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Reply | Forward Message #1894 of 2597 |
Re: [wernicke_korsakoff_syndrome] thanks for the 'welcome'.

Hi Elliot and welcome.  I am sorry about your wife.  My mother was diagnosed in January of 2003.  She was 63.  While always a drinker and probably an alcoholic it hadn't been an issue until my Dad died when she began been drinking heavily for the following 5 years as a result of her grief and depression.  She did alot of binge drinking and had decided not to "do" the holidays.  I found her on New Years Day in a complete stupor, malnourished and dehydrated.  Her home was a mess and there was no food.  Looked like she hadn't eaten in the whole of December.  She had a UTI, pneumonia, and other various illnesses as a result of not taking care of herself.  While in the hospital, she was diagnosed with Korsakoff's by a very astute attending physician.  She was in intensive care for about 2 1/2 months and was discharged to a nursing home because she was unable to walk.  She had no idea what was going on around her, was confabulating up a storm and because she kept trying to walk when she couldn't she was a danger to herself so she was placed in a locked ward in an Alzhiemers unit at the nursing home which was horrible.  After about 3 weeks she got her legs back and it was very clear that she was functioning quite well, so I was able to place her in an assisted living facility near my home here in Massachusetts.  At first, she could not engage very well, did not take care of herself, etc.  But now after 3 years, she seems to be very happy.  She in very involved in the activities, plays bingo, bridge and other card games.  Goes on shopping and dinner trips.  She reads and watches a lot of TV.  Her  sense of humor is back and while she has not regained her short term memory, she has learned to cope with it.  This engagment really did not occur until January of this year.  I described it at the time as an "awakening".  All of sudden she was aware of her condition, involved in activities, etc.  It was quite a burst.  Believe it or not, her neurologist said that the introduction of bridge could have triggered some neurons in her brain and very well could have caused her improvement, so Trevor really has something there with the rehab approach.  We haven't been able to get her to engage in our lives, ie take part in family dinners, activities, etc. but that's okay. I think it has a lot to do with her comfort level and need for routine. She doesn't like to be away from her home for too long.   At the beginning, clonidine helped with the confabulation and impulsive behavior as well as an antipsychotic, Seroquel.  Now she takes Exelon and Namenda, 2 Alzeimers drugs that have also helped her reach this level. 
 
I would suggest as Nora did that you read through the archives.  There is a great article in there somewhere that I can't get my hands on anymore.  It was the most informative in terms of causes, diagnosis and prognosis.  Our experiences are outlined in more detail and without the insight of time, so from me you'll find some angry entries, depressed entries, hopeful entries, etc.  and probably more accurate in terms of her history. 
 
This group has been a godsend for me, particularly at the beginning when I was confused and upset.  I learned alot and found comfort in not being alone.  I hope we can do the same for you.  Let us know how you are doing and how you came to be here.  and good luck.  Take Care, Kathy


Thu Jul 13, 2006 11:54 am

dullcineasaunt
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Message #1894 of 2597 |
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my estranged husband was diagnosed in Nov. 2002 with Wernicki. I had noticed for three days earlier that he was hallucinating and finally took him to the...
loret_marie
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Mar 15, 2003
4:37 pm

Good to read your story Loretta. From the couple dozen who are posting here, it seems obvious that this disease manifests itself in both subtle and major ...
Larry Davis
longviewlarry
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Mar 15, 2003
7:14 pm

Larry, My Nuerologist told me that I have Restless Legs Syndrom (ah yes, yet another syndrom). It always happens to me when I am laying down trying to relax,...
mamachuck61@...
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Mar 18, 2003
6:48 pm

Loretta, Faith is something that you have to have but it is not the only thing that you have anymore because you now have the rest of us too. We are here for ...
mamachuck61@...
Send Email
Mar 18, 2003
6:53 pm

Hi guys...I was having trouble with this and now eat a banana a day for increased potassium. It doesn't bother me anymore. Nora ... From: mamachuck61@... ...
Nora
dulcineasmom
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Mar 18, 2003
9:58 pm

I don't know where to begin...my long term love has WKS and will be coming to live with me soon. He is mobile with a cane but has memory and function loss that...
Cynthia
homansgirl
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Jan 12, 2004
6:22 pm

... Cynthia Hi Cynthia! Welcome! Thats a new one to me nausea... but for myself, and my daughter who is pregnant, for nausea we mix together powders of:...
Rhonda Kay
rhonkay2003
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Jan 14, 2004
3:58 am

Cynthia, I was constantly nauseaus and had dry heaves ALL the time. This did not stop until I was given the IV thiamine treatments. They started them one...
mamachuck61@...
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Jan 14, 2004
8:12 pm

hi my name is billy i live in the richmond va area and i think i have wks am 55 years old doctor said i suffer from vascular dementia but my wife seems to...
captainbillycrunch2000
captainbilly...
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Feb 27, 2004
4:45 pm

Billy and wife, I too live in the Richmond, VA area. I see Dr. Vincent Calabrese in Nuerology Dept. at MCV. He diagnosed me and has been treating me for...
mamachuck61@...
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Feb 27, 2004
10:15 pm

Dear Billy and wife: My mom was diagnosed with WKS last year during her hospitalization. She was tested in July by a neouropsychologist who said the test...
kathym530@...
dullcineasaunt
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Feb 29, 2004
12:10 pm

hi...I juat found this group and I am really interested in finding out more...my wife was diagnosed with this in February of this year, and I [m still trying...
elliot_smls
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Jul 12, 2006
10:52 pm

Hi Elliot...welcome to the group. My name is Nora and I'm one of only a few members who suffer from Wernicke's Encephalopathy. Most of the group members are...
Nora
dulcineasmom
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Jul 13, 2006
4:21 am

... look forward to reading through the archives, and hearing from anyone in the community, so I can learn to live and grow through our common experience. ......
elliot_smls
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Jul 13, 2006
5:34 am

Hi Elliott SOrry to hear about your wife and I wish you all the best There is certainly lots of history to look at on this site! My partner also suffers from...
Trevor Fossey
trevor106a
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Jul 13, 2006
7:53 am

Hi Elliot and welcome. I am sorry about your wife. My mother was diagnosed in January of 2003. She was 63. While always a drinker and probably an ...
kathym530@...
dullcineasaunt
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Jul 13, 2006
12:07 pm

Wow Kathy! That was like reading my story of my Mom Verbaetum! My Mom was diagnosed August 2005 at age 61. She was in an induced coma in the hospital to try...
x3donor
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Jul 24, 2006
10:56 pm

Hi Jackie: Sorry to hear about your Mom. Our mother's journies do sound similar. Her nursing home was also in CT. (Middletown) Once my mother got to the...
kathym530@...
dullcineasaunt
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Jul 25, 2006
4:44 pm

Trevor & All, Welcome to the group Elliot. I had to smile at Trevor's talk of how W/K folks don't hold a grudge. And I really had to smile when he talked about...
Marg
marggibson
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Jul 24, 2006
10:56 pm

Hi Marg and Allen: I loved reading about your life together and he is lucky to have you to help him. My mother is also an example that not all sufferers...
kathym530@...
dullcineasaunt
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Jul 25, 2006
4:51 pm

Elliot- Hope all is well for you. My brother appears to be suffering from Korsakoff. He hasn't officially been diagnosed yet (they did diag. Wernecke). None of...
B
bsrsds
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Jul 24, 2006
10:56 pm

Bryan...Please add me to the list. Nora B <bryan_p_s@...> wrote: Elliot- Hope all is well for you. My brother appears to be suffering from ...
Nora
dulcineasmom
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Jul 24, 2006
11:06 pm

Bryan --- I was interested in hearing more about your brother's case. I am in a similar situation and I was wondering how your brother was dealing with the...
toniann81374
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Jul 24, 2006
11:10 pm

Bryan, My name is Carrie and I'm in Cali. My dad is into his 3rd year of this disease. He was recently admitted to the hospital and then a nusring home for the...
CARRIE BUCKINGHAM
ibcarrieat
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Jul 24, 2006
11:59 pm

Hi Elliot, I'm so sorry about your wife being diagnosed so young! I'm new here too. My mom was diagnosed in August of last year and I'm still trying to figure...
x3donor
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Jul 24, 2006
10:56 pm
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