ukostomysupport : Messages : 7849-7908 of 8106

MERRY CHRISTMAS TO ALL AND A VERY BLESSED HAPPY NEW YEAR

HUGSSS, LOVE AND KISSES

YOU ALL HAVE BEEN MISSED BUT IN OUR HEARTS AND PRAYERS

"Worry looks around, sorry looks back, Faith looks up."

3 angels are sent to you.

Have faith

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#7897

From: Helen Garratt <babeof71@...>
Date: Wed Oct 25, 2006 7:23 pm
Subject: Re: [UK Ostomy Support ] Re:For Shay

babeof71

Offline

Hi Shay

Here's Ernies list. Hope it helps. Am so glad you got
through your surgery without problems, you must feel
so free, I know I did.

Sudocrem is excellent but try not to use it all the
time. It can reduce the effectiveness when you need it
most (sore bum). I find that wiping with dry, then wet
tissue followed by a quick dry and application of good
old vaseline works fine until I eat something that
causes "the burn".

I'm almost a year post op and still have one or two
off days but in comparison to my past they are little
more than a nuisance.

The list follows. Am not staying on long, have just
done 3and a half hours in the car and am pooped!

Have actually unsubscribed from the group now, you can
get me on babeof71@.... I was just bombarded
with emails and it was driving me mad so now I drop in
once a week or so!

Love
Helen x

Ernies List

I have tried to compile a list of things helpful to
we Jpouchers.  If you
want, please email me your suggestions & I will add to
the list.  If
anything has been a great help to you or has caused
you trouble, let us
know!
Thanks,
Ernie

Skin Barriers

calmoseptine  good but also has lanolin in it
   Burn Jell with 2 % Lidocaine.
Aloe Vista
Desitin
A&D cream with Aloe
Lantiseptic
Lidocaine ointment to stop pain.
Butt Paste
Analpram for more serious stinging inside.  This used
for one to 2 weeks
does much for healing the bowel/pouch after severe
irritation.
Take 6 cod liver oil capsules & squeeze into 1/4 tube
of zinc oxide.  Mix &
spread on butt rash/soreness to heal quickly!  Might
be a little messy but
may be just the thing!
Many people have an allergy to lanolin, which is found
in many
ointments/creams.  If in doubt read the label of all
skin barriers you use.
If after several tries you find the one with lanolin
cause problems, discard
it.
If you use calmoseptine or any other ointment I have
found if I get a carmex
tube empty it out,
and get a medicine syringe (the one with out a needle)
from the pharmacy,
put the your medicine in the syringe and then line it
up with the carmex
tube and squeeze. now you have a travel size
medicine tube that fits in your pocket.  If you use a
powder you can put it
in an eye dropper it works great.    Jami

foods that are usually okay
Bananas are about the best food.
Tapioca, Cornmeal, Applesauce, not spiced,
Marshmallows, Pretzels
white Rice, Jell-O,  gelatin, Pasta, Potatoes without
skin, Boiled milk,
Peanut butter (smooth)
Cheese, oatmeal, cooked carrots,winter squash,
yams/sweet tators.
Baked Snack foods are better than deep fried.  The
finer one chews his
foods, especially hard crunchy foods like snack foods,
the better it is.
When not chewed well, some can scratch the inner
lining of the bowel.  Baked
snack foods help absorb the fluid in the bowel where
as the deep fried does
not help as much.
Papaya, Mango, marshmallows
Doritos, not spiced but like the cheesy ones, chewed
well help also.  Many
can enjoy this snack with good benefits.

Foods that may cause burning & more diarrhea

all tomato sauces, spices, chocolate, nuts, raw
vegetables
Alcoholic drinks, orange, lemon, grapefruit, whole or
juice
Remember, this may change as the body adjusts!  After
you begin to feel
that you are doing fine, try one questionable food at
a time & see how it
goes.  Very likely you can get by with a small amount
but may have trouble
if you over do on it.

Things that may cause more butt burn
colored toilet paper, Charmin toilet paper is bad for
some people, harsh
toilet paper, not cleaning well
hot peppers, tomato sauces, nuts, spices, or in other
words, the same as the
list above.

Helpful aids!
Smart water,   may find in local health food stores.
Electrolyte drink,
tastes like water, no sodium
Gatorade
Yellow tomato may be better because it has a lower
acid content in it!
Try some of the high energy bars made for athletes or
Ensure/Boost drinks
Charcoal tablets/capsules may help greatly to relieve
gas discomfort/pain.
Take several hours either before or after taking any
other medication as the
charcoal may latch on the medication, making it not as
strong as it should
be.  But taken otherwise can do a lot to stop gas
pain!
whey protein supplement may help build strength in the
early post surgery
months.  Can be mixed in milk/juice or other..

Do you want to know if your vitamin supplements are
helping you?  Place the
supplement in a glass of water.  If dissolved or
almost dissolved in 1/2
hour, there is a great chance your body will utilize
this supplement.  If
after 1/2 hour the tablet is still whole of mostly
whole, it will not do you
any good, or very little good.

Helpful hints for changing the ostomy bag & for skin
irritations under the
appliance.
Always clean the skin surface thoroughly!
To give more time with less chance for leakage,  eat 2
or 3 large
marshmallows about 15 minutes before changing the
appliance.  This acts to
form a temporary bowel block, allowing a few more
minutes to change the bag.
   If one has a choice, it is best to change the
appliance in the morning,
after a night without food & before eating breakfast.
For skin scalding:
Get a bottle of Milk Of Magnesia.  Let set to allow
separation.  Pour off &
discard the mostly clear liquid.  After the skin
surface is cleaned, take a
cotton ball & dip in some of the thicker Milk of
Magnesia,  (MOM) & gently
dab over all the area that is scalded & or is under
the appliance.  Let
dry.  To speed drying, gently fan with a card, paper
or fan.
After this is dry, only a minute or two, apply the
stoma adhesive & the
appliance as per instructions.
If you are having to change the whole bag appliance
more often than every  5
to 7
days, or if you are getting leakage either out of the
bag or under, causing
scalding, check with your stoma nurse or doctor.  It
may be another type of
appliance will work better for you.  Also, if you are
getting scalding
around the stoma but still the appliance holds well,
it may be the hole has
been cut too large allowing secretion to touch the
tender skin surface.  The
appliance needs to fit snugly around the stoma.

If wearing the iliostomy bag bothers you, there are a
few things you can do.
I found the cargo pants, with the baggy crotch very
useful.  I could pull
the waist of these pants clear up to my rib cage, thus
completely covering
the bag while still not putting any pressure on the
bag or on the appliance.
I used suspenders to hold the pants up high!  I then
wore my shirt on the
outside.  Anyone looking at me only saw me in a pair
of slacks with my shirt
on the outside, thus nothing unusual.  It was a little
more of a bother when
I needed the toilet though, but still worth it.
I also found sweat pants easy to wear because usually
I could bring them up
over the appliance.  For me, I could not wear my jeans
or slacks because
either the belt would push up under the appliance,
putting pressure on the
appliance to dislodge it or the belt went right over
the bag, thus making a
restriction in its flow into the bag.

One can buy some colorful, soft flannel & make
covering pouches for the bag.
This is especially nice when  being more intimate,
where the bag really may
interfere with ones  relationships!
I also would wear this cover if I was up and about &
it was possible that
the bag might be seen.

To help control or stop watery diarrhea
Metamucil either the type to mix & drink or in wafers
help some people to
control the diarrhea.  This may also cause more bulk
to get rid of & may
cause more gas in some people.
Over the counter Imodium helps some with diarrhea
Lomotil a prescription similar to Imodium but
stronger.
Codeine to help diarrhea but use care not to end up
taking too much Tylenol
over a long time: may cause liver damage.
xifaxin. has helped some to get over pouchitis , to
firm up the stools & to
reduce the number of toilet trips.
put about 10 drops of denatured tincture of opium  in
about a 1/4 cup of
water and just chug it.  This for some, helps control
diarrhea with no use
of codeine

Dehydration & low electrolytes are common & need to be
avoided.  One needs
at least 6  to 8 glasses of water/juice daily, even
when the stool is
diarrhea.
Dehydration or an imbalance of electrolytes may cause
weakness & also
nausea & vomiting

Try these panty liners to place in your under
pants/briefs.  They absorb
leakage, can be changed with ease & do not cost that
much.  For some, a
cotton ball pressed up in the crack, but not in so it
will hold the spinctor
open, helps.  Sometimes just keeping a couple squares
of toilet paper inside
your briefs/under pants helps & this can be discarded
with every toilet
trip.

It is good to practice strengthening the anal spinctor
muscle.  Work at this
several times a day but allow a rest after a few
minutes of exercise.

--- James Watts <shaybe68@...> wrote:

> Hi Helen,
>
> Just a note to let you know that I have just been
> discharged from
> hospital after my reversal. It went very well and I
> had no post op
> problems. I have a very good surgeon and he said
> that as I am 38, the
> recovery should go very well. It's very weird not
> having the bag
> attached with the strangest bit so far is that when
> i go to the
> toilet, I keep making sure that I'm not going to
> pull the band that
> holds the bag firmly around my waist down even
> though it's no longer
> there!
>
> The best advice I've had is to use Sudocream and
> don't leave home
> without it so will see how everything goes. I didn't
> get Ernie's list
> a while back but I am new to Yahoo so maybe I wasn't
> looking in the
> right place so I hope you can tell me where it is
> posted.
>
> Thanks for your advice in the past as I was quite
> nervous about the
> whole thing and will let you know how it goes. Talk
> to you soon and
> take care.
>
> Shay
>
>
>

Send instant messages to your online friends http://uk.messenger.yahoo.com

#7896

From: "James Watts" <shaybe68@...>
Date: Wed Oct 25, 2006 3:32 pm
Subject: [UK Ostomy Support ] Re:For Shay

shaybe68

Offline

Hi Helen,

Just a note to let you know that I have just been discharged from
hospital after my reversal. It went very well and I had no post op
problems. I have a very good surgeon and he said that as I am 38, the
recovery should go very well. It's very weird not having the bag
attached with the strangest bit so far is that when i go to the
toilet, I keep making sure that I'm not going to pull the band that
holds the bag firmly around my waist down even though it's no longer
there!

The best advice I've had is to use Sudocream and don't leave home
without it so will see how everything goes. I didn't get Ernie's list
a while back but I am new to Yahoo so maybe I wasn't looking in the
right place so I hope you can tell me where it is posted.

Thanks for your advice in the past as I was quite nervous about the
whole thing and will let you know how it goes. Talk to you soon and
take care.

Shay

#7895

From: PATTY MOON-KANDL <moon_kandl@...>
Date: Sun Oct 22, 2006 11:24 pm
Subject: This is beautiful. Try not to cry.

moonkandl

Offline

>When you're down to nothing, God is up to something."
>This is beautiful! Try not to cry.
>
>She jumped up as soon as she saw the surgeon come out of the operating room. She said: "How is my little boy ? Is he going to be all right ? When can I see him ?"
>The surgeon said, "I'm sorry. We did all we could, but your boy didn't make it."<BR><BR>Sally said, "Why do little children get cancer ? Doesn't God care any more ? Where were you, God, when my son needed you ?"
>
>The surgeon asked, "Would you like some time alone with your son ? One of the nurses will be out in a few minutes, before he's transported to the university."
>
>Sally asked the nurse to stay with her while she said good bye to son. She ran her fingers lovingly through his thick red curly hair. "Would you like a lock of his hair ?" the nurse asked.
>
>Sally nodded yes. The nurse cut a lock of the boy's hair, put it in a plastic bag and handed it to Sally.
>
>The mother said, "It was Jimmy's idea to donate his body to the University for Study. He said it might help somebody else. "I said no at first, but Jimmy said, 'Mom, I won't be using it after I die. Maybe it will help some other little boy spend one more day with his Mom." She went on, "My Jimmy had a heart of gold. Always thinking of someone else. Always wanting to help others if he could."
>
>Sally walked out of Children's MercyHospital for the last time, after spending most of the last six months there. She put the bag with Jimmy's belongings on the seat beside her in the car.
>
>The drive home was difficult. It was even harder to enter the empty house. She carried Jimmy's belongings, and the plastic bag with the lock of his hair to her son's room.
>She started placing the model cars and other personal things back in his room exactly where he had always kept them. She laid down across his bed and, hugging his pillow, cried herself to sleep.
>
>It was around midnight when Sally awoke. Laying beside her on the bed was a folded letter. The letter said:
>
>"Dear Mom, I know you're going to miss me; but don't think that I will ever forget you, or stop loving you, just 'cause I'm not around to say "I Love You". I will always love you, Mom, even more with each day. Someday we will see each other again. Until then, if you want to adopt a little boy so you won't be so lonely, that's okay with me. He can have my room and old stuff to play with. But, if you decide to get a girl instead, she probably wouldn't like the same things us boys do. You'll have to buy her dolls and stuff girls like, you know. Don't be sad thinking about me. This really is a neat place. Grandma and Grandpa met me as soon as I got here and showed me around some, but it will take a long time to see everything. The angels are so cool. I love to watch them fly. And, you know what? Jesus doesn't look like any of his pictures. Yet, when I saw Him, I knew it was Him. &n! bsp;Jesus himself took me to see GOD ! And guess what, Mom ? I got to sit on God's knee and talk to Him, like I was somebody important. That's when I told Him that I wanted to write you a letter, to tell you good bye and everything. But I already knew that wasn't allowed. Well, you know what Mom ? God handed me some paper and His own personal pen to write you this letter. I think Gabriel is the name of the angel who is going to drop this letter off to you. God said for me to give you the answer to one of the questions you asked Him 'Where was He when I needed him ?' "God said He was in the same place with me, as when His son Jesus was on the cross. He was right there, as He always is with all His children. Oh, by the way, Mom, no one else can see what I've written except you. To everyone else this is just a blank piece of paper. Isn't that cool ? I have to give God His pen back now. He ! needs it to write some more names in the Book of Life. Tonight I get to sit at the table with Jesus for supper. I'm sure the food will be great.
>
>Oh, I almost forgot to tell you. I don't hurt anymore. The cancer is all gone. I'm glad because I couldn't stand that pain anymore and God couldn't stand to see me hurt so much, either. That's when He sent The Angel of Mercy to come get me. The Angel said I was a Special Delivery ! How about that ?
>
>Signed with Love from God, Jesus & Me.
>
>(Let's see Satan stop this one.) Take 60 seconds and repost this, within the hour, you will have caused a multitude of believers to pray to God for each other. Then sit back and feel the Holy Spirit work in your life for doing what you know God loves "When you're down to nothing, God is up to something."
>
>Email this.
>

Why keep checking for Mail? The all-new Yahoo! Mail shows you when there are new messages.

#7889

From: "anangelseyes" <Af12dlite@...>
Date: Tue Sep 26, 2006 3:04 am
Subject: BATHTUB TEST

anangelseyes

Offline

BATHTUB TEST

It doesn't hurt to take a hard look at yourself from time to time,
and this should help get you started.

During a visit to a mental asylum, a visitor asked the Director what
the criterion was that defined whether or not a patient should be
institutionalized.

"Well," said the Director, "we fill up a bathtub; then we offer a
teaspoon, a teacup and a bucket to the patient and ask him or her to
empty the bathtub."

"Oh, I understand," said the visitor. "A normal person would use the
bucket because it's bigger than the spoon or the teacup.

"No," said the Director, "A normal person would pull the plug. Do you
want to be by the wall or near the window

#7887

From: Christine Hurwood <rabbitdynamic@...>
Date: Fri Sep 22, 2006 8:45 pm
Subject: Re: [UK Ostomy Support ] Dating Sites

rabbitdynamic

Offline

I totally agree with you yes do delete it this is for support

Stewart <globetrotteruk@...> wrote:

I see we have a dating site link in our messages.I have to point out
this group is not here to support a commercial dating site.If group
members get together that's great.These sites look good but somewhere
along the way you have to hand over hard cash.That's not what we're
about.I'm going to give the poster a couple of days to remove it or
give a good reason why we should sponser a commercial site.Then I'll
delete it.
Stew/Globey

kindest regards christine

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2�/min or less.

Reply | Forward | Messages in this Topic (2)

#7886

From: "Stewart" <globetrotteruk@...>
Date: Fri Sep 22, 2006 4:49 pm
Subject: Dating Sites

globetrotteruk

Offline

I see we have a dating site link in our messages.I have to point out
this group is not here to support a commercial dating site.If group
members get together that's great.These sites look good but somewhere
along the way you have to hand over hard cash.That's not what we're
about.I'm going to give the poster a couple of days to remove it or
give a good reason why we should sponser a commercial site.Then I'll
delete it.
Stew/Globey

Reply | Forward | Messages in this Topic (2)

#7884

From: Helen Garratt <babeof71@...>
Date: Tue Sep 19, 2006 12:10 pm
Subject: Re: [UK Ostomy Support ] Re:For Shay

babeof71

Offline

Hi Shay
I posted Ernies list, u should have had it. I'm glad
that your poucogram went well. That means everything
should go just great.

Fingers crossed for a bed soon.
Helen x
--- shaybe68 <shaybe68@...> wrote:

> Hi Helen,
>
> I was off for the week end so am just catching up
> now. Thanks for
> your message which has increased the confidence
> level another notch!
> I had a series of x-rays taken in hospital yesterday
> with a dye
> enema (always fun!) and I have no leaks through the
> restructured
> bowel and everything has healed very well so it
> couldn't have gone
> any better.
>
> I was delighted with the news and my surgeon will be
> reviewing the x-
> rays today so hope to get a call from him soon. Main
> problem now is
> getting a bed so will keep fingers crossed!
>
> I haven't heard of (Kim) Ernie's list but will have
> a search and see
> what I can find. If you have the address, could you
> pass it on as it
> sounds ilke an excellent bit of information to have.
>
> Thanks again and take care,
>
> Shay
>
>
>
>
>
>




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#7883

From: "shaybe68" <shaybe68@...>
Date: Tue Sep 19, 2006 11:33 am
Subject: Re:For Shay

shaybe68

Offline

Hi Helen,

I was off for the week end so am just catching up now. Thanks for
your message which has increased the confidence level another notch!
I had a series of x-rays taken in hospital yesterday with a dye
enema (always fun!) and I have no leaks through the restructured
bowel and everything has healed very well so it couldn't have gone
any better.

I was delighted with the news and my surgeon will be reviewing the x-
rays today so hope to get a call from him soon. Main problem now is
getting a bed so will keep fingers crossed!

I haven't heard of (Kim) Ernie's list but will have a search and see
what I can find. If you have the address, could you pass it on as it
sounds ilke an excellent bit of information to have.

Thanks again and take care,

Shay

#7882

From: "anangelseyes" <Af12dlite@...>
Date: Tue Sep 19, 2006 2:40 am
Subject: Re: [UK Ostomy Support ] Re:For Shay

anangelseyes

Offline

Ditto from Tina in Kansas - USA

----- Original Message -----
From: "Kim" <forlight@...>
To: <ukostomysupport@yahoogroups.com>
Sent: Monday, September 18, 2006 9:16 PM
Subject: [UK Ostomy Support ] Re:For Shay


> Okay I'll bite..   I would be interested in seeing ernies list if he
> wouldnt mind posting it.  I have had a total colectomy due to UC
> about 15 yrs ago and since I also have MS they and I felt a reversal
> would be risky.  My stoma has given me little to no trouble but I am
> always ready to learn something new.  Maybe ernies list has a
> treasure for me.
>               thanks Kim
>
> --- In ukostomysupport@yahoogroups.com, Helen Garratt <babeof71@...>
> wrote:
>>
>> Hi Kim
>> Enrie has a list of 'Do's and Don'ts!. It's great
>> advice collected from lots of people which realates to
>> everything from what to eat to slow down output to
>> dealing with sore skin with or without a bag.
>> I know for sure he'll send it to you if u ask.
>> Hope all is well with you.
>> Happy to help.
>> Helen
>> --- Kim <forlight@...> wrote:
>>
>> >
>> > Hi all, Sorry to butt in but what is  ernies list? I
>> > have had a
>> > total colectomy w/o the option of reversal and am
>> > curious.. I havent
>> > heard of ernies list.  It probably doesnt apply to
>> > me but being the
>> > curious person I am I gotta ask...
>> >                              Kim
>> > --- In ukostomysupport@yahoogroups.com, Helen
>> > Garratt <babeof71@>
>> > wrote:
>> > >
>> > > Hi Shay
>> > > Don't worry, the output will be much kinder when
>> > you
>> > > are connected. I had a Chicken Biryani for tea
>> > last
>> > > night and cos i put cream on every time i "go"
>> > > (sudocrem works for me if i'm sore, i use vaseline
>> > in
>> > > between) I had no problems. The output is thicker
>> > > (just avoid fruit juice, Salad and too much sugar)
>> > > Some days my waste is almost formed! My loop
>> > ileostomy
>> > > was a nightmare, I had some of my worst ever days
>> > with
>> > > it. Your confidence will grow, the first few days
>> > are
>> > > interesting but after that it just kept getting
>> > > better.
>> > >
>> > > My past seems like a nightmare now and I try to
>> > > remember every day how lucky I am. Just wait til
>> > you
>> > > put your clothes on again after the op and have no
>> > bag
>> > > it's fantastic.
>> > >
>> > > I took ernies list into hospital with me and
>> > refered
>> > > to it regularly. Its a huge help. Watch what the
>> > > nurses try to give u to eat, I had my first op and
>> > > went onto the colorectal unit in Oxford but the
>> > second
>> > > time it was a smaller op and I was put onto the
>> > > vasculr ward, the nurses had no idea!
>> > >
>> > > Keep in touch, I'm happy to help.
>> > >
>> > > Love
>> > > Helen x
>> > > --- shaybe68 <shaybe68@> wrote:
>> > >
>> > > >
>> > > > Dear Helen,
>> > > >
>> > > > Many thanks for your mail about the reconnection
>> > and
>> > > > for your
>> > > > advice. I was switched to a convex pouch about 3
>> > > > weeks ago but the
>> > > > damage has already been done. It hasn't become
>> > any
>> > > > worse but hasn't
>> > > > become any better either! I'll put up with it
>> > for
>> > > > another week or
>> > > > two and if the operation goes ahead then will be
>> > > > worth the hassle.
>> > > >
>> > > > I'm delighted that your last operation was such
>> > a
>> > > > success and I hope
>> > > > mine goes as well as yours. Good to hear from
>> > > > someone who has been
>> > > > through it and not just reading the information
>> > > > booklets. If you
>> > > > don't mind, I would like to ask you another
>> > > > question? Is there a
>> > > > noticable difference between the output from the
>> > > > stoma and the
>> > > > output from the reconnection? I am hoping that,
>> > with
>> > > > the extra bowel
>> > > > re-attached, and it becomming a bit longer, that
>> > I
>> > > > don't have the
>> > > > same output and it's not as 'corrosive' if you
>> > know
>> > > > what I mean.
>> > > >
>> > > > Thanks once again for your message and it was
>> > really
>> > > > encouraging to
>> > > > hear from someone on the other side of the
>> > > > operation.
>> > > >
>> > > > Take care,
>> > > >
>> > > > Shay
>> > > >
>> > > >
>> > > >
>> > > >
>> > > >
>> > >
>> > >
>> > >
>> > >
>> > >
>> >
>> ___________________________________________________________
>> >
>> > > Copy addresses and emails from any email account
>> > to Yahoo! Mail -
>> > quick, easy and free.
>> > http://uk.docs.yahoo.com/trueswitch2.html
>> > >
>> >
>> >
>> >
>> >
>> >
>> >
>>
>>
>>
>>
>>
>>
>> ___________________________________________________________
>> All new Yahoo! Mail "The new Interface is stunning in its
> simplicity and ease of use." - PC Magazine
>> http://uk.docs.yahoo.com/nowyoucan.html
>>
>
>
>
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>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>

#7881

From: "Kim" <forlight@...>
Date: Tue Sep 19, 2006 2:16 am
Subject: [UK Ostomy Support ] Re:For Shay

grannygoodhag

Offline

Okay I'll bite..   I would be interested in seeing ernies list if he
wouldnt mind posting it.  I have had a total colectomy due to UC
about 15 yrs ago and since I also have MS they and I felt a reversal
would be risky.  My stoma has given me little to no trouble but I am
always ready to learn something new.  Maybe ernies list has a
treasure for me.
                thanks Kim

--- In ukostomysupport@yahoogroups.com, Helen Garratt <babeof71@...>
wrote:
>
> Hi Kim
> Enrie has a list of 'Do's and Don'ts!. It's great
> advice collected from lots of people which realates to
> everything from what to eat to slow down output to
> dealing with sore skin with or without a bag.
> I know for sure he'll send it to you if u ask.
> Hope all is well with you.
> Happy to help.
> Helen
> --- Kim <forlight@...> wrote:
>
> >
> > Hi all, Sorry to butt in but what is  ernies list? I
> > have had a
> > total colectomy w/o the option of reversal and am
> > curious.. I havent
> > heard of ernies list.  It probably doesnt apply to
> > me but being the
> > curious person I am I gotta ask...
> >                              Kim
> > --- In ukostomysupport@yahoogroups.com, Helen
> > Garratt <babeof71@>
> > wrote:
> > >
> > > Hi Shay
> > > Don't worry, the output will be much kinder when
> > you
> > > are connected. I had a Chicken Biryani for tea
> > last
> > > night and cos i put cream on every time i "go"
> > > (sudocrem works for me if i'm sore, i use vaseline
> > in
> > > between) I had no problems. The output is thicker
> > > (just avoid fruit juice, Salad and too much sugar)
> > > Some days my waste is almost formed! My loop
> > ileostomy
> > > was a nightmare, I had some of my worst ever days
> > with
> > > it. Your confidence will grow, the first few days
> > are
> > > interesting but after that it just kept getting
> > > better.
> > >
> > > My past seems like a nightmare now and I try to
> > > remember every day how lucky I am. Just wait til
> > you
> > > put your clothes on again after the op and have no
> > bag
> > > it's fantastic.
> > >
> > > I took ernies list into hospital with me and
> > refered
> > > to it regularly. Its a huge help. Watch what the
> > > nurses try to give u to eat, I had my first op and
> > > went onto the colorectal unit in Oxford but the
> > second
> > > time it was a smaller op and I was put onto the
> > > vasculr ward, the nurses had no idea!
> > >
> > > Keep in touch, I'm happy to help.
> > >
> > > Love
> > > Helen x
> > > --- shaybe68 <shaybe68@> wrote:
> > >
> > > >
> > > > Dear Helen,
> > > >
> > > > Many thanks for your mail about the reconnection
> > and
> > > > for your
> > > > advice. I was switched to a convex pouch about 3
> > > > weeks ago but the
> > > > damage has already been done. It hasn't become
> > any
> > > > worse but hasn't
> > > > become any better either! I'll put up with it
> > for
> > > > another week or
> > > > two and if the operation goes ahead then will be
> > > > worth the hassle.
> > > >
> > > > I'm delighted that your last operation was such
> > a
> > > > success and I hope
> > > > mine goes as well as yours. Good to hear from
> > > > someone who has been
> > > > through it and not just reading the information
> > > > booklets. If you
> > > > don't mind, I would like to ask you another
> > > > question? Is there a
> > > > noticable difference between the output from the
> > > > stoma and the
> > > > output from the reconnection? I am hoping that,
> > with
> > > > the extra bowel
> > > > re-attached, and it becomming a bit longer, that
> > I
> > > > don't have the
> > > > same output and it's not as 'corrosive' if you
> > know
> > > > what I mean.
> > > >
> > > > Thanks once again for your message and it was
> > really
> > > > encouraging to
> > > > hear from someone on the other side of the
> > > > operation.
> > > >
> > > > Take care,
> > > >
> > > > Shay
> > > >
> > > >
> > > >
> > > >
> > > >
> > >
> > >
> > >
> > >
> > >
> >
> ___________________________________________________________
> >
> > > Copy addresses and emails from any email account
> > to Yahoo! Mail -
> > quick, easy and free.
> > http://uk.docs.yahoo.com/trueswitch2.html
> > >
> >
> >
> >
> >
> >
> >
>
>
>
>
>
>
> ___________________________________________________________
> All new Yahoo! Mail "The new Interface is stunning in its
simplicity and ease of use." - PC Magazine
> http://uk.docs.yahoo.com/nowyoucan.html
>

#7880

From: Helen Garratt <babeof71@...>
Date: Mon Sep 18, 2006 7:31 pm
Subject: Re: [UK Ostomy Support ] Re:For Shay

babeof71

Offline

Hi Kim
Enrie has a list of 'Do's and Don'ts!. It's great
advice collected from lots of people which realates to
everything from what to eat to slow down output to
dealing with sore skin with or without a bag.
I know for sure he'll send it to you if u ask.
Hope all is well with you.
Happy to help.
Helen
--- Kim <forlight@...> wrote:

>
> Hi all, Sorry to butt in but what is  ernies list? I
> have had a
> total colectomy w/o the option of reversal and am
> curious.. I havent
> heard of ernies list.  It probably doesnt apply to
> me but being the
> curious person I am I gotta ask...
>                              Kim
> --- In ukostomysupport@yahoogroups.com, Helen
> Garratt <babeof71@...>
> wrote:
> >
> > Hi Shay
> > Don't worry, the output will be much kinder when
> you
> > are connected. I had a Chicken Biryani for tea
> last
> > night and cos i put cream on every time i "go"
> > (sudocrem works for me if i'm sore, i use vaseline
> in
> > between) I had no problems. The output is thicker
> > (just avoid fruit juice, Salad and too much sugar)
> > Some days my waste is almost formed! My loop
> ileostomy
> > was a nightmare, I had some of my worst ever days
> with
> > it. Your confidence will grow, the first few days
> are
> > interesting but after that it just kept getting
> > better.
> >
> > My past seems like a nightmare now and I try to
> > remember every day how lucky I am. Just wait til
> you
> > put your clothes on again after the op and have no
> bag
> > it's fantastic.
> >
> > I took ernies list into hospital with me and
> refered
> > to it regularly. Its a huge help. Watch what the
> > nurses try to give u to eat, I had my first op and
> > went onto the colorectal unit in Oxford but the
> second
> > time it was a smaller op and I was put onto the
> > vasculr ward, the nurses had no idea!
> >
> > Keep in touch, I'm happy to help.
> >
> > Love
> > Helen x
> > --- shaybe68 <shaybe68@...> wrote:
> >
> > >
> > > Dear Helen,
> > >
> > > Many thanks for your mail about the reconnection
> and
> > > for your
> > > advice. I was switched to a convex pouch about 3
> > > weeks ago but the
> > > damage has already been done. It hasn't become
> any
> > > worse but hasn't
> > > become any better either! I'll put up with it
> for
> > > another week or
> > > two and if the operation goes ahead then will be
> > > worth the hassle.
> > >
> > > I'm delighted that your last operation was such
> a
> > > success and I hope
> > > mine goes as well as yours. Good to hear from
> > > someone who has been
> > > through it and not just reading the information
> > > booklets. If you
> > > don't mind, I would like to ask you another
> > > question? Is there a
> > > noticable difference between the output from the
> > > stoma and the
> > > output from the reconnection? I am hoping that,
> with
> > > the extra bowel
> > > re-attached, and it becomming a bit longer, that
> I
> > > don't have the
> > > same output and it's not as 'corrosive' if you
> know
> > > what I mean.
> > >
> > > Thanks once again for your message and it was
> really
> > > encouraging to
> > > hear from someone on the other side of the
> > > operation.
> > >
> > > Take care,
> > >
> > > Shay
> > >
> > >
> > >
> > >
> > >
> >
> >
> >
> >
> >
>
___________________________________________________________
>
> > Copy addresses and emails from any email account
> to Yahoo! Mail -
> quick, easy and free.
> http://uk.docs.yahoo.com/trueswitch2.html
> >
>
>
>
>
>
>






___________________________________________________________
All new Yahoo! Mail "The new Interface is stunning in its simplicity and ease of
use." - PC Magazine
http://uk.docs.yahoo.com/nowyoucan.html

#7878

From: "Kim" <forlight@...>
Date: Sun Sep 17, 2006 8:28 pm
Subject: Re:For Shay

grannygoodhag

Offline

Hi all, Sorry to butt in but what is  ernies list? I have had a
total colectomy w/o the option of reversal and am curious.. I havent
heard of ernies list.  It probably doesnt apply to me but being the
curious person I am I gotta ask...
                              Kim
--- In ukostomysupport@yahoogroups.com, Helen Garratt <babeof71@...>
wrote:
>
> Hi Shay
> Don't worry, the output will be much kinder when you
> are connected. I had a Chicken Biryani for tea last
> night and cos i put cream on every time i "go"
> (sudocrem works for me if i'm sore, i use vaseline in
> between) I had no problems. The output is thicker
> (just avoid fruit juice, Salad and too much sugar)
> Some days my waste is almost formed! My loop ileostomy
> was a nightmare, I had some of my worst ever days with
> it. Your confidence will grow, the first few days are
> interesting but after that it just kept getting
> better.
>
> My past seems like a nightmare now and I try to
> remember every day how lucky I am. Just wait til you
> put your clothes on again after the op and have no bag
> it's fantastic.
>
> I took ernies list into hospital with me and refered
> to it regularly. Its a huge help. Watch what the
> nurses try to give u to eat, I had my first op and
> went onto the colorectal unit in Oxford but the second
> time it was a smaller op and I was put onto the
> vasculr ward, the nurses had no idea!
>
> Keep in touch, I'm happy to help.
>
> Love
> Helen x
> --- shaybe68 <shaybe68@...> wrote:
>
> >
> > Dear Helen,
> >
> > Many thanks for your mail about the reconnection and
> > for your
> > advice. I was switched to a convex pouch about 3
> > weeks ago but the
> > damage has already been done. It hasn't become any
> > worse but hasn't
> > become any better either! I'll put up with it for
> > another week or
> > two and if the operation goes ahead then will be
> > worth the hassle.
> >
> > I'm delighted that your last operation was such a
> > success and I hope
> > mine goes as well as yours. Good to hear from
> > someone who has been
> > through it and not just reading the information
> > booklets. If you
> > don't mind, I would like to ask you another
> > question? Is there a
> > noticable difference between the output from the
> > stoma and the
> > output from the reconnection? I am hoping that, with
> > the extra bowel
> > re-attached, and it becomming a bit longer, that I
> > don't have the
> > same output and it's not as 'corrosive' if you know
> > what I mean.
> >
> > Thanks once again for your message and it was really
> > encouraging to
> > hear from someone on the other side of the
> > operation.
> >
> > Take care,
> >
> > Shay
> >
> >
> >
> >
> >
>
>
>
>
> ___________________________________________________________
> Copy addresses and emails from any email account to Yahoo! Mail -
quick, easy and free. http://uk.docs.yahoo.com/trueswitch2.html
>

#7877

From: Helen Garratt <babeof71@...>
Date: Sun Sep 17, 2006 10:38 am
Subject: Re:For Shay

babeof71

Offline

Hi Shay
Don't worry, the output will be much kinder when you
are connected. I had a Chicken Biryani for tea last
night and cos i put cream on every time i "go"
(sudocrem works for me if i'm sore, i use vaseline in
between) I had no problems. The output is thicker
(just avoid fruit juice, Salad and too much sugar)
Some days my waste is almost formed! My loop ileostomy
was a nightmare, I had some of my worst ever days with
it. Your confidence will grow, the first few days are
interesting but after that it just kept getting
better.

My past seems like a nightmare now and I try to
remember every day how lucky I am. Just wait til you
put your clothes on again after the op and have no bag
it's fantastic.

I took ernies list into hospital with me and refered
to it regularly. Its a huge help. Watch what the
nurses try to give u to eat, I had my first op and
went onto the colorectal unit in Oxford but the second
time it was a smaller op and I was put onto the
vasculr ward, the nurses had no idea!

Keep in touch, I'm happy to help.

Love
Helen x
--- shaybe68 <shaybe68@...> wrote:

>
> Dear Helen,
>
> Many thanks for your mail about the reconnection and
> for your
> advice. I was switched to a convex pouch about 3
> weeks ago but the
> damage has already been done. It hasn't become any
> worse but hasn't
> become any better either! I'll put up with it for
> another week or
> two and if the operation goes ahead then will be
> worth the hassle.
>
> I'm delighted that your last operation was such a
> success and I hope
> mine goes as well as yours. Good to hear from
> someone who has been
> through it and not just reading the information
> booklets. If you
> don't mind, I would like to ask you another
> question? Is there a
> noticable difference between the output from the
> stoma and the
> output from the reconnection? I am hoping that, with
> the extra bowel
> re-attached, and it becomming a bit longer, that I
> don't have the
> same output and it's not as 'corrosive' if you know
> what I mean.
>
> Thanks once again for your message and it was really
> encouraging to
> hear from someone on the other side of the
> operation.
>
> Take care,
>
> Shay
>
>
>
>
>

___________________________________________________________
Copy addresses and emails from any email account to Yahoo! Mail - quick, easy
and free. http://uk.docs.yahoo.com/trueswitch2.html

#7875

From: "shaybe68" <shaybe68@...>
Date: Wed Sep 13, 2006 10:30 pm
Subject: Re: [UK Ostomy Support ] Ileostomy re-connection

shaybe68

Offline

Dear Helen,

Many thanks for your mail about the reconnection and for your
advice. I was switched to a convex pouch about 3 weeks ago but the
damage has already been done. It hasn't become any worse but hasn't
become any better either! I'll put up with it for another week or
two and if the operation goes ahead then will be worth the hassle.

I'm delighted that your last operation was such a success and I hope
mine goes as well as yours. Good to hear from someone who has been
through it and not just reading the information booklets. If you
don't mind, I would like to ask you another question? Is there a
noticable difference between the output from the stoma and the
output from the reconnection? I am hoping that, with the extra bowel
re-attached, and it becomming a bit longer, that I don't have the
same output and it's not as 'corrosive' if you know what I mean.

Thanks once again for your message and it was really encouraging to
hear from someone on the other side of the operation.

Take care,

Shay

#7874

From: Helen Garratt <babeof71@...>
Date: Wed Sep 13, 2006 8:23 am
Subject: Re: [UK Ostomy Support ] Ileostomy re-connection

babeof71

Offline

Hi Shay
I had my ileo reversed in November after nearly 4
years with a bag and several ops. The problem you have
I believe is that you need convex pouches to push your
stoma out and away from the skin. I had the same
problem and the itching and soreness drove me mad. The
convex pouches had a raised centre designed to improve
the seal and position of your stoma.

I was really worried about the reconnection but it
really was the easiest surgery I ahd and also the
happiest. Yes I went to the toilet every hour for the
first 4/5 days but with perseverance I was improving
every day. Now on a good day I go 5/6 times depending
on what I eat. Just follow the advice on Ernies diet
sheet and you'll do really well. I have a bowl of
porridge (with honey not sugar) and 3 digestive
biscuits with a cup of tea for my breakfast every
morning, I swear this sets me up for a good day.

Hope this helps
Love
Helen

--- Shay Watts <shaybe68@...> wrote:

> Hi. I have just joined the group and I am hoping
> that other members may be able to offer me some
> advice. I have recently had a temporary ileostomy
> procedure after the removal of my large bowel
> following a diagnosis for FAP. I am now 7 weeks
> post-op and although the surgeon did a very good job
> and is happy to follow on with the closure of the
> loop and connection of the pouch, he was planning to
> do it after 12 - 16 weeks. The problem is the stoma
> opening has turned nearly under the skin with the
> result that the surrounding skin has been badly
> damaged and now has a wonderful ulcer attached to
> the side. The surgeon has been forced to undertake
> the reversal in about 2 weeks time and, after x-rays
> next week, will try and go ahead the week after -
> (If i can get a bed!) - With the wonderful Irish
> health sysyem, I could be waiting about 6 - 9 months
> so it's not a bad thing to happen really and will
> get it reversed a lot quicker than some other
> people.
>
>   Sorry for going on so long but if anyone has had a
> loop closed off  and reversed, then I would really
> appreciate any advice and what problems I can
> expect. It's arrived a bit quicker than expected and
> information is a bit thin on the ground. Also any
> advice or help on protecting my already damaged skin
> around the stoma would be greatly appreciated. I
> have a really nice stoma nurse in the hospital, but
> her best advice is take the top part of the bag off,
> bung in the powder and the paste and hope it doesn't
> get any worse! I have to change the flange once or
> twice a day and it burns and stings a lot so any
> advice would be a help.
>
>   Thanks,
>
>   Shay
>
>
> ---------------------------------
>  The all-new Yahoo! Mail goes wherever you go - free
> your email address from your Internet provider.

___________________________________________________________
To help you stay safe and secure online, we've developed the all new Yahoo!
Security Centre. http://uk.security.yahoo.com

#7873

From: Shay Watts <shaybe68@...>
Date: Tue Sep 12, 2006 11:13 pm
Subject: Ileostomy re-connection

shaybe68

Offline

Hi. I have just joined the group and I am hoping that other members may be able to offer me some advice. I have recently had a temporary ileostomy procedure after the removal of my large bowel following a diagnosis for FAP. I am now 7 weeks post-op and although the surgeon did a very good job and is happy to follow on with the closure of the loop and connection of the pouch, he was planning to do it after 12 - 16 weeks. The problem is the stoma opening has turned nearly under the skin with the result that the surrounding skin has been badly damaged and now has a wonderful ulcer attached to the side. The surgeon has been forced to undertake the reversal in about 2 weeks time and, after x-rays next week, will try and go ahead the week after - (If i can get a bed!) - With the wonderful Irish health sysyem, I could be waiting about 6 - 9 months so it's not a bad thing to happen really and will get it reversed a lot quicker than some other people.

Sorry for going on so long but if anyone has had a loop closed off and reversed, then I would really appreciate any advice and what problems I can expect. It's arrived a bit quicker than expected and information is a bit thin on the ground. Also any advice or help on protecting my already damaged skin around the stoma would be greatly appreciated. I have a really nice stoma nurse in the hospital, but her best advice is take the top part of the bag off, bung in the powder and the paste and hope it doesn't get any worse! I have to change the flange once or twice a day and it burns and stings a lot so any advice would be a help.

Thanks,

Shay

The all-new Yahoo! Mail goes wherever you go - free your email address from your Internet provider.

#7863

From: "Kathy" <Kathy_ya@...>
Date: Sat Aug 12, 2006 8:31 am
Subject: Ostomyland - IMPORTANT message

kathy_from_e...

Offline

This week, without warning, Zirc imposed a ban on all aol users on
their network. This meant that no-one on aol could get into #ostomyland.

As a result we have moved.

If you use java http://www.ostomysupport.info/chat.html (Jason's page)

Or http://www.autoimmunity.co.uk/chat/ostomyland2.html (Kathy's back
up page)

then you should come straight into the new room. You don't have to do
anything differently, simply click on the same link as usual and
you'll be in the room.

If you have any problems on java, such as a black screen or you end up
in the old room, then close that java chat window, and reload the
chat.html page (if you see an announcement from Aug 10th 2006 on the
chat.html page then you are ok. If you dont, you need to reload the
page).

==================

If you use mIRC, or Besirc or some other IRC Chat Client, here's the NEW
server details you need to connect to Ostomyland:

Server: irc.fef.net
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
The download link can be found at:
http://ostomyland.com/mircfef/mirc_ostomyland_fef_v62.exe

==================

If you have any problems email me.

#7862

From: Christine Hurwood <rabbitdynamic@...>
Date: Wed Aug 9, 2006 9:41 pm
Subject: Re: [UK Ostomy Support ] Re: Colostomy Reversal

rabbitdynamic

Offline

I have posted so hopefully you will see what I have written butr just in case my consultant has a good success rate of PEC for twisted bowel so it maybe a good idea to get a referal to him via the GP it may help with your decision to have the reversal

silver_spoon50 <silver_spoon50@...> wrote:

--- In ukostomysupport@yahoogroups.com, "Den" <denaced@...> wrote:
>
> --- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@>
> wrote:
> >
> >
> > Any one who's had a colostomy reversal,can you look into the
group.You
> > may be able to help someone.
> >
> > Thank you
> >
> > Stew
> >
> i went for reversal unfortunatly didn't work was to badly damaged
> inside. didn't think op was as bad as i was told though
>
hi i was thinking of a iliostomy reversal after i have sufferd a
twisred bowel.dont know what to do ,christine/

kindest regards christine

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2�/min or less.

#7861

From: "rabbitdynamic" <rabbitdynamic@...>
Date: Wed Aug 9, 2006 9:38 pm
Subject: Re: Colostomy Reversal

rabbitdynamic

Offline

--- In ukostomysupport@yahoogroups.com, "silver_spoon50"
<silver_spoon50@...> wrote:
>
Hi I do not know where you are whether in the uk but my consultant
does the PEC for twisted bowel with a good success rate it maybe worth
seeing him

#7860

From: "silver_spoon50" <silver_spoon50@...>
Date: Wed Aug 9, 2006 5:53 pm
Subject: Re: Colostomy Reversal

silver_spoon50

Offline

--- In ukostomysupport@yahoogroups.com, "Den" <denaced@...> wrote:
>
> --- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@>
> wrote:
> >
> >
> > Any one who's had a colostomy reversal,can you look into the
group.You
> > may be able to help someone.
> >
> > Thank you
> >
> > Stew
> >
>  i went for reversal unfortunatly didn't work was to badly damaged
> inside. didn't think op was as bad as i was told though
>
hi i was thinking of a iliostomy reversal after i have sufferd a
twisred bowel.dont know what to do ,christine/

#7857

From: "Stewart" <globetrotteruk@...>
Date: Mon Jul 31, 2006 6:43 pm
Subject: For Cosmic

globetrotteruk

Offline

Hi,Thanks for the birthday wishes......just qualified for my fuel
allowance.....Hope things are Ok with you liz.How's the renault,still
going strong?Done anymore paintings?
Stew

#7856

From: "Stewart" <globetrotteruk@...>
Date: Mon Jul 31, 2006 6:41 pm
Subject: Tom's Return

globetrotteruk

Offline

Hi Tommy,Yep still with the cat,was looking around to change because
of wrist and knee pain.tried a few sit up and beg type bikesfazer 1000
was one of them.They gave me back ache!!So I'm sticking with the cati
do my own servicing and i didn't fancy doing the valve clearances on a
VFR.
  Chat rooms are gone now,yahoo withdrew them.Some of the other groiups
have arranged an alternative and there's still the Sat night chat.
  I've been planning a trip to france on my bike......for three years
now.Still no further forward./
take care mate.
Stew/Globey

Reply | Forward | Messages in this Topic (3)

#7855

From: "J.Cunningham" <j.cunningham@...>
Date: Mon Jul 31, 2006 5:16 pm
Subject: RE: [UK Ostomy Support ] Re: Colostomy Reversal

parneleys

Offline

Hi my name is Jane and I have had an ileostomy for about 9 years with no problems really. Just wondering a couple of things.

I have noticed over the past couple of years that my tummy on the side of the ileo is quite distended, although I know I do not have any hernias. Any ideas. Could if just be that I have become lazy and am not exercising enough? or is this common.

Ideas on how much exercise I can do without injuring my stomach muscles would also be helpful.

thanks

Jane

From: ukostomysupport@yahoogroups.com [mailto:ukostomysupport@yahoogroups.com] On Behalf Of Christine Hurwood
Sent: 31 July 2006 16:23
To: ukostomysupport@yahoogroups.com
Subject: Re: [UK Ostomy Support ] Re: Colostomy Reversal

Hi Tom I have had a reversal but I now have a PEC which I irrigate through not as messy as anally and it is more dignified

tomster296 <e8007296@yahoo.co.uk> wrote:

--- In ukostomysupport@yahoogroups.com, "Stewart"
<globetrotteruk@...> wrote:
>
>
> Any one who's had a colostomy reversal,can you look into the
group.You
> may be able to help someone.
>
Hi Stew,
Previously "tommygunner" (3 years ago ).
I have had an Ileostomy reversal, didn't think colostomy were
reversable as the bowel is cut off where the ileostomy has the colon
cut half way through looped back.
The reversal wasn't the success I would have hoped for in my case
the original surgery had removed the sensors that tell you it's time
for the toilet so I had no idea of when it would happen or where !!!
Anyhows the good news is that my stoma nurse recomended me to anal
colon irrigation and tho' messy it is the best thing going for me.
might I suggest the use of colonic irrigation via the stoma it works
for a lot of people.
Will speak soon, Tom

kindest regards christine

Do you Yahoo!?
Everyone is raving about the all-new Yahoo! Mail Beta.

#7854

From: Christine Hurwood <rabbitdynamic@...>
Date: Mon Jul 31, 2006 3:23 pm
Subject: Re: [UK Ostomy Support ] Re: Colostomy Reversal

rabbitdynamic

Offline

Hi Tom I have had a reversal but I now have a PEC which I irrigate through not as messy as anally and it is more dignified

tomster296 <e8007296@...> wrote:

--- In ukostomysupport@yahoogroups.com, "Stewart"
<globetrotteruk@...> wrote:
>
>
> Any one who's had a colostomy reversal,can you look into the
group.You
> may be able to help someone.
>
Hi Stew,
Previously "tommygunner" (3 years ago ).
I have had an Ileostomy reversal, didn't think colostomy were
reversable as the bowel is cut off where the ileostomy has the colon
cut half way through looped back.
The reversal wasn't the success I would have hoped for in my case
the original surgery had removed the sensors that tell you it's time
for the toilet so I had no idea of when it would happen or where !!!
Anyhows the good news is that my stoma nurse recomended me to anal
colon irrigation and tho' messy it is the best thing going for me.
might I suggest the use of colonic irrigation via the stoma it works
for a lot of people.
Will speak soon, Tom

kindest regards christine

Do you Yahoo!?
Everyone is raving about the all-new Yahoo! Mail Beta.

#7853

From: cosmiccowgirl2006
Date: Sun Jul 30, 2006 5:50 pm
Subject: happy birthday!

cosmiccowgir...

Offline

hi Stew, forgot your birthday! Hope you had a nice day
love Cosmic x

#7852

From: "tomster296" <e8007296@...>
Date: Sun Jul 30, 2006 5:21 pm
Subject: Re: Tom's Return

tomster296

Offline

--- In ukostomysupport@yahoogroups.com, "Stewart" <globetrotteruk@...>
wrote:
>
>Hi Stew,
Good to be back, Kids are grown up now so I can have my 'puter back.
I was changing bikes last time we spoke and I got a cbr 600 sports
Rossi replica it was ballistic !!!!
Too much for me so this year I traded it for a vfr v-tech brilliant so
much smoother and planted. Being vertically challenged I've had the
seat sculptured so's I can get my feet down and hopefully we can get
out on it more often ,the cbr was not pillion friendly at all.Are you
still on the 'cat ?
Do you have a chat room still?
Talk soon, Tom

Reply | Forward | Messages in this Topic (3)

#7851

From: "Kathy" <Kathy_ya@...>
Date: Sat Jul 29, 2006 2:02 pm
Subject: Ostomyland - Ostomy Support IRC Chat - Main meeting of the week - 29th July

kathy_from_e...

Offline

Main Chat is Saturday 8pm UK Time which is 3pm EST ish.

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Want to chat another time? The room is open 24/7 and is usually busy.

***NEW*** online clock to help with those time zones!!
Now you can check what time it is in the UK:
http://www.ostomylinks.co.uk/chattimes.html

=========

To join Ostomyland via java go to:
http://www.ostomysupport.info/chat.html (Jason's page)

Or http://www.autoimmunity.co.uk/chat/ostomyland2.html (Kathy's back
up page)

and join us in the ostomyland chat room from there. A free-to-use Java
Client is embedded into the page that is dead easy to use.
Nothing to download.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect to Ostomyland:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join.

=========

We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help. (Kathy-yah@...)

http://www.ostomylinks.co.uk/chathelp14.html

=========

Wrong time-zone for you? I shall be in the room 6pm - 9pm Perth
(Australia) time, 11am - 2pm UK time on SUNDAY.
We usually get a small group in - come and join us.

=========

The channel is open 24/7 for general chit chat or ostomy talk
during the week.
If it's quiet, stay a while - someone else may join the room soon.

=========

Look forward to seeing you in the meeting Saturday night, the weekend
or later on
in the week.

Kathy :)

Jason's Living With a Colostomy Website:
http://www.ostomysupport.info

#7850

From: "Stewart" <globetrotteruk@...>
Date: Sat Jul 29, 2006 10:29 am
Subject: Tom's Return

globetrotteruk

Offline

Hi Tom,Nice to see you back,it's been a while.have sent you a couple
of messages on messenger and i did get your sone once.Glad all is Ok
with you.
  Have you still got the motor bike or have you gone for bigger and
better??
Stew/Globey

Reply | Forward | Messages in this Topic (3)

#7849

From: "tomster296" <e8007296@...>
Date: Thu Jul 27, 2006 10:12 am
Subject: Re: Colostomy Reversal

tomster296

Offline

--- In ukostomysupport@yahoogroups.com, "Stewart"
<globetrotteruk@...> wrote:
>
>
> Any one who's had a colostomy reversal,can you look into the
group.You
> may be able to help someone.
>
Hi Stew,
Previously "tommygunner" (3 years ago ).
I have had an Ileostomy reversal, didn't think colostomy were
reversable as the bowel is cut off where the ileostomy has the colon
cut half way through looped back.
The reversal wasn't the success I would have hoped for in my case
the original surgery had removed the sensors that tell you it's time
for the toilet so I had no idea of when it would happen or where !!!
Anyhows the good news is that my stoma nurse recomended me to anal
colon irrigation and tho' messy it is the best thing going for me.
might I suggest the use of colonic irrigation via the stoma it works
for a lot of people.
Will speak soon, Tom