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Reply | Forward Message #714 of 822 |
Mitrofanoff

I was wondering if this could be reversed. I have a chance of walking
again. And if this is done will that stop your bladder leaks. I'm on
oxybutnin and my bladder still leaks and sometimes empties on it's
own. so I'm stuck wearing briefs. Which I hate their to big on me and
thats the smallest size in adults. I'm checking in to it and will
bring it up to my uro. thanks for the help.






--- In womenwithsci@yahoogroups.com, "lmp9107" <lmp9107@...> wrote:
>
>
> Hi,
>
>
>
> I am also a mother of girls and was very concern about their childhood,
> my cathing and other women issues. I had the same surgery that Monica
> described and that has helped me to have and active life with my family.
> I no longer worry about bathrooms since all I need is a botttle (any
> bottle) and a catheter. I will encourage you to look into it since this
> is a quality of life issue.
> --- In womenwithsci@yahoogroups.com, "Shana" <shana_lowther@> wrote:
> >
> > Is there anyone out there??? I joined this group in hopes to talk with
> > women who go through the everyday bs that I go through. I've been in
> > my chair for almost 2yrs. And most days are a struggle. I have 2
> > wonderful children ages 2 and 7. Like most kids they can be a handful
> > but I love being a mother. I have a great husband who tries his best
> > to understand what I go through. But I feel completely alone I was the
> > one everyone leaned on. But now that i need someone there's no one
> > around. It's funny how much you learn about yourself and the people
> > around you when things like this happens. I joined a group called
> > Transverse Myelitis in hopes to meet people there with the same auto
> > immune disease. But of course I was the only one in a chair. After a
> > couple of weeks of listening to people complain about not being able
> > to walk to far I had to quit reading the post. I'd give anything to be
> > able to move a toe let alone walk.I also live in a hick town and I
> > can't get in to most places. I cathe every 3 to 4 hours which is a
> > problem giving it takes 45min to get anywhere. When people do come
> > over they only stay for a few they don't like seeing me this way. I
> > feel like me and my kids are on house arrest. I was hoping that I
> > could learn new ways of doing things by joining this group. And it
> > would be nice to have people to talk to on my bad days. So if this
> > isn't that type of group please let me know so I can look around for a
> > new one.. Thanks
> >
>





Tue May 6, 2008 3:32 pm

shana_lowther
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Message #714 of 822 |
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Is there anyone out there??? I joined this group in hopes to talk with women who go through the everyday bs that I go through. I've been in my chair for almost...
Shana
shana_lowther
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May 3, 2008
4:10 pm

HI, Shana, I am new to this group too. I have sent this group to a few of my SCI women friends to encourage them to join. I think it is great to talk about...
Monica KamalRossa
xenarolls
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May 5, 2008
12:28 pm

What is the surgery recovery time frame? Also, does leaking ever occur especially when you have a UTI? Thx for sharing your experience! Kim ... SCI women ......
kim_floyd
Offline
May 13, 2008
11:48 pm

Hi, I am also a mother of girls and was very concern about their childhood, my cathing and other women issues. I had the same surgery that Monica described...
lmp9107
Offline Send Email
May 6, 2008
2:19 pm

I was wondering if this could be reversed. I have a chance of walking again. And if this is done will that stop your bladder leaks. I'm on oxybutnin and my...
Shana
shana_lowther
Offline Send Email
May 6, 2008
3:32 pm

I am not sure if it can be reverse but they do not close your urethra.  Technically I could still cath the other way.  You should check with your neurologist...
Liza Perez
lmp9107
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May 6, 2008
6:06 pm

I agree w/ Liza . Check with your dr. ... I was told it can be reversed but you would just stop cathing using the Mitrofanoff as everything else is left in...
Monica KamalRossa
xenarolls
Online Now Send Email
May 7, 2008
12:24 pm

In three weeks you will be using your "new connection".  I have not have any leakage due to a UTI.  The surgery has been the best thing for me.  I love...
Liza Perez
lmp9107
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May 15, 2008
8:08 pm

It took quite a while for me . almost 1 month when I burned my leg and I was prescribed the zinc stuff to help with the healing. Have a great day! Monica...
Monica KamalRossa
xenarolls
Online Now Send Email
May 22, 2008
6:30 pm
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