Bryan ---

I was interested in hearing more about your brother's case. I am in a
similar situation and I was wondering how your brother was dealing
with the and how bad his symptoms are.

I am also in the NYC area if you were to start a support group.

Thanks


--- In wernicke_korsakoff_syndrome@yahoogroups.com, Nora
<dulcineasmom@...> wrote:
>
> Bryan...Please add me to the list. Nora
>
> B <bryan_p_s@...> wrote: Elliot-
>
> Hope all is well for you. My brother appears to be suffering from
> Korsakoff. He hasn't officially been diagnosed yet (they did diag.
> Wernecke). None of the doctors seem to be too quick to make the
> diagnosis. However, my brother has all of the characteristics. It's
> been three months now, and based on the reading and research I've
> done, he's got it.
>
> Based on everything I've researched thus far, there doesn't appear to
> be much available in the US with regard to truly understanding and
> treating this condition...or supporting family members of those
> suffering with the condition. To put it bluntly...the state of the
> medical field's knowledge and targeting of this condition is
> absolutely pathetic! When you google Korsakoff, you will find that
> there seems to be quite a bit of support (comparably) in other
> countries like the UK and Australia. I've even found long-term care
> homes specifically targeted for Korsakoff patients! In addition, there
> are many professional articles addressing various aspects of Korsakoff
> (primarily medical - technical) written by doctors from those
> countries as well.
>
> I have to say that I'm still researching for information beyond the
> one or two page definitions and explanations you find on most medical
> based web sites. I will be glad to forward any info I receive that may
> be of help to you. You and I seem to be in a similar situation. My
> brother is 40. None of the doctors seem to have a clue as to what to
> do for him at this point. Sadly, my mother and I have more knowledge
> about the condition that most of them do. Perhaps a medical doctor who
> does have serious knowledge and information about Korsakoff will read
> this and share their expertise.
>
> I've been thinking about trying to start a support group simply to
> have a collection of people together who understand and can share
> their support, knowledge, and information. I'm based in NYC. If
> there's anyone else out there who would be interested, please let me
> know. Maybe something already exists. That would be great...please
> advise.
>
> Please feel free to keep in touch. I wish you the best.
>
> Best regards-
> Bryan
>
> --- In wernicke_korsakoff_syndrome@yahoogroups.com, "elliot_smls"
> <esamuels2@> wrote:
> >
> > hi...I juat found this group and I am really interested in finding
out
> > more...my wife was diagnosed with this in February of this year, and I
> > [m still trying to deal with it. I'm in my mid forties, and live in
> > Fl....Can anyone get me started? Thanks
> >
>