If you are having this done in the UK then I wish you all the luck in
the world and then some........
Andre
--- In ukostomysupport@yahoogroups.com, "rachel622650" <newton646@...>
wrote:
>
> Hi nessa I dont have an ostomy but my husband does. Please if your
> son would like to talk to someone in the same position as himself
> may be I can help . There must be all sorts of questions he would
> like to ask but is too afraid to ask you so you are not upset . I
> know its a bit late to answer and you probably wont get this until
> youre home but I hope all goes well for you
> Rach
>
> --
> - In ukostomysupport@yahoogroups.com, "♥ Vanessa ♥ "
> <kismetz_angel@> wrote:
> >
> >
> >
> >        
> > My name's Vanessa altho' I answer to all variations of it - Ness,
> Nessa,
> > Nessie etc. :) I live in the UK.
> >
> > I was told a couple of months ago that surgery would be my only
> option. I
> > have had UC (pancolitis) for 18 months and am, unfortunately,
> > steroid-dependant. I chose not to take steroids while I waited for
> surgery.
> > I'm still taking 125 mgs Imuran and 3 grams Pentasa daily.
> Originally I had
> > an appt. to see a surgeon next month but it was brought fwd
> suddenly to
> > Monday (yesterday) and now I am being admitted to hosp. on
> Thursday and
> > having the op. sometime this weekend. Due to complications, and
> specifically
> > risk of a blood clot (which I had one in Dec - both lungs - that
> possibly
> > travelled from my leg), the surgeon told me I'm in "that grey
> area" between
> > elective surgery and emergency surgery. Initially I had thought to
> try for
> > the J-Pouch surgery if offered but I'm too ill, there is a 4 month
> waiting
> > list and my surgeon and Dr's are sure I would have a clot by then
> and not
> > last w/out needing an emergency op. However, this can still be an
> option for
> > me in the future but for now I will have the ileostomy and might
> even opt to
> > keep it permanently. We'll see! I was told the surgeon usually
> does this
> > surgery "keyhole" but that since he didn't mention it to me, I
> have to
> > assume I'm too ill for that and will have the full cut so he can
> uh, well,
> > go in, get it and get out" I suppose. (That's how I grocery shop!
> *G*) The
> > stoma nurse made him sound like Zorro with a scalpel. :)
> >
> > I'm quite positive. I'm wearing a "baggy" around the house today
> and feel
> > fortunate to have some say in where my stoma will be positioned.
> Truth is,
> > there is only one place it feels right in so I guess that's the
> spot!
> >
> > Well that's my rambling intro. I guess I will be back post-
> surgery. I am
> > supposed to be having root canal work on my tooth (due to steroid
> damage)
> > tomorrow but guess it will be a temp. filling now. I also have a
> head cold
> > and so I'm like that saying - "I only have one other speed and
> it's slower".
> > But I'm too tired to be anything other than calm and calm is good.
> Naturally
> > I'm not worried about leaving my teenage son in charge of our
> home... I
> > mean, I will have morphine, right? =oP
> >
> > Hope you are all safe and well. See you online soon/soonish. :)
> >
> > ~Hugs~
> > Vanessa
> >
>