From: Sherry <sherry@...>
Subject: [wernicke-korsakoff_syndrome] Thiamine
To: wernicke-korsakoff_syndrome@yahoogroups.com
Date: Wednesday, June 17, 2009, 8:41 AM

Hi,

I may have posted this before, but I wanted to make sure everyone knew it.

I got sick with WKS a few years ago. Before that, I had another condition called gastroparesis. It is delayed stomach emptying. It causes nausea and other problems.

I, and another person I know who had this syndrome, recovered from the gastroparesis when we were put on high doses of thiamine and folic acid.

I believe that there are just some people who have bodies that need higher doses of these vitamins. I don't know what the reason is, but I do know taking more of them has saved my life.

I did have a problem with alcohol, partly because when you have gastroparesis, for some reason, alcohol helps. I have spoken to several people who have gastroparesis who use it as "medicine". Doctors, of course, tell you that's crazy, but when you are nauseous and the only thing that helps is alcohol, it's hard to say no.

Anyway, when I was treated with large doses of thiamine and folic acid, my WKS went away, and so did the gastroparesis. From this, I assume I had had a low thiamine level for years. Now that I pump the thiamine in every day, I am fine.

If you have a family member with WKS, please try to make them take high dosages of these two vitamins. It may help immensely.

Sherry