I'm new to the group here also. I had a total colectomy 18 months ago,
plus which i have a spinal injury, and I intermittantly self
catheterise. I get a mobility allowance, after being knocked back the
first time I applied, I appealed, and got it the second time around. I
also applied for part of the care component. I didnt get it, even after
I appealed. However, in one of the magazines from one of the stoma
supply companies there was a very good article about legal entitlements
for people with stomas, and it seems that at least the lowest part of
the care component should be allowed. It does not depend on whether or
not you are working, or whether or not you are getting the care, just if
you NEED the care. For instance, you might have a leaking pouch in the
middle of the night, and NEED help to clean up, sort bed out etc, I
personally can't change a bed by myself because of my back, and help to
get rid of sheets, and put to soak etc. Its like finding your way around
a minefield though. Also, if you have the exclusive use of a bathroom,
or another room in the house, say for specific exercises, or to store
your gear, etc, you could be entitled to a reduction of council tax.
--- In ukostomysupport@yahoogroups.com, "joannehayward26"
<joannehayward26@...> wrote:
>
> Hi, i am new to the group i had a total colectomy last august and am
> now left with an ileostomy.
> I suffered from chron's disease for 15yrs, i hoped this would keep it
> at bay for several years but i think it has returned.
> I wondered if anyone knows if i am entitled to any benefits?
> Or if there's a website i can use to find out.
> Many thanks hope everyones feeling ok jo
>