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To those of you who are reading this, I saw a post from Karen in th Uk who has a recovery system thats she is sharing with us, here is what she shared so far. if interested : ) Sunni
Hi Sunni
It was nice to hear of some interest in what we do over here. We started with a wonderful lady called Lind Boughey who owned www.carenzacare.co.uk but sadly she died suddenly last year of liver cancer, a cruel twist of fate for a lady who originally started this whole rehab thing. Linda set up our first unit in Nottinghamshire and since then we have been full to the brim.
We changed the way people viewed K.S. K.S here is usually a form of dementia, and this means, slow decline then death. But, KS doesnt mean that at all, and when you abstain from alcohol, you CAN and DO improve. Therefore, why not see it as a brain injury? An acquired brain injury? If you do, the possibilities are endless. We do so much it would be hard to describe in a first email but suffice it to say that we have our own care pathway, which all our clients follow, which includes retraining in daily living skills. This helps, but we also blitz with Thiamine, Vitaimin B complex, and Vitamin C. We have a high staff to client ratio also.
I could take all day writing this!!
I havent time to post on the group but you are most welcome to cut and paste this to the message board and I will try and answer emails personally.
Yes, our clients tend to go back home to normal life. Some need a little support such as a care worker coming to see them a few times a week. The luckiest ones go back to work although most of our clients work anyway, as part of the rehab (average stay with us is a year). The work is mainly in shops etc, but we try to fit people in to the job they did before they got ill.
I hope that answers some of your questions? Our website is www.dukerieshealthcare.co.uk. Our services for K.S is called Champion (we champion the KS cause!). Click on that button and it will tell you a bit more.
Blessings
Karen
----- Original Message ----
From: sunni stalbird <sunniibunnii71@...>
To: wernicke-korsakoff_syndrome@yahoogroups.com
Sent: Saturday, September 6, 2008 10:14:15 PM
Subject: Re: [wernicke-korsakoff_syndrome] Hi
From: sunni stalbird <sunniibunnii71@...>
To: wernicke-korsakoff_syndrome@yahoogroups.com
Sent: Saturday, September 6, 2008 10:14:15 PM
Subject: Re: [wernicke-korsakoff_syndrome] Hi
Hi Karen, I keep my eyes open for new people and when I saw yours, sayiing you rehab and send people home. I am wondering how and what you do to make them able? Please tell me the treatment in detail, maybe there is something were missing in the USA, Im open to any ideas and new ways, technology changes so often , it wont hurt to try something new for the hopes ofour loved ones who are suffereing and the sad ones we've already lost. I remeber when my grandmother suffered from cancer, and now they have ways to try and beat it. Just like back in the day there were what they called " blue babies" born with heart abnormalities, now it can be changed. I am not so sure how there is really hope for alcoholics, neuropathy, and korsakoff? Rehab and sending home is great, do you mean they go back to complete normal lives? Drive, care for self, and other major important life situations? I would like to learn more from you, please email me sunniibunnii71@ yahoo.com ( My father is the retired fireman, ems, dispatcher, with alcoholic neuropathy and Wks, ) I can share more later..Thanks and blessings Sunni
----- Original Message ----
From: Nora <dulcineasmom@ yahoo.com>
To: wernicke-korsakoff_ syndrome@ yahoogroups. com
Sent: Saturday, September 6, 2008 9:08:59 PM
Subject: Re: [wernicke-korsakoff _syndrome] Hi
From: Nora <dulcineasmom@ yahoo.com>
To: wernicke-korsakoff_ syndrome@ yahoogroups. com
Sent: Saturday, September 6, 2008 9:08:59 PM
Subject: Re: [wernicke-korsakoff _syndrome] Hi
Hi Karen,
Welcome to the group... I have never heard of a place such as yours. No one has spoken of such a place in this group. I apologize for not responding sooner....I have been out of town since Wednesday evening, so I just now received your email.
Please be patient, some of our members do not often check their email, or read the messages on the group website only so they'll respond sooner or later.
As for my story, you can read my previous messages at the website. They tell the journey I have had with this disease.
Ask any questions you would like, we will answer them to the best of our abilities.
Nora
Karen <kazmar@ntlworld. com> wrote:
Karen <kazmar@ntlworld. com> wrote:
Hello everyone,
I have just found your group so I thought I would join and introduce
myself. I live in the UK and I operate a few facilities for people with
Korsakoffs, or as we call it, Alcohol Related Brain Injury (ARBI).
We rehab. people and send them home, which is pretty unheard of here.
We have really great sucesses with our clients, most of whom can return
home with no problem at all.
Do you have facilities like this in the USA? I know our sister company
took a man from Arizona a while ago and he is doing fine, but he
obviously had to travel to the UK for the right treatment.
Karen
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