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vcfsfamilysupport · A Place To Chat About Our Kids!

Group Information

  • Members: 1013
  • Category: Support
  • Founded: Jun 26, 2000
  • Language: English
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Activity within 7 days:

4 New Members - 100 New Messages - New Questions

Description

Our "Featured Child" Justin born on 10/19/96. Because of no fetal movement he was born by emergency C-section and was born "blue" due to the cord that was wrapped around his neck. They had to work hard to resucitate him and he spent the night in NICU.

During that first nights stay they discovered his interrupted aortic arch and VSD. At 3 days old he underwent his first open heart surgery and did phenomenal in his recovery. We knew we had a fighter.

For several years we kept having "health issues" and we couldn't understand why. We never even thought that genetically there was something wrong. Early milestones were not being met and our cardiologist told us to let him know if his "speech didn't develop" to let him know. At age 3 his palate issues were discovered after ear tubes and anadenoidectomy lead to fluid loss through his nose for the first time. Two palate repairs were to follow including intensive speech therapy. It wasn't until age 5 that our cardiologist finally spoke up and said " I have suspected that he may have 22Q11.2 deletion. At 8 he underwent a second open heart surgery at Children's Hospital in Philadelphia to correct a sub-aortic membrane growth. Since that time we have seen major improvments in his immune system, energy level and overall growth.

Justin enjoys spending time in the mountains hunting with his dad, snowboarding and loves his 13 horses! They are his "best friends" and a great comfort to him. He likes to train them and has a special and unique way that they respond only to him. Some have even said he is a "horse whisperer". He hopes to start roping lessons this spring and enter a few rodeo's this summer. He also has two dogs that are his constant companions, and three brothers.

Justin has a sweet and loving spirit and is very determined to overcome the obstacles that are presented in his life and we are so grateful to have him in ours.

Holle McRae

Message History

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2008 1008 1023 428 685 387
2007 948 469 982 754 685 539 495 367 616 520 630 656
2006 703 600 663 794 313 379 416 473 492 696 544 624
2005 368 420 825 911 550 334 470 294 543 699 628 429
2004 575 793 355 441 319 382 396 516 330 443 374 258
2003 879 770 1421 841 856 469 517 900 500 392 257 244
2002 530 502 566 347 400 215 328 253 245 307 410 435
2001 340 229 307 202 134 139 153 201 260 482 338 371
2000 238 183 155 198
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