hi amber and welcome to the group.

it sounds like your little fella is keeping you busy and we wish you
the best of luck.

where do you live and which hospital are you in?

did you get any help from social services there as regards to finding
nursing help at home?

caring for him by yourself will be a huge undertaking. do you have
any options? my son lived at home but we had some insurance money
with which to hire nursing help

best regards

mark




On Mar 4, 2006, at 9:53 AM, Amber wrote:

> HI everyone my name is Amber, I have a 4 month old son, Landon, that
> is vent dependent due to central apnea, he has micrognathia which is
> originally why he had to be trached, he also has a G-J tube because he
> doesnt know how to swallow. He has hydrocephalus and will be getting
> his first shunt next week. He also has agenisis of the corpus
> callosum. He has many other little things wrong with him also. He is
> still in the hospital but finally out of NICU. Our biggest problem
> right now is that our insurance doesnt want to give us in home
> nursing. If anybody wants to chat feel free to e-mail me. Thanks,
> Amber
>
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