Hi Chella, Yes, I understand the need to hear from you consistently by your mom. If I don't hear from either one of my daughters or a friend every day, I kind...

Nora, Thanks for the input. I didn't realize how sad she was until she told me last week how much time she spends just crying. She never opened up about...

That's great Chella. Keep pluggin away, I should think they will eventually come around even if it takes the full year. My mother is fortunate in that my...

My dad received Medicaid and Medicare fairly quickly. He has a food stamp card. The social security has been another issue, but I think we're headed in the...

Hello Amanda, my name is Shawn and i apologize for butting in,and i'm very sorry to read about your story.I just would like to know how they "officially" ...

He was diagnosed with WKS by an MRI. He also had CAT scans and PET scans, but it was after the MRI that they officially said that's what he had, although they...

I remember your emails. Fortunately, we have some on the ball doctors who recognize this disease. What amazes me is my dad has been in 7 hospitals with...

I was quite surprised but glad to find this group on the web.I know your frustrations.Dr. Dolittle as i like to call him, told me that i would have to drink a...

Chella: My mother feels the same way about being thought of as "stupid" and she was angry and frustrated a lot of the time. As I posted a while ago, after 3 ...