Search the web
Sign In
New User? Sign Up
wernicke-korsakoff_syndrome · Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Message search is now enhanced, find messages faster. Take it for a spin.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Messages 1589 - 1618 of 2597   Newest  |  < Newer  |  Older >  |  Oldest
Messages: Show Message Summaries   (Group by Topic) Sort by Date v  
#1618 From: Kaye Wood <apollo210c@...>
Date: Thu Aug 18, 2005 4:22 pm
Subject: Re: [wernicke_korsakoff_syndrome] Alcohol Withdrawl
apollo210c
Online Now Online Now
Send Email Send Email
 
Hi,
Thats what they said about my dad this time last year.
He was in hospital 33 weeks in the end because we
struggled to find somewhere suitable. When they first
told me he would have to go to into care 9after 2
weeks) and that rehab in any form would not help he
couldn't walk, was incontinent of urine, took two to
transfer, confabulated all the time needed assistance
and prompts to dress, prompts to drink and had a bout
a 2 min memory, was agitated when I left him at the
end of visiting. By the time we had found him
somewhere to go 31 weeks later he was walking
independnetly, dressing and feeding himself and
continent. He'd also stopped confabulating, his short
term memory improved a bit (he was orientated to time
and place and knew who I was etc) but couldn't
remember new information and still needed 24hr care as
he also had no insight into his memory problems. So I
guess in my dads case he improved, I know that is not
the same for everyone. I don't know how old your
husband is or how he was before his admission. even if
he goes into care its not necessarily for ever, it
would be reviewed (see my posting yesterday)
I guess everone is different but two weeks does seem
early to make a decision if he was ok before. Was the
confusion sudden??
Kaye
PS Thank you to everyone who responded to my posting
yesterday
--- cinnmic <cinnmic@...> wrote:

> My common law husband has just been diagonosed with
> Korsakoff's
> syndrome. He has been in the hospital for over 2
> weeks now which means
> he has not had a drink in that time.
> He is extremely confused and becoming very agitated.
> I have been
> advised to place him in a nursing home as the
> doctors do not believe
> he will improve to a point of being left alone
> without full time care.
>
> Could part of his current state be alcohol
> withdrawl? The confusion
> and confabulation seem to have gotten worse in the
> last few days.
> I would just like to be sure I am doing the right
> thing by placing him
> in care.
>
> Michele
>
>
>
>
>


Send instant messages to your online friends http://uk.messenger.yahoo.com

#1617 From: "cinnmic" <cinnmic@...>
Date: Tue Aug 16, 2005 12:06 pm
Subject: Alcohol Withdrawl
cinnmic
Offline Offline
Send Email Send Email
 
My common law husband has just been diagonosed with Korsakoff's
syndrome. He has been in the hospital for over 2 weeks now which means
he has not had a drink in that time.
He is extremely confused and becoming very agitated. I have been
advised to place him in a nursing home as the doctors do not believe
he will improve to a point of being left alone without full time care.

Could part of his current state be alcohol withdrawl? The confusion
and confabulation seem to have gotten worse in the last few days.
I would just like to be sure I am doing the right thing by placing him
in care.

Michele

#1616 From: "Amanda Varner" <accp@...>
Date: Wed Aug 17, 2005 5:17 pm
Subject: Re: [wernicke_korsakoff_syndrome] I need help!
whisperingnook
Offline Offline
Send Email Send Email
 
I am so sorry.  I am 31 and my dad was diagnosed with this disease in October of
last year.  Since then, he's been in another DUI (his third in two years), spent
37 days in a hospital for his injuries, was drunk the day after he got home, had
a restraining order issued against him by my mom, spent a week in the
psychiatric ward.  I can't offer any wonderful ideas, I can just tell you I
understand exactly what you're going through and that I take each day at a time
and realize it will probably be worse than the last.

I recently started taking Ativan at night, just 1/2 milligram but it helps me so
much the next day.  I wasn't able to sleep more than a few hours, but now I
sleep better and can think clearer the next day.  I too felt I was losing my
mind.  I couldn't even remember the alphabet at times!

As far as him living with you:  That is a huge step.  I love my dad, he was
wonderful for 28 years, but there is no way I could have him live with me, I
feel guilty but I need to keep my sanity to deal with all the practical things
(doctors, finances, my mother, etc.)

If you have him live you, I admire you and you can email anytime you need to
talk.  Just make sure you keep your sanity somehow.  My husband and I take
overnight trips once every few months.  It helps.  But the best help I have is
this group and my ativan!

Amanda


---------- Original Message ----------------------------------
From: Kaye Wood <apollo210c@...>
Reply-To: wernicke_korsakoff_syndrome@yahoogroups.com
Date:  Wed, 17 Aug 2005 17:22:20 +0100 (BST)

><html><body>
>
>
><tt>
>Hi,<BR>
>Can anyone help? Had a phonecall today from my dad who<BR>
>told me that he had been told he is moving from the<BR>
>residential home to a house in two weeks. He didn't<BR>
>know where to or any details. This was news to me,<BR>
>just got off the phone to the social worker who said<BR>
>that he and the manager of the home feel he could live<BR>
>independently although my dad isn't on a rehousing<BR>
>list so it will take months to sort out. The very fact<BR>
>that my dad can't remember the conversation and the<BR>
>facts concern me.<BR>
>It's 14 months since my dad was hospitalised with wks<BR>
>and 6 months since he has been out of hospital and<BR>
>into two different homes. He has improved I agree but<BR>
>I'm not convinced he will cope. He can't budget and<BR>
>borrows money from the home weekly that I then have to<BR>
>pay back. He will have no support from any family or<BR>
>friends when he moves just me (I live 60 miles away).<BR>
>I'm 24 and I'm beginning to feel that I can't cope<BR>
>anymore and I'm not sure I can support my dad from<BR>
>where I am living now, which means moving.<BR>
>He was assessed by the consultant in May who said he<BR>
>had severe retrograde and anterograde amnesia,<BR>
>concrete thinking and lack of flexibility and no<BR>
>capacity to make informed decisions. Then reccomended<BR>
>that I contact the DVLA to find out about getting his<BR>
>driving licence back! Is it me or does that seem<BR>
>strange? I'm beginning to think everyone else is Sane<BR>
>and its me thats mad!<BR>
>Has anyone got experience of a relative/ or of<BR>
>themselves moving from a 24 hr facility to living<BR>
>alone and what problems did they face? And any info on<BR>
>driving??<BR>
>Thanks,<BR>
>Kaye<BR>
><BR>
><BR>
><BR>
><BR>
>      <BR>
>      <BR>
>            <BR>
>___________________________________________________________ <BR>
>Yahoo! Messenger - NEW crystal clear PC to PC calling worldwide with voicemail
<a href="http://uk.messenger.yahoo.com">http://uk.messenger.yahoo.com</a><BR>
></tt>
>
>
><!-- |**|begin egp html banner|**| -->
>
><br><br>
><tt>
>To Post a message, send it to:   wernicke_korsakoff_syndrome@eGroups.com<BR>
>To Unsubscribe, send a blank message to:
wernicke_korsakoff_syndrome-unsubscribe@eGroups.com</tt>
><br><br>
>
><!-- |**|end egp html banner|**| -->
>
>
>
><!-- |**|begin egp html banner|**| -->
>
>  <br><br>
>  <div style="width:500px; text-align:right; margin-bottom:1px;
color:#909090;">
>    <tt>SPONSORED LINKS</tt>
>  </div>
>  <table bgcolor=#e0ecee cellspacing="13" cellpadding="0" width=500px>
>                  <tr valign=top>
>            <td style="width:25%;">
>        <tt><a
href="http://groups.yahoo.com/gads?t=ms&k=Terminal+illness&w1=Terminal+illness&w\
2=Critical+illness&w3=Mental+illness&w4=Chronic+illness&c=4&s=85&.sig=ajXqfOf2mF\
oX-BW83xQUbw">Terminal illness</a></tt>
>      </td>
>                      <td style="width:25%;">
>        <tt><a
href="http://groups.yahoo.com/gads?t=ms&k=Critical+illness&w1=Terminal+illness&w\
2=Critical+illness&w3=Mental+illness&w4=Chronic+illness&c=4&s=85&.sig=gTkFYl79xF\
HDw0pBhjtncw">Critical illness</a></tt>
>      </td>
>                      <td style="width:25%;">
>        <tt><a
href="http://groups.yahoo.com/gads?t=ms&k=Mental+illness&w1=Terminal+illness&w2=\
Critical+illness&w3=Mental+illness&w4=Chronic+illness&c=4&s=85&.sig=2Abs7fDZjgVq\
ABKWmqJijw">Mental illness</a></tt>
>      </td>
>              </tr>
>                        <tr valign=top>
>            <td style="width:25%;">
>        <tt><a
href="http://groups.yahoo.com/gads?t=ms&k=Chronic+illness&w1=Terminal+illness&w2\
=Critical+illness&w3=Mental+illness&w4=Chronic+illness&c=4&s=85&.sig=JFjIcqaqPgU\
HxGbYj5a4xw">Chronic illness</a></tt>
>      </td>
>                    </tr>
>      </table>
>
><!-- |**|end egp html banner|**| -->
>
>
>
><!-- |**|begin egp html banner|**| -->
>
><br>
>  <div style="text-align:center; color:#909090; width:500px;">
>  <hr style="border-bottom:1px; width:500px; text-align:left;">
>  <tt>YAHOO! GROUPS LINKS</tt>
></div>
><br>
><ul>
>  <tt><li type=square> Visit your group "<a
href="http://groups.yahoo.com/group/wernicke_korsakoff_syndrome">wernicke_korsak\
off_syndrome</a>" on the web.<br> </tt>
>  <tt><li type=square> To unsubscribe from this group, send an email to:<br> <a
href="mailto:wernicke_korsakoff_syndrome-unsubscribe@yahoogroups.com?subject=Uns\
ubscribe">wernicke_korsakoff_syndrome-unsubscribe@yahoogroups.com</a><br> </tt>
>  <tt><li type=square> Your use of Yahoo! Groups is subject to the <a
href="http://docs.yahoo.com/info/terms/">Yahoo! Terms of Service</a>.</tt>
></ul>
><br>
><div style="text-align:center; color:#909090; width:500px;">
>  <hr style="border-bottom:1px; width:500px; text-align:left;">
></div>
></br>
>
><!-- |**|end egp html banner|**| -->
>
>
></body></html>
>
>
>
>





________________________________________________________________
Sent via the WebMail system at 1st.net

#1615 From: Nora <dulcineasmom@...>
Date: Wed Aug 17, 2005 5:01 pm
Subject: Re: [wernicke_korsakoff_syndrome] I need help!
dulcineasmom
Offline Offline
Send Email Send Email
 
Kaye,
My heart goes out to you dear.  Although I am the  one with the Wernicke's Encephalopathy, I have twin daughters who are 25, and I know what worrying about me living alone has done to them.  Hang in there, girl.  I'm sure someone in here will be able to share some info/insight into your situation.
All the best,
Nora


Kaye Wood <apollo210c@...> wrote:
Hi,
Can anyone help? Had a phonecall today from my dad who
told me that he had been told he is moving from the
residential home to a house in two weeks. He didn't
know where to or any details. This was news to me,
just got off the phone to the social worker who said
that he and the manager of the home feel he could live
independently although my dad isn't on a rehousing
list so it will take months to sort out. The very fact
that my dad can't remember the conversation and the
facts concern me.
It's 14 months since my dad was hospitalised with wks
and 6 months since he has been out of hospital and
into two different homes. He has improved I agree but
I'm not convinced he will cope. He can't budget and
borrows money from the home weekly that I then have to
pay back. He will have no support from any family or
friends when he moves just me (I live 60 miles away).
I'm 24 and I'm beginning to feel that I can't cope
anymore and I'm not sure I can support my dad from
where I am living now, which means moving.
He was assessed by the consultant in May who said he
had severe retrograde and anterograde amnesia,
concrete thinking and lack of flexibility and no
capacity to make informed decisions. Then reccomended
that I contact the DVLA to find out about getting his
driving licence back! Is it me or does that seem
strange? I'm beginning to think everyone else is Sane
and its me thats mad!
Has anyone got experience of a relative/ or of
themselves moving from a 24 hr facility to living
alone and what problems did they face? And any info on
driving??
Thanks,
Kaye




     
     
           
___________________________________________________________
Yahoo! Messenger - NEW crystal clear PC to PC calling worldwide with voicemail http://uk.messenger.yahoo.com

#1614 From: Kaye Wood <apollo210c@...>
Date: Wed Aug 17, 2005 4:22 pm
Subject: I need help!
apollo210c
Online Now Online Now
Send Email Send Email
 
Hi,
Can anyone help? Had a phonecall today from my dad who
told me that he had been told he is moving from the
residential home to a house in two weeks. He didn't
know where to or any details. This was news to me,
just got off the phone to the social worker who said
that he and the manager of the home feel he could live
independently although my dad isn't on a rehousing
list so it will take months to sort out. The very fact
that my dad can't remember the conversation and the
facts concern me.
It's 14 months since my dad was hospitalised with wks
and 6 months since he has been out of hospital and
into two different homes. He has improved I agree but
I'm not convinced he will cope. He can't budget and
borrows money from the home weekly that I then have to
pay back. He will have no support from any family or
friends when he moves just me (I live 60 miles away).
I'm 24 and I'm beginning to feel that I can't cope
anymore and I'm not sure I can support my dad from
where I am living now, which means moving.
He was assessed by the consultant in May who said he
had severe retrograde and anterograde amnesia,
concrete thinking and lack of flexibility and no
capacity to make informed decisions. Then reccomended
that I contact the DVLA to find out about getting his
driving licence back! Is it me or does that seem
strange? I'm beginning to think everyone else is Sane
and its me thats mad!
Has anyone got experience of a relative/ or of
themselves moving from a 24 hr facility to living
alone and what problems did they face? And any info on
driving??
Thanks,
Kaye







___________________________________________________________
Yahoo! Messenger - NEW crystal clear PC to PC calling worldwide with voicemail
http://uk.messenger.yahoo.com

#1613 From: "sellick_67ecw" <zedwan_@...>
Date: Tue Aug 16, 2005 9:58 pm
Subject: Re: Information needed
sellick_67ecw
Offline Offline
Send Email Send Email
 
-Hi Isobel,

It really depends to what degree of WKS your ex husband has.  My dad
too is in a nursing home (he is 64) and he has no interest in anyone
or anything.  He answers me when I ask him questions but does not make
much conversation.  He too has very good long term memory but no short
term memory.

On a more positive note, there are others in his home who do
communicate well and interact with others.  They watch tv, read and
get involved in activities.

In my experience their behaviour can change from month to month.  Dad
has been agressive in the past but now they are taking bloods this
week, to check he is ok as they are saying he is too quiet.  He too
gets meds for depression.

Good luck and keep us posted.

Ann








>   ----- Original Message -----
>   From: dunoongirl1955
>   To: wernicke_korsakoff_syndrome@yahoogroups.com
>   Sent: Friday, August 12, 2005 3:42 PM
>   Subject: [wernicke_korsakoff_syndrome] Information needed
>
>
>   My ex husband has been in a care home which supposedly specialises in
>   WKS.  He has been there for almost two years.  It seems to us that
his
>   condition is deteriotating, has no interest in anything and will not
>   mix with the other residents.  Is this normal?  I am told that they
>   think he may be depressed and they have put him on anti-depressants
>   and he seems a bit brighter but just stays in his room all day.  is
>   memory is very poor although he recognises everyone.
>   when he was in hospital and was first diagnosed he constantly
asked to
>   come home but now never does.
>
>   Can anyone recmmend anywhere to get information.
>
>   Thanks
>
>   isobel
>
>
>
>
>
>
>   To Post a message, send it to:   wernicke_korsakoff_syndrome@e...
>   To Unsubscribe, send a blank message to:
wernicke_korsakoff_syndrome-unsubscribe@e...
>
>
>
>   SPONSORED LINKS Terminal illness  Critical illness  Mental illness
>         Chronic illness
>
>
>
------------------------------------------------------------------------------
>   YAHOO! GROUPS LINKS
>
>     a..  Visit your group "wernicke_korsakoff_syndrome" on the web.
>
>     b..  To unsubscribe from this group, send an email to:
>      wernicke_korsakoff_syndrome-unsubscribe@yahoogroups.com
>
>     c..  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
------------------------------------------------------------------------------

#1612 From: "Kevin& Tammy" <kev@...>
Date: Tue Aug 16, 2005 5:31 pm
Subject: Re: [wernicke_korsakoff_syndrome] Information needed
wine8286
Offline Offline
Send Email Send Email
 
Isobel,
My brother-in-law is 38 and he is also in a nursing home.We live in the state of Illinois and it is very hard to find a place that will take someone of his age. So he too just sits in his room. At first his speech and walking ability was in good tact. The doctor told us that it sometimes takes a full year before all the symptoms can show up. Almost to the day of the year mark, Mark's speech started to slurr and he now has to walk with a walker.He will not do phyiscal thearpy. He will not go out in the nursing home bus to fish, or go some place for lunch. He was a huge outdoorsman. (fishing, hunting,gardening) He too was very upset with us when we got him out of the hospital and then took him to the nursing home. I guess we didnt know much about wks and the doctor gave us false hope that in 6 months he might be able to live on his own again. It was this site where I got alot of information and realized that Mark will probably never the leave the nursing home. Mark's short term memory is also very poor. I can ask him what I fixed for Supper 10 min's after we have eaten and he dosent know. But ask him something 5-10 yrs ago and he can go into great detail. Mark has had WKS for 2 yrs now. Good luck to you and stay in touch with this site. You know your not alone when you come here.Take Care
Tammy
----- Original Message -----
Sent: Friday, August 12, 2005 3:42 PM
Subject: [wernicke_korsakoff_syndrome] Information needed

My ex husband has been in a care home which supposedly specialises in
WKS.  He has been there for almost two years.  It seems to us that his
condition is deteriotating, has no interest in anything and will not
mix with the other residents.  Is this normal?  I am told that they
think he may be depressed and they have put him on anti-depressants
and he seems a bit brighter but just stays in his room all day.  is
memory is very poor although he recognises everyone. 
when he was in hospital and was first diagnosed he constantly asked to
come home but now never does.

Can anyone recmmend anywhere to get information.

Thanks

isobel





#1611 From: kathym530@...
Date: Tue Aug 16, 2005 10:20 am
Subject: Re: [wernicke_korsakoff_syndrome] Information needed
dullcineasaunt
Offline Offline
Send Email Send Email
 
HI Isobel:  My mom too pretty much stays in her room and doesn't mix with the other residents except for meals.  Like Pam said, the other residents are much older so its hard for her to relate.  My mom too was very restless in the beginning but seemed to settle in and become more and more complacent as time went on.  I would suggest you read through past posts and I think you'll find alot of commonality.  My mother does not take antidepressents but a combination of Exelon and Namenda (both normally used to treat Alzhiemer's disease).  While certainly it did not help with memory issues it did seem to help engage her more and she does sometimes participate in the activities in her facility.  Take care, Kathy

#1610 From: "pamela2242000" <pamela@...>
Date: Tue Aug 16, 2005 12:44 pm
Subject: RE:(Isobel)
pamela2242000
Offline Offline
Send Email Send Email
 
Hi Isobel

Where do you live?

Your ex husband sounds very much like my mum.  She too has been in
care homes for Korsakoff most recently she was moved into the nursing
home part of her most recent Korsakoff unit.  She too sits in her room
all day and does not mix with any of the other residents (they are a
lot older right enough) but she didn't mix with any in the other units.

I feel that my mum has detoriated physically and some days I cannot
make out what she is saying.  She spends all of her time sleeping in
her chair.  She was prescribed anti-depressants at one point however I
did not feel that they made much difference.

Not really sure what the answer is I'm afraid. My mum can't walk
either and is quite heavy so that limits my ability to take her
anywhere.

Pamela

#1609 From: "dunoongirl1955" <dunoongirl1955@...>
Date: Fri Aug 12, 2005 8:42 pm
Subject: Information needed
dunoongirl1955
Offline Offline
Send Email Send Email
 
My ex husband has been in a care home which supposedly specialises in
WKS.  He has been there for almost two years.  It seems to us that his
condition is deteriotating, has no interest in anything and will not
mix with the other residents.  Is this normal?  I am told that they
think he may be depressed and they have put him on anti-depressants
and he seems a bit brighter but just stays in his room all day.  is
memory is very poor although he recognises everyone.
when he was in hospital and was first diagnosed he constantly asked to
come home but now never does.

Can anyone recmmend anywhere to get information.

Thanks

isobel

#1608 From: Nora <dulcineasmom@...>
Date: Tue Aug 2, 2005 12:14 am
Subject: Re: [wernicke_korsakoff_syndrome] Re: advice about sleeping a lot
dulcineasmom
Offline Offline
Send Email Send Email
 
Just an insight here maybe...while I have the Wernicke part but not the Korsakoff part, it has been a struggle for me also to find an acceptable sleeping pattern..  I have finally gotten myself to the point where I sleep about 9-10 hours a day.   And although it's not really at the normal time, I'm managing to go to sleep about 3 AM and then getting up around noon or 1 PM, it has finally gotten pretty consistant.  On the days when I have something to do earlier, I usually just stay up all night.  I have a rough time going to sleep any earlier.  So this seems to be something that is a "normal" problem for us across the board.
 
Nora

menz <dgramenz@...> wrote:
I have the same problem with my dad sometimes, though lately he has
been better. I think part of my dad's problem is he doesn't have as
much of a concept of time as he used to, so he would get his days and
nights confused. He would refuse to get up and sleep all day, and then
when night came he would want to sleep because "its late at night".
The only way I was able to break this was to get him on a schedule of
getting up and going to sleep. It doesn't always work because I can't
stand over him all day to make sure he isn't napping in his easy chair
or on the couch, but for the most part it helped after fighting to get
him out of bed in the morning the first few days. He also takes
seroquel at night which helps him go to sleep quicker as well (he
would stay up for 48 hours at a time and then sleep for 24 straight).
It could also be that your dad is in depression over his diagnosis and
doesn't want to get up as well. What kind of medicines is he on right
now? That may contribute as well to his wanting to sleep all the time.
I'm sorry I can't offer any other advice. Good luck.

Dave

--- In wernicke_korsakoff_syndrome@yahoogroups.com, "kaznsarzy"
<kaznsarzy@y...> wrote:
> i was wondering if anyone could give me any advice,my dad was recently
> diagnosed with korsakoffs{5 weeks ago}and he keeps sleeping all the
> time,i am unsure if this is because he hasnt had a drink for 5
> weeks,or the korsakoffs,does anyone have any advice for my dad.{he was
> a chronic alcoholic for 30 years,i am grateful of any
> advice.......karen



#1607 From: "d_gramenz" <dgramenz@...>
Date: Mon Aug 1, 2005 7:07 pm
Subject: Re: advice about sleeping a lot
d_gramenz
Offline Offline
Send Email Send Email
 
I have the same problem with my dad sometimes, though lately he has
been better. I think part of my dad's problem is he doesn't have as
much of a concept of time as he used to, so he would get his days and
nights confused. He would refuse to get up and sleep all day, and then
when night came he would want to sleep because "its late at night".
The only way I was able to break this was to get him on a schedule of
getting up and going to sleep. It doesn't always work because I can't
stand over him all day to make sure he isn't napping in his easy chair
or on the couch, but for the most part it helped after fighting to get
him out of bed in the morning the first few days. He also takes
seroquel at night which helps him go to sleep quicker as well (he
would stay up for 48 hours at a time and then sleep for 24 straight).
It could also be that your dad is in depression over his diagnosis and
doesn't want to get up as well. What kind of medicines is he on right
now? That may contribute as well to his wanting to sleep all the time.
I'm sorry I can't offer any other advice. Good luck.

Dave

--- In wernicke_korsakoff_syndrome@yahoogroups.com, "kaznsarzy"
<kaznsarzy@y...> wrote:
> i was wondering if anyone could give me any advice,my dad was recently
> diagnosed with korsakoffs{5 weeks ago}and he keeps sleeping all the
> time,i am unsure if this is because he hasnt had a drink for 5
> weeks,or the korsakoffs,does anyone have any advice for my dad.{he was
> a chronic alcoholic for 30 years,i am grateful of any
> advice.......karen

#1606 From: "kaznsarzy" <kaznsarzy@...>
Date: Sun Jul 31, 2005 6:55 pm
Subject: advice about sleeping a lot
kaznsarzy
Offline Offline
Send Email Send Email
 
i was wondering if anyone could give me any advice,my dad was recently
diagnosed with korsakoffs{5 weeks ago}and he keeps sleeping all the
time,i am unsure if this is because he hasnt had a drink for 5
weeks,or the korsakoffs,does anyone have any advice for my dad.{he was
a chronic alcoholic for 30 years,i am grateful of any
advice.......karen

#1605 From: sarah menday <kaznsarzy@...>
Date: Sat Jul 30, 2005 9:44 pm
Subject: Re: [wernicke_korsakoff_syndrome] Re: my dad
kaznsarzy
Offline Offline
Send Email Send Email
 
hi anne,thanks for getting back,i do have other family but it seems to be me and my partner that do the most,you were right though it will settle down,were just in a difficult time at present,it seems at the moment were not getting much help,we havent heard from dads social worker yet,and also dads in hospital again on thursday for another op on his foot{the 1st one never healed as dad kept walking on it so it all has to be redone}i will kep you posted thanks for getting back,...karen

sellick_67ecw <zedwan_@...> wrote:
Hi Karen,

I sympathise also, it is very difficult in the beginning and you feel
you have no where to turn.  It will get easier once he is settled. 

Remind your partner that this won't last forever, and you need his
support.  Take some time out with them also, the break will do you good. 

Do you have any brothers or sisters?  Where do you live?

Take care

Ann

 
           
> ___________________________________________________________
> Yahoo! Messenger - NEW crystal clear PC to PC calling worldwide with
voicemail http://uk.messenger.yahoo.com



Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide with voicemail

#1604 From: "sellick_67ecw" <zedwan_@...>
Date: Sat Jul 30, 2005 9:24 pm
Subject: Re: my dad
sellick_67ecw
Offline Offline
Send Email Send Email
 
Hi Karen,

I sympathise also, it is very difficult in the beginning and you feel
you have no where to turn.  It will get easier once he is settled.

Remind your partner that this won't last forever, and you need his
support.  Take some time out with them also, the break will do you good.

Do you have any brothers or sisters?  Where do you live?

Take care

Ann



> ___________________________________________________________
> Yahoo! Messenger - NEW crystal clear PC to PC calling worldwide with
voicemail http://uk.messenger.yahoo.com

#1603 From: "kaznsarzy" <kaznsarzy@...>
Date: Thu Jul 28, 2005 4:33 pm
Subject: thanks for your replies
kaznsarzy
Offline Offline
Send Email Send Email
 
thanks to you all for your replies and advice,my dad has more surgery
on his foot next thursday,so i will keep you posted after
that,hopefully this time we can keep him still so that his foot can
heal,otherwise when does it end,will post back soon....thanks again

#1602 From: Kaye Wood <apollo210c@...>
Date: Thu Jul 28, 2005 3:42 pm
Subject: Re: [wernicke_korsakoff_syndrome] Re: my dad
apollo210c
Online Now Online Now
Send Email Send Email
 
Karen,
My dad has WKS too, he's just moved homes after been
given his notice from one a few weeks ago. He broke
his hip 2 and a half years ago (1yr 1/2 before
diagnosed with wks)he's 56 now. He doesn't remember he
broke it and keeps asking why he has pain when he
walks. The hip screw they put in moved, probably
because he self discharfed two days after the op and
now needs a hip replacement. However he went ice
skating yesterday, which is pretty amazing as his
balance isn't fantastic!! Good job he didn.t fall.
It's frustrating and I lose my patience at times its
hard. I don't have any advice either only that I
sympathise.
Kaye
--- d_gramenz <dgramenz@...> wrote:

> Karen,
>
>   I had a similar incident with my dad. He broke his
> hip and needed
> surgery to repair it. Since there was no cast he
> continually tried to
> get up and walk on it when he was in rehab because
> he couldn't
> remember that it was broke. To further worsen
> things, when it was
> almost healed and time for him to come back home
> from rehab, he walked
> on it when he wasn't supposed to and fell and
> fractured his knee. So
> then he needed to get rehab on the knee. At that
> point they were able
> to put on a cast so he would get the idea that he
> couldn't walk on it.
> I know how frustrating it is, and how angry and
> upset you get over
> everything. I don't have any advice except to be
> patient, and maybe
> post notes all over his room in large letters saying
> that his foot is
> broke and not to walk on it. That helped a little
> with my dad, but not
> much. Good luck!
>
> Dave
>
>
> --- In wernicke_korsakoff_syndrome@yahoogroups.com,
> "kaznsarzy"
> <kaznsarzy@y...> wrote:
> > i thaught i would let you all know how my dad is,i
> said he was
> > currently staying with me until we find him
> somewhere permanent with
> > help from the social services ect,My dad found out
> he had korsakoffs 4
> > weeks ago when he fell on a curb{he broke his foot
> in 4 places},he has
> > no recolection of this as he was intoxicated at
> the time,{whilst he
> > was in hospital he detoxed}the problem now is we
> went with dad to the
> > hospital today as an outpatient,only to find out
> dad needs another
> > operation on his foot,as when he is told to keep
> his foot up,he
> > forgets what they have told him and wanders all
> over the hospital,so
> > his foot needs fixing all over again,and im
> finding this so difficult
> > as i have to be with him as much as possible,as
> when he wakes from
> > theatre he dosent know where he is and tries to
> get out of bed,i know
> > its not dads fault but this is so hard and is
> putting an enourmous
> > strin on my relationship with my partner,and i
> havent had any time
> > with my kids as i have been up and down the
> hospital for weeks only to
> > be back to square one,just need someone to talk to
> as i feel so fed up
> > and feel at times i cannot cope,thanks all
> ........karen
>
>
>






___________________________________________________________
Yahoo! Messenger - NEW crystal clear PC to PC calling worldwide with voicemail
http://uk.messenger.yahoo.com

#1601 From: "d_gramenz" <dgramenz@...>
Date: Thu Jul 28, 2005 3:32 pm
Subject: Re: my dad
d_gramenz
Offline Offline
Send Email Send Email
 
Karen,

   I had a similar incident with my dad. He broke his hip and needed
surgery to repair it. Since there was no cast he continually tried to
get up and walk on it when he was in rehab because he couldn't
remember that it was broke. To further worsen things, when it was
almost healed and time for him to come back home from rehab, he walked
on it when he wasn't supposed to and fell and fractured his knee. So
then he needed to get rehab on the knee. At that point they were able
to put on a cast so he would get the idea that he couldn't walk on it.
I know how frustrating it is, and how angry and upset you get over
everything. I don't have any advice except to be patient, and maybe
post notes all over his room in large letters saying that his foot is
broke and not to walk on it. That helped a little with my dad, but not
much. Good luck!

Dave


--- In wernicke_korsakoff_syndrome@yahoogroups.com, "kaznsarzy"
<kaznsarzy@y...> wrote:
> i thaught i would let you all know how my dad is,i said he was
> currently staying with me until we find him somewhere permanent with
> help from the social services ect,My dad found out he had korsakoffs 4
> weeks ago when he fell on a curb{he broke his foot in 4 places},he has
> no recolection of this as he was intoxicated at the time,{whilst he
> was in hospital he detoxed}the problem now is we went with dad to the
> hospital today as an outpatient,only to find out dad needs another
> operation on his foot,as when he is told to keep his foot up,he
> forgets what they have told him and wanders all over the hospital,so
> his foot needs fixing all over again,and im finding this so difficult
> as i have to be with him as much as possible,as when he wakes from
> theatre he dosent know where he is and tries to get out of bed,i know
> its not dads fault but this is so hard and is putting an enourmous
> strin on my relationship with my partner,and i havent had any time
> with my kids as i have been up and down the hospital for weeks only to
> be back to square one,just need someone to talk to as i feel so fed up
> and feel at times i cannot cope,thanks all ........karen

#1600 From: "kaznsarzy" <kaznsarzy@...>
Date: Wed Jul 27, 2005 9:58 pm
Subject: my dad
kaznsarzy
Offline Offline
Send Email Send Email
 
i thaught i would let you all know how my dad is,i said he was
currently staying with me until we find him somewhere permanent with
help from the social services ect,My dad found out he had korsakoffs 4
weeks ago when he fell on a curb{he broke his foot in 4 places},he has
no recolection of this as he was intoxicated at the time,{whilst he
was in hospital he detoxed}the problem now is we went with dad to the
hospital today as an outpatient,only to find out dad needs another
operation on his foot,as when he is told to keep his foot up,he
forgets what they have told him and wanders all over the hospital,so
his foot needs fixing all over again,and im finding this so difficult
as i have to be with him as much as possible,as when he wakes from
theatre he dosent know where he is and tries to get out of bed,i know
its not dads fault but this is so hard and is putting an enourmous
strin on my relationship with my partner,and i havent had any time
with my kids as i have been up and down the hospital for weeks only to
be back to square one,just need someone to talk to as i feel so fed up
and feel at times i cannot cope,thanks all ........karen

#1599 From: Nora <dulcineasmom@...>
Date: Thu Jul 21, 2005 5:36 pm
Subject: Re: [wernicke_korsakoff_syndrome] thanks to everyone who replied to my mails
dulcineasmom
Offline Offline
Send Email Send Email
 
What is kp?
Nora
kaznsarzy <kaznsarzy@...> wrote:
thanks to you all for mailing me back,my dad will be coming home from
the hospital today{for that i am really pleased}i had the meeting with
the team at the hospital and managed to convince them my dad was
better off with me}they said it would be temporary until they find him
more suitable accomodation,but at least i will be with him all the
way,i am only glad i knew a little about korsakoffs as i could explain
to the phsyciatrist that i knew what to expect when dad comes home ie
weakness of legs,still acting drunk ect,she informed me that she has
dealt with about 1000 people with korsakoffs,and dad is the only one
she knows to have come home,i am not sure how bad the korsakoffs is i
know dads short term memory is really poor,i would say about 5 yrs,and
he seems weak on his legs{it dosent help he broke his foot}and can be
quite ajitated at times and seems to want a lot of attention,i will
keep you all posted in the near future and appreciate any info,i am
not sure the difference between ks and kp,,............many thanks



#1598 From: "kaznsarzy" <kaznsarzy@...>
Date: Thu Jul 21, 2005 10:09 am
Subject: thanks to everyone who replied to my mails
kaznsarzy
Offline Offline
Send Email Send Email
 
thanks to you all for mailing me back,my dad will be coming home from
the hospital today{for that i am really pleased}i had the meeting with
the team at the hospital and managed to convince them my dad was
better off with me}they said it would be temporary until they find him
more suitable accomodation,but at least i will be with him all the
way,i am only glad i knew a little about korsakoffs as i could explain
to the phsyciatrist that i knew what to expect when dad comes home ie
weakness of legs,still acting drunk ect,she informed me that she has
dealt with about 1000 people with korsakoffs,and dad is the only one
she knows to have come home,i am not sure how bad the korsakoffs is i
know dads short term memory is really poor,i would say about 5 yrs,and
he seems weak on his legs{it dosent help he broke his foot}and can be
quite ajitated at times and seems to want a lot of attention,i will
keep you all posted in the near future and appreciate any info,i am
not sure the difference between ks and kp,,............many thanks

#1597 From: "pamela2242000" <pamela@...>
Date: Thu Jul 21, 2005 9:03 am
Subject: RE:(Karen)
pamela2242000
Offline Offline
Send Email Send Email
 
Hi Karen

Welcome to the group.  My mum has Korsakoff after being a very heavy
drinker for a number of years.  She too like Ann's dad is in a nursing
home and wheelchair and needs 24 hour care.  She was in a specialist
Korsakoff unit however has now been transferred to a nursing home as
she needs more nursing care.  Her Korsakoff does not seem to create as
much a problem as it used to she used to be physically agressive to
the nursing staff in 2 previous homes but I ask myself was there a
reason for that i.e. way she was being treated thank god she can't
remember any of it!

Not sure where you live.  However, keep us posted about your meeting
with social workers etc.

Take Care

Pamela

#1596 From: Nora <dulcineasmom@...>
Date: Tue Jul 19, 2005 10:09 pm
Subject: Re: [wernicke_korsakoff_syndrome] Re: advice
dulcineasmom
Offline Offline
Send Email Send Email
 
Hi, Karen...I know the below response was for Ann but the memory problem is the same with me...I have a mild case of the disease... I remember a few things from the previous day but I couldn't tell you when things happen whether I'll remember that or not, it's very hit or miss. 
Nora

sarah menday <kaznsarzy@...> wrote:
hi,thanks for your advice,i will be having a meeting tomorrow with social workers,doctors ect,in regards to where dad will live in the future ect,{he will be living with me for a while}its really difficult as i think its hit dad hard,{first time i have heard him say he wants to stop drinking}dad remembers everything from the past as if it was yesterday,yet couldnt tell you what happened yesterday,he sort of remembers little bits and peices,it must be really difficult for you,{if you dont mind me asking was your dad an alcoholic,,,many thanks for getting back........karen...ps...will let you know how the meeting goes tomorrow

sellick_67ecw <zedwan_@...> wrote:
-Welcome Karen,

It will be a really hard time for you at the moment.

In answer to your question, it really depends on how far advanced the
korsakoffs is.  Some people can live independently with help and
others need specialised round the clock care.

My dad also has Kors but he has no short term memory at all and needs
24 - 7 nursing care.  He is in a wheelchair but his brain damage is
very severe.  There are others in his home however who can care for
themselves very well but it is only their memory that is affected.

You need to speak to your doctors and social workers to determine how
bad your dad is and take it from there.  Where do you stay? 
Any other problems, please ask!


Ann

>
>
> could anyone else please give me some advice about korsakoffs
> syndrome.i just found out my dad has it,its causing lots of
> complications,housing,where he will be living,ect,any advice would be
> gratefully recieved......karen




How much free photo storage do you get? Store your holiday snaps for FREE with Yahoo! Photos. Get Yahoo! Photos

#1595 From: sarah menday <kaznsarzy@...>
Date: Tue Jul 19, 2005 8:59 pm
Subject: Re: [wernicke_korsakoff_syndrome] Re: advice
kaznsarzy
Offline Offline
Send Email Send Email
 
hi,thanks for your advice,i will be having a meeting tomorrow with social workers,doctors ect,in regards to where dad will live in the future ect,{he will be living with me for a while}its really difficult as i think its hit dad hard,{first time i have heard him say he wants to stop drinking}dad remembers everything from the past as if it was yesterday,yet couldnt tell you what happened yesterday,he sort of remembers little bits and peices,it must be really difficult for you,{if you dont mind me asking was your dad an alcoholic,,,many thanks for getting back........karen...ps...will let you know how the meeting goes tomorrow

sellick_67ecw <zedwan_@...> wrote:
-Welcome Karen,

It will be a really hard time for you at the moment.

In answer to your question, it really depends on how far advanced the
korsakoffs is.  Some people can live independently with help and
others need specialised round the clock care.

My dad also has Kors but he has no short term memory at all and needs
24 - 7 nursing care.  He is in a wheelchair but his brain damage is
very severe.  There are others in his home however who can care for
themselves very well but it is only their memory that is affected.

You need to speak to your doctors and social workers to determine how
bad your dad is and take it from there.  Where do you stay? 
Any other problems, please ask!


Ann

>
>
> could anyone else please give me some advice about korsakoffs
> syndrome.i just found out my dad has it,its causing lots of
> complications,housing,where he will be living,ect,any advice would be
> gratefully recieved......karen




How much free photo storage do you get? Store your holiday snaps for FREE with Yahoo! Photos. Get Yahoo! Photos

#1594 From: "sellick_67ecw" <zedwan_@...>
Date: Tue Jul 19, 2005 9:06 am
Subject: Re: advice
sellick_67ecw
Offline Offline
Send Email Send Email
 
-Welcome Karen,

It will be a really hard time for you at the moment.

In answer to your question, it really depends on how far advanced the
korsakoffs is.  Some people can live independently with help and
others need specialised round the clock care.

My dad also has Kors but he has no short term memory at all and needs
24 - 7 nursing care.  He is in a wheelchair but his brain damage is
very severe.  There are others in his home however who can care for
themselves very well but it is only their memory that is affected.

You need to speak to your doctors and social workers to determine how
bad your dad is and take it from there.  Where do you stay?
Any other problems, please ask!


Ann

>
>
> could anyone else please give me some advice about korsakoffs
> syndrome.i just found out my dad has it,its causing lots of
> complications,housing,where he will be living,ect,any advice would be
> gratefully recieved......karen

#1593 From: Nora <dulcineasmom@...>
Date: Mon Jul 18, 2005 8:52 pm
Subject: Re: [wernicke_korsakoff_syndrome] advice
dulcineasmom
Offline Offline
Send Email Send Email
 
Welcome, Karen
I would suggest you look back through the archives.  That will give you the most insight about our experiences with this disease.  Then we will try to answer any questions you may have.
Nora

could anyone else please give me some advice about korsakoffs
syndrome.i just found out my dad has it,its causing lots of
complications,housing,where he will be living,ect,any advice would be
gratefully recieved......karen

#1592 From: "kaznsarzy" <kaznsarzy@...>
Date: Sun Jul 17, 2005 4:19 pm
Subject: advice
kaznsarzy
Offline Offline
Send Email Send Email
 
could anyone else please give me some advice about korsakoffs
syndrome.i just found out my dad has it,its causing lots of
complications,housing,where he will be living,ect,any advice would be
gratefully recieved......karen

#1591 From: "pamela2242000" <pamela@...>
Date: Mon Jul 18, 2005 2:49 pm
Subject: RE:(Ann)
pamela2242000
Offline Offline
Send Email Send Email
 
Hi Ann

That's great news I will keep my fingers crossed.

Take care

Pamela

#1590 From: "sellick_67ecw" <zedwan_@...>
Date: Fri Jul 8, 2005 7:25 pm
Subject: update
sellick_67ecw
Offline Offline
Send Email Send Email
 
Hi everyone,

Good news, had another review today with the home and they have agreed
to put dad's move on hold.  There have been no aggressive incidents in
the last three months and they have said he can stay.

I know I will be in the same position again but for now the pressure
is off.  A new manager has taken over and hopefully things will get
better as I always said the problem was not with the staff but the
management.

I am really glad as social work contacted 20 homes and nobody wanted
to take him.

We are now pushing social work to provide someone who can be-friend
dad a couple of days a week to take him to the park or just spend some
quality time with him.  This would relieve the bordeom and get him out
more.  It is amazing that social work provide the same amount of
funding for someone who is able and can get out on their own to
someone like dad who needs 24-7 care.  Obviously dad needs more one to
one care than someone who can do things for themselves.  However, it
is all down to money at the end of the day, but we will try.

Take care all

Ann

#1589 From: "sellick_67ecw" <zedwan_@...>
Date: Mon Jun 27, 2005 9:04 pm
Subject: Re: RE:(Pamela)
sellick_67ecw
Offline Offline
Send Email Send Email
 
-
Hi Pamela,

That explains things about your home.

Two other homes came to see my dad last week and no luck.  They don't
want to take on a chain smoker with bad behaviour.  Don't blame them
though! LOL.  No seriously though, long term hospital may be the next
step but I am going to fight them on that.  Dad is only 64 and he has
very little quality of life as it is never mind putting him in a
hospital environment.

I need to take him out more but it is such an effort.  The wheel
chair, stairs to my house and my kids, what fun is it for them at the
weekend watching their grandad who never speaks.  Felt guilty though
when we were at the beach this weekend and he was stuck in there.

It doesn't get easier!!!!

Another review on 8th July with his current home and social work, will
keep you all posted.

Take care

Ann

Messages 1589 - 1618 of 2597   Newest  |  < Newer  |  Older >  |  Oldest
Advanced
Add to My Yahoo!      XML What's This?

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help