Hi Nikki,
My name is Sylvia and I have a 27-month old son, Tyler, who was born
premature at 27 weeks. He has Bronchopulmonary Dysplasia (BPD),
or "really crappy lungs" as we call it. He has a trach and is on a
ventilator as well. I just looked at your webpage. Zachary is a
very handsome little boy!! Or should I say, Big Boy! You have very
similar pictures to ours of Tyler. The pictures of Zachary with his
NG tube bring back memories. Tyler has had a g-tube for 1.5 years
now. He is delayed in eating solids. If you would like to see
pictures of Tyler, please check him out at www.carepages.com. The
name of his Care Page is "TylerDriscoll".
It was nice to meet you!
-Sylvia
--- In ventilatorkids@yahoogroups.com, "Nikki" <princessnikki@...>
wrote:
>
> Hey all! I thought I would take a minute to introduce myself to
the
> group. I'm Nikki, mommy to Zachary who is 3 1/2 years old. He
suffered
> a severe brain and C-2 spinal cord injury during labor and
delivery
> resulting in his diaphragms being paralyzed. He's ventilator
dependant
> 24/7 and has been since he was 36 hours old. He has a slew of
other
> issues stemming from the brain injury as well. He is such a
joyous,
> happy child. His smiles are huge and his eyes are bright. He is
such a
> blessing to have as a child. You can learn more by checking out
his
> website, www.zacharybeachley.com
>
> I look forward to getting to know the other families in the group.
>
> Nikki
> Mommy to Zachary
>