hi, i was aware of sticklers and that it was her first diagnosis was until she was seen by a specialist. thank you again for the contact information and being...
Thank you for the reminder, Veronique. I just emailed her back, because I wanted to check with other family members to see if they would like to be involved...
hello as u can see i am new to this group and very confused. I do not know much about wagners disease. I do know my mother was born with this disease and was...
Dear Ana Wagner syndrome is very rare. In Iowa there are excellent physicians familiair with Wagner desease. Are you able to travel to North Carolina? I could...
... Dear Ana I hope you allow me to ask you an additional question? You said that your mother was treated in Iowa City, was that in the University of Iowa...
yes my mother was treated in iowa im not sure of what hospital i just know it was in iowa city. she has told me that her case is extremely rare because she was...
Hi Ada I know for sure about two families with Wagner syndrome in the US: one in Iowa city / Phoenix Arizona, the other one in Concord / Durham, North...
... From: Ada Warren <adawarren@...> To: wagnersyndrome@yahoogroups.com Sent: Sun, March 21, 2010 11:25:44 AM Subject: Re: [wagnersyndrome] Re: nashville...
I TALKED TO MY MOTHER AND SHE SAID SHE WAS NOT GENETICALLY TESTED THAT SHE KNOWS OF BUT, SHE WAS A PATIENT OF DR JAFFIE NOT SURE IF IT IS SPELLED CORRECTLY BUT...
Hi Ada It means that on average half of the kids will have it, when one of the parents is affected. So in your case you have a 50% chance you have it, and so...
I am in the process of getting tested but with the way my insurance works i have to be seen by an opthalmologist first for a regular exam then referred to a...
hey just wanted to give u an update. I had my usual eye exam and the dr said my eyes are in good health but i do have a small cataract on my left eye. do u...
Hi Ada If you want to make sure if you have (or not) Wagner syndrome, you should certainly see a retina specialist. (And even s/he might be not sure, as there...
my family has both wagner and stickler syndrome ,it goes back as far as my great great grandmother.every member of my family has been tested and frequently...
Hi Raine Welcome to the group! For more information on Wagner syndrome please visit www.wagnersyndrome.eu. Can you tell me what you mean by in your family...
Bonjour J'ai été diagnostiquée syndrome wagner stickler à 10 ans, tout comme certains membres de ma famille Après 2 jours de recherches sur web,et grâce...
The french entry is from Christelle from the Reims area in France. We chatted a bit off line. Christelle, can you tell the people on the forum what you...
Dear Gisele Welcome to the website! I understand that you are worried about your children. Let me introduce myself: not only am I the webmaster, but I also...
Thank you for your response. I have never met Dr. Stone. I was going to Iowa city for my eyes in the mid-to-late 1960's. I am sorry that I do not remember the...
I was reading through the messages on this website and lo-and-behold there were messages from my daughter, dated March 22, 2010. I now have the insurance to be...
I thought you said that you were in Iowa. Thomas Minas was the dr who examined some relatives of the Iowa family who was examined by dr Brown (in Iowa). In the...
Veronique, I am sorry about the confusion. I now live in Tennessee, but I was born in Iowa and went to the university of Iowa at Iowa city when I was young to...
