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Thiamine   Message List  
Reply | Forward Message #2593 of 2597 |
Re: [wernicke-korsakoff_syndrome] Re: Thiamine

WKS is a rare disease as it is....so not often diagnosed.  My mother was very fortuntate that her attending physician was Romanian...and curious as to why she never remembered who he was from one minute to the next..so he did his research and she showed all the symptoms..and then an MRI confirmed atrophy of the brain. 
 
Your father is an alcoholic and that in and of itself is its own disease.  He will not be able to control his obsession with alcohol and once he gets it he will crave more.  That is the nature of the illness so giving him the freedom to obtain alcohol will not do him any favors.  At least in jail, he has no  access and without alcohol the WKS may stop progressing.  With thiamine he can improve.  It doesn't sound like your father is interested in recovering from alcoholism but AA can certainly help him if he is willing.  Because my mother was so seriously ill, she went 3 months without alcohol and she really had no access between the nursing home and then the assisted living.  Then the apathy that came with Korsakoff's worked in our favor because she never attempted to obtain any though she certainly could have.  She also stopped smoking...again not by will power just lack of access. 
 
Once my mother was discharged from the hospital and no longer in the care of our Romanian doctor I had to educate her caregivers.  I presented them with articles on WKS like this one...http://www.minddisorders.com/Py-Z/Wernicke-Korsakoff-syndrome.html.  It is rare and many have not  heard of it.  Since its usually only given about one sentence as a possible result of alcholism...if that....while some may have heard of it they certainly had no idea how to diagnose or treat.  So if they can put their egos aside..and they may not do so in front of you...giving them the literature may at least spark their curiousity. 


Sun Jun 21, 2009 1:27 pm

dullcineasaunt
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Message #2593 of 2597 |
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Hi, I may have posted this before, but I wanted to make sure everyone knew it. I got sick with WKS a few years ago. Before that, I had another condition...
Sherry
arles1996
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Jun 17, 2009
1:42 pm

Hi Sherry, who diagnosed yuou had WKS? I need to get my dad diagnosed as well. how do we get thiamine? is there aprescription for that? in high doses...
sunni stalbird
sunniibunnii71
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Jun 17, 2009
3:00 pm

... I was diagnosed when I got extremely ill, by docs at the hospital. I, to this day, wonder if that was really true. Most people who have had WKS to the...
Sherry
arles1996
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Jun 18, 2009
1:26 pm

I totally agree with Sherry, the same thing happened with my husband, the doctor's explained it to me along the line of when my husband's body processed...
kelli flynt
kelliflynt
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Jun 20, 2009
1:37 pm

... I actually think I had a low thiamine level before any alcohol entered the picture. I suffered from gastroparesis. I may have already said this, so...
Sherry
arles1996
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Jun 22, 2009
2:04 pm

Hi all..I've been reading the thread and thought I'd update you on my mother as well. She was diagnosed with WKS in January of 2003. I found her on New...
kathym530@...
dullcineasaunt
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Jun 20, 2009
4:57 pm

I am always so glad to hear that there are others who are experiencing this . Wish I knew how WKS was diagnosed. I have heard MRI, or a neurologist can detect...
sunni stalbird
sunniibunnii71
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Jun 21, 2009
5:00 am

Hi Sunni,   You need to tell them he's an alcoholic, not a mental patient.  And I'm just afraid if you bail him out you are asking for trouble.   Hang in...
Nora
dulcineasmom
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Jun 21, 2009
6:43 am

Hi Sunni Nora is right, don't give in and bail him now, even if your dad has mental health issues he is unlikely to be able to be treated for them effectively...
Ali Hancock
lifes2short2...
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Jun 21, 2009
8:25 am

WKS is a rare disease as it is....so not often diagnosed. My mother was very fortuntate that her attending physician was Romanian...and curious as to why she...
kathym530@...
dullcineasaunt
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Jun 21, 2009
1:27 pm

Thank you...are you sure he isnt both now an alcoholic and a mental patient, his sudden behavior changes..as well..this is so exhausting ... From: Nora...
sunni stalbird
sunniibunnii71
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Jun 21, 2009
4:11 pm

Hi Sunni,   I believe from the way you described the "before" and "after" that the alcohol brought on the mental problems.  Didn't you say he was a...
Nora
dulcineasmom
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Jun 22, 2009
10:30 pm

Hi Sunni, keep your head up and know you are doing the right thing, your father is safe where he is at, leave him there for now.  While he is there you could...
kelliflynt@...
kelliflynt
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Jun 23, 2009
12:59 pm
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