--- In ukostomysupport@yahoogroups.com, "Wayne R. Adkins"
<greenlantern108@...> wrote:
>
> hi wayne i have a iliostomy thru having a twisted bowel.your ok i get
that discharge from rectrum its just mucus build up hope  you get my
e.maail .if you want to chat i am on msn .liamlee07@...
be nice to have a friend with same probs .bye for now christine england

> I'm seeking the advice/insight of any ostomates who still have the
> rectal portion of their digestive tracts. I had an emergency ostomy
> 5+ years ago when my large intestine burst due to crohn's disease. I
> had the majority of my tranverse & descending colon removed, but i
> still have the sigmoid colon & rectum (though non-functoinal). In the
> past 5 years, I have had occasional discharge from from my rectum,
> but more recently it has become an almost daily experience. Anyone
> out there with similar experience? If so, please write me at
> greenlantern108@... Wayne
>

--- In ukostomysupport@yahoogroups.com, "rachel622650" <newton646@...>
wrote:
>Hi Rachel, all I can say is keep badgering the Doctors, I had a
urostomy two years ago, and recently I have had a pain in my ankle and
in my calf, after a lot of junping up and down screaming, I was sent to
the Marsden where they found the trouble was another tumour, I am now
having radio therepy on it to shrink it, so dont be put off you must
find out for sure what it is.
Happy new year to all you ostomates.

> Hi all another new member here. My hubby has had an ileostomy for 12
> yrs but what is troubling him now is the pains in his joints and
legs,
> has anyone else had anything like this? we know a form of reactive
> arthritis is associated with uc but the docs are reluctant to accept
> this. Any info would be helpful
>

Hi all another new member here. My hubby has had an ileostomy for 12
yrs but what is troubling him now is the pains in his joints and legs,
has anyone else had anything like this? we know a form of reactive
arthritis is associated with uc but the docs are reluctant to accept
this. Any info would be helpful

Hope you can get this.  It's pretty nice.

 

PLEASE KEEP THIS GOING WITHIN YOUR ADDRESS BOOK.........xoxoxox    All you are asked to do is keep this circulating. Even if it's to one more person.  In memory of anyone you know that has been struck down by cancer.                                                   A Candle Loses Nothing by Lighting Another Candle. Please Keep This Candle Going! This one I do ask that you send on     Thank you No virus found in this outgoing message. Checked by AVG Free Edition.

 

I also use a convatec pouch and find the stomahesive base wonderful for
my skin so I suggest you try a  stomahesive weafer by convatec under
your appliance or just place some around the area of itching.  You will
find that stomahesive is really healing for the skin.  In Australia we
can get stomahesive wafers 10 cm x 10 cm order no 21712.  I find them
invaluable to have on hand.
--- In ukostomysupport@yahoogroups.com, christine rooney
<silver_spoon50@...> wrote:
>
> hi ian.i have itching ,but theres a stuff called cavilon,there like
lolipops and you rub them round the skin before applying the
pouche...christine.
>
> Ian scoz34@... wrote: Someone please help.
> I use the convatec pouch and flange which has the micropore around the
> hydrocoloid. If I try to use a different pouch with a smaller adhesive
> area the area that used to be covered by the larger flange begins
> itching within 15 minutes of being exposed to the air. The itch is so
> bad thatI have to revert to my original pouches just to stop the itch.
> I could understand if the area had been contaminated with faeces but
> it is not. Has anyone any remedies to stop this severe itching has it
> drives me mad.
>
>
>
>
>
>
> ---------------------------------
> For ideas on reducing your carbon footprint visit Yahoo! For Good this
month.
>

Someone please help.
I use the convatec pouch and flange which has the micropore around the
hydrocoloid. If I try to use a different pouch with a smaller adhesive
area the area that used to be covered by the larger flange begins
itching within 15 minutes of being exposed to the air. The itch is so
bad thatI have to revert to my original pouches just to stop the itch.
I could understand if the area had been contaminated with faeces but
it is not. Has anyone any remedies to stop this severe itching has it
drives me mad.

I don't quite understand but why don't you use the Convetec pouch? Is it
the pouch touching your skin that causes the itching?
----- Original Message -----
From: "Ian " <scoz34@tiscali.co.uk>
To: <ukostomysupport@yahoogroups.com>
Sent: Sunday, July 01, 2007 2:46 PM
Subject: [UK Ostomy Support ] itching

> Someone please help.
> I use the convatec pouch and flange which has the micropore around the
> hydrocoloid. If I try to use a different pouch with a smaller adhesive
> area the area that used to be covered by the larger flange begins
> itching within 15 minutes of being exposed to the air. The itch is so
> bad thatI have to revert to my original pouches just to stop the itch.
> I could understand if the area had been contaminated with faeces but
> it is not. Has anyone any remedies to stop this severe itching has it
> drives me mad.
>
>
>
> Please do not post any links to commercial sites.This will get you banned.
> Yahoo! Groups Links
>
>
>
>

Main Chat is Saturday 8pm UK Time which converts to:

2pm US Central (Saturday)
12pm US Pacific
3pm US Eastern
5am Sydney (Sunday)
3am Perth

All ostomates welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Want to chat another time? The room is open 24/7 and is usually
busy.

Online clock to help with those time zones!!
Now you can check what time it is in the UK:
http://www.ostomylinks.co.uk/chattimes.html

If you have a serious ostomy support question please do not hesitate
to ask us. We'll stop fooling around and support you as best as we
can. Its a fun, friendly atmosphere in here, but we all know the
seriousness of the ostomy topics. We respect that this room is here
to support everyone and their ostomy needs.

=========

To join Ostomyland via java go to:
http://www.ostomysupport.info/chat.html (Jason's page)

which is on Jason's Living With a Colostomy Website:
http://www.ostomysupport.info

Or http://www.autoimmunity.co.uk/chat/ostomyland2.html (Kathy's back
up page)

and join us in the ostomyland chat room from there. A free-to-use
Java Client is embedded into the page that is dead easy to use.
Nothing to download.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect to Ostomyland:

Server: irc.fef.net
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now
available which will take people directly to the new channel on the
new server. The download link can be found at:
http://ostomyland.com/mircfef/mirc_ostomyland_fef_v62.exe

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join.

=========

We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help.

http://www.ostomylinks.co.uk/chathelp14.html

=========

Wrong time-zone for you? We usually get a small group in 6pm - 9pm
Perth (Australia) time, 11am - 2pm UK time on SUNDAY.
- come and join us.

=========

The channel is open 24/7 for general chit chat or ostomy talk
during the week.
If it's quiet, stay a while - someone else may join the room soon.

=========

Look forward to seeing you in the meeting Saturday night, the
weekend or later on in the week.

Shaz :)

http://www.ostomates.org

What wonderful news!   There is life after... most everything.  I'm very happy life didn't end for you and in fact, seems to be blossoming! 

----- Original Message -----

From: bernie brennan

To: ukostomysupport@yahoogroups.com

Sent: Wednesday, August 22, 2007 8:27 PM

Subject: [UK Ostomy Support ] hello all

I haven't been on this site for along time as I had a lot of ups and downs in my personal life but I thought I would share my good news. My husband of 23 years had an affair and we  separated two years ago and I was completely devastated. I got so depressed I wished that life would end for me.

 

But in the last couple of months I met the most wonderful man. Of course the worry was there of when should I tell him about my iliostomy which I have had now for seven years. After our third date I was getting very fond of him so I decided to tell him then. He took it so well. Felt very sorry I had been so ill the iliostomy itself came secondary to him. He was very interested in the plumbing of it!!  we now have a very loving and sexual relationship and I am so happy. Even if things don't work out for us he has given me so much confidence in myself and my idea of body image.

So arent I lucky at the age of 49 to have met the most caring, gorgeous and very sexy man.

So there is hope for us all after all

Lori <Lkin@...> wrote:

Hello, have you tried contacting the companies that you get your
supplies from? Like Hollister..
I had issues witht he bag breaking open too often and wrote them an
email,
they sent me new bags and supplies in return.
Maybe someone from the company might have an answer for you..
they want to sell the supplies, they must have a support system there.
Lori
--- In ukostomysupport@yahoogroups.com, tracy607336 <no_reply@...>
wrote:
>
> Hi,
> I was wondering if anyone out there has a solution for a retracted
> urostomy. Was at my Consultant the other day who has said he is

---

For ideas on reducing your carbon footprint visit Yahoo! For Good this month.

So there is hope for us all after all

Lori <Lkin@...> wrote:

Hello, have you tried contacting the companies that you get your
supplies from? Like Hollister..
I had issues witht he bag breaking open too often and wrote them an
email,
they sent me new bags and supplies in return.
Maybe someone from the company might have an answer for you..
they want to sell the supplies, they must have a support system there.
Lori
--- In ukostomysupport@yahoogroups.com, tracy607336 <no_reply@...>
wrote:
>
> Hi,
> I was wondering if anyone out there has a solution for a retracted
> urostomy. Was at my Consultant the other day who has said he is

Hello, have you tried contacting the companies that you get your
supplies from? Like Hollister..
I had issues witht he bag breaking open too often and wrote them an
email,
they sent me new bags and supplies in return.
Maybe someone from the company might have an answer for you..
they want to sell the supplies, they must have a support system there.
Lori
--- In ukostomysupport@yahoogroups.com, tracy607336 <no_reply@...>
wrote:
>
> Hi,
> I was wondering if anyone out there has a solution for a retracted
> urostomy. Was at my Consultant the other day who has said he is

There are 315 members in this group?! My goodness, all the support I
can stand! Thank you for letting me join!
Lori

I have been living in Australia for 50 years and I am visiting
Blackpool (my birth place) in a few weeks.  I was wondering if there
are any ostomy meetings in that area.  I would appreciate any
information.

Thanking you,

Jean

Hi Ian....I understand what you say about the itching but I think
that's the micropore flange that causes it.I had the same problem some
years ago and still do occasionally.

I still use convatec two piece and it works for me.If you do have a
bad period of itching you can use a convatec flange made totally of
hydrocoloid matterial. This usually calm things down so you can return
to the normal system.

I wondered why you would want to change your appliance, is there some
other problem with it?

Stewart/Globey

I don't quite understand but why don't you use the Convetec pouch?  Is it
the pouch touching your skin that causes the itching?
----- Original Message -----
From: "Ian " <scoz34@...>
To: <ukostomysupport@yahoogroups.com>
Sent: Sunday, July 01, 2007 2:46 PM
Subject: [UK Ostomy Support ] itching


> Someone please help.
> I use the convatec pouch and flange which has the micropore around the
> hydrocoloid. If I try to use a different pouch with a smaller adhesive
> area the area that used to be covered by the larger flange begins
> itching within 15 minutes of being exposed to the air. The itch is so
> bad thatI have to revert to my original pouches just to stop the itch.
> I could understand if the area had been contaminated with faeces but
> it is not. Has anyone any remedies to stop this severe itching has it
> drives me mad.
>
>
>
> Please do not post any links to commercial sites.This will get you banned.
> Yahoo! Groups Links
>
>
>
>

Someone please help.
I use the convatec pouch and flange which has the micropore around the
hydrocoloid. If I try to use a different pouch with a smaller adhesive
area the area that used to be covered by the larger flange begins
itching within 15 minutes of being exposed to the air. The itch is so
bad thatI have to revert to my original pouches just to stop the itch.
I could understand if the area had been contaminated with faeces but
it is not. Has anyone any remedies to stop this severe itching has it
drives me mad.

Apologies for the delay in approving your jouning the group but I've
been on hols for a few days.
Also to the new members check out the links there will probably be
something of interest to you in there.
Don't restrict your self to one group,join as many as you
can.......there's lots of info out there.
Take Care

Globey/Stewart

Hello Groupies,
You don't often hear from me but I am lurking in the background.

We have a lady new to the group who is having a problem with a
parastomal hernia. If there's anyone out there who has had experience
of this condition,can you look in and see if you can offer your
experiences with a view to helping Kathy.

Thanks
Stew/Globey

Hi Kathy,
Sorry to hear you're having such a bad time of it.Para stomal hernias
can be such a difficult problem to deal with.

Can you tell us what part of the world you live in,one of our
publications in the UK did an article on para stomal hernias.Where are
you Kathy?
Stew/globey

Hi Kathy,
  Sorry to hear you're having such a bad time of it.Para stomal hernias
can be such a difficult problem to deal with.

Can you tell us what part of the world you live in,one of our
publications in the UK did an article on para stomal hernias.Where are
you Kathy?
Stew/globey

----- Original Message -----

From: kathy torpey

To: ukostomysupport@yahoogroups.com

Sent: Sunday, April 29, 2007 9:47 AM

Subject: [UK Ostomy Support ] parastomal hernia

I am having

uble

I have had an ileostomy since 1985 with a few problems but I had been completely well since 1988 until recently

My doctor said I had a parastomal hernia

He operated and the very next day had to operate again

He told me to be very careful in the future

I feel like a cripple

Now he has told me that I have another hernia

He said that he will not operate unless I start having problems

I have had 6 bowel surgeries in the 80s

2 hernia surgeries in novembeer 06 and 3 ceaseareans in the 60s and 70s

He said that I should not have surgery and come back in 3 months

I am afraid

 

Kathy

---

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