----- Original Message -----

From: phsonksen@...

To: ukostomysupport@yahoogroups.com

Sent: Saturday, June 14, 2008 8:07 PM

Subject: Re: [UK Ostomy Support ] gall stones

Ian

 

With laparascopic surgery by a bloke who knows what he's doing it should be quite straightforward but the presence of gall stones is not usually an indication for surgery - have they told you why they need to be removed? There is medical treatment that dissolves them - ask about that?

 

Best wishes

Peter

 

Peter C4/5 incomplete - just walking short distances with Rollator
72 skiing accdent in Utah 27/12/2002. Urostomy for bladder cancer 5/2004. Retired physician, Winchester UK.

---

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Hi girls its so refreshing to hear from people with a similar
outlook on life.  It doesnt end with a colostomy or illeostomy it
just changes( so dont be afraid of mirrors, your body is just as
good as it was before just different) and anyone who says it doesnt
cant see the wood for the trees but to be able to accept it and
carry on is a gift anyone can get.  Judy dont worry about not being
in a relationship I'm sure someone will come along soon and wham
there you go. I dont have a pouch but my husband does and I have
been there with him all the way.  One of his brother's once said
that if his wife got what my husband had he would leave her to which
I replied he didnt love her then, guess who got divorced a few years
later!and it wasnt us. All our children and grandchildren understand
and we often laugh about it misbehaving. Its not the illeostomy that
stops my husband(Dick)going to work but the severe osteoarthritus,
so he has become a house husband while I go to work.  I am so
furtunate to be married to a man like Dick because I have nothing to
do when I get home from work (12hr shifts). Good luck to you all
          Rachel



-- In ukostomysupport@yahoogroups.com, JUDY BOATWRIGHT <jboat55@...>
wrote:
>
> Amen to that Sue. I had my rectum removed in Jan of 99 due to
cancer. When I woke from surgery there it was....colostomy bag!
What Now!  well only answer I could come up with was" deal with it".
So I began to educate my self and do the best I could. No, I don't
love mirrors. I'm not in a relationship right now but I'm looking.
Life is good! I've seen my granddaughter marry and just last week I
saw another graduate high school. The bag doesn't consume my life,
in fact many times I forget it's even there. It doesn't stop me from
enjoying any activity I want to do. Well, I could go on but let me
just say once more...LIFE IS GOOD!        judy
>
> SUE sc_3379 <sc_3379@...> wrote:              Hello All,
>        I am an Iliostomate for over 20yrs. (I don't keep track of
exactly how long I have had it.) I am blessed because of it. I would
not be here to watch my Grandkids grow up or have seen my kids grow
up. Like it was said below once you have the anus removed. there is
no reversal, atleast not til they come up with a design of a
mechinism that will work like one. I am doing some thinking on it.
There has to be a way. Look, they have a artificial heart! Anyone
have any Idea's. Let me know
>         I have only had about 5 blockages since I have had a total
colectomy. I think thats pretty good. I can remember them all and
avoid those foods or chew alot better. What I am saying is, "Be
thankful you are alive!"
>
>
>   ----- Original Message ----
> From: rachel622650 <newton646@...>
> To: ukostomysupport@yahoogroups.com
> Sent: Tuesday, May 27, 2008 3:47:24 PM
> Subject: [UK Ostomy Support ] Re: hernia
>
>     Christine you are a lucky person to be able to demand a
reversal,
> please remember that not all ostomy's are temporary, most are
> permanent. There is also a waiting list for any type of op which
> can compound the problem, and round here there are ways to go
> through before the docs even think about ops.
> Once again please think about other people who may not be as lucky
> as you and also new ostomists who may not have come to terms with
> their new body image yet but read these letters and become
convinced
> the docs have told them wrong because someone said this or that.
> Basically if your anus is removed you cannot have a reversal.
> My husband has had an illeostomy for 13 yrs,went back to work and
> had parastomal hernias, twisted bowels (where the bowel in the
> hernia twists and stops working) and everything else, just about,
> that life can throw at him, he now is on fentanyl patches for pain
> relief and hes only 54 which is not that old, depends on your
> outlook and willpower really
> from a loving wife
> Rach
>
> --- In ukostomysupport@ yahoogroups. com, christine rooney
> <silver_spoon50@ ...> wrote:
> >
> > hi im christine from liverpool uk ,i developed a parastomil
> hernia ,and was in agony,i went in hospital and asked for a
reversal
> while i was there which they done,it was a realy bad experience
for
> me but thank god i got out after 13 days without getting mrsa ,any
> one who wants to ask me about the opp is free to add me to there
> list ..silver_spoon50 psits 4 weeks today but my wounds still need
> dressing every day ,i think it was much easier getting the
iliostomy
> than the reversal and hernia repair.im 46 by the way so im not
that
> young lol.every pain i get now i think omg my colon wats left of
> it.okbye for now christine.
> >
> > ----- Original Message ----
> > From: Stewart <globetrotteruk@ ...>
> > To: ukostomysupport@ yahoogroups. com
> > Sent: Monday, 31 March, 2008 9:13:54 AM
> > Subject: [UK Ostomy Support ] Re: hernia
> >
> >
> > Hi Mick, Sorry to hear about your probs with the hernias. There
is
> a
> > scheme for hernia repairs which involves strengthening the
damages
> area
> > with a type of man made mesh.......This is being replaced with a
> mesh
> > made from our friend the pig. Perhaps you should ask your
surgeon
> if
> > that might be available for you.
> > Stew/Globetrotteruk
> >
> >
> >
> >
> > ____________ _________ _________ _________ _________ _________ _
> > Sent from Yahoo! Mail.
> > A Smarter Email http://uk.docs. yahoo.com/ nowyoucan. html
> >
>

Hello All,

     I am an Iliostomate for over 20yrs. (I don't keep track of exactly how long I have had it.) I am blessed because of it. I would not be here to watch my Grandkids grow up or have seen my kids grow up. Like it was said below once you have the anus removed. there is no reversal, atleast not til they come up with a design of a mechinism that will work like one. I am doing some thinking on it. There has to be a way. Look, they have a artificial heart! Anyone have any Idea's. Let me know

      I have only had about 5 blockages since I have had a total colectomy. I think thats pretty good. I can remember them all and avoid those foods or chew alot better. What I am saying is, "Be thankful you are alive!"

----- Original Message ----
From: rachel622650 <newton646@btinternet.com>
To: ukostomysupport@yahoogroups.com
Sent: Tuesday, May 27, 2008 3:47:24 PM
Subject: [UK Ostomy Support ] Re: hernia

Christine you are a lucky person to be able to demand a reversal,
please remember that not all ostomy's are temporary, most are
permanent. There is also a waiting list for any type of op which
can compound the problem, and round here there are ways to go
through before the docs even think about ops.
Once again please think about other people who may not be as lucky
as you and also new ostomists who may not have come to terms with
their new body image yet but read these letters and become convinced
the docs have told them wrong because someone said this or that.
Basically if your anus is removed you cannot have a reversal.
My husband has had an illeostomy for 13 yrs,went back to work and
had parastomal hernias, twisted bowels (where the bowel in the
hernia twists and stops working) and everything else, just about,
that life can throw at him, he now is on fentanyl patches for pain
relief and hes only 54 which is not that old, depends on your
outlook and willpower really
from a loving wife
Rach

--- In ukostomysupport@ yahoogroups. com, christine rooney
<silver_spoon50@ ...> wrote:
>
> hi im christine from liverpool uk ,i developed a parastomil
hernia ,and was in agony,i went in hospital and asked for a reversal
while i was there which they done,it was a realy bad experience for
me but thank god i got out after 13 days without getting mrsa ,any
one who wants to ask me about the opp is free to add me to there
list ..silver_spoon50 psits 4 weeks today but my wounds still need
dressing every day ,i think it was much easier getting the iliostomy
than the reversal and hernia repair.im 46 by the way so im not that
young lol.every pain i get now i think omg my colon wats left of
it.okbye for now christine.
>
> ----- Original Message ----
> From: Stewart <globetrotteruk@ ...>
> To: ukostomysupport@ yahoogroups. com
> Sent: Monday, 31 March, 2008 9:13:54 AM
> Subject: [UK Ostomy Support ] Re: hernia
>
>
> Hi Mick, Sorry to hear about your probs with the hernias. There is
a
> scheme for hernia repairs which involves strengthening the damages
area
> with a type of man made mesh.......This is being replaced with a
mesh
> made from our friend the pig. Perhaps you should ask your surgeon
if
> that might be available for you.
> Stew/Globetrotteruk
>
>
>
>
> ____________ _________ _________ _________ _________ _________ _
> Sent from Yahoo! Mail.
> A Smarter Email http://uk.docs. yahoo.com/ nowyoucan. html
>

Christine you are a lucky person to be able to demand a reversal,
please remember that not all ostomy's are temporary, most are
permanent.  There is also a waiting list for any type of op which
can compound the problem, and round here there are ways to go
through before the docs even think about ops.
  Once again please think about other people who may not be as lucky
as you and also new ostomists who may not have come to terms with
their new body image yet but read these letters and become convinced
the docs have told them wrong because someone said this or that.
Basically if your anus is removed you cannot have a reversal.
  My husband has had an illeostomy for 13 yrs,went back to work and
had parastomal hernias, twisted bowels (where the bowel in the
hernia twists and stops working) and everything else, just about,
that life can throw at him, he now is on fentanyl patches for pain
relief and hes only 54 which is not that old, depends on your
outlook and willpower really
       from a loving wife
                          Rach



--- In ukostomysupport@yahoogroups.com, christine rooney
<silver_spoon50@...> wrote:
>
> hi im christine from liverpool uk ,i developed a parastomil
hernia ,and was in agony,i went in hospital and asked for a reversal
while i was there which they done,it was a realy bad experience for
me but thank god i got out after 13 days without getting mrsa ,any
one who wants to ask me about the opp is free to add me to there
list ..silver_spoon50 psits 4 weeks today but my wounds still need
dressing every day ,i think it was much easier getting the iliostomy
than the reversal and hernia repair.im 46 by the way so im not that
young lol.every pain i get now i think omg my colon wats left of
it.okbye for now christine.
>
> ----- Original Message ----
> From: Stewart <globetrotteruk@...>
> To: ukostomysupport@yahoogroups.com
> Sent: Monday, 31 March, 2008 9:13:54 AM
> Subject: [UK Ostomy Support ] Re: hernia
>
>
> Hi Mick, Sorry to hear about your probs with the hernias. There is
a
> scheme for hernia repairs which involves strengthening the damages
area
> with a type of man made mesh.......This is being replaced with a
mesh
> made from our friend the pig. Perhaps you should ask your surgeon
if
> that might be available for you.
> Stew/Globetrotteruk
>
>
>
>
>       __________________________________________________________
> Sent from Yahoo! Mail.
> A Smarter Email http://uk.docs.yahoo.com/nowyoucan.html
>

--- In ukostomysupport@yahoogroups.com, "Den" <denaced@...> wrote:
>ello iv just had a reversal after havindg a iliostomy ,i developed a
parastomial hernia ,thenx for the news on codine as im on them now so
i thought time to come down and off the dosage,been thru a lot with
my bowels,twisting and all that nice chat has anyone else had a
reversal.christine
> --- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@>
> wrote:
> >
> > Just come out of hospital after a cartelidge repair on my
knee.The op
> > went well and recovery was quick but what I hadn't prepared
myself
> for
> > was the how the painkillers would affect me. I was on Co codamyl
and
> > Tremadol. I know codiene can cause constipation but having no
large
> > bowel that wouldn't be a problem.......How wrong can you be!!!!???
> > My small intestine went to sleep.........nothing passing
through .It
> > had all the symptoms of a severe blockage but with no cramps.
Don't
> > you just love projectile vomiting??? I thought I'd pass this on ,
> this
> > ostomy thing is a never ending learning curve. We have to
remember
> many
> > GP's out there are new to it so the more we know the better.
> > Apart from feeling completely washed out I'm on the road to
recovery!!
> >
>
>
> I take co-dydramol most days for quite severe sciatica and although
i
> lost about nine inches of colon and have had a colostomy now for
about
> four years i've never had a problem with constipation because of my
> tablets so i guess everyone is not effected the same.
> Den
> xDx
>

--- In ukostomysupport@yahoogroups.com, "Den" <denaced@...> wrote:
>ello iv just had a reversal after havindg a iliostomy ,i developed a
parastomial hernia ,thenx for the news on codine as im on them now so
i thought time to come down and off the dosage,been thru a lot with
my bowels,twisting and all that nice chat has anyone else had a
reversal.christine
> --- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@>
> wrote:
> >
> > Just come out of hospital after a cartelidge repair on my
knee.The op
> > went well and recovery was quick but what I hadn't prepared
myself
> for
> > was the how the painkillers would affect me. I was on Co codamyl
and
> > Tremadol. I know codiene can cause constipation but having no
large
> > bowel that wouldn't be a problem.......How wrong can you be!!!!???
> > My small intestine went to sleep.........nothing passing
through .It
> > had all the symptoms of a severe  blockage but with no cramps.
Don't
> > you just love projectile vomiting??? I thought I'd pass this on ,
> this
> > ostomy thing is a never ending learning curve. We have to
remember
> many
> > GP's out there are new to it so the more we know the better.
> > Apart from feeling completely washed out I'm on the road to
recovery!!
> >
>
>
> I take co-dydramol most days for quite severe sciatica and although
i
> lost about nine inches of colon and have had a colostomy now for
about
> four years i've never had a problem with constipation because of my
> tablets so i guess everyone is not effected the same.
> Den
> xDx
>

--- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@...>
wrote:
>
> Ah we're all different Den, amazing how we all react differently to
> various drugs.
> Stew /Globey
>
yes mate how right you are and i'm not sure about you but strange how
we change over the years something that didn't effect us a few years
ago do now
Den

Do you live in Cornwall? Sat 26th of April at Carnon Downs Vilage Hall
the AGM of Cornwall IA will be taking place.
  Refreshments will be available.( non alcoholic of course)
Anne Demic the Chair of National IA will be attending all the way from
Ireland. Anne will be giving a talk.Subject unknown but I'm sure it'll
be entertaining.
If you're in the area pop in.....Tell 'em I invited you.........!
Stew/Globey

Ah we're all different Den, amazing how we all react differently to
various drugs.
Stew /Globey

--- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@...>
wrote:
>
> Just come out of hospital after a cartelidge repair on my knee.The op
> went well and recovery was quick but what I hadn't prepared myself
for
> was the how the painkillers would affect me. I was on Co codamyl and
> Tremadol. I know codiene can cause constipation but having no large
> bowel that wouldn't be a problem.......How wrong can you be!!!!???
> My small intestine went to sleep.........nothing passing through .It
> had all the symptoms of a severe  blockage but with no cramps. Don't
> you just love projectile vomiting??? I thought I'd pass this on ,
this
> ostomy thing is a never ending learning curve. We have to remember
many
> GP's out there are new to it so the more we know the better.
> Apart from feeling completely washed out I'm on the road to recovery!!
>


I take co-dydramol most days for quite severe sciatica and although i
lost about nine inches of colon and have had a colostomy now for about
four years i've never had a problem with constipation because of my
tablets so i guess everyone is not effected the same.
Den
xDx

Just come out of hospital after a cartelidge repair on my knee.The op
went well and recovery was quick but what I hadn't prepared myself for
was the how the painkillers would affect me. I was on Co codamyl and
Tremadol. I know codiene can cause constipation but having no large
bowel that wouldn't be a problem.......How wrong can you be!!!!???
My small intestine went to sleep.........nothing passing through .It
had all the symptoms of a severe  blockage but with no cramps. Don't
you just love projectile vomiting??? I thought I'd pass this on , this
ostomy thing is a never ending learning curve. We have to remember many
GP's out there are new to it so the more we know the better.
Apart from feeling completely washed out I'm on the road to recovery!!

No problem Jean, thanks for lettin  us know. I hope he's feeling
better soon.
Stew/Globey





--- In ukostomysupport@yahoogroups.com, Norman Dale <norman.dale@...>
wrote:
>
> This is norman's wife - Jean. norman is in hospital - and I've been
checking his emails. I did not want you to think that you are being
ignored. I am sure he will catch up with everyone when he can.
>
>
>
> ----- Original Message ----
> From: Andre <andre_du_bois@...>
> To: ukostomysupport@yahoogroups.com
> Sent: Tuesday, 15 April, 2008 12:20:06 PM
> Subject: [UK Ostomy Support ] Re: hernia
>
> Hi Mick (and the rest of you guys),
>
> Not good news :( I am afraid that I am in the same position as you,
> however, I saw a consultant a couple of years back now and he was
> prepared to do the hernia and reversal for me. As I think I said
> before, I almost died last time so I am afraid as well to have the
> hernia's fixed and my tubes reconnected. .
>
> It's always worth getting a second or even third opinion.
>
> How big and where is your hernia? How long have you had it for?
>
> I wish that there was something more constructive that I could say
but
> this is a mystery for me as well......
>
> I plan to start the process early next year (after I have lost 20Kg
as
> well) - I am over 50 so there is a greater theoretical risk involved
> with that as well........ ..
>
> Oh well, enjoy life for now
>
> Andre
>
>
>
>
>
>       ___________________________________________________________
> Yahoo! For Good helps you make a difference
>
> http://uk.promotions.yahoo.com/forgood/
>

hi

i have had the for about a year and it just got larger over time
i would say it the size of a half a small melon
its on my lhs about inline with my belly button

at the moment its just a waiting game to see the surgen hopefully
this one will be a more helpful the other one i saw yesterday was no
help at all

will let you all know what i find out when i see him

thanks for all your help

mick

-- In ukostomysupport@yahoogroups.com, "Andre" <andre_du_bois@...>
wrote:
>
> Hi Mick (and the rest of you guys),
>
> Not good news :( I am afraid that I am in the same position as you,
> however, I saw a consultant a couple of years back now and he was
> prepared to do the hernia and reversal for me. As I think I said
> before, I almost died last time so I am afraid as well to have the
> hernia's fixed and my tubes reconnected..
>
> It's always worth getting a second or even third opinion.
>
> How big and where is your hernia? How long have you had it for?
>
> I wish that there was something more constructive that I could say
but
> this is a mystery for me as well......
>
> I plan to start the process early next year (after I have lost 20Kg
as
> well) - I am over 50 so there is a greater theoretical risk involved
> with that as well..........
>
> Oh well, enjoy life for now
>
> Andre
>

Hi Mick (and the rest of you guys),

Not good news :( I am afraid that I am in the same position as you,
however, I saw a consultant a couple of years back now and he was
prepared to do the hernia and reversal for me. As I think I said
before, I almost died last time so I am afraid as well to have the
hernia's fixed and my tubes reconnected..

It's always worth getting a second or even third opinion.

How big and where is your hernia? How long have you had it for?

I wish that there was something more constructive that I could say but
this is a mystery for me as well......

I plan to start the process early next year (after I have lost 20Kg as
well) - I am over 50 so there is a greater theoretical risk involved
with that as well..........

Oh well, enjoy life for now

Andre

hi

i am after a bit more info on the operation

i had a colostomy on the RHS untill it prolapsted then they moved it
to the LHS which now has a large hernia there

i have seen a consutant today but from what he was saying its a big
operation with lots of complications and may even die so he as
refured me to the surgen who did the second colostomy

dose that sound right to you or is it that consutant/surgen i saw
today didnt wont to do it

i know if i go ahead with it it will be my 3rd operation so there
will be risks and at the moment i dont know what to do

i would like to get rid of the hernia but is the price to high

sorry about the spelling

hope to here from you soon
mick

Hi Mick, Sorry to hear about your probs with the hernias. There is a
scheme for hernia repairs which involves strengthening the damages area
with a type of man made mesh.......This is being replaced with a mesh
made from our friend the pig. Perhaps you should ask your surgeon if
that might be available for you.
Stew/Globetrotteruk

hi

i have a colostomy and i have a large ish hernia there too

can they repair the hernia or will it have to be resited

it has been resited from rhs to lhs after my guts ended in my bag

is the operation a big one to repair it

here from you soon

mick

National winner of the Law Society's
"Excellence in Practice Standards" Award 2007

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--- In ukostomysupport@yahoogroups.com, "Wayne R. Adkins"
<greenlantern108@...> wrote:
>
> hi wayne i have a iliostomy thru having a twisted bowel.your ok i get
that discharge from rectrum its just mucus build up hope  you get my
e.maail .if you want to chat i am on msn .liamlee07@...
be nice to have a friend with same probs .bye for now christine england

> I'm seeking the advice/insight of any ostomates who still have the
> rectal portion of their digestive tracts. I had an emergency ostomy
> 5+ years ago when my large intestine burst due to crohn's disease. I
> had the majority of my tranverse & descending colon removed, but i
> still have the sigmoid colon & rectum (though non-functoinal). In the
> past 5 years, I have had occasional discharge from from my rectum,
> but more recently it has become an almost daily experience. Anyone
> out there with similar experience? If so, please write me at
> greenlantern108@... Wayne
>

--- In ukostomysupport@yahoogroups.com, "rachel622650" <newton646@...>
wrote:
>Hi Rachel, all I can say is keep badgering the Doctors, I had a
urostomy two years ago, and recently I have had a pain in my ankle and
in my calf, after a lot of junping up and down screaming, I was sent to
the Marsden where they found the trouble was another tumour, I am now
having radio therepy on it to shrink it, so dont be put off you must
find out for sure what it is.
Happy new year to all you ostomates.

> Hi all another new member here. My hubby has had an ileostomy for 12
> yrs but what is troubling him now is the pains in his joints and
legs,
> has anyone else had anything like this? we know a form of reactive
> arthritis is associated with uc but the docs are reluctant to accept
> this. Any info would be helpful
>

Hi all another new member here. My hubby has had an ileostomy for 12
yrs but what is troubling him now is the pains in his joints and legs,
has anyone else had anything like this? we know a form of reactive
arthritis is associated with uc but the docs are reluctant to accept
this. Any info would be helpful