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Description
A support site for those with a Urea Cycle Disorder. This site helps network and support family members and caregivers dealing with these rare inherited diseases.
Members are a valuable part of this e-Group and it is important that your voice, ideas, and questions are included to help everyone. When posting, please keep in mind:
*No flaming or offensive posts -- our group members are from all over the world and may have different viewpoints or religions. Our goal here is to share, support and help each other in a friendly environment.
*Although our group membership has a wide variety of professions from doctors to nurses to NUCDF Board Members... please realize that the majority of members are parents or caregivers of UCD patients.
We cannot give out medical advice. Please talk to your UCD specialist or Genetic Metabolic Specialist for answers regarding your specific UCD medical problem with meds or symptoms.
*Try to cut off or edit previous posts you are replying to. This will help reduce clutter with your email inbox -- especially if you have "digest" setting.