I was a member of this group a year ago, but my computer messed up as
well as my service, and now I am under a new identity. Still after
getting everything fixed I have stayed away because I was getting so
depressed about the lack of immediate repore and response. When I
found
this place it was lke a godsend that I had found a group of people
that
knew what I was going thru. Yet increasingly I became disappointed
about the days it would take to get someone to respond to me. As
everyone knows at times there are desperate days dealing with what we
deal with. I would post and then go back and no one responded. Then
again this is not a chat room, but a chat room (type) is what I need.
If not to talk about our loved one but to talk to someone that knows
what it's like.....the daily up's and down's, the progress, the lack
of
progress......just someone to relate to on a daily (semi) basis about
this stuff! How I am growing or declining..how it's effecting me as a
human being and a relative! A friend in cyberspace. I only want to
come
back to this group if I can relate and communicate. Maybe I should
start another group that wants that too and leave this one for
important info only. Feed back? Has anyone else felt the same about
this group? I need a support group about this illness more than once
a
week! Does anyone agree? Oujah