Geachte Veronique et al, Hierbij dank ik jullie zeer voor de inspanningen om de 'ziekte"Â Wagner Syndooom helder en beeldend uit te leggen. Wim JTh Smit ... ...
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Dear Jean Do you know if in your family dna-analysis has been done? On the website you can see what publications there are about British families. Publications...
Pauline Heel goed dat je je hebt aangemeld. Ik merk dat mensen toch een drempel ervaren. Privacy en zo. Stel een vraag, begin een topic, misschien helpt dat?...
Sinds gisteren ben ik lid geworden van dit forum. Op 13-jarige leeftijd ben ik voor het eerst "begonnen" met netvliesloslatingen. Aan beide ogen ben ik...
I am a new member of the group. I did not know that this website or group existed. I am 38 and was diagnosed (along with my identical twin sister) at the age...
Hi Rebecca Welcome to the group! Has your doctor ever mentioned Predominantly Ocular-only Stickler Syndrome (POSS)? Under 'developments' you can reed more...
HI Veronique, I am sorry for not getting back with you sooner. I started a new job and have been quite busy. Thank you for responding to my initial email. I...
Hi Rebecca That is great! I guess you know Erica Burner and her team recently published and article about a family with Wagner syndrome in Concord / Durham NC....
Dear Jean Can you tell me if you are in contact with other families with Wagner syndrome in the UK. As far as I know there are three of them: in Cardiff,...
Hi I am an individual, I was told today that i have wegner, but this will be confirmed in 4 weeks from today, awaiting the 2nd blood anca test. it is duanting...
Hi M I think you mean: Wegener granulomatosis. Sometimes the patient doesn't understand the doctor correctly. Wagner syndrome is ocular only. Wegener...
Hi Veronique, Thank you for your email. It has been helpfull, The information and some of the pateints stories have settle me a bit on one hand and increased...
Hi Mayar I did google you: nice pictures, nice guy! From what you are writing I would say you definitely have Wegener Granulomatosis and not Wagner syndrome....
Hi Veronique, Thank you for your compliment. I will certainly search for the other group. You know at this point in time: the question in the back of my mind...
Hi Ronald Welcome to the forum Can I aks you: did your doctor diagnosed you with Wagner syndrome? Do you have family members that are affected with the same...
hi, thank you for answering my post. my wife was diagnosed when she was 3 and her brother was diagnosed at birth. she has cousins as well as other family...
Well it surely sounds a autonomal dominant vitreoretinopathie. Are you aware that there a variant of Stickler syndrome with predominantly ocular-only symptoms,...
hi, i was aware of sticklers and that it was her first diagnosis was until she was seen by a specialist. thank you again for the contact information and being...
