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Thiamine   Message List  
Reply | Forward Message #2584 of 2597 |
Hi,

I may have posted this before, but I wanted to make sure everyone knew it.

I got sick with WKS a few years ago. Before that, I had another condition
called gastroparesis. It is delayed stomach emptying. It causes nausea and
other problems.

I, and another person I know who had this syndrome, recovered from the
gastroparesis when we were put on high doses of thiamine and folic acid.

I believe that there are just some people who have bodies that need higher doses
of these vitamins. I don't know what the reason is, but I do know taking more
of them has saved my life.

I did have a problem with alcohol, partly because when you have gastroparesis,
for some reason, alcohol helps. I have spoken to several people who have
gastroparesis who use it as "medicine". Doctors, of course, tell you that's
crazy, but when you are nauseous and the only thing that helps is alcohol, it's
hard to say no.

Anyway, when I was treated with large doses of thiamine and folic acid, my WKS
went away, and so did the gastroparesis. From this, I assume I had had a low
thiamine level for years. Now that I pump the thiamine in every day, I am fine.

If you have a family member with WKS, please try to make them take high dosages
of these two vitamins. It may help immensely.

Sherry






Wed Jun 17, 2009 1:41 pm

arles1996
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Message #2584 of 2597 |
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Hi, I may have posted this before, but I wanted to make sure everyone knew it. I got sick with WKS a few years ago. Before that, I had another condition...
Sherry
arles1996
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Jun 17, 2009
1:42 pm

Hi Sherry, who diagnosed yuou had WKS? I need to get my dad diagnosed as well. how do we get thiamine? is there aprescription for that? in high doses...
sunni stalbird
sunniibunnii71
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Jun 17, 2009
3:00 pm

... I was diagnosed when I got extremely ill, by docs at the hospital. I, to this day, wonder if that was really true. Most people who have had WKS to the...
Sherry
arles1996
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Jun 18, 2009
1:26 pm

I totally agree with Sherry, the same thing happened with my husband, the doctor's explained it to me along the line of when my husband's body processed...
kelli flynt
kelliflynt
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Jun 20, 2009
1:37 pm

... I actually think I had a low thiamine level before any alcohol entered the picture. I suffered from gastroparesis. I may have already said this, so...
Sherry
arles1996
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Jun 22, 2009
2:04 pm

Hi all..I've been reading the thread and thought I'd update you on my mother as well. She was diagnosed with WKS in January of 2003. I found her on New...
kathym530@...
dullcineasaunt
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Jun 20, 2009
4:57 pm

I am always so glad to hear that there are others who are experiencing this . Wish I knew how WKS was diagnosed. I have heard MRI, or a neurologist can detect...
sunni stalbird
sunniibunnii71
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Jun 21, 2009
5:00 am

Hi Sunni,   You need to tell them he's an alcoholic, not a mental patient.  And I'm just afraid if you bail him out you are asking for trouble.   Hang in...
Nora
dulcineasmom
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Jun 21, 2009
6:43 am

Hi Sunni Nora is right, don't give in and bail him now, even if your dad has mental health issues he is unlikely to be able to be treated for them effectively...
Ali Hancock
lifes2short2...
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Jun 21, 2009
8:25 am

WKS is a rare disease as it is....so not often diagnosed. My mother was very fortuntate that her attending physician was Romanian...and curious as to why she...
kathym530@...
dullcineasaunt
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Jun 21, 2009
1:27 pm

Thank you...are you sure he isnt both now an alcoholic and a mental patient, his sudden behavior changes..as well..this is so exhausting ... From: Nora...
sunni stalbird
sunniibunnii71
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Jun 21, 2009
4:11 pm

Hi Sunni,   I believe from the way you described the "before" and "after" that the alcohol brought on the mental problems.  Didn't you say he was a...
Nora
dulcineasmom
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Jun 22, 2009
10:30 pm

Hi Sunni, keep your head up and know you are doing the right thing, your father is safe where he is at, leave him there for now.  While he is there you could...
kelliflynt@...
kelliflynt
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Jun 23, 2009
12:59 pm
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