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getting financial help   Message List  
Reply | Forward Message #1844 of 2597 |
Re: [wernicke_korsakoff_syndrome] getting financial help

I remember your emails. Fortunately, we have some on the ball doctors who
recognize this disease. What amazes me is my dad has been in 7 hospitals with
different doctors each time over the last eight months. One doctor will say he
has cirrhosis, here's where you can see it. The next doctor says no he has no
liver damage. One says he's definately has Korsakoff's. Another says
absolutely not. We're told so many conflicting things. At least we have some
doctors who are willing to do the tests and explain them to us. Today my dad
goes to his old family doctor for the first time since July. My mom's going in
with him and I'm sure she'll get different explanations from him. That's why
this group is so important to me. I need practical help. Even if this wasn't
diagnosed by the doctors, my dad had every symptom and the progress of the
disease has been exactly like what I read. Only now he's developed the
encephalopathy.

Anyway, thanks to all in this group for help and resources

---------- Original Message ----------------------------------
From: birdshawn@...
Reply-To: wernicke_korsakoff_syndrome@yahoogroups.com
Date: Wed, 8 Mar 2006 11:38:04 EST

>---------- Original Message ----------------------------------

>Thank you Amanda, i appreciate that.I've had an 8 yr battle with the health
>care profession here on a hunch.I've had 2 CT'S and an MRI, but here in
>backwards Canada,we only have like 14 PET scanners in the whole country and
they only
>use them on cancer patients if another test has detected something.So i'm
>trying to get to Buffalo, NY for a PET but it would be easier to win the
lottery
>*sigh*
>
>Thank you again...Shawn @{--{----
>
>





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Wed Mar 8, 2006 4:47 pm

whisperingnook
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Message #1844 of 2597 |
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Just wanted to let all of you know that I am making some progress with getting my mother some financial help. I have had to appeal our state's decision not to...
chella3174
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Mar 8, 2006
2:39 am

Hi Chella, Yes, I understand the need to hear from you consistently by your mom. If I don't hear from either one of my daughters or a friend every day, I kind...
Nora
dulcineasmom
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Mar 8, 2006
3:55 am

Nora, Thanks for the input. I didn't realize how sad she was until she told me last week how much time she spends just crying. She never opened up about...
chella3174
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Mar 12, 2006
5:33 am

That's great Chella. Keep pluggin away, I should think they will eventually come around even if it takes the full year. My mother is fortunate in that my...
kathym530@...
dullcineasaunt
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Mar 8, 2006
12:57 pm

My dad received Medicaid and Medicare fairly quickly. He has a food stamp card. The social security has been another issue, but I think we're headed in the...
Amanda Varner
whisperingnook
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Mar 8, 2006
2:08 pm

Hello Amanda, my name is Shawn and i apologize for butting in,and i'm very sorry to read about your story.I just would like to know how they "officially" ...
birdshawn@...
shawn6270
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Mar 8, 2006
4:11 pm

He was diagnosed with WKS by an MRI. He also had CAT scans and PET scans, but it was after the MRI that they officially said that's what he had, although they...
Amanda Varner
whisperingnook
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Mar 8, 2006
4:17 pm

Thank you Amanda, i appreciate that.I've had an 8 yr battle with the health care profession here on a hunch.I've had 2 CT'S and an MRI, but here in backwards...
birdshawn@...
shawn6270
Offline Send Email
Mar 8, 2006
4:38 pm

I remember your emails. Fortunately, we have some on the ball doctors who recognize this disease. What amazes me is my dad has been in 7 hospitals with...
Amanda Varner
whisperingnook
Offline Send Email
Mar 8, 2006
4:47 pm

I was quite surprised but glad to find this group on the web.I know your frustrations.Dr. Dolittle as i like to call him, told me that i would have to drink a...
birdshawn@...
shawn6270
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Mar 8, 2006
4:59 pm

Chella: My mother feels the same way about being thought of as "stupid" and she was angry and frustrated a lot of the time. As I posted a while ago, after 3 ...
kathym530@...
dullcineasaunt
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Mar 12, 2006
12:48 pm
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