hi
i have a colostomy and a hurnia around the site so there is a bigish
lump there
will i have any problems geting thru securaty at the airport in the uk
and in usa ?
will there be any problems flying ?
also i see the surgon this week to see if it can be repaired i think it
my be best leaving it alone till i get back from my hoilday if i have
an op i wont be able to fly for a bit
thanks
mick
helo rachel ,yer i know a lot of ostomys are permanent,i had my iliostomy 5 yrs ago when i was 7 months pregnant,me and my baby survived thru all wen my bowel twisted at 7 months,she was born 3lb in weight and sent to i.c, i was in a bad way when i had a prem baby and a stoma to look after ,but my baby survived an so did i.as i had gangerene,i lived with a bag for 5 yrs and to be honest i had no probs but was scared of reversal opp,so when i developed the parastomial hernia and had a lump in my stomache from a addesion ,the doc was going to repair the hernia and remove the lump,but i asked him ,not demanded a reversal,and he said he will see down in theater.as it was probably a easier option for him.but i was happy with the bag it saved my life and i was not too sure about the reversal as i
thought i would have pain again,this has took a lot of getting used to and i myself was a ostomist and always wanted to hear from people who had reversals ,being a x ostomist my self ,there is a lot of questions you need to know and ask,and yes i do think of other people who have permanent ostomies,as a woman i know the feelings of wandering if i never had a partner who loved me,how would i would have told a new man if i was single ,and what people were even saying about me not getting a reversal ,but the amount of pain i have sufferd with my colon put me off having the reversal,i am still not class 1 after the reversal opp,i am constipated a lot and sure do worry again,and i have to be on tramadol twice a day as i have arthuritus in my spine and scoliossis.but this sight can cover a lot of questions and answers on ostomys and hopefully reversals.christine.
----- Original Message ---- From: rachel622650 <newton646@...> To: ukostomysupport@yahoogroups.com Sent: Tuesday, 27 May, 2008 12:47:24 PM Subject: [UK Ostomy Support ] Re: hernia
Christine you are a lucky person to be able to demand a reversal, please remember that not all ostomy's are temporary, most are permanent. There is also a waiting list for any type of op which can compound the problem, and round here there are ways to go through before the docs even think about ops. Once again please think about other people who may not be as lucky as you and also new ostomists who may not have come to terms with their new body image yet but read these letters and become convinced the docs have told them wrong because someone said this or that. Basically if your anus is removed you cannot have a reversal. My husband has had an illeostomy for 13 yrs,went back to work and had parastomal hernias, twisted bowels (where the bowel in the hernia twists and stops working) and everything else, just about, that life can throw at him, he now is on fentanyl patches for pain relief and hes
only 54 which is not that old, depends on your outlook and willpower really from a loving wife Rach
--- In ukostomysupport@ yahoogroups. com, christine rooney <silver_spoon50@ ...> wrote: > > hi im christine from liverpool uk ,i developed a parastomil hernia ,and was in agony,i went in hospital and asked for a reversal while i was there which they done,it was a realy bad experience for me but thank god i got out after 13 days without getting mrsa ,any one who wants to ask me about the opp is free to add me to there list ..silver_spoon50 psits 4 weeks today but my wounds still need dressing every day ,i think it was much easier getting the iliostomy than the reversal and hernia repair.im 46 by the way so im not that young lol.every pain i get now i think
omg my colon wats left of it.okbye for now christine. > > ----- Original Message ---- > From: Stewart <globetrotteruk@ ...> > To: ukostomysupport@ yahoogroups. com > Sent: Monday, 31 March, 2008 9:13:54 AM > Subject: [UK Ostomy Support ] Re: hernia > > > Hi Mick, Sorry to hear about your probs with the hernias. There is a > scheme for hernia repairs which involves strengthening the damages area > with a type of man made mesh.......This is being replaced with a mesh > made from our friend the pig. Perhaps you should ask your surgeon if > that might be available for you. > Stew/Globetrotteruk > > > > > ____________ _________ _________ _________ _________ _________ _ >
Sent from Yahoo! Mail. > A Smarter Email http://uk.docs. yahoo.com/ nowyoucan. html >
If you are having this done in the UK then I wish you all the luck in
the world and then some........
Andre
--- In ukostomysupport@yahoogroups.com, "rachel622650" <newton646@...>
wrote:
>
> Hi nessa I dont have an ostomy but my husband does. Please if your
> son would like to talk to someone in the same position as himself
> may be I can help . There must be all sorts of questions he would
> like to ask but is too afraid to ask you so you are not upset . I
> know its a bit late to answer and you probably wont get this until
> youre home but I hope all goes well for you
> Rach
>
> --
> - In ukostomysupport@yahoogroups.com, "♥ Vanessa ♥ "
> <kismetz_angel@> wrote:
> >
> >
> >
> >        
> > My name's Vanessa altho' I answer to all variations of it - Ness,
> Nessa,
> > Nessie etc. :) I live in the UK.
> >
> > I was told a couple of months ago that surgery would be my only
> option. I
> > have had UC (pancolitis) for 18 months and am, unfortunately,
> > steroid-dependant. I chose not to take steroids while I waited for
> surgery.
> > I'm still taking 125 mgs Imuran and 3 grams Pentasa daily.
> Originally I had
> > an appt. to see a surgeon next month but it was brought fwd
> suddenly to
> > Monday (yesterday) and now I am being admitted to hosp. on
> Thursday and
> > having the op. sometime this weekend. Due to complications, and
> specifically
> > risk of a blood clot (which I had one in Dec - both lungs - that
> possibly
> > travelled from my leg), the surgeon told me I'm in "that grey
> area" between
> > elective surgery and emergency surgery. Initially I had thought to
> try for
> > the J-Pouch surgery if offered but I'm too ill, there is a 4 month
> waiting
> > list and my surgeon and Dr's are sure I would have a clot by then
> and not
> > last w/out needing an emergency op. However, this can still be an
> option for
> > me in the future but for now I will have the ileostomy and might
> even opt to
> > keep it permanently. We'll see! I was told the surgeon usually
> does this
> > surgery "keyhole" but that since he didn't mention it to me, I
> have to
> > assume I'm too ill for that and will have the full cut so he can
> uh, well,
> > go in, get it and get out" I suppose. (That's how I grocery shop!
> *G*) The
> > stoma nurse made him sound like Zorro with a scalpel. :)
> >
> > I'm quite positive. I'm wearing a "baggy" around the house today
> and feel
> > fortunate to have some say in where my stoma will be positioned.
> Truth is,
> > there is only one place it feels right in so I guess that's the
> spot!
> >
> > Well that's my rambling intro. I guess I will be back post-
> surgery. I am
> > supposed to be having root canal work on my tooth (due to steroid
> damage)
> > tomorrow but guess it will be a temp. filling now. I also have a
> head cold
> > and so I'm like that saying - "I only have one other speed and
> it's slower".
> > But I'm too tired to be anything other than calm and calm is good.
> Naturally
> > I'm not worried about leaving my teenage son in charge of our
> home... I
> > mean, I will have morphine, right? =oP
> >
> > Hope you are all safe and well. See you online soon/soonish. :)
> >
> > ~Hugs~
> > Vanessa
> >
>
Hi nessa I dont have an ostomy but my husband does. Please if your
son would like to talk to someone in the same position as himself
may be I can help . There must be all sorts of questions he would
like to ask but is too afraid to ask you so you are not upset . I
know its a bit late to answer and you probably wont get this until
youre home but I hope all goes well for you
Rach
--
- In ukostomysupport@yahoogroups.com, "♥ Vanessa ♥ "
<kismetz_angel@...> wrote:
>
>
>
>        
> My name's Vanessa altho' I answer to all variations of it - Ness,
Nessa,
> Nessie etc. :) I live in the UK.
>
> I was told a couple of months ago that surgery would be my only
option. I
> have had UC (pancolitis) for 18 months and am, unfortunately,
> steroid-dependant. I chose not to take steroids while I waited for
surgery.
> I'm still taking 125 mgs Imuran and 3 grams Pentasa daily.
Originally I had
> an appt. to see a surgeon next month but it was brought fwd
suddenly to
> Monday (yesterday) and now I am being admitted to hosp. on
Thursday and
> having the op. sometime this weekend. Due to complications, and
specifically
> risk of a blood clot (which I had one in Dec - both lungs - that
possibly
> travelled from my leg), the surgeon told me I'm in "that grey
area" between
> elective surgery and emergency surgery. Initially I had thought to
try for
> the J-Pouch surgery if offered but I'm too ill, there is a 4 month
waiting
> list and my surgeon and Dr's are sure I would have a clot by then
and not
> last w/out needing an emergency op. However, this can still be an
option for
> me in the future but for now I will have the ileostomy and might
even opt to
> keep it permanently. We'll see! I was told the surgeon usually
does this
> surgery "keyhole" but that since he didn't mention it to me, I
have to
> assume I'm too ill for that and will have the full cut so he can
uh, well,
> go in, get it and get out" I suppose. (That's how I grocery shop!
*G*) The
> stoma nurse made him sound like Zorro with a scalpel. :)
>
> I'm quite positive. I'm wearing a "baggy" around the house today
and feel
> fortunate to have some say in where my stoma will be positioned.
Truth is,
> there is only one place it feels right in so I guess that's the
spot!
>
> Well that's my rambling intro. I guess I will be back post-
surgery. I am
> supposed to be having root canal work on my tooth (due to steroid
damage)
> tomorrow but guess it will be a temp. filling now. I also have a
head cold
> and so I'm like that saying - "I only have one other speed and
it's slower".
> But I'm too tired to be anything other than calm and calm is good.
Naturally
> I'm not worried about leaving my teenage son in charge of our
home... I
> mean, I will have morphine, right? =oP
>
> Hope you are all safe and well. See you online soon/soonish. :)
>
> ~Hugs~
> Vanessa
>
Just wanted to wish you well for your surgery. It's good to be positive about these situations and at least you know there is always someone at the other end of an email for you should you need it.
I will keep my fingers crossed for you regarding leaving your teenage son, my husband was bad enough when I went through my surgery in 2002 Lol.
Take care
Bye For Now
Kim
----- Original Message ---- From: ♥ Vanessa ♥ <kismetz_angel@...> To: undisclosed-recipients@... Sent: Tuesday, 17 June, 2008 7:38:42 PM Subject: [UK Ostomy Support ] Hello - having ileostomy at weekend!
       
My name's Vanessa altho' I answer to all variations of it - Ness, Nessa, Nessie etc. :) I live in the UK.
I was told a couple of months ago that surgery would be my only option. I have had UC (pancolitis) for 18 months and am, unfortunately, steroid-dependant. I chose not to take steroids while I waited for surgery. I'm still taking 125 mgs Imuran and 3 grams Pentasa daily. Originally I had an appt. to see a surgeon next month but it was brought fwd suddenly to Monday (yesterday) and now I am being admitted to hosp. on Thursday and having the op. sometime this weekend. Due to complications, and specifically risk of a blood clot (which I had one in Dec - both lungs - that possibly travelled from my leg), the surgeon told me I'm in "that grey area" between elective surgery and emergency surgery. Initially I had thought to try for the J-Pouch surgery if offered but I'm too ill, there is a 4 month waiting list and my surgeon and Dr's
are sure I would have a clot by then and not last w/out needing an emergency op. However, this can still be an option for me in the future but for now I will have the ileostomy and might even opt to keep it permanently. We'll see! I was told the surgeon usually does this surgery "keyhole" but that since he didn't mention it to me, I have to assume I'm too ill for that and will have the full cut so he can uh, well, "go in, get it and get out" I suppose. (That's how I grocery shop! *G*) The stoma nurse made him sound like Zorro with a scalpel. :)
I'm quite positive. I'm wearing a "baggy" around the house today and feel fortunate to have some say in where my stoma will be positioned. Truth is, there is only one place it feels right in so I guess that's the spot!
Well that's my rambling intro. I guess I will be back post-surgery. I am supposed to be having root canal work on my tooth (due to steroid damage) tomorrow but guess it will be a temp. filling now. I also have a head cold and so I'm like that saying - "I only have one other speed and it's slower". But I'm too tired to be anything other than calm and calm is good. Naturally, I'm not worried about leaving my teenage son in charge of our home... I mean, I will have morphine, right? =oP
Hope you are all safe and well. See you online soon/soonish. :)
What more can I say except Good Luck and keep your chin up, there always seem to be people worst off than you.
----- Original Message ---- From: ♥ Vanessa ♥ <kismetz_angel@...> To: undisclosed-recipients@... Sent: Tuesday, 17 June, 2008 7:38:42 PM Subject: [UK Ostomy Support ] Hello - having ileostomy at weekend!
       
My name's Vanessa altho' I answer to all variations of it - Ness, Nessa, Nessie etc. :) I live in the UK.
I was told a couple of months ago that surgery would be my only option. I have had UC (pancolitis) for 18 months and am, unfortunately, steroid-dependant. I chose not to take steroids while I waited for surgery. I'm still taking 125 mgs Imuran and 3 grams Pentasa daily. Originally I had an appt. to see a surgeon next month but it was brought fwd suddenly to Monday (yesterday) and now I am being admitted to hosp. on Thursday and having the op. sometime this weekend. Due to complications, and specifically risk of a blood clot (which I had one in Dec - both lungs - that possibly travelled from my leg), the surgeon told me I'm in "that grey area" between elective surgery and emergency surgery. Initially I had thought to try for the J-Pouch surgery if offered but I'm too ill, there is a 4 month waiting list and my surgeon and Dr's
are sure I would have a clot by then and not last w/out needing an emergency op. However, this can still be an option for me in the future but for now I will have the ileostomy and might even opt to keep it permanently. We'll see! I was told the surgeon usually does this surgery "keyhole" but that since he didn't mention it to me, I have to assume I'm too ill for that and will have the full cut so he can uh, well, "go in, get it and get out" I suppose. (That's how I grocery shop! *G*) The stoma nurse made him sound like Zorro with a scalpel. :)
I'm quite positive. I'm wearing a "baggy" around the house today and feel fortunate to have some say in where my stoma will be positioned. Truth is, there is only one place it feels right in so I guess that's the spot!
Well that's my rambling intro. I guess I will be back post-surgery. I am supposed to be having root canal work on my tooth (due to steroid damage) tomorrow but guess it will be a temp. filling now. I also have a head cold and so I'm like that saying - "I only have one other speed and it's slower". But I'm too tired to be anything other than calm and calm is good. Naturally, I'm not worried about leaving my teenage son in charge of our home... I mean, I will have morphine, right? =oP
Hope you are all safe and well. See you online soon/soonish. :)
Hi Vanessa, wanted to wish you the very best of luck. Many of us have
been where you are now andlife has gone on, usually vastly improved.
You sound very positive about your situation. Good luck I'm sure
anyone who has read your letter will be with you. Keep in touch and
let us know how things go for you.
Stewart/globey
--- In ukostomysupport@yahoogroups.com, "♥ Vanessa ♥ "
<kismetz_angel@...> wrote:
>
>
>
>        
> My name's Vanessa altho' I answer to all variations of it - Ness,
Nessa,
> Nessie etc. :) I live in the UK.
>
> I was told a couple of months ago that surgery would be my only
option. I
> have had UC (pancolitis) for 18 months and am, unfortunately,
> steroid-dependant. I chose not to take steroids while I waited for
surgery.
> I'm still taking 125 mgs Imuran and 3 grams Pentasa daily.
Originally I had
> an appt. to see a surgeon next month but it was brought fwd
suddenly to
> Monday (yesterday) and now I am being admitted to hosp. on Thursday
and
> having the op. sometime this weekend. Due to complications, and
specifically
> risk of a blood clot (which I had one in Dec - both lungs - that
possibly
> travelled from my leg), the surgeon told me I'm in "that grey area"
between
> elective surgery and emergency surgery. Initially I had thought to
try for
> the J-Pouch surgery if offered but I'm too ill, there is a 4 month
waiting
> list and my surgeon and Dr's are sure I would have a clot by then
and not
> last w/out needing an emergency op. However, this can still be an
option for
> me in the future but for now I will have the ileostomy and might
even opt to
> keep it permanently. We'll see! I was told the surgeon usually does
this
> surgery "keyhole" but that since he didn't mention it to me, I have
to
> assume I'm too ill for that and will have the full cut so he can
uh, well,
> go in, get it and get out" I suppose. (That's how I grocery shop!
*G*) The
> stoma nurse made him sound like Zorro with a scalpel. :)
>
> I'm quite positive. I'm wearing a "baggy" around the house today
and feel
> fortunate to have some say in where my stoma will be positioned.
Truth is,
> there is only one place it feels right in so I guess that's the
spot!
>
> Well that's my rambling intro. I guess I will be back post-surgery.
I am
> supposed to be having root canal work on my tooth (due to steroid
damage)
> tomorrow but guess it will be a temp. filling now. I also have a
head cold
> and so I'm like that saying - "I only have one other speed and it's
slower".
> But I'm too tired to be anything other than calm and calm is good.
Naturally
> I'm not worried about leaving my teenage son in charge of our
home... I
> mean, I will have morphine, right? =oP
>
> Hope you are all safe and well. See you online soon/soonish. :)
>
> ~Hugs~
> Vanessa
>
You sound so calm about it all, I can only send you hugs and lots of love and best wishes that all goes well at the weekend. I will be praying that all goes well for you. Try and keep calm I am sure the doctors will do their best. Love from Sheila
----- Original Message ---- From: ♥ Vanessa ♥ <kismetz_angel@...> To: undisclosed-recipients@... Sent: Tuesday, June 17, 2008 7:38:42 PM Subject: [UK Ostomy Support ] Hello - having ileostomy at weekend!
       
My name's Vanessa altho' I answer to all variations of it - Ness, Nessa, Nessie etc. :) I live in the UK.
I was told a couple of months ago that surgery would be my only option. I have had UC (pancolitis) for 18 months and am, unfortunately, steroid-dependant. I chose not to take steroids while I waited for surgery. I'm still taking 125 mgs Imuran and 3 grams Pentasa daily. Originally I had an appt. to see a surgeon next month but it was brought fwd suddenly to Monday (yesterday) and now I am being admitted to hosp. on Thursday and having the op. sometime this weekend. Due to complications, and specifically risk of a blood clot (which I had one in Dec - both lungs - that possibly travelled from my leg), the surgeon told me I'm in "that grey area" between elective surgery and emergency surgery. Initially I had thought to try for the J-Pouch surgery if offered but I'm too ill, there is a 4 month waiting list and my surgeon and Dr's
are sure I would have a clot by then and not last w/out needing an emergency op. However, this can still be an option for me in the future but for now I will have the ileostomy and might even opt to keep it permanently. We'll see! I was told the surgeon usually does this surgery "keyhole" but that since he didn't mention it to me, I have to assume I'm too ill for that and will have the full cut so he can uh, well, "go in, get it and get out" I suppose. (That's how I grocery shop! *G*) The stoma nurse made him sound like Zorro with a scalpel. :)
I'm quite positive. I'm wearing a "baggy" around the house today and feel fortunate to have some say in where my stoma will be positioned. Truth is, there is only one place it feels right in so I guess that's the spot!
Well that's my rambling intro. I guess I will be back post-surgery. I am supposed to be having root canal work on my tooth (due to steroid damage) tomorrow but guess it will be a temp. filling now. I also have a head cold and so I'm like that saying - "I only have one other speed and it's slower". But I'm too tired to be anything other than calm and calm is good. Naturally, I'm not worried about leaving my teenage son in charge of our home... I mean, I will have morphine, right? =oP
Hope you are all safe and well. See you online soon/soonish. :)
My name's Vanessa altho' I answer to all variations of it - Ness, Nessa, Nessie etc. :) I live in the UK.
I was told a couple of months ago that surgery would be my only option. I have had UC (pancolitis) for 18 months and am, unfortunately, steroid-dependant. I chose not to take steroids while I waited for surgery. I'm still taking 125 mgs Imuran and 3 grams Pentasa daily. Originally I had an appt. to see a surgeon next month but it was brought fwd suddenly to Monday (yesterday) and now I am being admitted to hosp. on Thursday and having the op. sometime this weekend. Due to complications, and specifically risk of a blood clot (which I had one in Dec - both lungs - that possibly travelled from my leg), the surgeon told me I'm in "that grey area" between elective surgery and emergency surgery. Initially I had thought to try for the J-Pouch surgery if offered but I'm too ill, there is a 4 month waiting list and my surgeon and Dr's are sure I would have a clot by then and not last w/out needing an emergency op. However, this can still be an option for me in the future but for now I will have the ileostomy and might even opt to keep it permanently. We'll see! I was told the surgeon usually does this surgery "keyhole" but that since he didn't mention it to me, I have to assume I'm too ill for that and will have the full cut so he can uh, well, "go in, get it and get out" I suppose. (That's how I grocery shop! *G*) The stoma nurse made him sound like Zorro with a scalpel. :)
I'm quite positive. I'm wearing a "baggy" around the house today and feel fortunate to have some say in where my stoma will be positioned. Truth is, there is only one place it feels right in so I guess that's the spot!
Well that's my rambling intro. I guess I will be back post-surgery. I am supposed to be having root canal work on my tooth (due to steroid damage) tomorrow but guess it will be a temp. filling now. I also have a head cold and so I'm like that saying - "I only have one other speed and it's slower". But I'm too tired to be anything other than calm and calm is good. Naturally, I'm not worried about leaving my teenage son in charge of our home... I mean, I will have morphine, right? =oP
Hope you are all safe and well. See you online soon/soonish. :)
With laparascopic surgery by a bloke who knows what he's doing it should be quite straightforward but the presence of gall stones is not usually an indication for surgery - have they told you why they need to be removed? There is medical treatment that dissolves them - ask about that?
Best wishes
Peter
Peter C4/5 incomplete - just walking short distances with Rollator 72 skiing accdent in Utah 27/12/2002. Urostomy for bladder cancer 5/2004. Retired physician, Winchester UK.
No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 270.3.0/1498 - Release Date: 11/06/2008 19:13
With laparascopic surgery by a bloke who knows what he's doing it should be quite straightforward but the presence of gall stones is not usually an indication for surgery - have they told you why they need to be removed? There is medical treatment that dissolves them - ask about that?
Best wishes
Peter
Peter C4/5 incomplete - just walking short distances with Rollator 72 skiing accdent in Utah 27/12/2002. Urostomy for bladder cancer 5/2004. Retired physician, Winchester UK.
i have been told the same doc will only do in an emergency something to do with scar tissue i guess
kindest regards christine
--- On Sun, 6/8/08, Ian Harrold <ian@...> wrote:
From: Ian Harrold <ian@...> Subject: [UK Ostomy Support ] gall stones To: ukostomysupport@yahoogroups.com Date: Sunday, June 8, 2008, 10:25 PM
I have just been diagnosed with gall stones
The Doctor told me the operation to remove them was more dangerous because of my bowel op. this was an iliostomy with all the large intestine to and including the bowel removed.
Has anyone experienced the same or similar I would like to be a bit more informed before seeing the doc again
I know all operation carry some danger but the way she spoke made it sound way above the norm.
At the time I was a bit shocked to asked any questions
The Doctor told me the operation to remove them was more dangerous because of my bowel op. this was an iliostomy with all the large intestine to and including the bowel removed.
Has anyone experienced the same or similar I would like to be a bit more informed before seeing the doc again
I know all operation carry some danger but the way she spoke made it sound way above the norm.
At the time I was a bit shocked to asked any questions
Hi girls its so refreshing to hear from people with a similar
outlook on life. It doesnt end with a colostomy or illeostomy it
just changes( so dont be afraid of mirrors, your body is just as
good as it was before just different) and anyone who says it doesnt
cant see the wood for the trees but to be able to accept it and
carry on is a gift anyone can get. Judy dont worry about not being
in a relationship I'm sure someone will come along soon and wham
there you go. I dont have a pouch but my husband does and I have
been there with him all the way. One of his brother's once said
that if his wife got what my husband had he would leave her to which
I replied he didnt love her then, guess who got divorced a few years
later!and it wasnt us. All our children and grandchildren understand
and we often laugh about it misbehaving. Its not the illeostomy that
stops my husband(Dick)going to work but the severe osteoarthritus,
so he has become a house husband while I go to work. I am so
furtunate to be married to a man like Dick because I have nothing to
do when I get home from work (12hr shifts). Good luck to you all
Rachel
-- In ukostomysupport@yahoogroups.com, JUDY BOATWRIGHT <jboat55@...>
wrote:
>
> Amen to that Sue. I had my rectum removed in Jan of 99 due to
cancer. When I woke from surgery there it was....colostomy bag!
What Now! well only answer I could come up with was" deal with it".
So I began to educate my self and do the best I could. No, I don't
love mirrors. I'm not in a relationship right now but I'm looking.
Life is good! I've seen my granddaughter marry and just last week I
saw another graduate high school. The bag doesn't consume my life,
in fact many times I forget it's even there. It doesn't stop me from
enjoying any activity I want to do. Well, I could go on but let me
just say once more...LIFE IS GOOD! judy
>
> SUE sc_3379 <sc_3379@...> wrote: Hello All,
> I am an Iliostomate for over 20yrs. (I don't keep track of
exactly how long I have had it.) I am blessed because of it. I would
not be here to watch my Grandkids grow up or have seen my kids grow
up. Like it was said below once you have the anus removed. there is
no reversal, atleast not til they come up with a design of a
mechinism that will work like one. I am doing some thinking on it.
There has to be a way. Look, they have a artificial heart! Anyone
have any Idea's. Let me know
> I have only had about 5 blockages since I have had a total
colectomy. I think thats pretty good. I can remember them all and
avoid those foods or chew alot better. What I am saying is, "Be
thankful you are alive!"
>
>
> ----- Original Message ----
> From: rachel622650 <newton646@...>
> To: ukostomysupport@yahoogroups.com
> Sent: Tuesday, May 27, 2008 3:47:24 PM
> Subject: [UK Ostomy Support ] Re: hernia
>
> Christine you are a lucky person to be able to demand a
reversal,
> please remember that not all ostomy's are temporary, most are
> permanent. There is also a waiting list for any type of op which
> can compound the problem, and round here there are ways to go
> through before the docs even think about ops.
> Once again please think about other people who may not be as lucky
> as you and also new ostomists who may not have come to terms with
> their new body image yet but read these letters and become
convinced
> the docs have told them wrong because someone said this or that.
> Basically if your anus is removed you cannot have a reversal.
> My husband has had an illeostomy for 13 yrs,went back to work and
> had parastomal hernias, twisted bowels (where the bowel in the
> hernia twists and stops working) and everything else, just about,
> that life can throw at him, he now is on fentanyl patches for pain
> relief and hes only 54 which is not that old, depends on your
> outlook and willpower really
> from a loving wife
> Rach
>
> --- In ukostomysupport@ yahoogroups. com, christine rooney
> <silver_spoon50@ ...> wrote:
> >
> > hi im christine from liverpool uk ,i developed a parastomil
> hernia ,and was in agony,i went in hospital and asked for a
reversal
> while i was there which they done,it was a realy bad experience
for
> me but thank god i got out after 13 days without getting mrsa ,any
> one who wants to ask me about the opp is free to add me to there
> list ..silver_spoon50 psits 4 weeks today but my wounds still need
> dressing every day ,i think it was much easier getting the
iliostomy
> than the reversal and hernia repair.im 46 by the way so im not
that
> young lol.every pain i get now i think omg my colon wats left of
> it.okbye for now christine.
> >
> > ----- Original Message ----
> > From: Stewart <globetrotteruk@ ...>
> > To: ukostomysupport@ yahoogroups. com
> > Sent: Monday, 31 March, 2008 9:13:54 AM
> > Subject: [UK Ostomy Support ] Re: hernia
> >
> >
> > Hi Mick, Sorry to hear about your probs with the hernias. There
is
> a
> > scheme for hernia repairs which involves strengthening the
damages
> area
> > with a type of man made mesh.......This is being replaced with a
> mesh
> > made from our friend the pig. Perhaps you should ask your
surgeon
> if
> > that might be available for you.
> > Stew/Globetrotteruk
> >
> >
> >
> >
> > ____________ _________ _________ _________ _________ _________ _
> > Sent from Yahoo! Mail.
> > A Smarter Email http://uk.docs. yahoo.com/ nowyoucan. html
> >
>
Amen to that Sue. I had my rectum removed in Jan of 99 due to cancer. When I woke from surgery there it was....colostomy bag! What Now! well only answer I could come up with was" deal with it". So I began to educate my self and do the best I could. No, I don't love mirrors. I'm not in a relationship right now but I'm looking. Life is good! I've seen my granddaughter marry and just last week I saw another graduate high school. The bag doesn't consume my life, in fact many times I forget it's even there. It doesn't stop me from enjoying any activity I want to do. Well, I could go on but let me just say once more...LIFE IS GOOD! judy
SUE sc_3379 <sc_3379@...> wrote:
Hello All,
I am an Iliostomate for over 20yrs. (I don't keep track of exactly how long I have had it.) I am blessed because of it. I would not be here to watch my Grandkids grow up or have seen my kids grow up. Like it was said below once you have the anus removed. there is no reversal, atleast not til they come up with a design of a mechinism that will work like one. I am doing some thinking on it. There has to be a way. Look, they have a artificial heart! Anyone have any Idea's. Let me know
I have only had about 5 blockages since I have had a total colectomy. I think thats pretty good. I can remember them all and avoid those foods or chew alot better. What I am saying is, "Be thankful you are alive!"
----- Original Message ---- From: rachel622650 <newton646@btinternet.com> To: ukostomysupport@yahoogroups.com Sent: Tuesday, May 27, 2008 3:47:24 PM Subject: [UK Ostomy Support ] Re: hernia
Christine you are a lucky person to be able to demand a reversal, please remember that not all ostomy's are temporary, most are permanent. There is also a waiting list for any type of op which can compound the problem, and round here there are ways to go
through before the docs even think about ops. Once again please think about other people who may not be as lucky as you and also new ostomists who may not have come to terms with their new body image yet but read these letters and become convinced the docs have told them wrong because someone said this or that. Basically if your anus is removed you cannot have a reversal. My husband has had an illeostomy for 13 yrs,went back to work and had parastomal hernias, twisted bowels (where the bowel in the hernia twists and stops working) and everything else, just about, that life can throw at him, he now is on fentanyl patches for pain relief and hes only 54 which is not that old, depends on your outlook and willpower really from a loving wife Rach
--- In ukostomysupport@ yahoogroups. com,
christine rooney <silver_spoon50@ ...> wrote: > > hi im christine from liverpool uk ,i developed a parastomil hernia ,and was in agony,i went in hospital and asked for a reversal while i was there which they done,it was a realy bad experience for me but thank god i got out after 13 days without getting mrsa ,any one who wants to ask me about the opp is free to add me to there list ..silver_spoon50 psits 4 weeks today but my wounds still need dressing every day ,i think it was much easier getting the iliostomy than the reversal and hernia repair.im 46 by the way so im not that young lol.every pain i get now i think omg my colon wats left of it.okbye for now christine. > > ----- Original Message ---- > From: Stewart <globetrotteruk@ ...> > To: ukostomysupport@
yahoogroups. com > Sent: Monday, 31 March, 2008 9:13:54 AM > Subject: [UK Ostomy Support ] Re: hernia > > > Hi Mick, Sorry to hear about your probs with the hernias. There is a > scheme for hernia repairs which involves strengthening the damages area > with a type of man made mesh.......This is being replaced with a mesh > made from our friend the pig. Perhaps you should ask your surgeon if > that might be available for you. > Stew/Globetrotteruk > > > > > ____________ _________ _________ _________ _________ _________ _ > Sent from Yahoo! Mail. > A Smarter Email http://uk.docs. yahoo.com/ nowyoucan. html >
I am an Iliostomate for over 20yrs. (I don't keep track of exactly how long I have had it.) I am blessed because of it. I would not be here to watch my Grandkids grow up or have seen my kids grow up. Like it was said below once you have the anus removed. there is no reversal, atleast not til they come up with a design of a mechinism that will work like one. I am doing some thinking on it. There has to be a way. Look, they have a artificial heart! Anyone have any Idea's. Let me know
I have only had about 5 blockages since I have had a total colectomy. I think thats pretty good. I can remember them all and avoid those foods or chew alot better. What I am saying is, "Be thankful you are alive!"
----- Original Message ---- From: rachel622650 <newton646@...> To: ukostomysupport@yahoogroups.com Sent: Tuesday, May 27, 2008 3:47:24 PM Subject: [UK Ostomy Support ] Re: hernia
Christine you are a lucky person to be able to demand a reversal, please remember that not all ostomy's are temporary, most are permanent. There is also a waiting list for any type of op which can compound the problem, and round here there are ways to go through before the docs even think about ops. Once again please think about other people who may not be as lucky as you and also new ostomists who may not have come to terms with their new body image yet but read these letters and become convinced the docs have told them wrong because someone said this or that. Basically if your anus is removed you cannot have a reversal. My husband has had an illeostomy for 13 yrs,went back to work and had parastomal hernias, twisted bowels (where the bowel in the hernia twists and stops working) and everything else, just about, that life can throw at him, he now is on fentanyl patches for pain relief and hes
only 54 which is not that old, depends on your outlook and willpower really from a loving wife Rach
--- In ukostomysupport@ yahoogroups. com, christine rooney <silver_spoon50@ ...> wrote: > > hi im christine from liverpool uk ,i developed a parastomil hernia ,and was in agony,i went in hospital and asked for a reversal while i was there which they done,it was a realy bad experience for me but thank god i got out after 13 days without getting mrsa ,any one who wants to ask me about the opp is free to add me to there list ..silver_spoon50 psits 4 weeks today but my wounds still need dressing every day ,i think it was much easier getting the iliostomy than the reversal and hernia repair.im 46 by the way so im not that young lol.every pain i get now i think
omg my colon wats left of it.okbye for now christine. > > ----- Original Message ---- > From: Stewart <globetrotteruk@ ...> > To: ukostomysupport@ yahoogroups. com > Sent: Monday, 31 March, 2008 9:13:54 AM > Subject: [UK Ostomy Support ] Re: hernia > > > Hi Mick, Sorry to hear about your probs with the hernias. There is a > scheme for hernia repairs which involves strengthening the damages area > with a type of man made mesh.......This is being replaced with a mesh > made from our friend the pig. Perhaps you should ask your surgeon if > that might be available for you. > Stew/Globetrotteruk > > > > > ____________ _________ _________ _________ _________ _________ _ >
Sent from Yahoo! Mail. > A Smarter Email http://uk.docs. yahoo.com/ nowyoucan. html >
Christine you are a lucky person to be able to demand a reversal,
please remember that not all ostomy's are temporary, most are
permanent. There is also a waiting list for any type of op which
can compound the problem, and round here there are ways to go
through before the docs even think about ops.
Once again please think about other people who may not be as lucky
as you and also new ostomists who may not have come to terms with
their new body image yet but read these letters and become convinced
the docs have told them wrong because someone said this or that.
Basically if your anus is removed you cannot have a reversal.
My husband has had an illeostomy for 13 yrs,went back to work and
had parastomal hernias, twisted bowels (where the bowel in the
hernia twists and stops working) and everything else, just about,
that life can throw at him, he now is on fentanyl patches for pain
relief and hes only 54 which is not that old, depends on your
outlook and willpower really
from a loving wife
Rach
--- In ukostomysupport@yahoogroups.com, christine rooney
<silver_spoon50@...> wrote:
>
> hi im christine from liverpool uk ,i developed a parastomil
hernia ,and was in agony,i went in hospital and asked for a reversal
while i was there which they done,it was a realy bad experience for
me but thank god i got out after 13 days without getting mrsa ,any
one who wants to ask me about the opp is free to add me to there
list ..silver_spoon50 psits 4 weeks today but my wounds still need
dressing every day ,i think it was much easier getting the iliostomy
than the reversal and hernia repair.im 46 by the way so im not that
young lol.every pain i get now i think omg my colon wats left of
it.okbye for now christine.
>
> ----- Original Message ----
> From: Stewart <globetrotteruk@...>
> To: ukostomysupport@yahoogroups.com
> Sent: Monday, 31 March, 2008 9:13:54 AM
> Subject: [UK Ostomy Support ] Re: hernia
>
>
> Hi Mick, Sorry to hear about your probs with the hernias. There is
a
> scheme for hernia repairs which involves strengthening the damages
area
> with a type of man made mesh.......This is being replaced with a
mesh
> made from our friend the pig. Perhaps you should ask your surgeon
if
> that might be available for you.
> Stew/Globetrotteruk
>
>
>
>
> __________________________________________________________
> Sent from Yahoo! Mail.
> A Smarter Email http://uk.docs.yahoo.com/nowyoucan.html
>
hi im christine from liverpool uk ,i developed a parastomil hernia ,and was in agony,i went in hospital and asked for a reversal while i was there which they done,it was a realy bad experience for me but thank god i got out after 13 days without getting mrsa ,any one who wants to ask me about the opp is free to add me to there list ..silver_spoon50 psits 4 weeks today but my wounds still need dressing every day ,i think it was much easier getting the iliostomy than the reversal and hernia repair.im 46 by the way so im not that young lol.every pain i get now i think omg my colon wats left of it.okbye for now christine.
----- Original Message ---- From: Stewart <globetrotteruk@...> To: ukostomysupport@yahoogroups.com Sent: Monday, 31 March, 2008 9:13:54 AM Subject: [UK Ostomy Support ] Re: hernia
Hi Mick, Sorry to hear about your probs with the hernias. There is a scheme for hernia repairs which involves strengthening the damages area with a type of man made mesh.......This is being replaced with a mesh made from our friend the pig. Perhaps you should ask your surgeon if that might be available for you. Stew/Globetrotteruk
After telling my EX dr that I had a total collectomy ....he asked me if I had my apendix removed! I never went back to him. also I have taken pain meds and just thought it made me sick to my stomack. Now i know why. thanks
christine <silver_spoon50@...> wrote:
--- In ukostomysupport@yahoogroups.com, "Den" <denaced@...> wrote: >ello iv just had a reversal after havindg a iliostomy ,i developed a parastomial hernia ,thenx for the news on codine as
im on them now so i thought time to come down and off the dosage,been thru a lot with my bowels,twisting and all that nice chat has anyone else had a reversal.christine > --- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@> > wrote: > > > > Just come out of hospital after a cartelidge repair on my knee.The op > > went well and recovery was quick but what I hadn't prepared myself > for > > was the how the painkillers would affect me. I was on Co codamyl and > > Tremadol. I know codiene can cause constipation but having no large > > bowel that wouldn't be a problem.......How wrong can you be!!!!??? > > My small intestine went to sleep.........nothing passing through .It > > had all the symptoms of a severe blockage but with no cramps. Don't
> > you just love projectile vomiting??? I thought I'd pass this on , > this > > ostomy thing is a never ending learning curve. We have to remember > many > > GP's out there are new to it so the more we know the better. > > Apart from feeling completely washed out I'm on the road to recovery!! > > > > > I take co-dydramol most days for quite severe sciatica and although i > lost about nine inches of colon and have had a colostomy now for about > four years i've never had a problem with constipation because of my > tablets so i guess everyone is not effected the same. > Den > xDx >
--- In ukostomysupport@yahoogroups.com, "Den" <denaced@...> wrote:
>ello iv just had a reversal after havindg a iliostomy ,i developed a
parastomial hernia ,thenx for the news on codine as im on them now so
i thought time to come down and off the dosage,been thru a lot with
my bowels,twisting and all that nice chat has anyone else had a
reversal.christine
> --- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@>
> wrote:
> >
> > Just come out of hospital after a cartelidge repair on my
knee.The op
> > went well and recovery was quick but what I hadn't prepared
myself
> for
> > was the how the painkillers would affect me. I was on Co codamyl
and
> > Tremadol. I know codiene can cause constipation but having no
large
> > bowel that wouldn't be a problem.......How wrong can you be!!!!???
> > My small intestine went to sleep.........nothing passing
through .It
> > had all the symptoms of a severe blockage but with no cramps.
Don't
> > you just love projectile vomiting??? I thought I'd pass this on ,
> this
> > ostomy thing is a never ending learning curve. We have to
remember
> many
> > GP's out there are new to it so the more we know the better.
> > Apart from feeling completely washed out I'm on the road to
recovery!!
> >
>
>
> I take co-dydramol most days for quite severe sciatica and although
i
> lost about nine inches of colon and have had a colostomy now for
about
> four years i've never had a problem with constipation because of my
> tablets so i guess everyone is not effected the same.
> Den
> xDx
>
--- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@...>
wrote:
>
> Ah we're all different Den, amazing how we all react differently to
> various drugs.
> Stew /Globey
>
yes mate how right you are and i'm not sure about you but strange how
we change over the years something that didn't effect us a few years
ago do now
Den
Do you live in Cornwall? Sat 26th of April at Carnon Downs Vilage Hall
the AGM of Cornwall IA will be taking place.
Refreshments will be available.( non alcoholic of course)
Anne Demic the Chair of National IA will be attending all the way from
Ireland. Anne will be giving a talk.Subject unknown but I'm sure it'll
be entertaining.
If you're in the area pop in.....Tell 'em I invited you.........!
Stew/Globey
--- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@...>
wrote:
>
> Just come out of hospital after a cartelidge repair on my knee.The op
> went well and recovery was quick but what I hadn't prepared myself
for
> was the how the painkillers would affect me. I was on Co codamyl and
> Tremadol. I know codiene can cause constipation but having no large
> bowel that wouldn't be a problem.......How wrong can you be!!!!???
> My small intestine went to sleep.........nothing passing through .It
> had all the symptoms of a severe blockage but with no cramps. Don't
> you just love projectile vomiting??? I thought I'd pass this on ,
this
> ostomy thing is a never ending learning curve. We have to remember
many
> GP's out there are new to it so the more we know the better.
> Apart from feeling completely washed out I'm on the road to recovery!!
>
I take co-dydramol most days for quite severe sciatica and although i
lost about nine inches of colon and have had a colostomy now for about
four years i've never had a problem with constipation because of my
tablets so i guess everyone is not effected the same.
Den
xDx
Just come out of hospital after a cartelidge repair on my knee.The op
went well and recovery was quick but what I hadn't prepared myself for
was the how the painkillers would affect me. I was on Co codamyl and
Tremadol. I know codiene can cause constipation but having no large
bowel that wouldn't be a problem.......How wrong can you be!!!!???
My small intestine went to sleep.........nothing passing through .It
had all the symptoms of a severe blockage but with no cramps. Don't
you just love projectile vomiting??? I thought I'd pass this on , this
ostomy thing is a never ending learning curve. We have to remember many
GP's out there are new to it so the more we know the better.
Apart from feeling completely washed out I'm on the road to recovery!!
No problem Jean, thanks for lettin us know. I hope he's feeling
better soon.
Stew/Globey
--- In ukostomysupport@yahoogroups.com, Norman Dale <norman.dale@...>
wrote:
>
> This is norman's wife - Jean. norman is in hospital - and I've been
checking his emails. I did not want you to think that you are being
ignored. I am sure he will catch up with everyone when he can.
>
>
>
> ----- Original Message ----
> From: Andre <andre_du_bois@...>
> To: ukostomysupport@yahoogroups.com
> Sent: Tuesday, 15 April, 2008 12:20:06 PM
> Subject: [UK Ostomy Support ] Re: hernia
>
> Hi Mick (and the rest of you guys),
>
> Not good news :( I am afraid that I am in the same position as you,
> however, I saw a consultant a couple of years back now and he was
> prepared to do the hernia and reversal for me. As I think I said
> before, I almost died last time so I am afraid as well to have the
> hernia's fixed and my tubes reconnected. .
>
> It's always worth getting a second or even third opinion.
>
> How big and where is your hernia? How long have you had it for?
>
> I wish that there was something more constructive that I could say
but
> this is a mystery for me as well......
>
> I plan to start the process early next year (after I have lost 20Kg
as
> well) - I am over 50 so there is a greater theoretical risk involved
> with that as well........ ..
>
> Oh well, enjoy life for now
>
> Andre
>
>
>
>
>
> ___________________________________________________________
> Yahoo! For Good helps you make a difference
>
> http://uk.promotions.yahoo.com/forgood/
>
hi
i have had the for about a year and it just got larger over time
i would say it the size of a half a small melon
its on my lhs about inline with my belly button
at the moment its just a waiting game to see the surgen hopefully
this one will be a more helpful the other one i saw yesterday was no
help at all
will let you all know what i find out when i see him
thanks for all your help
mick
-- In ukostomysupport@yahoogroups.com, "Andre" <andre_du_bois@...>
wrote:
>
> Hi Mick (and the rest of you guys),
>
> Not good news :( I am afraid that I am in the same position as you,
> however, I saw a consultant a couple of years back now and he was
> prepared to do the hernia and reversal for me. As I think I said
> before, I almost died last time so I am afraid as well to have the
> hernia's fixed and my tubes reconnected..
>
> It's always worth getting a second or even third opinion.
>
> How big and where is your hernia? How long have you had it for?
>
> I wish that there was something more constructive that I could say
but
> this is a mystery for me as well......
>
> I plan to start the process early next year (after I have lost 20Kg
as
> well) - I am over 50 so there is a greater theoretical risk involved
> with that as well..........
>
> Oh well, enjoy life for now
>
> Andre
>
This is norman's wife - Jean. norman is in hospital - and I've been checking his emails. I did not want you to think that you are being ignored. I am sure he will catch up with everyone when he can.
----- Original Message ---- From: Andre <andre_du_bois@...> To: ukostomysupport@yahoogroups.com Sent: Tuesday, 15 April, 2008 12:20:06 PM Subject: [UK Ostomy Support ] Re: hernia
Hi Mick (and the rest of you guys),
Not good news :( I am afraid that I am in the same position as you, however, I saw a consultant a couple of years back now and he was prepared to do the hernia and reversal for me. As I think I said before, I almost died last time so I am afraid as well to have the hernia's fixed and my tubes reconnected. .
It's always worth getting a second or even third opinion.
How big and where is your hernia? How long have you had it for?
I wish that there was something more constructive that I could say but this is a mystery for me as well......
I plan to start the process early next year (after I have lost 20Kg as well) - I am over 50 so there is a greater theoretical risk involved with that as well........ ..
Hi Mick (and the rest of you guys),
Not good news :( I am afraid that I am in the same position as you,
however, I saw a consultant a couple of years back now and he was
prepared to do the hernia and reversal for me. As I think I said
before, I almost died last time so I am afraid as well to have the
hernia's fixed and my tubes reconnected..
It's always worth getting a second or even third opinion.
How big and where is your hernia? How long have you had it for?
I wish that there was something more constructive that I could say but
this is a mystery for me as well......
I plan to start the process early next year (after I have lost 20Kg as
well) - I am over 50 so there is a greater theoretical risk involved
with that as well..........
Oh well, enjoy life for now
Andre