Good point. We actually went back on Tuesday and they checked for that. Her
blood levels have declined from a week ago but they're not at a point of it
being a big problem yet. I've also refrained from giving her ibuprofen when she
was running a fever recently because I know that's a blood thinner and can't
possibly help the situation.


--- In ureteral_reimplantation@yahoogroups.com, "teresadownunder" <tmairal@...>
wrote:
>
> Just a thought but if Macee's been bleeding for a while, would it be possible
that she's becoming anemic and therefore any bleeding takes longer to heal?
>
> Teresa
>
> --- In ureteral_reimplantation@yahoogroups.com, "tallcherry@" <tallcherry@>
wrote:
> >
> > Oh yeah, don't think I mentioned that the first bacteria that was in her
urine was a form of Staph. There's only one antibiotic that can treat it and we
had to drive to another state to find someone that carried it in liquid form!
Thank god for health insurance as the antibiotic was over $600 a bottle and she
needed a refill!
> >
> > --- In ureteral_reimplantation@yahoogroups.com, "tallcherry@" <tallcherry@>
wrote:
> > >
> > > HI all. I wanted to jump back on and give an over view of my daughter
Macee's surgery. Just a bit of historical information. Macee is 8 years old
and has suffered from severe kidney infections since she has been about 3 and
1/2. Odd in her case to develop the problem so late. She was never sick as a
baby and never had any problems. However, she was hit by a car just before she
turned three and fractured her pelvic bones and in my opinion, this had
something to do with the problem. After her first severe kidney infection where
she was hospitalized for ~10 days, she was seen by a uroligist and eventually
diagnosed with grade 3 reflux on her left side. She was placed on profolactic
antibiotics but continued to have infections. Eventually she was also diagnosed
with a Grade 1 on her right side. When she was six years old the deflux
procedure was done to correct the problem. She was sick again within six
months.
> > >
> > > So in August, on our third doctor, Macee finally had the reimplantation
surgery done. She is 8 and has permanent scarring to her left kidney now. The
surgery was done on August 11 and she spent three days in the hospital. The
doctor did not place in stents and her catheter was removed the morning
following surgery. Her surgery took over 5 hours as the doctor had difficulties
because of the deflux procedure that was done prior. However, he was confident
that the surgery was a success and he stated that because of the shape of her
ureters and such, the deflux procedure never had a chance of working (he wasn't
the doctor that performed it).
> > >
> > > Her recovery was difficult. They had her on Morphine at first and
ditropan. They used suppositories for pain. Eventually switched her to oral
tylenol with codeine. Which made her sick. We struggled for a day to get the
pain medicine's down right. They eventually put her on dilatin iv pain meds
instead of morphine which had her itching like crazy. And oral was straight
oxycodone since she couldn't tolerate the codeine. Once they had that under
control, she was able to get around a little better. She had a lot of
difficulty getting in and out of the bed and once the catheter was removed, it
was a nightmare. She had to go to the bathroom every 2 minutes and the pain and
burning was just awful for her. Not to mention the horror of just getting in
and out of the bed. Once we got her home she actually seemed to slip some in
her recovery, didn't want to get up and walk or move around. Stopped eating,
began having spasms. She had a difficult recovery to say the least. And the
burning was just awful for her and took weeks to go away.
> > >
> > > When she went back for her post op ultrasound at 5 weeks post op, they saw
dilation and inflammation in the left kidney that shouldn't have been there when
her bladder was full. The good news is that is dissapated when she emptied her
bladder. So she still had some recovering to do. Two days later, she began
peeing blood again. The doctor said it was probably just old blood cleaning out
of the bladder and it went away in two or three days. Two weeks later she peed
blood again for a few days. This happened two or three times with the doctor
not being concerned at all.
> > >
> > > Well two weeks ago, now this is 2 1/2 months post op, she began peeing
large quantities of very red blood again. And it didn't dissipate in a day or
two. They redid the ultrasound and checked her blood and all seemed well. They
did see a bacteria in her urine and said that she may have been brewing a UTI
and this could have caused the bladder to bleed like that. Couple of days on
the antibiotic, and the bleeding subsided.
> > >
> > > Then it returned again a week later, large amounts of it and very red (not
dark like old blood). They said she had a small amount of a different bacteria
in her urine and put her on a different antibiotic. It finally stopped last
night after 5 days of heavy bleeding when she pees.
> > >
> > > I'm feeling very frustrated at this point. During all this she also
developed a fever which has been chalked up to viral. It seems an awful long
time post op to still be peeing blood. She doesn't have any pain with it which
is good and I should note that she doesn't have any symptoms of a UTI either.
> > >
> > > Has anyone else had these problems? Any ideas or suggestions?
> > >
> >
>