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Reply | Forward Message #1612 of 2597 |
Re: [wernicke_korsakoff_syndrome] Information needed

Isobel,
My brother-in-law is 38 and he is also in a nursing home.We live in the state of Illinois and it is very hard to find a place that will take someone of his age. So he too just sits in his room. At first his speech and walking ability was in good tact. The doctor told us that it sometimes takes a full year before all the symptoms can show up. Almost to the day of the year mark, Mark's speech started to slurr and he now has to walk with a walker.He will not do phyiscal thearpy. He will not go out in the nursing home bus to fish, or go some place for lunch. He was a huge outdoorsman. (fishing, hunting,gardening) He too was very upset with us when we got him out of the hospital and then took him to the nursing home. I guess we didnt know much about wks and the doctor gave us false hope that in 6 months he might be able to live on his own again. It was this site where I got alot of information and realized that Mark will probably never the leave the nursing home. Mark's short term memory is also very poor. I can ask him what I fixed for Supper 10 min's after we have eaten and he dosent know. But ask him something 5-10 yrs ago and he can go into great detail. Mark has had WKS for 2 yrs now. Good luck to you and stay in touch with this site. You know your not alone when you come here.Take Care
Tammy
----- Original Message -----
Sent: Friday, August 12, 2005 3:42 PM
Subject: [wernicke_korsakoff_syndrome] Information needed

My ex husband has been in a care home which supposedly specialises in
WKS.  He has been there for almost two years.  It seems to us that his
condition is deteriotating, has no interest in anything and will not
mix with the other residents.  Is this normal?  I am told that they
think he may be depressed and they have put him on anti-depressants
and he seems a bit brighter but just stays in his room all day.  is
memory is very poor although he recognises everyone. 
when he was in hospital and was first diagnosed he constantly asked to
come home but now never does.

Can anyone recmmend anywhere to get information.

Thanks

isobel






Tue Aug 16, 2005 5:31 pm

wine8286
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Message #1612 of 2597 |
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My ex husband has been in a care home which supposedly specialises in WKS. He has been there for almost two years. It seems to us that his condition is...
dunoongirl1955
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Aug 15, 2005
9:50 pm

HI Isobel: My mom too pretty much stays in her room and doesn't mix with the other residents except for meals. Like Pam said, the other residents are much...
kathym530@...
dullcineasaunt
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Aug 16, 2005
2:22 pm

... How are you. I have the full blown WKS memory,blah,eyes blah,ect and I'm only 42. I can see my life falling through my ass........ pardon LIVER Any...
gaghan_john
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Nov 12, 2005
9:30 am

Isobel, My brother-in-law is 38 and he is also in a nursing home.We live in the state of Illinois and it is very hard to find a place that will take someone of...
Kevin& Tammy
wine8286
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Aug 16, 2005
5:31 pm

-Hi Isobel, It really depends to what degree of WKS your ex husband has. My dad too is in a nursing home (he is 64) and he has no interest in anyone or...
sellick_67ecw
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Aug 16, 2005
9:58 pm

Hi All, I haven't written for a little while but I thought I would give a little update on my father's situation, perhaps relevant to the Scottish contingent,...
Steve Laurie
stevenlaurie42
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Aug 19, 2005
5:45 pm

Hi Steve, Nice to hear from you. Glad your dad is doing ok in his new home. It makes a difference when our loved ones are near. Totally agree with your view...
sellick_67ecw
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Aug 22, 2005
10:23 pm

Two questions for you John.....1) how did they finally diagnose it?? (ct, mri, PET)???? and 2) do you suffer a continuious 24/7 headache which comes and goes...
birdshawn@...
shawn6270
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Nov 12, 2005
11:37 am

... it?? (ct, ... which comes and ... Hi Shawn How are you... I'm OK. 2 questions sounds good.. Ok firstly it took about 3 doctors, 1 orthopedic specialist...
gaghan_john
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Nov 13, 2005
12:14 am

John: One thing you really have going for you (and Nora, and Shawn, and the rest of the sufferers) is your insight into what is going on with you. My mom...
kathym530@...
dullcineasaunt
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Nov 12, 2005
3:08 pm

... the rest of ... mom really ... the need for ... stimulate ... complacent about ... is happy ... hope that you ... just by your ... keep ... Thank you so...
gaghan_john
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Nov 13, 2005
11:39 am

John: My mom can tell you the charachters on the soaps, good guys, bad guys, etc. I should say most of what she watches are soaps so she knows the charachters ...
kathym530@...
dullcineasaunt
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Nov 13, 2005
12:31 pm

Thanks John, you have provided me with some valuable ammunition....Shawn...
birdshawn@...
shawn6270
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Nov 13, 2005
12:52 pm

I'd settle for being properly diagnosed.I'v'e researched this disease to death for 8 years ever since i read about it and all the pieces of the puzzle fit,yet...
birdshawn@...
shawn6270
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Nov 13, 2005
1:03 pm

Shawn: As you have learned, what the dr has told you is wrong. My mom drank heavily for about 5 years and got it. While she was a heavy drinker prior to ...
kathym530@...
dullcineasaunt
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Nov 13, 2005
3:44 pm

JOhn, I have to agree with Kathy. Watching my dad die and knowing he could slow it down, not get much worse, whatever is the most frustrating, angry betrayal...
Amanda Varner
whisperingnook
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Nov 14, 2005
1:48 pm

Amanda Since Kathy's and your reply I did not have a drink until last night, thursday 17th! Everytime I felt like drinking, I went back and read e'm. Thanx ...
gaghan_john
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Nov 18, 2005
1:07 am

Amanda Since Kathy's and your reply I did not have a drink until last night, thursday 17th! Everytime I felt like drinking, I went back and read e'm. Thanx ...
gaghan_john
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Nov 18, 2005
1:09 am

Way to go John!!!! Keep reading them. I know it's hard, but it's worth the fight. I'm proud of you, Amanda ... From: "gaghan_john" <johngaghan@...> ...
Amanda Varner
whisperingnook
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Nov 18, 2005
1:31 pm

As they say: One day at a time. If that doesn't work try one hour at a time. If that doesn't a minute and so on and so on. Hold on. You can do it. ... ...
kathym530@...
dullcineasaunt
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Nov 18, 2005
6:25 pm

Thanks Girls But i'm not going to try it again unless i've got pills. If my mate did'nt turn up outta da blue with a bottle of bourbon that night............
gaghan_john
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Nov 19, 2005
2:34 am
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