ive opened this group, mainly as there seem to be no yahoo groups for people who suffer from vcfs in england,but all are welcome from all over the world, my daughter has been diagnosed with vcfs this month..july 2003. she 3 1/2.
in time i hope this can be a place we can all come for advise,a shoulder to cry on, or anything that you want to discuss about our children, if you join please post a message with a little about you and your family
kate