Is there anyone out there??? I joined this group in hopes to talk with women who go through the everyday bs that I go through. I've been in my chair for almost...
HI, Shana, I am new to this group too. I have sent this group to a few of my SCI women friends to encourage them to join. I think it is great to talk about...
hi, I've been reading the comments for a while. There are so many good ideas out there. I am a t-10 complete, 7 1/2 years post injury. Recently I had a bone...
Hi, I am also a mother of girls and was very concern about their childhood, my cathing and other women issues. I had the same surgery that Monica described...
I was wondering if this could be reversed. I have a chance of walking again. And if this is done will that stop your bladder leaks. I'm on oxybutnin and my...
I am not sure if it can be reverse but they do not close your urethra. Technically I could still cath the other way. You should check with your neurologist...
I agree w/ Liza . Check with your dr. ... I was told it can be reversed but you would just stop cathing using the Mitrofanoff as everything else is left in...
What is the surgery recovery time frame? Also, does leaking ever occur especially when you have a UTI? Thx for sharing your experience! Kim ... SCI women ......
Hi, I have also had this surgery done about 5 years ago (or so). I have the augmentation also. To tell youthe truth I was not mentally prepared for the...
In three weeks you will be using your "new connection". I have not have any leakage due to a UTI. The surgery has been the best thing for me. I love...
I recently sustain second degree burns (hot water) between my legs. Does any of you have experience with this? It happen a week ago and they looked like fresh...
There's a cream you can put on it. Ask your doctor about it. I burned my self with a cig, a couple months ago and didn't get anything for it. Now I have a...
Make sure you use a cream with zinc for healing. Call or go to pharmacy and ask what is good to use on burns they should beable to help. Good luck, I will...
Hi, Last winter I got a first and second degree burn on my leg from a space heater. In the past I had been seen at the wound clinic at UMass Medical in...
Hi, Last winter I got a first and second degree burn on my leg from a space heater. In the past I had been seen at the wound clinic at UMass Medical in...
Thank you all for the trying to help me. At the wound center they put me on a cream call panafil. Supposedly it will remove dead cells and promote the grow...
It took quite a while for me . almost 1 month when I burned my leg and I was prescribed the zinc stuff to help with the healing. Have a great day! Monica...
I have it and love it. I didn't start leaking until a couple years later and my doctor did botox on my bladder and since then I have been fine. I can cath...
-Mary, I'm a t11,t12 complete para and have been for 10 years this June. I was in a car accident. My rehab doctor told me that it was not necessary to have a...
Hi! I joined this group sometime ago but I haven't left many messages until lately. I'm 60 years old, I've been a para for almost 10 years this June. I'm...
I also have had this done. My only problem was that the doctor failed to mention it was his first time. He chose to use bowel instead of appendix. Therefore i...
Hi, Mine was done with intestine too, since I did not have my appendix and was also getting the augmentation and that is was is use for that. I have not...
Hi, I got the results of the bone density test. I have osteoplagia. I was told that this is the precurser to osteoporosis. Now, I get to take calcium. ...
Hi everyone, I haven't been on in a couple weeks I moved and it's taking a lot of my time. I'm a little confused about the spasms i thought everyone who is...
Hi Shana- I am off of baclofen as of last year and I am fine without it. My spasm are pain related/ menstruation related/ full bowels . I think my case could...
Monica, My level is t-2 down it starts just under my chest. I'm a complete it's due to nerve damage. Transverse Myelitis. I have spasms all day the only time I...
Hi Shana, I am a T5 complete. I didn't mean to imply stopping baclofen as much as I meant to imply that we can best help ourselves when we consider that ...
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