What is a Syndrome?

A Syndrome is a group of signs, symptoms, or features that occur together and create a picture which may suggest the presence of a particular medical condition or disorder.

Symptoms are subjective evidence of a medical condition that are experienced by a patient and reported in the medical history such as pain, nausea, or dizziness.

Signs are objective evidence of a disorder that a physician or nurse can recognize during a physical examination such as wheezing, visual impairment, or a seizure.

This group is intended to bring families together to make connections. We do welcome friends and professionals who take special interest in our children. Different terms are used to describe our children. This makes it difficult to find each other and make connections between children who have similar signs and symptoms.

These are words that are often used to describe our children. They can be mixed and matched as well.
Undiagnosed Syndrome
Mystery Disease
Unique Condition
Unknown Diagnosis
Mystery Illness