Welcome to VCFS DiGeorge Family Support!

Sonia is 3 1/2 years old and was born with DiGeorge Syndrome. She was diagnosed soon after birth based on signs of calcium deficiencies, 12 fingers, pushed in chin, and large round eyes. My husband and I recieved a phone call when Sonia was a week old that there was a little girl, 1 week old, that needed a home. We were scared to adopt a child that may not survive after just having a miscarriage four months earlier, but after researching and looking at DiGeorge syndrome more closely-we made up our minds that night that Sonia was the one for us. We met her at a week and a half old and she came home to us at 18 days straight from the hospital. She is beautiful and funny, and slept through the night at 1 month old after not needing her middle of the night dose of medication. Now that she's an independent toddler she doesn't sleep as easily. : ) She loves to explore and test limits. Sonia enjoys school, is very shy, but slowly is coming out of her shell. She recieves physical therapy, occupational therapy, speech therapy, and behavior therapy. Her health has been good for awhile. She does not have the heart or lung aspects of DiGeorge Syndrome but she does have Neutropenia-a weakened immune system. Currently her biggest challenges are her behaviors. She loves to vacuum, sing songs, and run around. Sonia loves to play with water. She made us a family and brought DiGeorge Syndrome into our lives and our faith and love for her give us the strength to handle the tough times as we try to focus on enjoying the good times as well as appreciating that Sonia is a survivor. We love her bunches and bunches.