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womenwithsci · Women with SCI - A place for women with spinal cord injury to meet.
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Reply | Forward Message #710 of 821 |
Is there anyone out there??? I joined this group in hopes to talk with
women who go through the everyday bs that I go through. I've been in
my chair for almost 2yrs. And most days are a struggle. I have 2
wonderful children ages 2 and 7. Like most kids they can be a handful
but I love being a mother. I have a great husband who tries his best
to understand what I go through. But I feel completely alone I was the
one everyone leaned on. But now that i need someone there's no one
around. It's funny how much you learn about yourself and the people
around you when things like this happens. I joined a group called
Transverse Myelitis in hopes to meet people there with the same auto
immune disease. But of course I was the only one in a chair. After a
couple of weeks of listening to people complain about not being able
to walk to far I had to quit reading the post. I'd give anything to be
able to move a toe let alone walk.I also live in a hick town and I
can't get in to most places. I cathe every 3 to 4 hours which is a
problem giving it takes 45min to get anywhere. When people do come
over they only stay for a few they don't like seeing me this way. I
feel like me and my kids are on house arrest. I was hoping that I
could learn new ways of doing things by joining this group. And it
would be nice to have people to talk to on my bad days. So if this
isn't that type of group please let me know so I can look around for a
new one.. Thanks




Sat May 3, 2008 4:10 pm

shana_lowther
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Message #710 of 821 |
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Is there anyone out there??? I joined this group in hopes to talk with women who go through the everyday bs that I go through. I've been in my chair for almost...
Shana
shana_lowther
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May 3, 2008
4:10 pm

HI, Shana, I am new to this group too. I have sent this group to a few of my SCI women friends to encourage them to join. I think it is great to talk about...
Monica KamalRossa
xenarolls
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May 5, 2008
12:28 pm

What is the surgery recovery time frame? Also, does leaking ever occur especially when you have a UTI? Thx for sharing your experience! Kim ... SCI women ......
kim_floyd
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May 13, 2008
11:48 pm

Hi, I am also a mother of girls and was very concern about their childhood, my cathing and other women issues. I had the same surgery that Monica described...
lmp9107
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May 6, 2008
2:19 pm

I was wondering if this could be reversed. I have a chance of walking again. And if this is done will that stop your bladder leaks. I'm on oxybutnin and my...
Shana
shana_lowther
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May 6, 2008
3:32 pm

I am not sure if it can be reverse but they do not close your urethra.  Technically I could still cath the other way.  You should check with your neurologist...
Liza Perez
lmp9107
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May 6, 2008
6:06 pm

I agree w/ Liza . Check with your dr. ... I was told it can be reversed but you would just stop cathing using the Mitrofanoff as everything else is left in...
Monica KamalRossa
xenarolls
Online Now Send Email
May 7, 2008
12:24 pm

In three weeks you will be using your "new connection".  I have not have any leakage due to a UTI.  The surgery has been the best thing for me.  I love...
Liza Perez
lmp9107
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May 15, 2008
8:08 pm

It took quite a while for me . almost 1 month when I burned my leg and I was prescribed the zinc stuff to help with the healing. Have a great day! Monica...
Monica KamalRossa
xenarolls
Online Now Send Email
May 22, 2008
6:30 pm
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