I totally agree with Sherry, the same thing happened with my husband, the doctor's explained it to me along the line of when my husband's body processed alcohol it did not process thiamin as it normally would do, so over the coarse of many years of drinking his level got so low that he got sick. In the hospital they had him on IV thiamin and Vit B in very large doses for 3 months. When he went in he was 118lbs, crazy, could not walk or feed himself, then all of a sudden as his vitamin and thiamin level increased , along with therapy he started to get better. When he came home he was in a wheel chair and we continued with the thiamin and b12 over the counter. I don't know if this happened to you Sherry but since then he has no craving for alcohol. He does suffer from short term memory loss and tests show he has nerve damage in
his feet and hands.He takes 2 different drugs for the nerve pain and writes notes as reminders to help not forget things,
but he is home with us, now walks without a cain and even takes our son surfing every day
as therapy. Hang in there, things can get better.
--- On Thu, 6/18/09, Sherry <sherry@...> wrote:
From: Sherry <sherry@...> Subject: [wernicke-korsakoff_syndrome] Re: Thiamine To: wernicke-korsakoff_syndrome@yahoogroups.com Date: Thursday, June 18, 2009, 8:26 AM
--- In wernicke-korsakoff_ syndrome@ yahoogroups. com, sunni stalbird <sunniibunnii71@ ...> wrote: > > Hi Sherry, > who diagnosed yuou had WKS? I need to get my dad diagnosed as well. how do we get thiamine? is there aprescription for that? in high doses needed?Thanks
I was diagnosed when I got extremely ill, by docs at the hospital. I, to this day, wonder if that was really true. Most people who have had WKS to the extent I supposedly had it, are vegetables now. Hey, guess what, I am not.
Anyway, thiamine is available without a prescription at the drug store. It's just a vitamin supplement. The only problem is the patient may need extremely high doses to get them out of the syndrome. I was pumped with it intraveneously
when I was in the hospital, and I do not know the level. (I tried to get my medical records and they wanted ONE HUNDRED DOLLARS to give me copies. That is total bullshit, isn't it?) Anyway, they pumped me with it and I got better. Now I take oen or two normal tablets a day (as normal, I mean the ones you get at the drug store, with no prescription) .
I do still wonder if I had WKS or not. But if I did, then thiamine fixed it. I want people to realize how important some vitamins can be to your health.
If you have any more questions, please contact me.
Hi, I may have posted this before, but I wanted to make sure everyone knew it. I got sick with WKS a few years ago. Before that, I had another condition...
Hi Sherry, who diagnosed yuou had WKS? I need to get my dad diagnosed as well. how do we get thiamine? is there aprescription for that? in high doses...
... I was diagnosed when I got extremely ill, by docs at the hospital. I, to this day, wonder if that was really true. Most people who have had WKS to the...
I totally agree with Sherry, the same thing happened with my husband, the doctor's explained it to me along the line of when my husband's body processed...
... I actually think I had a low thiamine level before any alcohol entered the picture. I suffered from gastroparesis. I may have already said this, so...
Hi all..I've been reading the thread and thought I'd update you on my mother as well. She was diagnosed with WKS in January of 2003. I found her on New...
I am always so glad to hear that there are others who are experiencing this . Wish I knew how WKS was diagnosed. I have heard MRI, or a neurologist can detect...
Hi Sunni,  You need to tell them he's an alcoholic, not a mental patient. And I'm just afraid if you bail him out you are asking for trouble.  Hang in...
Hi Sunni Nora is right, don't give in and bail him now, even if your dad has mental health issues he is unlikely to be able to be treated for them effectively...
WKS is a rare disease as it is....so not often diagnosed. My mother was very fortuntate that her attending physician was Romanian...and curious as to why she...
Thank you...are you sure he isnt both now an alcoholic and a mental patient, his sudden behavior changes..as well..this is so exhausting ... From: Nora...
Hi Sunni, keep your head up and know you are doing the right thing, your father is safe where he is at, leave him there for now. While he is there you could...
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