This group is intended to support those parents, grandparents,caregivers and family members who have lost a child to Holoprosencephaly or other disorders or diseases of the brain.There are many stages of grief that those of us who have lost a child, go through.Grief changes like the seasons. It can also be very misunderstood by others who have not experienced this pain.Please join us while we support each other through our long and never-ending journey.We welcome your thoughts.
We are currently honoring Connor.
He was so small,
so beautiful,
so full of hope and promise.
What a blessing he has been
to all of us who knew him
those few short months.
He taught us to love,
to hope beyond expectation,
to trust in that which is unseen.
He drew us together
in our anxiety,
our moments of despairing and hopelessness,
as well as in our joys and delight,
and in His every breath.
His life ended prematurely;
just so had he been born.
Too soon he died.
We wept.
The tears continue.
We hugged
and held one another.
The pain will always linger.
Our hearts emptier
for his absence
and the unfulfilled dreams
he promised.
But the love he brought
into our lives will live forever.
Thank you for giving him to us.
Thank you for the blessing
that he will always be.
Thank you for the love we
would never have known,
but for him
and his brief days with us.
Thank you for Connor,
our blessed child of grace.
Amen.