://www.SCI-Madison.org> www.SCI-Madison.org
----------------------------------------
Be the change you want to see in the world.   --   Mahatma Gandhi

   _____

From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com] On
Behalf Of theresa hebert
Sent: Tuesday, February 03, 2009 6:41 PM
To: womenwithsci@yahoogroups.com
Subject: Re: [Women with SCI] HI



Hi All,
  It sure is not the easiest thing to have a child and deal with all you have
to deal with just being in a chair. I think having my children taught me
alot about myself, never did I think I could deal with a baby and be in a
chair. But it really came natural, of course I had a 3 year old at the time
of my accident, so in a way bringing another child into our life was just a
blessing. Of course sure some thought I was completely nuts, haaaaaaaaaaa.
Anyway my oldest was 9 at the time I had my second, and not like she really
helped, but just was easier her being older. When my son was born 4 years
later, I said okay that's enough kids, cause actually I didn't even think of
getting pregnant, don't ask why it never cross my mind , cause I was having
regular periods. Here's a good one for ya'll , when my son was 4 months old
he weighed 22 lbs, can you imagine picking him up, haaaaa. Wouldn't have
traded him for the world. I miss my babies being babies, but I
do have 4 grankids who are my reason to go on. Bryce ,12, Grant ,7, Hannah,
10, and Alexis 6. I don't think it ever crossed the minds of the kids that
went to school with my children as to why their mom was in a wheelchair
cause most of the kids knew me. We live in a very small town and most people
know each other or their family. Just like at my grandkids school, they go
to the same school my kids went to and not once has a child asked why was I
in a chair. Some stare, but I think my granddaughters have told some, oh,
she was in a wreck and broke her neck and when you do that you can't walk
anymore. Kids will be kids and say whatever comes to mind, so just like life
whatever comes up, deal with it or not. I choose to live my life day by day
and have no regrets about anything, oh one, am getting older, but actually
would never want to be in the dating world nowadays.
  I'm not sure how to start this, so just will ask, What if any type of music
does everyone listen to?? Have to tell ya'll ,I am a die hard ROD STEWART
fan and go to as many of his concerts as I can. Hubby says he wish he would
retire, but told him, but then what would I do. If anyone has seen him in
concert sure they would agree with me that he puts on one great show. And of
course he kicks soccer balls out to the crowd, ( more on that later), and I
am lucky enough to have come home with 2 signed soccer balls by him. My
grandkids always ask to play with them, but no way will that happen. Hubby
and son-in-law said when I die they are going to sell them, I told them I
wanted to be buried with them, but they said I'll never know. Told them I
will come back and haunt them if they don't bury them with me. Ok girls, my
back is killing me and almost time for american idol, I don't usually watch
all the way through, but like the early shows to see who gets cut.
This has been great that this site finally has some action, keep it going
girls, looking forward to next letter. Take care and stay warm if it is cold
where you are.
Later, Theresa in Louisiana
REASON TO BELIEVE

--- On Tue, 2/3/09, Liza Perez <lmp9107@yahoo. <mailto:lmp9107%40yahoo.com>
com> wrote:
From: Liza Perez <lmp9107@yahoo. <mailto:lmp9107%40yahoo.com> com>
Subject: Re: [Women with SCI] HI
To: womenwithsci@ <mailto:womenwithsci%40yahoogroups.com> yahoogroups.com
Date: Tuesday, February 3, 2009, 10:27 AM

Hi Rebecca,

OK,how did you handle your girl  and the grocery cart all by yourself?  My
girls friends often have questions regarding how I  do  things and they
encourage them to ask me.  They are very proud of all the things I can do
and I also tell them that this is an opportunity to teach other people.  I
am not planning to have more kids but will like to be an active grandma so
thanks for the tips and please keep them coming.  Because your girl is young
this is a good time to network with other parents, it becomes a little more
difficult in middle school. Be very proactive and volunteer as much as
possible is her school.  They are always is need of helpers.  I learn this
from one of my male mentors,  "never hesitate to ask for help".

Like someone once said "To accomplish great things, we must not only act but
also dream, not only plan but also believe"

  Liza

____________ _________ _________ __

From: Rebecca Sanchez <mrsldyinwheels@ yahoo.com>

To: womenwithsci@ yahoogroups. com

Sent: Monday, February 2, 2009 10:40:14 PM

Subject: [Women with SCI] HI

Hi Lisa!

    My daughter is only 5yrs so hope that i can help you even just a little
bit..... :) OKay i admit having a baby and being n a w/c was not the easist
thing n the world! Until my daughter reached the stage where she could sit
up on her own, it was very difficult but i managed... :) when she reached
the stage where she could sit up on her own, i used one of those things that
you use to carry ur baby in u drap and fasten it on, then put the baby in
it, it made it easy and it was safe for both of us......I think toddlers
know that you are in a w/c i didn't really have a problem with her, of
course there were the times that she would run away from me n walmart, but i
just had to be patient and teach her that i could not run after her, and i
had her hold on to the arm of my w/c which she still does to this day.... I
think the scareist thought for me (and maybe cos we didn't have her in
daycare much) was when i sent her off to school (head start) wow that

was an emotional time! It was hard on me becuase the kids would ask her
'what happend to your mommy", and i'd go home and cry...i contemplated the
thought of telling the kids myself but on thier terms that they can
understand. however, somebody once told me to leave her be and when shes
ready she'll tell them, it's her life and not to make my life into hers by
forcing her to tell. i dont know if anyone has ever heard of him but there
is a song called "Walking on my Wheels" by Dan Crow, it's for childern, its
cute and says it in thier terms...but again, i gotta let her do it herself.
Of course when i went grocery shopping w/my tot in tow, i'd get the mean
glances but so what! i have EVERY RIGHT to be at the store just the same as
an 'abled bodied' person..... it would be nice to hear from others on this:)
sorry if i wasn't informative as i should be..... i'll think back and see if
i can pull some other tips from my mem. LOL however through it all,

remember you can hug them, kiss them, and love them and you don't need legs
for that!!! :)



Rebecca :)



[Non-text portions of this message have been removed]

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[Non-text portions of this message have been removed]



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.0.233 / Virus Database: 270.10.17/1934 - Release Date: 02/04/09
08:24:00




[Non-text portions of this message have been removed]

Here are a few ideas from one of my other groups-





Check out the following links:

1.       <http://www.familycaregiving101.org/> family caregiving 101
<http://www.familycaregiving101.org/> http://www.familycaregiving101.org/

2.       <http://www.nfcacares.org/> national family caregivers Association
<http://www.nfcacares.org/> http://www.nfcacares.org/


3.       <http://www.fscip.org/> Foundation for Spinal Cord Injury
Prevention, Care & Cure  The Foundation for Spinal Cord Injury Prevention,
Care & Cure (FSCIPCC) is a free ...please send an email message to
info@... or call 1-800-342-0330. ...
www.fscip.org/








-----------------------------------------------------------





"When I have symptoms that cannot be explained, I would begin looking at

the prescriptions and dosage. A pharmacist will be far more

knowledgeable as to side effects or negative interactions with other

prescriptions or herbal supplements. If that doesn't give any insight,

then I think a visit to her cardiologist would be worthy of an

ultrasound followed by a CT scan of the heart. I hope this helps.



Jim"







-----------------------------------------------------------

From: kurt christensen <kurtc415@...>
Date: Fri, Feb 13, 2009 at 5:21 PM
Subject: Mother C3/4 with low blood sugar
To: womenwithsci@yahoogroups.com



Is she pre diabetic?  Does she get enuf complex carbs and protein divided in
the day?  what time does the low b.s.happen?  that could be a clue.  Is she
anemic?  Low hemoglobin which carries oxygen could play a role.  My husband
gets vey sleepy and low heart rate and blood Pressure when his potassium is
low due to diuritics leaching out potasium from his body. Perhaps some blood
tests to check these.

hope these ideas lead you to an answer.





Susan C

--
Kurt Christensen
1391 Fritz Rd.
Verona, WI 53593
cell phone number 608-852-6853
home phone number 608-845-8525



________________________________



From: womenwithsci@yahoogroups.com [mailto:womenwithsci@yahoogroups.com]

On Behalf Of shirley_vaughan

Sent: Thursday, February 12, 2009 11:19 PM

To: womenwithsci@yahoogroups.com

Subject: [Women with SCI] Help! Can't find out why mother has

dangerously low blood pressure







Hi, I'm taking care of my my mother C3/C4 complete and she keeps

running into problems with her blood pressure tanking. I've had to take

her to the hospital two times and she would have died if I hadn't, it

was 48/34 when she went unconcious. Also, low oxygen level and high

fever. Anyone on this site taking care of a loved one run into this

problem, if so, what caused it? Any info would be appreciated.





[Non-text portions of this message have been removed]

Hi, I'm taking care of my my mother C3/C4 complete and she keeps
running into problems with her blood pressure tanking. I've had to take
her to the hospital two times and she would have died if I hadn't, it
was 48/34 when she went unconcious. Also, low oxygen level and high
fever. Anyone on this site taking care of a loved one run into this
problem, if so, what caused it? Any info would be appreciated.