--- In voices_group@yahoogroups.com, "Jill" <Momof2girls@c...> wrote:
>
Jill-

I am in San Clemente-28 month old son w/ apraxia. Currently working
with the regional center going to Newport Speech and Language off La
Paz 2x a week.

Email me or post- look forward to talking with you,
Erin Robles
eevalovich@...



Hi everyone!
>
> Are there any Orange County members besides myself? I am Jill,
> married stay-at-home Mom with two daughters, Sarah and Caitlin.
> Sarah is my 3 year old with Hypotonia and severe
> expressive/receptive speech delays.
>
> Sarah started with physical therapy via the Regional Center at 9
> months of age when it was noted at 6 months that she had Hypotonia
> (low muscle tone). She finally set up unassisted at 11 months of
> age, and was able to pull herself up and start crawling at 12
> months. She took her first steps at 18 months of age. She had
> started to say da da at 11 months and ma ma at 12 months, but
seemed
> to lose this somewhere between 14 months and 2 years. After I
> expressed concerned regarding her lack of language, she started
> speech therapy at 18 months (once a week). She moved to a group
> global program at 26 months. We did the whole Regional Center
thing
> until she turned 3 (I'm not at all impressed with them). We
> decided to skip the transistion to the school district as we felt
> Sarah needed more individual therapy than they would provide.
>
> Her diagnosis is Hyptonia with speech delays. So, no real cause
for
> the speech delays, but we do know that the Hypotonia is genetic as
> her paternal Grandfather and Uncle had it. Due to the inconsistant
> speech, loss of language, appearing deaf at times, etc., I am
> leaning toward Apraxia/Dyspraxia as it was the only disorder that I
> have found that had Hypotonia as a soft sign. Sarah currently goes
> to therapy Tuesday through Saturday. She gets 2 hours a week of
> individual speech therapy via Cal State Fullerton at a very reduced
> cost of $273.00 a semester (12 weeks, twice a week). She gets an
> additional hour of individual speech therapy a week (for free!!!)
> via the Scottish Rite Speech Clinic (funded by the Masons, and you
> don't have to belong). She gets an hour of individual Music
Therapy
> with an OT each week. She does 45 minutes of Hippotherapy (on a
> horse) with a PT each week as well. I signed her up to start
> Kindermusik, so that she could have some interaction with verbal
> children. We've also done the Half Notes music program through
> Gymboree as well.
>
> Sarah has done all the standard blood/urine tests. She has an ABR
> test (for hearing) and a regular sleep deprived EEG. We are going
> in for a 24 hour EEG this coming Monday to rule out Landau Kleffner
> Syndrome (as it's so simular symtom wise to Apraxia). Sarah sees a
> Neurologist every 6 months or so on a regular basis. We just got
> her Medical Cal using the Institutional Deeming Waiver which
doesn't
> use our income....though I don't know yet what I can do with
> it....but we got the card if we should ever need it. LOL :-)
>
> Sarah is on both ProEFA and DMG inaddition to her regular multi-
> vitamins. She had initial bursts of speech with both, but then
> leveled out. She has been showing progress lately. She sings
quite
> well and even when you can't understand the words, you can make out
> the tune.
>
> Anyway, looking forward to sharing local information and
> suggestions!!!
>
> Jill in OC
> Mom to Sarah 40 months with Hypotonia and severe expressive
> receptive speech delays