Hi nessa I dont have an ostomy but my husband does. Please if your
son would like to talk to someone in the same position as himself
may be I can help . There must be all sorts of questions he would
like to ask but is too afraid to ask you so you are not upset . I
know its a bit late to answer and you probably wont get this until
youre home but I hope all goes well for you
Rach

--
- In ukostomysupport@yahoogroups.com, "♥ Vanessa ♥ "
<kismetz_angel@...> wrote:
>
>
>
>        
> My name's Vanessa altho' I answer to all variations of it - Ness,
Nessa,
> Nessie etc. :) I live in the UK.
>
> I was told a couple of months ago that surgery would be my only
option. I
> have had UC (pancolitis) for 18 months and am, unfortunately,
> steroid-dependant. I chose not to take steroids while I waited for
surgery.
> I'm still taking 125 mgs Imuran and 3 grams Pentasa daily.
Originally I had
> an appt. to see a surgeon next month but it was brought fwd
suddenly to
> Monday (yesterday) and now I am being admitted to hosp. on
Thursday and
> having the op. sometime this weekend. Due to complications, and
specifically
> risk of a blood clot (which I had one in Dec - both lungs - that
possibly
> travelled from my leg), the surgeon told me I'm in "that grey
area" between
> elective surgery and emergency surgery. Initially I had thought to
try for
> the J-Pouch surgery if offered but I'm too ill, there is a 4 month
waiting
> list and my surgeon and Dr's are sure I would have a clot by then
and not
> last w/out needing an emergency op. However, this can still be an
option for
> me in the future but for now I will have the ileostomy and might
even opt to
> keep it permanently. We'll see! I was told the surgeon usually
does this
> surgery "keyhole" but that since he didn't mention it to me, I
have to
> assume I'm too ill for that and will have the full cut so he can
uh, well,
> go in, get it and get out" I suppose. (That's how I grocery shop!
*G*) The
> stoma nurse made him sound like Zorro with a scalpel. :)
>
> I'm quite positive. I'm wearing a "baggy" around the house today
and feel
> fortunate to have some say in where my stoma will be positioned.
Truth is,
> there is only one place it feels right in so I guess that's the
spot!
>
> Well that's my rambling intro. I guess I will be back post-
surgery. I am
> supposed to be having root canal work on my tooth (due to steroid
damage)
> tomorrow but guess it will be a temp. filling now. I also have a
head cold
> and so I'm like that saying - "I only have one other speed and
it's slower".
> But I'm too tired to be anything other than calm and calm is good.
Naturally
> I'm not worried about leaving my teenage son in charge of our
home... I
> mean, I will have morphine, right? =oP
>
> Hope you are all safe and well. See you online soon/soonish. :)
>
> ~Hugs~
> Vanessa
>