Hi Mary,
Thanks for your reply. Doc called yesterday and left a message. I don't
need a doctor or want a doctor to goo goo over this. Just would appreciate
a doctor who is understanding or at least trys to be and is willing to help
as an advocate if needed for insurance. I really would like someone who
understands there are other issues at hand other then just speech. So in
the event we need another referral to a specialist such as OT we don't get
the run around. We haven't totally lost faith but are realizing he needs
extra care and want the doctor to be sympathetic to the fact she may not be
able to handle everything. I appreciate your advice. Have a super day.
Pam
----- Original Message -----
From: <nalacat@...>
To: <voices_group@yahoogroups.com>
Sent: Monday, February 02, 2004 11:36 PM
Subject: Re: [voices_group] Looking for Pediatrician


> Hi Pam,
> I'm in South OC, but can't be of much help with a pediatrician. Ours at
> least returns our calls and knows what apraxia is. I'm educating her! In
fact,
> when my son was 2, and I expressed concern that he wasn't talking, she
told me
> to wait until 3. I didn't, and went to regional center and got services.
> I've also been trying many other things, i.e. fish oil, hippotherapy,
swimming,
> gymnastics, etc... Well, the last time we saw her (which, by the was over
6
> months ago and because of a fall and not illness - I think fish oil is
keeping
> him well), she couldn't believe how well Brett was talking. When she had
seen
> him 6 months prior to that (about a year ago), he was nonverbal. Last
fall
> when she saw him, she walked in and he said hi to her, answered her
questions and
> had a conversation with her. It was so funny, she walked in, started
washing
> her hands with her back to us, and Brett says, "Hi Dr. Carlson." She
slowly
> turns to look at me and says "when did this happen?" I told her
everything
> we'd been doing. By the end of the appointment she told me that I'd been
right
> all along, and to keep going with my instincts. So maybe she's getting
better
> with apraxia, who knows. I'd be happy to give you her name if you email
me.
> She's in Costa Mesa. The thing is, she has been absolutely no help in
> getting insurance coverage for us. I'm sending her a letter this week
with a
> request for more referrals with specific diagnostic codes.
>
> Depending on what you want the pediatrician for, you may be better off
with a
> developmental pediatrician or a neurologist. I haven't heard of any
> pediatricians in OC that are knowledgeable enough about apraxia to guide a
parent, but
> maybe I just haven't heard of them and they're out there. If so, I'd love
to
> know too!
>
> Let me know if I can answer any questions for you. We've been on this
road
> for over 3 years now, with some great progress.
>
> Mary
> Mommy to Brett - 5 y.o., severe apraxia, and doing GREAT!
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
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