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Reply | Forward Message #2442 of 2597 |
Re: [wernicke-korsakoff_syndrome] A Light Bulb

Hello, My dad also has wks, and he was severe, and has stopped vodka and now only drinks his beer, while he cares for his parents, its almost like he is back. But he still repeats himself and forgets alot, but he is much better than I thought he wouldbe. Is it possible to get better like this? Or will he stay this way forever? Thanks Sunni

Nora <dulcineasmom@...> wrote:
Hi Marg,
 
I have to thank you.  You have found an article about WK that has turned on a light bulb in my head.  The first link you show below puts into words a description of the damage caused by WE that I finally understand.  There had previously been a gap in my understanding of why exactly I have the difficulties that I do.
 
"The body uses thiamine to form part of the structure of blood vessels, including
those in the brain. Without it they begin to leak. The main symptoms of Wernicke’s
encephalopathy (confusion, drowsiness etc) occur when blood is leaking out of the
capillaries in and around the parts of the brain that form new memories and the
parts that control muscle co-ordination. If the leaking continues the patient will
probably become unconscious, the leaked blood then clots and as it solidifies
damages the brain tissue around it."
 
I have never heard it described like this before and it now makes sense.  Thank you for continuing to look for more information on our disease.
 
I realize this probably means very little to most of you.  And I apologize for imposing my little experience on those of you, but for me this is very profound.
 
OK, I'll go back to my little corner of observation now.
 
Thank you
Nora


Marg <mgibson@getgoin.net> wrote:
I've added some links to our group that you might find helpful. I know some of the others who have dealt with parents with this will answer soon.
Marg
 
 
 



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Mon Feb 18, 2008 2:09 am

sunniibunnii71
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Message #2442 of 2597 |
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First, thanks in advance if you take the time to read my ranting. I hope I don't scare anyone away before I can get the help I desperately need. My mother has...
shortybiker42
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Feb 17, 2008
3:53 pm

I've added some links to our group that you might find helpful. I know some of the others who have dealt with parents with this will answer soon. Marg ...
Marg
marggibson
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Feb 17, 2008
7:50 pm

Hi Marg, I have to thank you. You have found an article about WK that has turned on a light bulb in my head. The first link you show below puts into words a...
Nora
dulcineasmom
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Feb 18, 2008
12:12 am

Hello, My dad also has wks, and he was severe, and has stopped vodka and now only drinks his beer, while he cares for his parents, its almost like he is back....
sunni stalbird
sunniibunnii71
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Feb 18, 2008
2:09 am

Marg, How is Allen doing? I wanted to thank you for reposting the WKS facts sheets. My dad is up for another interdisciplinary care plan meeting this Thursday....
carrie buckingham
ibcarrieat
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Feb 18, 2008
3:52 am

Hi, I'm not sure how I can help but I can tell you my story. My dad became ill after returning from a holiday in Greece.He was 55 then. I thought he had food...
Kaye Wood
apollo210c
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Feb 17, 2008
8:16 pm

I am so sorry to hear of your situation. I'm also sorry it has taken me so long to respond to your note. By now you have probly already heard from her doctors...
kelli flynt
kelliflynt
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Feb 28, 2008
2:07 am

I am sorry to hear of your stories, My dad is 60 long long story, he takes vitamins and believe it or not Flintstones vitamins are recommend3d for WKS, he was...
sunni stalbird
sunniibunnii71
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Feb 28, 2008
3:47 am

Hi Your mother sounds to be in a similar situation to my brother in Oct 2002 when he was 48. He was extremely ill and unrecognisable. I was warned that he...
Ali Hancock
lifes2short2...
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Feb 28, 2008
8:52 am

Hi Your mother sounds to be in a similar situation to my brother in Oct 2002 when he was 48. He was extremely ill and unrecognisable. I was warned that he...
Ali Hancock
lifes2short2...
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Feb 28, 2008
8:52 am
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