I am a 38 yr. woman and had to have a full hysterectomy.I too had
trouble with my bladder and bowel. I wear an intermintant cathater
and had to have a clostomy bag. My bladder spasms are bad and my
hysterectomy has not helped. My surgery was due to severe infection
and crohns. I have UTI's all the time.If I were you I would go to a
gyn cancer specialist to get checked out. All 5 of my doctors
disagreed with with my treatment. I was finally referred to the
cancer specialist (I donot have cancer). He reccommended the surgery
and my doctors finally agreed.
Danelle




--- In womenwithsci@yahoogroups.com, "Monica KamalRossa" <xena-
rolls@...> wrote:
>
> Hi Mary,
>
>
>
> I had been having horrible bleeding. I was wearing thick pads for
months
> and bleeding through. It was embarrassing. I was seeing different
docs to
> determine what to do. Hysterectomy or there were 2 other
procedures? I
> finally had the uterine oblation procedure. This has decreased my
bleeding
> significantly as they did not want to do a hysterectomy for a
variety of
> reasons:
>
> 1. they thought it was too risky as I have had the mitrofanoff
(ability to
> cath via my belly button)
>
> 2. they thought I was premenapausal due to my age and didn't want
me on
> hormones.
>
>
>
> Additionally, your bladder spasms could possibly be helped with
botox. I had
> a botox treatment on my uterine wall and it decreased by spasms
> significantly.
>
> Recently there was an article in the following online web site:
> www.peopleonwheels.com <http://www.peopleonwheels.com/>
>
> This is part of the article-
>
> Urologists inject Botox in the bladder, relaxing the bladder muscle
which
> relieves leakage and back up of urine into the kidneys and can
replace the
> need for oral medications that lead to dry mouth and other
reactions. Many
> who have used it say the results are unbelievable.
> Allergan, the developer of Botox, is now setting up study sites to
prove to
> the insurance companies how well it works.
> According to Steve Winter, an activist attorney who fought and won
the
> 'single use catheter' fight with Medicare, any spinal cord injured
patient
> or MS patient who uses a catheter and passes a screening test can
get the
> Botox FREE along with all the tests paid for as well and money for
their
> time. Call this toll free number( 1-888- 617-8839) and check out
this site:
> www.dignitytoos
> <http://rs6.net/tn.jsp?e=001hJjGfxS_-
YTyi2tWkZaJdU1cqVStjnjbir_3LGbOMmqBIdQa
> QKg2fdj-
RtuqxFB1nbiwit1M9DlraF9foLDsKO7NDvJ3xSIif5ol0FlbVWfjYJNLImbWAQ==>
> tudy.com to see if you can take part in the study.
> This use of Botox is called a "chemical sphincterotomy". It
essentially
> relaxes the urinary sphincter for six to nine months, allowing men
to switch
> from intermittent cathing to an external catheter that empties into
a
> legbag.
> This might be preferred because it would 1) reduce UTIs and the
long-term
> damage they cause, 2) address chronic leaking between intermittent
cathing,
> 3) protect your kidneys by reducing reflux and 4) allow you to
ditch your
> anti-cholinergic meds and the nasty side effects (including dry
mouth,
> blurred vision, constipation, thermoregulation problems, and
confusion) that
> go with them.
> For others, it may be more about time management or addressing
hygiene
> issues in difficult environments.
> For quads, it's an alternative that may make more sense than having
a
> caregiver perform intermittent catheterization or than living with
an
> indwelling catheter, whether it's urethral or suprapubic.
> Check out the Bladder Matters conversation with Bob Vogel at the New
> Mobility Web site for more!
>
>
> <http://rs6.net/tn.jsp?e=001hJjGfxS_-YS89G1IZq59jbVojgVrvaxGvMwn-
XyYhZlvgpj1
>
NwCskpYpumLLQOGaYt5kmXPaYrpba47AZmGK0iWRYwRWXU6HWp3M2m3XX6AXdlH_z8gHMp
NGyizQ
> 9TU2NK5FI6X_XnilO40MllFIQAcSW9aeGv18> Read More!
>
>
>
>
>
> You may want to do both.
>
>
>
> Have a great day!
>
> Monica
> <http://www.rossadigitaldesign.com/> www.RossaDigitalDesign.com
> Madison's Spinal Cord Injury Group Coordinator
> <http://www.SCI-Madison.org> www.SCI-Madison.org
> ----------------------------------------
> Be the change you want to see in the world. -- Mahatma Gandhi
>
> _____
>
> From: womenwithsci@yahoogroups.com
[mailto:womenwithsci@yahoogroups.com] On
> Behalf Of mmchmc1
> Sent: Wednesday, September 03, 2008 11:57 AM
> To: womenwithsci@yahoogroups.com
> Subject: [Women with SCI] woman issues
>
>
>
> Hi,
> I'm a T-10 complete. I am almost 8 years post injury. I am looking
> for women who are having GYN problems. Being complete, I can not
tell
> when my period (the curse) is coming. I am not regular. However my
> bladdre spasms and I become incontinent. My urologist recommends a
> hysterectomy. My GYN does not. Really tired of having a period and
> would not mind not having one. They say that I am several years
away
> from menopause. Psychologically I can not deal with the
incontinence.
> Any one else with this problem, suggestions or anything?
> mary
>
>
>
>
>
> [Non-text portions of this message have been removed]
>