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New to this site and new to a "suspected" diagnosis of apraxia   Message List  
Reply | Forward Message #303 of 662 |
Re: New to this site and new to a "suspected" diagnosis of apraxia

--- In voices_group@yahoogroups.com, "erin robles" <eevalovich@a...>
wrote:
> --- In voices_group@yahoogroups.com, "mommyof6nokc"
<davidnokc@c...>
>
Kathy-

Please tell me about adult apraxics. I know this is masochistic for
me to do- but I reread your post and saw that you work with adult
apraxics. I am so concerned about Jake in the future- what have you
seen with your clients and please be honest. Email privately if you
feel is appropriate.

Thanks-Erin
Eevalovich@...




wrote:
> Kathy-
>
> My son Jacob sounds very much like your son. He is 28 months, has
> been in speech for 3 months. Was 54% delayed in expressive and
> receptive speech. (Receptive is hogwash- it was the way the test
was
> structured.
>
> Jake has made good progress in the past few months- we have speech
2x
> a week for 1 hour a time. He also sees a cranial sacral therapist.
>
> However, the most improvement for Jake came after working to remove
> toxins from his body. Amazingly enough, my son like many autistic
> kids, does not process out metals from his body like a normal kid.
I
> tested his hair and found lead, mercury, arsenic, antomony and
> others. I was flabbergasted.....I performed this test more out of
> respect for a mentor who recommended it than belief that it would
> help. (It was about $60 paid out of pocket) I then got busy
> researching the connection b/w mercury, lead etc and apraxia. I
> started at the Mercury-Autism group here at Yahoo. Read the files,
> particularly the ones from Andy Cutler. He is a chemist who
> specializes in healing through chelation.
>
> The first week of chelation my son said Bye Bye SPONTANEOUSLY at a
> party. He also stopped drooling (I thought the kid was never going
to
> quit) Since Oct, he has made sooo much progress and I attribute
much
> of it to the chelation. He is brighter, spunkier and more awake. >
>
> He still has a long way to go, but I think with chelation, therapy,
> cranial sacral and a mom who is soooooo worried about her son, Jake
> will be OK. God willing.
>
> Check out the Apraxia- kids website and the Cherub website. There
is
> also a good book called the Late Talker that is interesting.
>
> Also, my son takes many supplements to help with the chelation, but
> he also takes fish oil (mercury free!!) to help with mental
> developement.
>
> Best wishes-Erin
>
> Hello, I am the mom of a wonderful, smart, 19 month old son named
> > Turner. Turner has only one word which is Mama, but he says it
so
> > oddly. It comes out more as "Muhh Muhh" with a second or
two
> > delay between the syllables. He has a general "Duh" and "Muh"
> > depending on whether he wants something, or whether he wants to
> show
> > you something. A hearing assessment revealed perfectly normal
> > hearing. A multidisciplinary assessment revealed severely
delayed
> > expressive and receptive skills with normal cognition, normal
gross
> > and fine motor skills, and decreased oral motor skills. I think
I
> > suspected early on, around 8-10 months of age, that Turner was
> > having difficulty with babbling/cooing. He was, and is, such a
> > quiet baby. He has intermittently said words such as "Uh Oh"
> > or "more" but only for a day or two, then they are gone. He
> > currently receives EI speech therapy weekly and attends a
Language
> > Preschool at the Health Sciences Center 3 times per week. We
have
> > heard a gamut of possible diagnoses from Autism to CAPD and now
to
> > verbal apraxia. Turner is also in the process of being evaluated
> > and diagnosed with Absence Seizures (Petit Mal seizures). In the
> > meantime I have begun Baby Sign with Turner and in four months he
> > has acquired roughly 30 signs which he uses to communicate.
> > Receptive skills are now considered near normal limits. Verbal
> > skills remain at the 4 month old level. At this point my head is
> > spinning, but I do feel the Apraxia diagnosis is "The ONE"----it
> > just all seems to fit. I would love to hear from anyone who has
a
> > child with similar symptoms. Also, has anyone had a child
> diagnosed
> > with verbal apraxia this early? Everyone seems reluctant to give
a
> > formal diagnosis. I feel an absurd need for a diagnosis, I can't
> > even explain it. Possibly it has something to do with my being a
> > Speech Pathologist! I specialize in adults, coincidentally have
> > done much therapy with adult apraxics, but am at a loss with my
own
> > child. Any advice, insight or encouragement would be so
> > appreciated. Kathy




Thu Dec 4, 2003 8:46 am

martha_m_robles
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Forward
Message #303 of 662 |
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Hello, I am the mom of a wonderful, smart, 19 month old son named Turner. Turner has only one word which is Mama, but he says it so oddly. It comes out more...
mommyof6nokc
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Oct 17, 2003
3:49 am

... wrote: Kathy- My son Jacob sounds very much like your son. He is 28 months, has been in speech for 3 months. Was 54% delayed in expressive and receptive...
erin robles
martha_m_robles
Offline Send Email
Dec 4, 2003
8:43 am

... <davidnokc@c...> ... Kathy- Please tell me about adult apraxics. I know this is masochistic for me to do- but I reread your post and saw that you work with...
erin robles
martha_m_robles
Offline Send Email
Dec 4, 2003
8:46 am

Erin, thank you for responding to my post! I think I have a classic case of "Misery loves company" b/c I always find it comforting to hear from someone else...
David
mommyof6nokc
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Dec 4, 2003
10:35 pm

NEW HERE I want to jump in here if no one minds ,,,,,the more feed back I get the better !!!! I have a 26 month old son with like a Pierre Robin sequence...
alexbaby4gina@...
alexbaby4gina
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Dec 17, 2003
8:31 am
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