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Reply | Forward Message #1905 of 2597 |
Re: [wernicke_korsakoff_syndrome] Kathy's Mom

Hi Jackie:  Sorry to hear about your Mom.  Our mother's journies do sound similar.  Her nursing home was also in CT.  (Middletown)  Once my mother got to the nursing home, it took about 2-3 weeks to begin walking (with a walker) and that was with daily physical and occupational therapy in the nursing home (and I think also once she got some muscle back from the nutrition).  I am not aware of whether she had any vision problems.  She claimed not to but of course she had no insight into what was going on.  As I said, she is now just using a cane.
 
So far she has had no side effects from the Exelon and Namenda. We were able to discontinue the clonidine shortly after I moved her to the assisted living facility and the Seroquel, once the Exelon and Namenda kicked in whicgh seemed to eliminate any paranoid type behavior.   I have been very lucky because the apathy that seems to be a part of this also seems to have taken my mother's desire for alcohol away.  Between the hospitalization and then no access, she has not attempted to drink.  When she was asking for drinks in the hospital I learned from a nurse to just go along with it.  Don't bring her any of course but tell her its on the way.  The confabulation that occured in the early stages helped because when she was drinking water from a straw she thought it was a frozen dacquire. 
 
 In assisted living there are different levels of care and when we first moved her in she was checked on 24 hours.  They were aware of the alcohol issues and helped in that area by only serving her soft drinks during "Happy Hour" (yes they a pub area that they open for about an hour a day.)  They also have candlelight dinners where they serve wine.  The first time the aide came over and took my mother's away (the server wasnt' aware).  Her dinner companions were offended and asked my mother why they had done that.  My mom replied, "oh before I came here I was a real drunk!"  When I heard that story I cried because it was the first time my mother had ever admitted to being an alcoholic.  At first when we had dinners at home we didn't drink but now we serve wine and just pour her the same as the kids, sparkling apple cider or soda.    She is monitered but at this point on a limited basis.  There are aides there to help her as needed and they check in on her about twice a day to administer her meds.  I don't know that she could be completely on her own as it wouldn't be safe but at this point she has very limited supervision.  She is as independent as she can be and finally seems to be adjusting. 
 
As you can tell from other's posts, especially Amanda's, not continuing to drink seems to be the key to my mother's improvement.  As we know, the disease is from a thiamine deficiency, not the alcohol per se.  But the alcohol slows the absorption of thiamine and an alcoholic may not be getting much as they are substituting the alcohol for food.
 
I hope this helps.  Good Luck and take care, Kathy


Tue Jul 25, 2006 4:42 pm

dullcineasaunt
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Message #1905 of 2597 |
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my estranged husband was diagnosed in Nov. 2002 with Wernicki. I had noticed for three days earlier that he was hallucinating and finally took him to the...
loret_marie
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Mar 15, 2003
4:37 pm

Good to read your story Loretta. From the couple dozen who are posting here, it seems obvious that this disease manifests itself in both subtle and major ...
Larry Davis
longviewlarry
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Mar 15, 2003
7:14 pm

Larry, My Nuerologist told me that I have Restless Legs Syndrom (ah yes, yet another syndrom). It always happens to me when I am laying down trying to relax,...
mamachuck61@...
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Mar 18, 2003
6:48 pm

Loretta, Faith is something that you have to have but it is not the only thing that you have anymore because you now have the rest of us too. We are here for ...
mamachuck61@...
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Mar 18, 2003
6:53 pm

Hi guys...I was having trouble with this and now eat a banana a day for increased potassium. It doesn't bother me anymore. Nora ... From: mamachuck61@... ...
Nora
dulcineasmom
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Mar 18, 2003
9:58 pm

I don't know where to begin...my long term love has WKS and will be coming to live with me soon. He is mobile with a cane but has memory and function loss that...
Cynthia
homansgirl
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Jan 12, 2004
6:22 pm

... Cynthia Hi Cynthia! Welcome! Thats a new one to me nausea... but for myself, and my daughter who is pregnant, for nausea we mix together powders of:...
Rhonda Kay
rhonkay2003
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Jan 14, 2004
3:58 am

Cynthia, I was constantly nauseaus and had dry heaves ALL the time. This did not stop until I was given the IV thiamine treatments. They started them one...
mamachuck61@...
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Jan 14, 2004
8:12 pm

hi my name is billy i live in the richmond va area and i think i have wks am 55 years old doctor said i suffer from vascular dementia but my wife seems to...
captainbillycrunch2000
captainbilly...
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Feb 27, 2004
4:45 pm

Billy and wife, I too live in the Richmond, VA area. I see Dr. Vincent Calabrese in Nuerology Dept. at MCV. He diagnosed me and has been treating me for...
mamachuck61@...
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Feb 27, 2004
10:15 pm

Dear Billy and wife: My mom was diagnosed with WKS last year during her hospitalization. She was tested in July by a neouropsychologist who said the test...
kathym530@...
dullcineasaunt
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Feb 29, 2004
12:10 pm

hi...I juat found this group and I am really interested in finding out more...my wife was diagnosed with this in February of this year, and I [m still trying...
elliot_smls
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Jul 12, 2006
10:52 pm

Hi Elliot...welcome to the group. My name is Nora and I'm one of only a few members who suffer from Wernicke's Encephalopathy. Most of the group members are...
Nora
dulcineasmom
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Jul 13, 2006
4:21 am

... look forward to reading through the archives, and hearing from anyone in the community, so I can learn to live and grow through our common experience. ......
elliot_smls
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Jul 13, 2006
5:34 am

Hi Elliott SOrry to hear about your wife and I wish you all the best There is certainly lots of history to look at on this site! My partner also suffers from...
Trevor Fossey
trevor106a
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Jul 13, 2006
7:53 am

Hi Elliot and welcome. I am sorry about your wife. My mother was diagnosed in January of 2003. She was 63. While always a drinker and probably an ...
kathym530@...
dullcineasaunt
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Jul 13, 2006
12:07 pm

Wow Kathy! That was like reading my story of my Mom Verbaetum! My Mom was diagnosed August 2005 at age 61. She was in an induced coma in the hospital to try...
x3donor
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Jul 24, 2006
10:56 pm

Hi Jackie: Sorry to hear about your Mom. Our mother's journies do sound similar. Her nursing home was also in CT. (Middletown) Once my mother got to the...
kathym530@...
dullcineasaunt
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Jul 25, 2006
4:44 pm

Trevor & All, Welcome to the group Elliot. I had to smile at Trevor's talk of how W/K folks don't hold a grudge. And I really had to smile when he talked about...
Marg
marggibson
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Jul 24, 2006
10:56 pm

Hi Marg and Allen: I loved reading about your life together and he is lucky to have you to help him. My mother is also an example that not all sufferers...
kathym530@...
dullcineasaunt
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Jul 25, 2006
4:51 pm

Elliot- Hope all is well for you. My brother appears to be suffering from Korsakoff. He hasn't officially been diagnosed yet (they did diag. Wernecke). None of...
B
bsrsds
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Jul 24, 2006
10:56 pm

Bryan...Please add me to the list. Nora B <bryan_p_s@...> wrote: Elliot- Hope all is well for you. My brother appears to be suffering from ...
Nora
dulcineasmom
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Jul 24, 2006
11:06 pm

Bryan --- I was interested in hearing more about your brother's case. I am in a similar situation and I was wondering how your brother was dealing with the...
toniann81374
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Jul 24, 2006
11:10 pm

Bryan, My name is Carrie and I'm in Cali. My dad is into his 3rd year of this disease. He was recently admitted to the hospital and then a nusring home for the...
CARRIE BUCKINGHAM
ibcarrieat
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Jul 24, 2006
11:59 pm

Hi Elliot, I'm so sorry about your wife being diagnosed so young! I'm new here too. My mom was diagnosed in August of last year and I'm still trying to figure...
x3donor
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Jul 24, 2006
10:56 pm
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