I'm a new mommy and I had no idea having a premie would be so hard. My

son does have BPD, high blood pressure, rickets, and a few others.

He'll be coming home on a vent and I just need to talk to other mothers

who have children with the same things going on. Help!

Hi, Miranda....welcome.  My daughter is 12 yo and uses a vent.  Mostly on

CPAP mode.  She has been trached since she was 3 1/2 years old.  She has a

chromosome deletion that causes all her issues.   She is a sweetheart, when

she doesn't have the preteen attitude :)   She was only 3lbs 14oz...they

said she was a preemie because of her size but she was actually 2 weeks

late...she was my 3rd daughter.

joan



HYPERLINK

"http://www.caringbridge.org/visit/hannahgrace95"http://www.caringbridge.org

/visit/hannahgrace95

please visit sign my guestbook,   love hannah grace





    _____



From: ventilatorkids@yahoogroups.com [mailto:ventilatorkids@yahoogroups.com]

On Behalf Of pinkcottoncandy84

Sent: Friday, February 22, 2008 12:45 PM

To: ventilatorkids@yahoogroups.com

Subject: [ventilatorkids] Hi!







I'm a new mommy and I had no idea having a premie would be so hard. My

son does have BPD, high blood pressure, rickets, and a few others.

He'll be coming home on a vent and I just need to talk to other mothers

who have children with the same things going on. Help!













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Hello, my name is REA, mi son is 2 1/2 , he had a surgery at 4 days old and has

been on the vent and oxygen since.  The most important that you have to remember

is that everything grows big with love.   You have to love your child more than

ever; he needs you. he needs to hear your voice telling him that you love him

and that he is strong boy you will take care of him.



   On the other hand, you need to learn everything related with the vent and the

tracheotomy. what to do in an emergency and the Ambu bag, that will make the

difference. If you have to go out with him,take an spare of everything never

forget your spare trach. organize yourself make a list of Dr. medications

schedule, emergency list, emergency procedures. organize his room so you and the

caregivers can locate what is needed soon.



   Every person that will help you with the care should know CPR, and emergency

procedures .Also the regular care procedures.



   Been confindent of what are you doing will give you peace of mind.  Take care

of yourself  take a rest everytime you can and you will be succesful.



   God is god













pinkcottoncandy84 <pinkcottoncandy84@...> wrote:

           I'm a new mommy and I had no idea having a premie would be so hard. My

son does have BPD, high blood pressure, rickets, and a few others.

He'll be coming home on a vent and I just need to talk to other mothers

who have children with the same things going on. Help!













---------------------------------

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[Non-text portions of this message have been removed]