HI everyone my name is Amber, I have a 4 month old son, Landon, that
is vent dependent due to central apnea, he has micrognathia which is
originally why he had to be trached, he also has a G-J tube because he
doesnt know how to swallow. He has hydrocephalus and will be getting
his first shunt next week. He also has agenisis of the corpus
callosum. He has many other little things wrong with him also. He is
still in the hospital but finally out of NICU. Our biggest problem
right now is that our insurance doesnt want to give us in home
nursing. If anybody wants to chat feel free to e-mail me. Thanks,
Amber