For the new members that have not seen my web site, it is for people
with spinal cord injury.  It has member profiles, pictures, stories,
information, items of interest, and an in-depth forum.  In the forum
you can post questions, information, read other posts, etc..  Once you
join you can go to the meet friends page and do a search by State or
country to find people in your area.  We will be having a chat room
within two to three weeks.  In approximately three weeks we have
already gotten 109 members.  It's a great way to meet people and post
in a forum.  When you sign up if you need any help please let me
know.  Also after you sign up if you would like to add photos to your
profile you can do that or I can do it for you.

http://spinalresource.com/


Heather
C5 C7
San Antonio, Texas

A farmer had some puppies he needed to sell. He painted a sign
advertising the 4 pups.

And set about nailing it to a post on the edge of his yard.

As he was driving the last nail into  the post, he felt a tug on his
overalls.

He looked down into the eyes of a little  boy.

"Mister," he said "I want to buy one of your puppies."
"Well,"  said the farmer, as he rubbed the sweat of the back of his
neck,
"These puppies come from fine parents and cost a good deal of
money."

The boy  dropped his head for a moment.
Then reaching deep into his pocket, he pulled out a handful of change
and held it up to the farmer.

"I've got thirty-nine cents Is that enough to take a look?"
"Sure,"  said the farmer. And with that he let out  a whistle.
"Here, Dolly!" he called.

Out from the doghouse and down the ramp ran Dolly followed by four
little balls of  fur.

The little boy pressed his face against the chain link fence. His
eyes  danced with delight.

As the dogs made their way to the fence, the little boy noticed
something else stirring inside the doghouse.

Slowly another little ball appeared, this one noticeably smaller.
Down the ramp it slid.

Then in a somewhat awkward manner, the little pup began hobbling
toward the others,doing its best to catch up.

"I  want that one," the little boy said, pointing to  the runt.

The farmer knelt down  at the boy's side and said, "Son, you don't
want that puppy. He will never be able to run and  play  with you like these
other dogs would."

With that the little boy stepped  back from the fence,  reached
down, and began rolling up one leg of his trousers. In doing so he revealed a
steel brace running down both sides of his leg attaching itself to a specially
made shoe.

Looking back up  at the farmer, he said, "You see sir, I don't run too well
myself, and  he will need someone who understands."

Holding the little pup carefully he handed it to the  little boy.

"How much?" asked the little boy.
"No charge," answered the farmer, "There's no charge for love."


The  world is full of people who need someone who understands. It's  National 
Friendship  Week. Show  your friends how much you care.
--------------------------------------------------------------------------------\
---------------------------------------------------
  Hello, my name is Heather and I have a C5 C7 spinal cord injury.  It has been 3
1/2 years since my injury happened.  I recently started a spinal cord injury web
site.  It is for persons with spinal  cord injury, their family, and spouses. 
The site has member profiles, information/resources, member stories and an
in-depth forum.  The web site opened three weeks ago and we have approximately
95 members.  Soon we will have a chat room.  If you get a chance check out the
web site you don't have to sign up to look at the web site and it's free. I also
have a spinal cord injury Yahoo group.  If you would like a link for that you
can go to my web site on the items of interest page and click on it.
http://spinalresource.com/






[Non-text portions of this message have been removed]

Hello to all, again. Here is a new web site that I found that some of
you may be interested in. It was created by a person with a
disability. The web site itself has nothing to do with disability but
IT IS REALLY, REALLY FUNNY!!!! The web site says that it will rip you
off if you purchase from them... YET PEOPLE ARE STILL PURCHASING. It
is... http://upwd.net/ybrhome.html

thanks,
Diane Austin

Hello to all. We are looking for videos that deal with disability
subjects and situations to show on our web site. Some of the videos
we are now showing are...

A blind runner in the New York City Marathon.
A wheelchair comic.
Adventure travel for the physically challenged.
An organization that offers people with disabilities a free ride in a
glider.
A video game interface system that enables people living with a wide
range of disabilities to play video games at full speed with one
touch of a button.
Would you be able to evacuate your city during an emergency?
How easy sailing is for people with disabilities.
Running after a heart transplant.
Plus many more.

We are looking for ANYTHING. Your video can be self shot. Please
contact us at http://upwd.net or upwd@... if you have something.

Thanks,
United People With Disabilities

I have been watching the messages regarding the chat room.
Unfortunately, I don't know how to help with technical issues. I have
tried reaching out to set up times when a good majority of members
are logged in, but have not had any response. I don't know what more
to do to encourage response. I have not had any problems accessing
the chat room. When I log in to this group, and come to the home
page, I click on CHAT and am instantly directed to the chat room
where I am able to chat. If anyone else has any tech background, or
has resolved this problem, I'm sure the group would appreciate the
help.

>
>
>
> Hi,
> I fell into the chat room and i'm going toi try it again, but
exactly how do you access it?
> Yahoo! Groups Sponsor
> Get unlimited calls to


Hi Pamela,

To get into the chat room i just click on 'chat' link on the left
hand side of the screen once im on the women with sci page. It
automatically logs you in but takes a while sometimes.


becky
>

>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/womenwithsci/
>
>    To unsubscribe from this group, send an email to:
> womenwithsci-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
> [Non-text portions of this message have been removed]

Pam,
I just left yahoo tips!!! a not very nice question re: chat room.  I don't know
if it will help or not?
eileen


eileen









[Non-text portions of this message have been removed]

Pam,
I know what you mean.  We do need a chat room and we have asked for one for
along time but nothing happens.  I do not know how to do it or I would.  I will
back you up.
eileen


eileen









[Non-text portions of this message have been removed]

Hi,I have some personal things i wanted to chat with youall. But i
don't want to put it all out there if theres no one there to hear me.
I feel very strange saying anything to a blank page.Can someone
respond?
               Thanks Pam

Hi,

IM me and ask! <lippy_little_lady@...> wrote:
Hi Pamela,

There have been a couple of times when i've tried to log into the
chat room and its taken a long time to load up, but it has worked
eventually.

good luck with it!




Hi,
I fell into the chat room and i'm going toi try it again, but exactly how do you
access it?
Yahoo! Groups Sponsor
Get unlimited calls to

U.S./Canada


---------------------------------
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[Non-text portions of this message have been removed]

Hi Pamela,

There have been a couple of times when i've tried to log into the
chat room and its taken a long time to load up, but it has worked
eventually.

good luck with it!

Hi, i have been to the chat room twice now but it won't let me write
anything. Is there something wrong with this room or what? I know i'm
in the right chat room. What is up with this?

Hi, i am replying to inquiry as to helping your mom. I was injured in a car
accident and am now a quadrapeligic. I went to a school that teach people with
disabilities to adjust to their new life still.The one that i went to was
Woodrow Wilson Rehabilitation Center. Which is in Fishersville Virginia. But
there could be one close to you. They helped me tremendously. You might want to
look to this. If interested you could call your local Dept. of Rehabilitation,
they will give you the information you need. Good Luck.

kermur2 <godsgal2@...> wrote:
Anne,

Thanks for replying!

I will be moving closer to my mom; how close, I am not sure.
Probably not more than about 10 min. away.  I will be spending
almost all day with her, and any nights that my dad is away on
business.

Yes, I wil be helping in the areas of bathing and bowel care, as
well as any other areas that I will be needed.  I will most likely
help with housework and food prep too.  Not to mention that I will
be homeschooling all 5 of my children starting next fall.

Her accident was not perminant, so her doctors say.  With hard work
and determination, she has the ability to walk again, the only
problem is that I feel like she has become used to the chair and
sympathy she recieves from others as well as depressed because she
has lost her independance.  I don't blame her, I would probably feel
the same.  I want to be able to encourage her to continue to work on
regaining her strenght and ability to walk.  I feel that my dad has
felt sorry for her and therefore enabled her to stay in her chair.
I don't want to do that too.

She is in her early 50's, otherwise physically able to do things
except for the fact that she is about 150 lbs overweight.  That will
be an issue addressed when I start taking care of her.  As far as
transfering, she is still learning and having difficulty due to her
weight and the fact that she lost so much muscle strength from the
accident/surgeries/recovery.  Dad has been caregiver at night and
while on the road (with mom).  She has had attendants during the day
as well as PT/OT.  (By the way, she is a RN, so she will be a
difficult patient!!!!)

The only problem with talking to my dad is that he doesn't like to
talk about it.  It's too personal he says.  Mom dosen't talk about
it because it is embarrassing.  I can't talk to the attendants
because I live 2 states away, so I guess I will be getting a crash-
course in what I will be doing when I get there.

I just really need to know what to expect in the area of caring for
my mom.  I'm not getting anywhere with the folks, so, I have come to
you, women who know what it is like and who can possibly help me.

Thank you,
Kerrie

--- In womenwithsci@yahoogroups.com, Anne Bostwick <anne@f...> wrote:
> Hi, Kerrie
> I was a little confused by the wording of your email. I guess we'd
need a
> little more information to answer your question directly.
>
> You are moving closer to your mom? How close? How much time will
you be
> spending with her each day?
>
> Areas she probably will need help with would be bathing and bowel
care, at
> least. It depends on the level of her injury, her age and her
physical
> abilities. Can she transfer independently? Has your dad been your
mom's
> caregiver since the accident? Or has there been an attendant?
You'll need to
> talk to whoever has been caring for her to get more details, I'm
sure.
>
> If you could be a little more specific, I'm sure we'd all be happy
to help
> you figure things out.
>
> It sounds like you have your hands pretty full with five children
already. I
> wish you all the best.
> Anne
>
>
> On 1/24/05 11:18 AM, "kermur2" <godsgal2@h...> wrote:
>
> >
> >
> > Hello to all,
> >
> > I joined your group several months ago, but have never posted.  I
> > would like to ask someone's opinion about my possible upcoming
move.
> >
> > You see, my mom was in a car accident nearly two years ago and
has
> > been a parapallegic since that time.  My parents recently bought
a
> > house that is wheelchair accessible and are looking to find a
house
> > for me to move into.  At present, I am a single mom of 5 kids
ages
> > 13,8,7,4,& 3.  I live approximately 8 hours from my mom and have
had
> > a hard time with the distance since I can't be there to help take
> > care of her.
> >
> > I would like to know, what the worst of it will be like.  I know
how
> > rewarding it will be to be a help to my mom; don't get me wrong I
> > WANT to be there for her, but I just need to know the
difficulties I
> > will be facing.  I feel that if I know before-hand, I can be
> > prepaired and not shocked by the difficulties when they occur.
> >
> > My dad is little help in this area.  He dosen't like to talk
about
> > it, but is most grateful that I am willing to move two states
away
> > to be near her to help take care of her.
> >
> > Thanks for your help,
> > Kerrie
> >
> >
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
>
> anne@f...
> http://fey.cc





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[Non-text portions of this message have been removed]

One more thing I wanted to mention is that we have found the flight
attendants and everyone who has helped us to be very positive and
willing to help. Northwest is one airline we’ve been on that has been
good. You do have to say over and over, though, to everyone you deal
with, what you need and keep asking for it.

Darla (from Oregon, USA)

-----Original Message-----
From: Anne [mailto:anne@...]
Sent: Wednesday, February 09, 2005 12:57 PM
To: womenwithsci@yahoogroups.com
Subject: Re: [Women with SCI] chat room

Thanks for your informative email, Becky. See my comments below.

On 2/9/05 11:10 AM, "becky martin" <lippy_little_lady@...>
wrote:

>
> Hi Anne
> At the moment while i'm studying i'm living in Manchester, a city in
the north
> of England but home is actually a small village in Wales.
Sounds lovely. So you are Welsh?
>
> I do find accessability can be a problem over here. As of last October
all
> businesses were supposed to have made changes to becoming more
accessible to
> disabled people, personally I haven't noticed much physical change to
things
> like steps into buildings but the attitude of people has definately
changed.
> The main problem is access to older buildings, if they are listed
properties
> they cannot by law be structurally altered however people are very
willing to
> help where they can. Modern buildings are all fine for access.
How about your school? You mentioned some accessibility issues. Here in
the
US by law public schools have to be made accessible for wheelchair
users. So
do most public/government offices, libraries, etc.
>
> I dont often use public transport here, I have my own car and drive
myself to
> where ever i need to go. There are lots of black cabs in the city
area, I use
> these sometimes as they can roll me into the back still sitting in my
chair.
> The trams here are I believe accessible but I have never used them, so
too are
> most of the busses.
I've heard about those cabs. Do they strap you down at all? All of the
buses
in our city have wheelchair lifts. No cabs, though. There are also
transports called Access Vans that are provided by the city at a very
nominal price for people who don't live near a bus line or can't take
the
public bus unattended. I take the bus quite often. It's only 50 cents.
The
driver attaches straps to your chair so you don't roll around during the
trip. I am attempting to get my driver's license this year. We have a
wheelchair van, fully equipped with a ramp that comes out of the floor,
transfer seats, and hand controls.

>
> My wheelchair is provided by the health service but there are lots of
mobility
> centres where you can go to try out and buy both manual and powered
chairs.
I have private insurance which pays for my chairs. I am allowed a new
one
every five years.
>
> You asked about accomodation, when I go on my travels around the Uk I
always
> manage to find somewhere with access, the chain companys like travel
lodge
> always have a few adapted rooms, they're not fantastically adapted but
I
> manage fine, as long as I can get into a place I can make do! Someone
bought
> me a book 'accessible holidays in the british isles- a guide for
disabled
> people' there is info on accessible places if you look for it and as I
said
> before people are very helpful if you call up and will do their best
to
> accomodate.
Here are a couple of accessible travel sites:
http://www.wunago.com/
http://www.abletogo.com/  (this one I believe is based in England)

>
> So how are things in Washington access wise? I visited the US once
years ago
> when I was six, but remeber very little about it! we stayed in long
island.
> Just recently I've been thinking I'd love to go visit the USA again
not sure
> how i'd manage with the lenghty flight over though!
Our city is fairly new so most places are accessible, even some of the
older
buildings. As a disabled person, it sometimes seems my world revolves
around
restrooms and ramps. You really have to plan ahead before you go
somewhere.

I have actually only flown a very few times since becoming disabled. I
hated
it. Being stuck in your seat the whole flight. Not being able to use the
restroom. Being the first one on and the last one off. Having to be
strapped
into what I call the Hannibal Lector chair and wheeled up the aisle like
a
piece of baggage. It has turned me off to air travel completely. We
stick to
car trips. I took the train once, which wasn't bad.

I donąt know how other people do it. I have a friend who used to ask for
a
blanket, then use a catheter with a big attached, empty her bladder
under
the blanket, put the bag in a trash bag, and then hand it to the flight
attendant to dispose of. Maybe it's just me, but I can't see me doing
that.
Seems sort of degrading. Why should we have to pee right there in front
of
total strangers? They wouldn't expect anyone else to. Ugh.

Anyone else have experience with air travel they'd like to share?

Most of our hotels have accessible rooms, which vary in level of
accessibility. Seems everyone has their own definition of what's
accessible.
Just takes a lot of research.

Anne
anne@...





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[Non-text portions of this message have been removed]

Hi, Darla
Sounds like you had a great trip and made the legbag thing work for you.
What was it like revisiting the "scene of the crime" so to speak? I'll bet
it was pretty emotional.

I so admire your pluck and determination. That's really what it takes to
survive and thrive in our situations. You go, girl!

Anne

On 2/10/05 9:24 AM, "Darla Greven" <darla.gee@...> wrote:

>
> Hi All,
> If anyone is interested, I just took a 5 hour flight to Hawaii to
> revisit the hospital I was in after my accident in 2003 and to visit the
> church and people who cared for my family while they were visiting me
> and figure out if I could get in the water again. I am blessed with a
> very supportive and physically strong husband and he’s an important
> element in how we made it work. I went to my dr. before the trip and got
> a foley catheter (indwelling) with a small legbad that you strap on your
> leg. The morning before the flight I put it in. Its just like inserting
> an intermittent catheter, except it stays in and then you inject a
> little bubble with water, which keeps it in place. Since the bag holds
> about 500cc, I went to the restroom in the airport before boarding and
> emptied it and also once during the flight, my husband helped me
> discreetly empty it into a container which we put in a little sac and he
> emptied in the restroom. This way I can” live it up’ and drink however
> much I want. The “aisle chair” is a little humiliating, but the aisles
> are so narrow now, that a lot of people have to walk sideways, so I
> figure it’s a nuisance for all of us and if this makes me able to
> travel-its worth it to me. Even on an aisle seat, the transfer is
> difficult for me because the arm rest doesn’t fold up, but my husband
> helps me a bit so I can clear it. He then puts my seat cushion from my
> chair under me as I lift up. Then my feet are too high so I have a carry
> bag that I put under my feet. One important element is double or triple
> checking with the airline that they will have the aisle chair ready for
> you at the boarding gate. Oh, the other thing I do is fast (not eat
> solid food) the day before the trip if I’m worried that the change in
> schedule will threaten a bowel accident. You can also check in the
> airport bathroom before boarding that “everything is clear”. We’ve taken
> several trips and this works for me.
>
> I know everyone is unique and has unique challenges. So this may not
> work for some. I have a T-11,12 injury, complete, no bladder or bowel
> feeling or control. If anyone has any more questions about how we are
> learning to travel…ask, ask, ask…
>
> Strength and humor to us all,
>
> Darla Greven
>
> -----Original Message-----
> From: Anne [mailto:anne@...]
> Sent: Wednesday, February 09, 2005 12:57 PM
> To: womenwithsci@yahoogroups.com
> Subject: Re: [Women with SCI] chat room
>
> Thanks for your informative email, Becky. See my comments below.
>
> On 2/9/05 11:10 AM, "becky martin" <lippy_little_lady@...>
> wrote:
>
>>
>> Hi Anne
>> At the moment while i'm studying i'm living in Manchester, a city in
> the north
>> of England but home is actually a small village in Wales.
> Sounds lovely. So you are Welsh?
>>
>> I do find accessability can be a problem over here. As of last October
> all
>> businesses were supposed to have made changes to becoming more
> accessible to
>> disabled people, personally I haven't noticed much physical change to
> things
>> like steps into buildings but the attitude of people has definately
> changed.
>> The main problem is access to older buildings, if they are listed
> properties
>> they cannot by law be structurally altered however people are very
> willing to
>> help where they can. Modern buildings are all fine for access.
> How about your school? You mentioned some accessibility issues. Here in
> the
> US by law public schools have to be made accessible for wheelchair
> users. So
> do most public/government offices, libraries, etc.
>>
>> I dont often use public transport here, I have my own car and drive
> myself to
>> where ever i need to go. There are lots of black cabs in the city
> area, I use
>> these sometimes as they can roll me into the back still sitting in my
> chair.
>> The trams here are I believe accessible but I have never used them, so
> too are
>> most of the busses.
> I've heard about those cabs. Do they strap you down at all? All of the
> buses
> in our city have wheelchair lifts. No cabs, though. There are also
> transports called Access Vans that are provided by the city at a very
> nominal price for people who don't live near a bus line or can't take
> the
> public bus unattended. I take the bus quite often. It's only 50 cents.
> The
> driver attaches straps to your chair so you don't roll around during the
> trip. I am attempting to get my driver's license this year. We have a
> wheelchair van, fully equipped with a ramp that comes out of the floor,
> transfer seats, and hand controls.
>
>>
>> My wheelchair is provided by the health service but there are lots of
> mobility
>> centres where you can go to try out and buy both manual and powered
> chairs.
> I have private insurance which pays for my chairs. I am allowed a new
> one
> every five years.
>>
>> You asked about accomodation, when I go on my travels around the Uk I
> always
>> manage to find somewhere with access, the chain companys like travel
> lodge
>> always have a few adapted rooms, they're not fantastically adapted but
> I
>> manage fine, as long as I can get into a place I can make do! Someone
> bought
>> me a book 'accessible holidays in the british isles- a guide for
> disabled
>> people' there is info on accessible places if you look for it and as I
> said
>> before people are very helpful if you call up and will do their best
> to
>> accomodate.
> Here are a couple of accessible travel sites:
> http://www.wunago.com/
> http://www.abletogo.com/  (this one I believe is based in England)
>
>>
>> So how are things in Washington access wise? I visited the US once
> years ago
>> when I was six, but remeber very little about it! we stayed in long
> island.
>> Just recently I've been thinking I'd love to go visit the USA again
> not sure
>> how i'd manage with the lenghty flight over though!
> Our city is fairly new so most places are accessible, even some of the
> older
> buildings. As a disabled person, it sometimes seems my world revolves
> around
> restrooms and ramps. You really have to plan ahead before you go
> somewhere.
>
> I have actually only flown a very few times since becoming disabled. I
> hated
> it. Being stuck in your seat the whole flight. Not being able to use the
> restroom. Being the first one on and the last one off. Having to be
> strapped
> into what I call the Hannibal Lector chair and wheeled up the aisle like
> a
> piece of baggage. It has turned me off to air travel completely. We
> stick to
> car trips. I took the train once, which wasn't bad.
>
> I donąt know how other people do it. I have a friend who used to ask for
> a
> blanket, then use a catheter with a big attached, empty her bladder
> under
> the blanket, put the bag in a trash bag, and then hand it to the flight
> attendant to dispose of. Maybe it's just me, but I can't see me doing
> that.
> Seems sort of degrading. Why should we have to pee right there in front
> of
> total strangers? They wouldn't expect anyone else to. Ugh.
>
> Anyone else have experience with air travel they'd like to share?
>
> Most of our hotels have accessible rooms, which vary in level of
> accessibility. Seems everyone has their own definition of what's
> accessible.
> Just takes a lot of research.
>
> Anne
> anne@...
>
>
>
>
>
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Hi All,
If anyone is interested, I just took a 5 hour flight to Hawaii to
revisit the hospital I was in after my accident in 2003 and to visit the
church and people who cared for my family while they were visiting me
and figure out if I could get in the water again. I am blessed with a
very supportive and physically strong husband and he’s an important
element in how we made it work. I went to my dr. before the trip and got
a foley catheter (indwelling) with a small legbad that you strap on your
leg. The morning before the flight I put it in. Its just like inserting
an intermittent catheter, except it stays in and then you inject a
little bubble with water, which keeps it in place. Since the bag holds
about 500cc, I went to the restroom in the airport before boarding and
emptied it and also once during the flight, my husband helped me
discreetly empty it into a container which we put in a little sac and he
emptied in the restroom. This way I can” live it up’ and drink however
much I want. The “aisle chair” is a little humiliating, but the aisles
are so narrow now, that a lot of people have to walk sideways, so I
figure it’s a nuisance for all of us and if this makes me able to
travel-its worth it to me. Even on an aisle seat, the transfer is
difficult for me because the arm rest doesn’t fold up, but my husband
helps me a bit so I can clear it. He then puts my seat cushion from my
chair under me as I lift up. Then my feet are too high so I have a carry
bag that I put under my feet. One important element is double or triple
checking with the airline that they will have the aisle chair ready for
you at the boarding gate. Oh, the other thing I do is fast (not eat
solid food) the day before the trip if I’m worried that the change in
schedule will threaten a bowel accident. You can also check in the
airport bathroom before boarding that “everything is clear”. We’ve taken
several trips and this works for me.

I know everyone is unique and has unique challenges. So this may not
work for some. I have a T-11,12 injury, complete, no bladder or bowel
feeling or control. If anyone has any more questions about how we are
learning to travel…ask, ask, ask…

Strength and humor to us all,

Darla Greven

-----Original Message-----
From: Anne [mailto:anne@...]
Sent: Wednesday, February 09, 2005 12:57 PM
To: womenwithsci@yahoogroups.com
Subject: Re: [Women with SCI] chat room

Thanks for your informative email, Becky. See my comments below.

On 2/9/05 11:10 AM, "becky martin" <lippy_little_lady@...>
wrote:

>
> Hi Anne
> At the moment while i'm studying i'm living in Manchester, a city in
the north
> of England but home is actually a small village in Wales.
Sounds lovely. So you are Welsh?
>
> I do find accessability can be a problem over here. As of last October
all
> businesses were supposed to have made changes to becoming more
accessible to
> disabled people, personally I haven't noticed much physical change to
things
> like steps into buildings but the attitude of people has definately
changed.
> The main problem is access to older buildings, if they are listed
properties
> they cannot by law be structurally altered however people are very
willing to
> help where they can. Modern buildings are all fine for access.
How about your school? You mentioned some accessibility issues. Here in
the
US by law public schools have to be made accessible for wheelchair
users. So
do most public/government offices, libraries, etc.
>
> I dont often use public transport here, I have my own car and drive
myself to
> where ever i need to go. There are lots of black cabs in the city
area, I use
> these sometimes as they can roll me into the back still sitting in my
chair.
> The trams here are I believe accessible but I have never used them, so
too are
> most of the busses.
I've heard about those cabs. Do they strap you down at all? All of the
buses
in our city have wheelchair lifts. No cabs, though. There are also
transports called Access Vans that are provided by the city at a very
nominal price for people who don't live near a bus line or can't take
the
public bus unattended. I take the bus quite often. It's only 50 cents.
The
driver attaches straps to your chair so you don't roll around during the
trip. I am attempting to get my driver's license this year. We have a
wheelchair van, fully equipped with a ramp that comes out of the floor,
transfer seats, and hand controls.

>
> My wheelchair is provided by the health service but there are lots of
mobility
> centres where you can go to try out and buy both manual and powered
chairs.
I have private insurance which pays for my chairs. I am allowed a new
one
every five years.
>
> You asked about accomodation, when I go on my travels around the Uk I
always
> manage to find somewhere with access, the chain companys like travel
lodge
> always have a few adapted rooms, they're not fantastically adapted but
I
> manage fine, as long as I can get into a place I can make do! Someone
bought
> me a book 'accessible holidays in the british isles- a guide for
disabled
> people' there is info on accessible places if you look for it and as I
said
> before people are very helpful if you call up and will do their best
to
> accomodate.
Here are a couple of accessible travel sites:
http://www.wunago.com/
http://www.abletogo.com/  (this one I believe is based in England)

>
> So how are things in Washington access wise? I visited the US once
years ago
> when I was six, but remeber very little about it! we stayed in long
island.
> Just recently I've been thinking I'd love to go visit the USA again
not sure
> how i'd manage with the lenghty flight over though!
Our city is fairly new so most places are accessible, even some of the
older
buildings. As a disabled person, it sometimes seems my world revolves
around
restrooms and ramps. You really have to plan ahead before you go
somewhere.

I have actually only flown a very few times since becoming disabled. I
hated
it. Being stuck in your seat the whole flight. Not being able to use the
restroom. Being the first one on and the last one off. Having to be
strapped
into what I call the Hannibal Lector chair and wheeled up the aisle like
a
piece of baggage. It has turned me off to air travel completely. We
stick to
car trips. I took the train once, which wasn't bad.

I donąt know how other people do it. I have a friend who used to ask for
a
blanket, then use a catheter with a big attached, empty her bladder
under
the blanket, put the bag in a trash bag, and then hand it to the flight
attendant to dispose of. Maybe it's just me, but I can't see me doing
that.
Seems sort of degrading. Why should we have to pee right there in front
of
total strangers? They wouldn't expect anyone else to. Ugh.

Anyone else have experience with air travel they'd like to share?

Most of our hotels have accessible rooms, which vary in level of
accessibility. Seems everyone has their own definition of what's
accessible.
Just takes a lot of research.

Anne
anne@...





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[Non-text portions of this message have been removed]

Thanks for your informative email, Becky. See my comments below.

On 2/9/05 11:10 AM, "becky martin" <lippy_little_lady@...> wrote:

>
> Hi Anne
> At the moment while i'm studying i'm living in Manchester, a city in the north
> of England but home is actually a small village in Wales.
Sounds lovely. So you are Welsh?
>
> I do find accessability can be a problem over here. As of last October all
> businesses were supposed to have made changes to becoming more accessible to
> disabled people, personally I haven't noticed much physical change to things
> like steps into buildings but the attitude of people has definately changed.
> The main problem is access to older buildings, if they are listed properties
> they cannot by law be structurally altered however people are very willing to
> help where they can. Modern buildings are all fine for access.
How about your school? You mentioned some accessibility issues. Here in the
US by law public schools have to be made accessible for wheelchair users. So
do most public/government offices, libraries, etc.
>
> I dont often use public transport here, I have my own car and drive myself to
> where ever i need to go. There are lots of black cabs in the city area, I use
> these sometimes as they can roll me into the back still sitting in my chair.
> The trams here are I believe accessible but I have never used them, so too are
> most of the busses.
I've heard about those cabs. Do they strap you down at all? All of the buses
in our city have wheelchair lifts. No cabs, though. There are also
transports called Access Vans that are provided by the city at a very
nominal price for people who don't live near a bus line or can't take the
public bus unattended. I take the bus quite often. It's only 50 cents. The
driver attaches straps to your chair so you don't roll around during the
trip. I am attempting to get my driver's license this year. We have a
wheelchair van, fully equipped with a ramp that comes out of the floor,
transfer seats, and hand controls.

>
> My wheelchair is provided by the health service but there are lots of mobility
> centres where you can go to try out and buy both manual and powered chairs.
I have private insurance which pays for my chairs. I am allowed a new one
every five years.
>
> You asked about accomodation, when I go on my travels around the Uk I always
> manage to find somewhere with access, the chain companys like travel lodge
> always have a few adapted rooms, they're not fantastically adapted but I
> manage fine, as long as I can get into a place I can make do! Someone bought
> me a book 'accessible holidays in the british isles- a guide for disabled
> people' there is info on accessible places if you look for it and as I said
> before people are very helpful if you call up and will do their best to
> accomodate.
Here are a couple of accessible travel sites:
http://www.wunago.com/
http://www.abletogo.com/  (this one I believe is based in England)

>
> So how are things in Washington access wise? I visited the US once years ago
> when I was six, but remeber very little about it! we stayed in long island.
> Just recently I've been thinking I'd love to go visit the USA again not sure
> how i'd manage with the lenghty flight over though!
Our city is fairly new so most places are accessible, even some of the older
buildings. As a disabled person, it sometimes seems my world revolves around
restrooms and ramps. You really have to plan ahead before you go somewhere.

I have actually only flown a very few times since becoming disabled. I hated
it. Being stuck in your seat the whole flight. Not being able to use the
restroom. Being the first one on and the last one off. Having to be strapped
into what I call the Hannibal Lector chair and wheeled up the aisle like a
piece of baggage. It has turned me off to air travel completely. We stick to
car trips. I took the train once, which wasn't bad.

I donąt know how other people do it. I have a friend who used to ask for a
blanket, then use a catheter with a big attached, empty her bladder under
the blanket, put the bag in a trash bag, and then hand it to the flight
attendant to dispose of. Maybe it's just me, but I can't see me doing that.
Seems sort of degrading. Why should we have to pee right there in front of
total strangers? They wouldn't expect anyone else to. Ugh.

Anyone else have experience with air travel they'd like to share?

Most of our hotels have accessible rooms, which vary in level of
accessibility. Seems everyone has their own definition of what's accessible.
Just takes a lot of research.

Anne
anne@...

Hi Anne
  At the moment while i'm studying i'm living in Manchester, a city in the north
of England but home is actually a small village in Wales.

I do find accessability can be a problem over here. As of last October all
businesses were supposed to have made changes to becoming more accessible to
disabled people, personally I haven't noticed much physical change to things
like steps into buildings but the attitude of people has definately changed. The
main problem is access to older buildings, if they are listed properties they
cannot by law be structurally altered however people are very willing to help
where they can. Modern buildings are all fine for access.

I dont often use public transport here, I have my own car and drive myself to
where ever i need to go. There are lots of black cabs in the city area, I use
these sometimes as they can roll me into the back still sitting in my chair. 
The trams here are I believe accessible but I have never used them, so too are
most of the busses.

My wheelchair is provided by the health service but there are lots of mobility
centres where you can go to try out and buy both manual and powered chairs.

You asked about accomodation, when I go on my travels around the Uk I always
manage to find somewhere with access, the chain companys like travel lodge
always have a few adapted rooms, they're not fantastically adapted but I manage
fine, as long as I can get into a place I can make do! Someone bought me a book
'accessible holidays in the british isles- a guide for disabled people' there is
info on accessible places if you look for it and as I said before people are
very helpful if you call up and will do their best to accomodate.

So how are things in Washington access wise? I visited the US once years ago
when I was six, but remeber very little about it! we stayed in long island. Just
recently I've been thinking I'd love to go visit the USA again not sure how i'd
manage with the lenghty flight over though!

Becky



Anne Bostwick <anne@...> wrote:
Hi, Becky:
My name is Anne. I am L1 incomplete. It has been a lifelong dream of mine to
visit the UK. In what region do you live? Can you tell us about
accessibility issues there? Accessible housing/accommodations readily
available? What about transportation? Availability of wheelchairs, both
manual and power? Where are the most wheelchair friendly places?

I admire your goal of getting a masters in social work. Best of luck with
that. I'd love to chat any time. Probably email would be best because I live
in Washington state in the US and the time zones are different. I've been
told that England looks similar to Washington state in many ways. Evidently
the weather is similar, too.

Cheers!
Anne

On 2/9/05 12:32 AM, "becky martin" <lippy_little_lady@...> wrote:

>
>
> Hi Eileen,
>
> I'm from the UK! that might be why no one else is in the chat room when I am!.
> If theres any one else around from the UK give me a shout!
>
> My injury was in 1989 incomplete at T6 level. I was eight years old. I'm 23
> now and studying at university for my masters in social work!
>
> Have been having a hard time getting the uni to make changes to the student
> halls that i'm living in.
>
> Becky
>
> eileen <eileenshaw5@...> wrote:
> You must be on the east coast?  What do you want to talk about?  I am T1T2
> complete post injury 1983.
> How long have you had your spinal cord injury and what level?
>
>
> eileen
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
> Yahoo! Groups SponsorADVERTISEMENT
> document.write('');
>
> ---------------------------------
> Yahoo! Groups Links
>
>  To visit your group on the web, go to:
> http://groups.yahoo.com/group/womenwithsci/
>
>  To unsubscribe from this group, send an email to:
> womenwithsci-unsubscribe@yahoogroups.com
>
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
>
>
>
> ---------------------------------
> ALL-NEW Yahoo! Messenger - all new features - even more fun!
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>

anne@...
http://fey.cc


Yahoo! Groups SponsorADVERTISEMENT
document.write('');

---------------------------------
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    To visit your group on the web, go to:
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---------------------------------
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[Non-text portions of this message have been removed]

Iąd heard about these studies before. Seems incredible to me. Iąm sure the
jury is still out on this. Itąs interesting to consider, though.
anniefey@...
http://www.jumpstart-services.com

------ Forwarded Message

Date: Wed, 9 Feb 2005 10:25:49 -0500

Subject: Pig cells may help restore spinal cords


Pig cells may help restore spinal cords

BY LINDSAY STARCK
Contributing Reporter

A study published by scientists at the Yale Center for Neuroscience and
Regeneration Research suggests the inner lining of a pig's nose could be
used as a treatment for spinal cord injury or disease.

The results of an experiment conducted several months ago showed that
damaged monkey spinal cords repaired themselves when the pig cells were
transplanted to the affected area. Led by Center Associate Director Jeffery
Kocsis, a team of scientists is currently working to ascertain whether these
results were due to the successful transplantation of pig olfactory cells or
if the spinal cords repaired themselves independent of the transplanted
cells.

Lakshmi Bangalore, the scientific liaison officer at the center, said pig
cells were used because they can produce myelin -- the fatty tissue that
insulates nerve fibers in the central nervous system and helps transmit
signals along nerves with speed and efficiency. A spinal cord injury usually
does not kill neurons, but damages the myelin surrounding them so that
nerves can no longer function properly, she said. In the group's study,
transplanted cells from genetically engineered pigs caused a regeneration of
myelin around the damaged nerve cells, which restored their ability to
transmit information throughout the nervous system.
http://www.yaledailynews.com/article.asp?AID=28312



------ End of Forwarded Message



[Non-text portions of this message have been removed]

Hi, Becky:
My name is Anne. I am L1 incomplete. It has been a lifelong dream of mine to
visit the UK. In what region do you live? Can you tell us about
accessibility issues there? Accessible housing/accommodations readily
available? What about transportation? Availability of wheelchairs, both
manual and power? Where are the most wheelchair friendly places?

I admire your goal of getting a masters in social work. Best of luck with
that. I'd love to chat any time. Probably email would be best because I live
in Washington state in the US and the time zones are different. I've been
told that England looks similar to Washington state in many ways. Evidently
the weather is similar, too.

Cheers!
Anne

  On 2/9/05 12:32 AM, "becky martin" <lippy_little_lady@...> wrote:

>
>
> Hi Eileen,
>
> I'm from the UK! that might be why no one else is in the chat room when I am!.
> If theres any one else around from the UK give me a shout!
>
> My injury was in 1989 incomplete at T6 level. I was eight years old. I'm 23
> now and studying at university for my masters in social work!
>
> Have been having a hard time getting the uni to make changes to the student
> halls that i'm living in.
>
> Becky
>
> eileen <eileenshaw5@...> wrote:
> You must be on the east coast?  What do you want to talk about?  I am T1T2
> complete post injury 1983.
> How long have you had your spinal cord injury and what level?
>
>
> eileen
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
> Yahoo! Groups SponsorADVERTISEMENT
> document.write('');
>
> ---------------------------------
> Yahoo! Groups Links
>
>  To visit your group on the web, go to:
> http://groups.yahoo.com/group/womenwithsci/
>
>  To unsubscribe from this group, send an email to:
> womenwithsci-unsubscribe@yahoogroups.com
>
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
>
>
>
> ---------------------------------
> ALL-NEW Yahoo! Messenger - all new features - even more fun!
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>

anne@...
http://fey.cc

Hi Eileen,

I'm from the UK! that might be why no one else is in the chat room when I am!.
If theres any one else around from the UK give me a shout!

My injury was in 1989 incomplete at T6 level. I was eight years old. I'm 23 now
and studying at university for my masters in social work!

Have been having a hard time getting the uni to make changes to the student
halls that i'm living in.

Becky

eileen <eileenshaw5@...> wrote:
You must be on the east coast?  What do you want to talk about?  I am T1T2
complete post injury 1983.
How long have you had your spinal cord injury and what level?


eileen









[Non-text portions of this message have been removed]


Yahoo! Groups SponsorADVERTISEMENT
document.write('');

---------------------------------
Yahoo! Groups Links

    To visit your group on the web, go to:
http://groups.yahoo.com/group/womenwithsci/

    To unsubscribe from this group, send an email to:
womenwithsci-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
  ALL-NEW Yahoo! Messenger - all new features - even more fun!

[Non-text portions of this message have been removed]

hi all, i've just spent a while in the chat room talking to myself!!
I'm on line most evenings and would be glad of some other people in
there to chat to!! So come on everyone!

One Good Turn Deserves Another, doesn't it?

I owe it to this site and one of it's members in particular for the standing
frame
that I now own. She told me she had been lucky to get her's off of ebay and
within no time I found one there too.
Since then I have seen two others for sale at well over $1500.
Well finally somebody in Texas claims to have one for sale for a bit less.
I'm not selling mine, I don't know the seller in Texas and I make no other
claims regarding the item.
Just passing this on for someone in need.

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=5555181120&
ssPageName=ADME:B:SS:US:1

Hope it helps someone.
D

Hello all. I apologize for my lack of appearances. I have been
monitoring the messages, and moderating the membership, but have had
little to offer. I have played around with the chat room. I tried to
set it up a few years back when I first started the group, but never
had anyone join. Back then, it seemed rather complicated. I am happy
to say now that it seems pretty easy. I think you all should have a
link "Chats" on the side of this internet window. It is with the
Home, messages, and other links. Click on chat. Two security windows
should pop up to install the chat room. If you've already been in a
Yahoo! chat room, these may not pop up...you should be set to go.
Once those components are installed, it will take you to the chat
room.

I suppose the hardest part about the chat room is getting the most
people together at the best time. Since our members span the globe,
and thus many time zones, I'm not sure what time would be best. I can
see two ways of working this, and of course and open to other ideas!
Anyone interested in chatting could post a few times that are best
for her, and then I can scan the messages and pick a time that fits
in the most people. The other option is having members set up a time
when they have something to discuss. Then whoever is free to join
can, or a time can be set up with those that have feedback to a
certain topic. See, I just don't know how best to do this!

I'll take any feedback you have to best utilize the chat room. Again,
sorry for my absence.

Where is owner of this group when members have questions that need
answering???

Pam and a few others are interested in a chat room.
It's not rocket science, but it should be the Owner of the Group or appointed
moderators  who speak up and make it happen.
There have been times in months past where issues weren't addressed and
members never posted again.

Without the attention of the Owner, the Group membership dwindles and goes
inactive.

I'm not about to complain without being willing to help, just ask.
Diane

Thanks.

By the way, how are things going? I include you and your daughter every day
in my morning meditations. Lots of wishes for health, happiness and
abundance.

On 2/3/05 8:18 PM, "eileen" <eileenshaw5@...> wrote:

>
> Anne,
> This is open to the public so is a chat room but not as much.  I know you set
> up a time and let the women know when the chat will be and then only women
> that have joined can get in the chat?  I think I never have been in a chat
> room other than when trying to fix something or purchasing something.
>
> e
>
>
>
>
>
>
>
>
>
> eileen
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>

Anne,
This is open to the public so is a chat room but not as much.  I know you set up
a time and let the women know when the chat will be and then only women that
have joined can get in the chat?  I think I never have been in a chat room other
than when trying to fix something or purchasing something.

e









eileen









[Non-text portions of this message have been removed]

Like you, I don't know anything about chat rooms. What's the difference
between this and a chat room? I'd love to share stories, too.

On 2/3/05 7:38 PM, "eileen" <eileenshaw5@...> wrote:

>
> It would be nice if someone would do set up a chat room.  Unfortunately I do
> not know how to do this but I sure would be willing to participate.
> I have 23 years of tales to tell as I am sure a lot of others do also.
> All in favor say yes and see how many women are interested?
> Thanks again.
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It would be nice if someone would do set up a chat room.  Unfortunately I do not
know how to do this but I sure would be willing to participate.
I have 23 years of tales to tell as I am sure a lot of others do also.
All in favor say yes and see how many women are interested?
Thanks again.










eileen









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Hello, Has anyone had any thoughts of geting a chat room together for us?It
would really be nice to talk to all of you in a chat. I know we could all help
each other. I'm sure there is plenty of us arond the world to form a very
healthy chat room. I do not know how to go about it or i would. Sure wish some
one would give it a shot.




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