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Hello again group and especially to oujah..I think we all feel we need someone to talk to maybe just at different levels. I check these e-mails daily and probably like most don't feel we have something to contribute all the time. I don't know if a chat line is the answer but I would be willing to write more often to you on a one-on-one basis if you like. I had been on a wonderful holiday lately, leaving Canada here and flying to New Zealand for a cruise and a second one starting in Sydney up past Darwin and ended in Bankgok. For those of you who live there, I was impressed with how much more lush it was than I had imagined. anyway, it took two full time people living in to look after my two !!! no wonder I needed the long holiday... I noticed a decline in my husband when I returned but it just shows the level of daily activities does influence them. my caregivers did not do nearly as much as I did and it shows. he's coming back
around but of course I still think he has peaked after these past two years. My advice is to keep them active then question them after the event is over. this somehow makes it stick in the memory because he will remember the next day what we did.
Loretta
oujah1 <oujah1@...> wrote:
oujah1 <oujah1@...> wrote:
I was a member of this group a year ago, but my computer messed up as
well as my service, and now I am under a new identity. Still after
getting everything fixed I have stayed away because I was getting so
depressed about the lack of immediate repore and response. When I
found
this place it was lke a godsend that I had found a group of people
that
knew what I was going thru. Yet increasingly I became disappointed
about the days it would take to get someone to respond to me. As
everyone knows at times there are desperate days dealing with what we
deal with. I would post and then go back and no one responded. Then
again this is not a chat room, but a chat room (type) is what I need.
If not to talk about our loved one but to talk to someone that knows
what it's like.....the daily up's and down's, the progress, the lack
of
progress......just someone to relate to on a daily (semi) basis about
this stuff! How I am growing or declining..how it's effecting me as a
human being and a relative! A friend in cyberspace. I only want to
come
back to this group if I can relate and communicate. Maybe I should
start another group that wants that too and leave this one for
important info only. Feed back? Has anyone else felt the same about
this group? I need a support group about this illness more than once
a
week! Does anyone agree? Oujah
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