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undiagnosed

Group Information

  • Members: 172
  • Category: Other
  • Founded: Jul 17, 2007
  • Language: English
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Description

Undiagnosed and frustrated by doctors and others who are dismissive of
your chronic pain, fatigue and other symptoms?

Are you tired of hearing: "You look fine"; "All your tests came back normal"; "You're depressed"; "You're just doing too much"; "You're just stressed out"; "You're just going through peri-menopause" "I didn't know you were still in pain, isn't that overwith yet?" ??

You know you're not well, you're in constant pain and indescribable fatigue, among other things, but you can't get a diagnosis, and you feel like no one believes you.

This is a group where mid-life adults, mostly female, can share about living and coping with multi-symptom illnesses or syndromes, undiagnosed or even mis-diagnosed due to dismissive medical personnel or other
reasons.

If you think you have fibromyalgia (FM), chronic fatigue syndrome (CFS/CFIDS), multiple sclerosis (MS), Lyme disease, Lupus or any other chronic pain and fatigue condition that's hard to diagnose, and you don't have a diagnosis yet, please join us and let's start talkin'!

If you're someone who has received a diagnosis, but experienced a long, difficult road getting there, please join us anyway. We can all use each other's support and expertise.

Our goal is to raise awareness of our common problem and cure the medical establishment of their reluctance to recognize people like us.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 6
2011 10 2 1 2 5 13
2010 19 4 26 3 5 12 15 65 55 4 18
2009 145 37 54 57 69 48 76 96 54 29 17 13
2008 480 374 321 440 175 225 194 41 94 41 67 114
2007 51 375 787 973 1069 409
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