Hi Elliot...welcome to the group. My name is Nora and I'm one of only a few members who suffer from Wernicke's Encephalopathy. Most of the group members are family members/friends of sufferers of WKS. A lot of them are only on here on weekends so be patient. They will answer. I don't usually talk a lot...only to comment on something someone else may say in here. If you want to know my story you can check back through my messages in the archives at the group site. For now, just know you are not alone and hang in there.
Nora
elliot_smls <esamuels2@...> wrote:
hi...I juat found this group and I am really interested in finding out more...my wife was diagnosed with this in February of this year, and I [m still trying to deal with it. I'm in my mid forties, and live in Fl....Can anyone get me started? Thanks
my estranged husband was diagnosed in Nov. 2002 with Wernicki. I had noticed for three days earlier that he was hallucinating and finally took him to the...
Good to read your story Loretta. From the couple dozen who are posting here, it seems obvious that this disease manifests itself in both subtle and major ...
Larry, My Nuerologist told me that I have Restless Legs Syndrom (ah yes, yet another syndrom). It always happens to me when I am laying down trying to relax,...
mamachuck61@...
Mar 18, 2003 6:48 pm
Loretta, Faith is something that you have to have but it is not the only thing that you have anymore because you now have the rest of us too. We are here for ...
mamachuck61@...
Mar 18, 2003 6:53 pm
Hi guys...I was having trouble with this and now eat a banana a day for increased potassium. It doesn't bother me anymore. Nora ... From: mamachuck61@... ...
I don't know where to begin...my long term love has WKS and will be coming to live with me soon. He is mobile with a cane but has memory and function loss that...
... Cynthia Hi Cynthia! Welcome! Thats a new one to me nausea... but for myself, and my daughter who is pregnant, for nausea we mix together powders of:...
Cynthia, I was constantly nauseaus and had dry heaves ALL the time. This did not stop until I was given the IV thiamine treatments. They started them one...
mamachuck61@...
Jan 14, 2004 8:12 pm
hi my name is billy i live in the richmond va area and i think i have wks am 55 years old doctor said i suffer from vascular dementia but my wife seems to...
Billy and wife, I too live in the Richmond, VA area. I see Dr. Vincent Calabrese in Nuerology Dept. at MCV. He diagnosed me and has been treating me for...
mamachuck61@...
Feb 27, 2004 10:15 pm
Dear Billy and wife: My mom was diagnosed with WKS last year during her hospitalization. She was tested in July by a neouropsychologist who said the test...
hi...I juat found this group and I am really interested in finding out more...my wife was diagnosed with this in February of this year, and I [m still trying...
Hi Elliot...welcome to the group. My name is Nora and I'm one of only a few members who suffer from Wernicke's Encephalopathy. Most of the group members are...
... look forward to reading through the archives, and hearing from anyone in the community, so I can learn to live and grow through our common experience. ......
Hi Elliott SOrry to hear about your wife and I wish you all the best There is certainly lots of history to look at on this site! My partner also suffers from...
Wow Kathy! That was like reading my story of my Mom Verbaetum! My Mom was diagnosed August 2005 at age 61. She was in an induced coma in the hospital to try...
Hi Jackie: Sorry to hear about your Mom. Our mother's journies do sound similar. Her nursing home was also in CT. (Middletown) Once my mother got to the...
Trevor & All, Welcome to the group Elliot. I had to smile at Trevor's talk of how W/K folks don't hold a grudge. And I really had to smile when he talked about...
Hi Marg and Allen: I loved reading about your life together and he is lucky to have you to help him. My mother is also an example that not all sufferers...
Elliot- Hope all is well for you. My brother appears to be suffering from Korsakoff. He hasn't officially been diagnosed yet (they did diag. Wernecke). None of...
Bryan --- I was interested in hearing more about your brother's case. I am in a similar situation and I was wondering how your brother was dealing with the...
Bryan, My name is Carrie and I'm in Cali. My dad is into his 3rd year of this disease. He was recently admitted to the hospital and then a nusring home for the...
Hi Elliot, I'm so sorry about your wife being diagnosed so young! I'm new here too. My mom was diagnosed in August of last year and I'm still trying to figure...
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