2 November 2000 To Whom It May Concern; My father was recently diagnosed with Wernicke Korsakakoff Syndrome. He has recieved shots of thiamine to try to get...
rarediseases@...
Nov 3, 2000 3:34 pm
2
Mary, I too have Wernicke's. I was diagnosed in 1993. It took a good full year before I had "recovered" what I was going to. During my annual trip to the...
mamachuck61@...
Jan 18, 2001 5:56 pm
3
... brother in law was diagnosed with korsakoff in july of 2000. i can relate to your frustrations, because no one has explained how extensive his disease is....
kathleenabuck@...
Jan 21, 2001 4:18 am
4
Hello, I am really happy to find this. I was hoping to talk to someone that has experienced this disease. I recently underwent a gastric surgery that due to...
mkmartin5@...
Feb 1, 2001 8:17 pm
5
kaisey, Yes, it does get better! Are you getting B-1, B12, and B6? Wernicke's is caused by the B-1 defiency (thiamine). DEMAND that you receive this if they...
mamachuck61@...
Feb 2, 2001 3:39 pm
6
Tracy, I was so happy to find you!! Thank you so much for writing back to me. Just to tell you about myself, my name is Kaisey and I live in Nixa, Missouri....
Kaisey L Martin
mkmartin5@...
Feb 2, 2001 5:53 pm
8
i'm very sorry to hear about your misfortunes. my brother in law has no physical problems - he has short term memory loss. hopefully you will get better...
kathleenabuck@...
Feb 3, 2001 2:14 am
9
My mother has been diagnosed with WKS and is in a nursing home. Would like to correspond with others regarding this terrible illness and how I can add to her...
bhterrace@...
Feb 16, 2001 10:34 pm
10
hi wish i could help, but don't think i can my brother in law was diagnosed with weinerke but he is only 45 years old his problem is...
kathleenabuck@...
Feb 17, 2001 4:46 am
11
plez give some more detals about your mother. How long has she had it, how did she get it, etc. Give details of her abilities now and is she being treated....
mamachuck61@...
Feb 20, 2001 1:04 am
12
I sure would have thought this would be a bigger group!!! I am 43, don't have an official diagnosis yet, but have been dealing with symptoms since the last of...
dulcineasmom@...
Mar 13, 2001 4:52 am
13
it dosen't appear that there are too many of us out there that have been diagnosed that are still able to function on a daily basis. How did yours come about?...
mamachuck61@...
Mar 13, 2001 4:12 pm
14
best of luck to you . keep in touch!...
kathleenabuck@...
Mar 14, 2001 3:43 am
15
my brother in law has had a significant weight gain which we attributed to eating more - especially candy. we thought this was a substitute for alcohol....
kathleenabuck@...
Mar 24, 2001 1:18 am
16
I don''t have answers for you but I can tell you that I have had a weight gain of over 50% of my weight. I also have had pain which I really can not tell if...
Nora
dulcineasmom@...
Mar 25, 2001 9:58 pm
17
he may want to inquire with his Dr. about Fibromyalgia. It is rare that males are stricken with this but is does happen. It could also bee from the nerves...
mamachuck61@...
Mar 26, 2001 1:50 pm
18
what meds are you on? What about vitamins? When did you start with the symptoms? Forgive me if these are repeats but as you probably realize our memories...
mamachuck61@...
Mar 26, 2001 1:58 pm
19
Hi. Got my "official diagnosis" of Wernicke's today. My internist put me on prescription Thiamine and told me to take a good regular vitamin. He took an xray...
Nora
dulcineasmom@...
Mar 27, 2001 3:55 am
20
Also, Tracey, you asked that other meds I'm on---Vioxx for bursitis of a shoulder (which by the way developed since August 99) and Zyrtek, . . . .Jeez, there...
Nora
dulcineasmom@...
Mar 27, 2001 4:16 am
21
Nora, I think that all of the other problems are probably related to the Wernicke's. I have been on Zoloft for years now and the Nuero just doubled them. I...
mamachuck61@...
Mar 27, 2001 4:10 pm
22
WOW, that is alot to handle...especially by yourself ! You hang in there and we can work through all of this together. Have you talked to Kaisey yet? She...
mamachuck61@...
Mar 27, 2001 4:19 pm
23
i will and thank you for responding...
kathleenabuck@...
Mar 29, 2001 12:25 am
24
not that he has said he did have a tooth ache, but i think that's unrelated. thanks for your input...
kathleenabuck@...
Mar 29, 2001 12:48 am
25
i understand one of the causes of weinerkes is a lack of thiamine - or vitamin b. are you having problems with short term memory? is your diagnosis related...
kathleenabuck@...
Mar 29, 2001 12:53 am
26
Hello, My mother has symptoms of WKS. She was a chronic drinker for about 30 years and October of 2000 finally stopped drinking. Since then she has been...
my5themailaccount@...
Jun 3, 2001 8:28 pm
27
i am very sorry to hear about your mother. my brother in law had no money and no insurance. because of that, he was put on welfare and became a "ward of the...
kathleenabuck@...
Jun 4, 2001 1:04 am
28
Hi, Have you tried putting your mother on B vitamins? Aim for high doses of B-6, B-12 and especially B-1 (thiamine). Along with that put her on magnesium....
mamachuck61@...
Jun 4, 2001 3:47 pm
29
I had no idea how much she was drinking (she never wanted me to know). It took the Doctors years to figure out what was going on since she never wouldn't tell...
mdmsabrina@...
Jun 6, 2001 6:21 pm
30
hi tracey how long should a korsakoff patient keep taking the b vitamins? my brother in law was just discharged from a program is now home. he is not on...
kathleenabuck@...
Jun 7, 2001 12:45 am
31
i'm very sorry to hear about your mother. may i ask how old she was? i am curious, because my brouther in law is only 45 and was diagnosed with korsakoff...
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