This group is intended to bring families all over the world together to make connections. We do welcome friends and professionals who take special interest in our children. Different terms are used to describe our children. This makes it difficult to find each other and make connections between children who have similar signs and symptoms.

These are words that are often used to describe our children. They can be mixed and matched as well.
Undiagnosed Syndrome
Mystery Disease
Unique Condition
Unknown Diagnosis
Mystery Illness