Elliot-

Hope all is well for you. My brother appears to be suffering from
Korsakoff. He hasn't officially been diagnosed yet (they did diag.
Wernecke). None of the doctors seem to be too quick to make the
diagnosis. However, my brother has all of the characteristics. It's
been three months now, and based on the reading and research I've
done, he's got it.

Based on everything I've researched thus far, there doesn't appear to
be much available in the US with regard to truly understanding and
treating this condition...or supporting family members of those
suffering with the condition. To put it bluntly...the state of the
medical field's knowledge and targeting of this condition is
absolutely pathetic! When you google Korsakoff, you will find that
there seems to be quite a bit of support (comparably) in other
countries like the UK and Australia. I've even found long-term care
homes specifically targeted for Korsakoff patients! In addition, there
are many professional articles addressing various aspects of Korsakoff
(primarily medical - technical) written by doctors from those
countries as well.

I have to say that I'm still researching for information beyond the
one or two page definitions and explanations you find on most medical
based web sites. I will be glad to forward any info I receive that may
be of help to you. You and I seem to be in a similar situation. My
brother is 40. None of the doctors seem to have a clue as to what to
do for him at this point. Sadly, my mother and I have more knowledge
about the condition that most of them do. Perhaps a medical doctor who
does have serious knowledge and information about Korsakoff will read
this and share their expertise.

I've been thinking about trying to start a support group simply to
have a collection of people together who understand and can share
their support, knowledge, and information. I'm based in NYC. If
there's anyone else out there who would be interested, please let me
know. Maybe something already exists. That would be great...please
advise.

Please feel free to keep in touch. I wish you the best.

Best regards-
Bryan




--- In wernicke_korsakoff_syndrome@yahoogroups.com, "elliot_smls"
<esamuels2@...> wrote:
>
> hi...I juat found this group and I am really interested in finding out
> more...my wife was diagnosed with this in February of this year, and I
> [m still trying to deal with it. I'm in my mid forties, and live in
> Fl....Can anyone get me started? Thanks
>