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Reply | Forward Message #17 of 30 |
Re: [ventilatorkids] Re: Home Nursing

Amber,
I didn't know you had such a stressful pregnancy or that the docs recommending
terminating it! That had to be terrible! Everything you described as feeling,
I can totally relate to. We were both cheated out of a normal pregnancy and
everything that goes with it: baby showers (that are filled with joy and not
waiting for your cell phone to ring and it be a call from the NICU); having the
nurses bring us our babies while we were in the Mother/Baby unit; taking our
babies to the local Wal-Mart to get their portraits taken, etc. (I could go on
& on.)

I hope everything is proceeding with Landon's discharge plans. I hope you
have a nice Easter holiday.

-Sylvia

Amber <always_adorable@...> wrote:
Sylvia,
I always get jealous and feel like I lost out when I see people who are
having healthy babies, I cant help but feel that its not fair. I know
Landon is still little and will probably grow out of a lot of his
issues but it's hard. When i think about his birth i cry, i missed out
on holding my baby after he was born, taking him to my room after
delivery, hearing him cry, taking him home, etc. I missed out on a
normal pregnancy, i didnt get to enjoy it like i wanted, i spent the
whole time scared and going to doctor appts 2 x week, worrying how long
it was since i felt him move, worrying that maybe i was being selfish
for bring this disabled child into the world. Wondering if maybe I
should have listened to the docs and terminated, feeling guilty for
even thinking that i made the wrong mistake! I think i'm always going
to feel sad about what I lost out on but then i feel guilty because I
feel like i should be more grateful to have him. No matter what at
least he's here! Thanx for the prayers!!!







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Sun Apr 16, 2006 4:46 pm

drisc03
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Message #17 of 30 |
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Hello everyone, My name is Sylvia and I'm new to this group. My son, Tyler, was born on Nov. 17, 2004, at 27 weeks weighing only 1 lb 10 oz. He remained in ...
drisc03
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Apr 6, 2006
12:03 am

... letters of medical necessity and have been told by our insurance that they "dont doubt he needs a nurse but your plan doesnt cover it" We had to fight for...
Amber
always_adorable
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Apr 6, 2006
11:58 pm

yes it does seem like that sometimes, Amber. i hope things work out for you. is there any opportunity to contact a newspaper or congressperson in your area...
samjames@...
fuzzysb04
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Apr 7, 2006
2:56 pm

We have already been on the news and in the paper - no results! We jusy keep praying that he will get the help he needs. He cant stay in the hospital forever ...
Amber
always_adorable
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Apr 8, 2006
1:09 am

Hi. Thanks, Mark, for the warm welcome. Yes, Tyler can get outside, but right now it's really a pain-in-the-you know what. He's on a large, out-dated...
Sylvia Driscoll
drisc03
Online Now Send Email
Apr 8, 2006
5:45 pm

... I completely hear u on the drug addict thing, my sister is a heroin addict had 2 kids and didnt want either of them! my husband and i didnt have any...
Amber
always_adorable
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Apr 8, 2006
11:40 pm

Amber, It sounds like you know exactly how I feel! It was so hard going through IVF and then watching the news to see these idiot women who a) burned their...
Sylvia Driscoll
drisc03
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Apr 11, 2006
12:50 am

Sylvia, It takes about an hour but it would take us 2 hrs to go to Indianapolis. They have the best doctors in Cincy, one of our friends comes from Georgia to...
Amber
always_adorable
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Apr 11, 2006
9:08 pm

Hi, We saw similar situations at the Univ of Michigan as well. When you hear about people coming from the South, Minnesota, etc. just to see your doctors, you...
Sylvia Driscoll
drisc03
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Apr 13, 2006
12:11 am

Sylvia, I always get jealous and feel like I lost out when I see people who are having healthy babies, I cant help but feel that its not fair. I know Landon is...
Amber
always_adorable
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Apr 15, 2006
12:15 am

Amber, I didn't know you had such a stressful pregnancy or that the docs recommending terminating it! That had to be terrible! Everything you described as...
Sylvia Driscoll
drisc03
Online Now Send Email
Apr 17, 2006
5:24 pm

Sylvia, We got to take Landon on a 9 hr pass for Easter, he was so happy it was the first time since he was born that he left the hospital. He smiled and...
Amber
always_adorable
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Apr 17, 2006
11:57 pm

That is sooooooo AWESOME, Amber!! I am very happy for you! I hope you took lots of pictures of the special day. I remember the first time we took Tyler...
Sylvia Driscoll
drisc03
Online Now Send Email
Apr 18, 2006
1:36 am
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