Hi, Lula
So sorry to hear about your pain. I have it, too. I am L1 incomplete. Have
had it almost from the beginning. If itıs the same as mine, itıs called
neuropathic pain. Feels like stinging, intense tingling, burning pain. I
have it just about 24/7. Itıs caused by the neurons at the base of the spine
over-firing, hence the burning feeling. Sort of like itıs trying to heal
itself, but canıt, so the sensation is read by the brain as pain.

Iıve tried everything there is, including heavy pain meds like methadone and
morphine. Nothing helps. They put me on a drug called Neurontin, which
helped a lot at first, but then steadily became pretty much ineffective.
Some days are better than others. My period makes it worse, so does intense
heat or cold, or stress. The only things that have helped are relaxation
therapy (learning how to use self-hypnosis to put my body in a relaxed
state), massage therapy, and then keeping as busy as possible and trying not
to dwell on the pain.

I wish I had better news for you. Hopefully theyıll find a cure or treatment
eventually. For now, just take it one day at a time. On the bad days, tell
yourself it will be better tomorrow, and it probably will be.

Take care.
Anne

On 2/1/04 12:00 PM, "Kim PALMER" <kalpal2@...> wrote:

> Hello Everyone,
>
> I'm new,too, and looking for other women to talk to in a similar situation. I
> am C6 /7 incomplete and was injured 20 months ago in a bicycle accident. I am
> 56 now. progressed rapidly the first year and learned how to drive and dress
> and transfer. But now I am beginning to have severe burning pains in my legs.
> Does anyone else have this and if so, what do you do about it?
>
> Lula
> ----- Original Message -----
> From: c5_julie
> To: womenwithsci@yahoogroups.com
> Sent: Sunday, February 01, 2004 7:52 AM
> Subject: [Women with SCI] Re: Hi to everyone
>
>
> Lucy,
> I was going to e-mail you like you said, but you don't list an e-mail addr=
> ess. lol So I'll say hello here.
> I'm Julie. C5 complete since 1990. The others are right, the first year is =
> the hardest, it gets better.
> Driving, I can't help you with. I have a van, but I don't drive....yet.
> Dressing is easy for me...someone else dresses me. lol
> feel free to e-mail me if you'd like to talk.
>
> Julie
>
>
> --- In womenwithsci@yahoogroups.com, pamela hall <pamela_hall2003@y...> wro=
> te:
>> > Hi Lucy,
>> > I am 53 now, i was 48 when i had my accident. I have not had an
>> opportuni=
> ty to talk to another woman in depth about this new life
> style in a long time. I have run into a lot of things i would like to discu=
> ss or ideas to share. Until i found sci i was wondering if i was
> only one of a couple in the world.I wish i would have known of even just on=
> e other quad in my area. I'm sorry i never told you my
> injury,I,m c6 c7 incomplete.To me very aggravating in that i can't move my =
> fingers. But in my area there is no others like me, nor is
> there any within a hundred mile radius.I don't have a vehicle although i ha=
> ve had my license for almost 4 years. I had a vehicle after
> my accident but my daughter wrecked it and i did not know until after the a=
> ccident she only had liability on it . So that stopped me
> dead in my tracks;.So now i am pretty much a shut in that i never go anywhe=
> re except the doc and store twice a month. I would like
> to get a job. But you need a car to work and a job to get a car.
>> > Well now i'm rambling i'm sorry.Please write back i promise not to
>> rambl=
> e.
>> > Thank You
>> > Anne Bostwick <anne@f...> wrote: Pam Hall
>> > Hi, Lucy
>> > I am 53, also L1 incomplete, since Jan 96. Itıs good to make connections
>> > with other women, since we are a minority in the SCI community. Feel >>
free=
> to
>> > ask questions. You can post to me privately also.
>> >
>> > Life, indeed, does get better. You will find that new doors will open >>
for=
>
>> > you that you never expected to. Your life will take on new directions to
>> > compensate for the interrupted path SCI creates. Just remain as open to
>> > change as you can possibly be. You never know what waits around the >>
corn=
> er.
>> > Anne
>> >
>> > On 1/27/04 5:35 PM, "Denise" <deniseh65@h...> wrote:
>> >
>>> > > Hi Lucy
>>> > > Welcome to the group. I am a March 98 L-1 incomplete The first year
>>> > > for me was tough. Life gets better. Hope to talk with you soon
>>> > >
>>> > > Denise-
>>> > >
>>> > >
>>> > >
>>> > > In womenwithsci@yahoogroups.com, lucyw1966 <no_reply@y...> wrote:
>>>>> > >> > Hello to everyone, Im Lucy. I now live in the UK and I'm 37 years
>>> > > old.
>>>>> > >> > I was injured in a car crash March 03 and Im T2 complete. Still
>>> > > very
>>>>> > >> > much adjusting since injury and hope the experience of others
here
>>>>> > >> > may go a little way to helping me live a little more
>>>>> independently.
>>>>> > >> >
>>>>> > >> > Looking forward to talking to others here and hope to find some
>>>>> > >> > helpfull advice and support from posts.
>>>>> > >> >
>>>>> > >> > Many thanks,
>>>>> > >> > Lucy
>>> > >
>>> > >
>>> > >
>>> > > Yahoo! Groups Links
>>> > > * To visit your group on the web, go to:
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>>> > >
>> >
>> >
>> > anne@f...
>> > http://fey.cc
>> >
>> >
>> >
>> > [Non-text portions of this message have been removed]
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